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fightforfreedom

(4,913 posts)
Wed Mar 2, 2022, 08:36 AM Mar 2022

Update on my melanoma.

I just met the surgeon who is going to remove the melanoma from my face. He said I have an aggressive form of melanoma that is very unusually. There were no warning signs. It was discovered by accident. I had a small cyst removed from my cheek bone. The cyst was tested and it was normal. Soon afterwards the doctor had to go back in to remove some scar tissue. The scar tissue tested positive for melanoma.

The doctor said the cyst and the melanoma are not connected, it was a coincidence. Usually a flat dark spot will form on your skin when you get melanoma. I had no warning.

In a couple of weeks they are going to cut out the melanoma, which is in a bad spot right below my eye. They are going to give some type of scan to see if it has spread. That's the key, if it hasn't spread I could live many more years. If it has spread I will be in trouble.

I asked him if my face will be deformed because they are going to have to cut out a pretty big section of my face. He said, this is what I do for living and I'm good at it. He said it will look bad for a while, but over time my face will look fairly normal.

All of the doctors are calling this very unusual. I joke with them saying, I have always been an unusual guy.

57 replies = new reply since forum marked as read
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Update on my melanoma. (Original Post) fightforfreedom Mar 2022 OP
I hope that the news will ultimately be good. femmedem Mar 2022 #1
Me, too! ShazzieB Mar 2022 #16
Sending good thoughts that you have a favorable outcome. Irish_Dem Mar 2022 #2
Good luck!! Nt USALiberal Mar 2022 #3
Best of luck. It sounds very frightening. Walleye Mar 2022 #4
I hope the PT scan shows no spread. sinkingfeeling Mar 2022 #5
I'm surprised they're waiting two weeks. ificandream Mar 2022 #6
Sending you all good vibes for a complete and cancer-free recovery. secondwind Mar 2022 #7
I hope you'll get good news Laurelin Mar 2022 #8
Blessings of good health and healing to you Wicked Blue Mar 2022 #9
Holding positive thoughts that your scans are negative and you can get livetohike Mar 2022 #10
K&R spanone Mar 2022 #11
Good luck! Your positive attitude will surely be an asset in this challenge. NNadir Mar 2022 #12
Sorry you have the aggressive kind! Richluu Mar 2022 #13
I'vd heard this too about casyor oil SheltieLover Mar 2022 #26
Best wishes for a successful operation, pazzyanne Mar 2022 #14
Sending positive thoughts for good news from the scan, successful surgery and complete healing. skylucy Mar 2022 #15
Positive vibes continually coming your way. AngryOldDem Mar 2022 #17
My wishes for the best possible outcome. TNNurse Mar 2022 #18
Wishing you my very best. We are here for you. FM123 Mar 2022 #19
Good luck, Bettie Mar 2022 #20
Sending hugs and most positive vibes for the very best outcome. niyad Mar 2022 #21
Good luck. Hoping for the best. mountain grammy Mar 2022 #22
God bless you man. You are a trooper for the cause and we need you around here. Mr. Ected Mar 2022 #23
Thank you, I want to live long enough to see Trump and his enablers go down. fightforfreedom Mar 2022 #49
Good luck with your surgery. Sending good vibes your way for quick recovery and no more cancer. Lonestarblue Mar 2022 #24
Stay positive man. And take care of yourself -- do as much of what you enjoy KPN Mar 2022 #25
Healing vibes on the way! 💗💗💗 SheltieLover Mar 2022 #27
What level is it? lark Mar 2022 #28
Wishing you the very best!! 7wo7rees Mar 2022 #29
The dermatologist just found a skin cancer on my husband's face, but said it's not aggressive. Karadeniz Mar 2022 #30
Sending you prayers 🙏🏽 for the best possible outcomes. live love laugh Mar 2022 #31
Damn fightforfreedom.......I had a brother and a sister both die of that horrible cancer.... a kennedy Mar 2022 #32
May all go well sarge43 Mar 2022 #33
I am so sorry you re going through this. I hope for the best outcome for you. Fla Dem Mar 2022 #34
Oh wow! That is lucky to have found but sorry you are going through this AllyCat Mar 2022 #35
Good luck! cate94 Mar 2022 #36
Hoping for a good outcome for you AmBlue Mar 2022 #37
My husband had the same thing on his face and they radiated it. It is now gone flying_wahini Mar 2022 #38
As is my practice, I've said a prayer for you. hamsterjill Mar 2022 #39
Good luck. I was lucky with my melanoma... Wounded Bear Mar 2022 #40
Hoping for the best! question everything Mar 2022 #41
I wish the best for you! Happy Hoosier Mar 2022 #42
I had a rare form of melanoma 16 years ago PlanetBev Mar 2022 #43
Prayers for you! colorado_ufo Mar 2022 #44
Holding you in my heart for the very best outcome: no spread, clean margins, woodsprite Mar 2022 #45
Hope everything works out malaise Mar 2022 #46
Fingers crossed and sending hugs MLAA Mar 2022 #47
Remember, my friend.... PlanetBev Mar 2022 #48
I will, thanks. fightforfreedom Mar 2022 #51
I hope you get good news from what I'm assuming is a PET Scan. Ace Rothstein Mar 2022 #50
Good luck LetMyPeopleVote Mar 2022 #52
What a very scary situation! brer cat Mar 2022 #53
The good news on melanoma: even if it spreads, it may be curable. mainer Mar 2022 #54
I hope you have a good outcome. murielm99 Mar 2022 #55
Scary situation and hoping for the best for you mvd Mar 2022 #56
Good luck... orwell Mar 2022 #57

ificandream

(9,369 posts)
6. I'm surprised they're waiting two weeks.
Wed Mar 2, 2022, 08:57 AM
Mar 2022

My melanoma surgery (on a spot on my nose) was done a couple of days after they found it. You might see if you can request they do it sooner. And best of luck to you. I'll be praying for you.

livetohike

(22,140 posts)
10. Holding positive thoughts that your scans are negative and you can get
Wed Mar 2, 2022, 09:06 AM
Mar 2022

on with the healing from the surgery.

Richluu

(80 posts)
13. Sorry you have the aggressive kind!
Wed Mar 2, 2022, 09:11 AM
Mar 2022

Trust the surgery. My basal cell removal over my tear duct used a skin graft.

Cancers live on sugar, so reduce, eliminate, and replace granulated sugar. Use castor oil on the melanoma site now and after, once your wound heals. Castor oil reduces skin cancer spots. My basal cell got so small you could barely see it, and that made the surgery spot much smaller. Luck and blessings on you!

TNNurse

(6,926 posts)
18. My wishes for the best possible outcome.
Wed Mar 2, 2022, 09:22 AM
Mar 2022

My face cancers have been basal cell. When I had Mohs surgery for the one (I thought) right next to my nose (almost in my eye), they found two different unrelated basal cell spots...it was a surprise to all. Cancer is sneaky and lurks in odd places.

Mr. Ected

(9,670 posts)
23. God bless you man. You are a trooper for the cause and we need you around here.
Wed Mar 2, 2022, 09:32 AM
Mar 2022

You'll kick this thing like we kicked Trump's ass in 2020. I can't wait to hear your account of Trump getting his ass handed to him again in 2024.

 

fightforfreedom

(4,913 posts)
49. Thank you, I want to live long enough to see Trump and his enablers go down.
Wed Mar 2, 2022, 12:05 PM
Mar 2022

It all comes down to how far it has spread. This was a hidden sneak attack. You would think an aggressive melanoma would show on your skin. My skin looks normal. No pain, no nothing.

KPN

(15,642 posts)
25. Stay positive man. And take care of yourself -- do as much of what you enjoy
Wed Mar 2, 2022, 09:52 AM
Mar 2022

most, spend time with those you appreciate and love most over these next two weeks. You got this!

We’ll be sending good vibes your way in the meantime.

lark

(23,094 posts)
28. What level is it?
Wed Mar 2, 2022, 10:08 AM
Mar 2022

I had a level zero melanoma and several pre=melanomas or moles with melanoma changes over the years so have researched this extensively. I also had a friend whose life partner died with it and we discussed this extensively. The level is critical.

I think they have more treatments now than they used to 20 years ago so hopefully those will work well for you.

7wo7rees

(5,128 posts)
29. Wishing you the very best!!
Wed Mar 2, 2022, 10:11 AM
Mar 2022

I know it is scary. I'm glad your doc is confident.
I am in year 5 of throat cancer survival with no chemo or radiation!! I got lucky and was blessed with an amazing team.
For healing my doc reccomended Mederma scar creme. There is a daytime one with sunscreen and a nightime one, MedermaPM. It is on the expensive side, $35+ per tube, but oh so worth it!!
Also, check out Essaic Tea. The owner of natural health store recc'd to me and AHCC, mushroom mycelia extract. Broccoli sprouts, curcumin/tumeric and manuka honey......
And absolutely cut out sugar!!
Healing vibes and lots of good will your way!!
Ms7wo7rees

Karadeniz

(22,510 posts)
30. The dermatologist just found a skin cancer on my husband's face, but said it's not aggressive.
Wed Mar 2, 2022, 10:16 AM
Mar 2022

We were worried while awaiting the biopsy results, so in our minds we lived the anxiety you're now facing. The discovery of yours is like it was meant to be discovered! Sounds like your doctor knows what he's doing... don't worry about aesthetics !!!!!!!!

a kennedy

(29,655 posts)
32. Damn fightforfreedom.......I had a brother and a sister both die of that horrible cancer....
Wed Mar 2, 2022, 10:23 AM
Mar 2022

🙏🏻 ♥️ 🙏🏻 ♥️ 🙏🏻 ♥️

AmBlue

(3,110 posts)
37. Hoping for a good outcome for you
Wed Mar 2, 2022, 10:42 AM
Mar 2022

But do ask them to have it done sooner. Two weeks is a long time to wait and worry if it is as aggressive as they are saying.

All the best and do keep us posted.

flying_wahini

(6,589 posts)
38. My husband had the same thing on his face and they radiated it. It is now gone
Wed Mar 2, 2022, 10:45 AM
Mar 2022

And the scar looks like a shiny dime. Best luck to you with yours.

hamsterjill

(15,220 posts)
39. As is my practice, I've said a prayer for you.
Wed Mar 2, 2022, 10:46 AM
Mar 2022

Wishing you the best, and hoping you can find some calm during this storm. It’s hard to face this. Do try to give yourself some time for some distraction and enjoyment. Hard to do, I release. But it’s good for mind, body and soul.

Wounded Bear

(58,647 posts)
40. Good luck. I was lucky with my melanoma...
Wed Mar 2, 2022, 10:55 AM
Mar 2022

at first they took the spot off my back, about an inch across. They tested that, then had me back in to remove a hand-sized patch of skin off my back.

Fortunately, the edges of that were clean and I never had to go back. That was 20 some years ago. Hell, I didn't even need chemo or any other treatment. I do go back for a dermatologist check annually. Check that, at my last visit they said come back in two years.

I keep an eye on my skin these days and I avoid the sun for the most part, but I had it pretty easy. I hope yours goes as well.

PlanetBev

(4,104 posts)
43. I had a rare form of melanoma 16 years ago
Wed Mar 2, 2022, 11:00 AM
Mar 2022

It’s called amelanotic melanoma and shows up as pink. It was first diagnosed as a rash by a primary care doctor. It never went away, so a few months later I looked at it under a magnifying glass and it had scales on it. I went to a dermatologist who also didn’t think it was melanoma but he took it out to be sure. When I got the call at my work a week later, I almost passed out.

The doctor cleared his schedule and they had me in the office in one week. I went through a wide local excision but the pathology showed the cells were too close to the margins. I was turned over to an oncological surgeon who did the surgery in the hospital. It was stage 1, but getting close to stage 2. It was on my left arm and is called “left-sided melanoma” which was attributed to driving for 37 years in the hot California sun beating down on my arm through the window.

The whole episode shared the shit out of me, but I never needed any treatment after that. Given that I was cut into twice, it left a hell of a scar, but I consider it a battle scar.

That said, do try to see if they can get you in earlier. I don’t think you need the extra stress of waiting for more than is necessary. And, I might add, even on the 16 years that have passed, they’re made even more advances in treating melanoma. My very best wishes to you, FF.



woodsprite

(11,911 posts)
45. Holding you in my heart for the very best outcome: no spread, clean margins,
Wed Mar 2, 2022, 11:23 AM
Mar 2022

and no further treatment needed.

I'm 11 days out from the treatment phase of my own yearlong cancer journey. Mine was unusual in that it was a recurrence after 15 yrs and in a place that was only detected by accident. I was shocked with the diagnosis as were the drs involved. The best advice I can give in getting through it is to choose a care team that you trust and feel comfortable with and look at each step as a process you need to get through to make it back to full health. Sometimes those steps were broken down into the smallest of steps, but I felt if I looked at it that way, I kept moving forward. I spent a year saying "I just need to get through this next appt (next few hours, next week, next cycle, etc.) -- But it got me through it all.

Sending the most positive thoughts and prayers your way!

mainer

(12,022 posts)
54. The good news on melanoma: even if it spreads, it may be curable.
Wed Mar 2, 2022, 01:03 PM
Mar 2022

Because of recent advances in immunotherapy, we can now achieve actual cures, depending on your particular cell type.

Jimmy Carter's melanoma is cured -- even though he had brain metastases.
My dear friend had metastatic melanoma spread to his spine. It's now been almost 5 years since diagnosis -- thanks to immunotherapy -- and he's still alive and kicking.

mvd

(65,173 posts)
56. Scary situation and hoping for the best for you
Thu Mar 3, 2022, 02:49 AM
Mar 2022

Heal well. It sounds like you have an attitude that could only help.

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