Louisiana Toddler Who Battled Disease Dies in Mother's Arms
Louisiana Toddler Who Battled Disease Dies in Mother's Arms
The tiny toddler whose struggle against a devastating disease inspired thousands has died.
Tripp Roth, who was diagnosed with junctional epidermolysis bullosa at birth, died Saturday in the arms of his mother, Courtney Roth, who had chronicled her life with Tripp in the popular blog, "EBing a Mommy."
"He was exactly 2 years and 8 months old," Roth wrote. "It happened within minutes of me picking him up out of bed and rocking him. He took his last peaceful breaths in my arms, in his most favorite spot. My heart literally hurts more than I ever thought was possible."
Despite her grief, the Ponchatoula, La., mom asked readers to be grateful that her son is now at peace.
"I know he's flying high, pain free, and talking Jesus' ear off," she wrote.
http://abcnews.go.com/Health/tripp-roth-louisiana-toddler-disease-battle-inspired-thosands/story?id=15365445
The condition was brought to public attention in the UK through the Channel 4 documentary The Boy Whose Skin Fell Off, chronicling the life and death of Jonny Kennedy, an English man with EB.[3]
"Butterfly Children" is a term often used to describe younger patients because the skin is said to be as fragile as a butterfly’s wings.[4]
Children with the condition have also been described as "Cotton Wool Babies," [5][6] and in South America, "Crystal Skin Children" is the term used.[7]
http://en.wikipedia.org/wiki/Epidermolysis_bullosa
Watched the video at the link, cannot imagine.
Would that we spent as much on looking for cures as we did wars.
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