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uppityperson

(115,677 posts)
Sat Jan 11, 2014, 07:11 PM Jan 2014

Ethics of mechanical/ life support vs family/patient wishes

There are 2 cases currently in the news involving people's wishes, and their family's wishes and legal/medical decisions. One of the classes I took first year nursing school was about ethics in health care. There are legally mandated actions and ethical actions. Sometimes they fit closely, other times they jar.

In the first case a girl's family wanted to keep her on life support while legally they were being denied that. The second case involves a young woman whose family wants her taken off life support, while legally they are being denied that.

My question to DUers is not to argue the merits of either of these cases, to decide how dead those involved are, but to question the ethics of denying person via the family the right to autonomy, to decide what health care they wanted. My question is not to ask if it is legal, but is it ethical, in your opinion?

Is it ethical to go against a person's wishes, either previously stated or not, and/or the family's wishes?

It is ethical to keep someone on life support against their and their family's wishes?
It is ethical to take someone off life support against their and their family's wishes?
Both are ethical or unethical?

ETA, I should have written mechanical/life support, please consider my questions as that.


3 votes, 2 passes | Time left: Unlimited
Both are ethical
0 (0%)
It is ethical to do one of those but unethical to do the other
1 (33%)
Both are unethical
2 (67%)
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Disclaimer: This is an Internet poll
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Ethics of mechanical/ life support vs family/patient wishes (Original Post) uppityperson Jan 2014 OP
I am my mother's proxy and she made clear to me that if there is no real hope for recovery then no hrmjustin Jan 2014 #1
It can be a very hard thing to do, much nicer being on the caregiver side than family side, uppityperson Jan 2014 #3
The good thing is she is recovering. hrmjustin Jan 2014 #4
That is good. Parents are hard to come by these days. uppityperson Jan 2014 #5
Yes they are. hrmjustin Jan 2014 #6
My mother said if she ever woke up in a hospital on a vent Warpy Jan 2014 #7
My mom always says she will haunt me if I make her linger. hrmjustin Jan 2014 #8
It depends....and of course you are gonna want an example. MADem Jan 2014 #2
when somebody is brain-dead, it is not "life support." magical thyme Jan 2014 #9
Then make it mechanical support. Consider it the same for this poll, thanks. uppityperson Jan 2014 #10
the family that wanted their daughter's body kept on the ventilator got their wish magical thyme Jan 2014 #11
Thanks, that is my take also. If they were willing to take responsibility, up to them. uppityperson Jan 2014 #12
I agree. In both cases the family should be deciding, not the hospital or the State. n/t pnwmom Jan 2014 #13
With modern medicine growing by leaps and bounds justiceischeap Jan 2014 #14
Walt Disney being frozen IS an urban legend....albeit a persistant one LongTomH Jan 2014 #16
I think it's always better if the family makes the decision davidpdx Jan 2014 #15
It is possible for it to be unethical to keep the body on support DevonRex Jan 2014 #17
I didn't vote because I find the poll choices to be inadequate... Humanist_Activist Jan 2014 #18
one kick uppityperson Jan 2014 #19
 

hrmjustin

(71,265 posts)
1. I am my mother's proxy and she made clear to me that if there is no real hope for recovery then no
Sat Jan 11, 2014, 07:20 PM
Jan 2014

heroic measures and no life support.

She had many surgeries this year and we joked all year that I get to pull the plug. She has a great sense of humor.

uppityperson

(115,677 posts)
3. It can be a very hard thing to do, much nicer being on the caregiver side than family side,
Sat Jan 11, 2014, 07:40 PM
Jan 2014

still not easy.

Warpy

(111,169 posts)
7. My mother said if she ever woke up in a hospital on a vent
Sat Jan 11, 2014, 07:49 PM
Jan 2014

she'd die out of sheer spite and come back and haunt me.

My dad was a little less forthcoming, but when he said he was tired and wanted to go, I assembled the troops so he could talk to them and make himself DNR.

In the case in Texas, they're giving a fetus which is 10 weeks away from barely possible viability more rights than the woman, her husband, or her family. Clearly, this is nuts.

And yeah, Texas is now a state I wouldn't want to be caught dead in.

MADem

(135,425 posts)
2. It depends....and of course you are gonna want an example.
Sat Jan 11, 2014, 07:23 PM
Jan 2014

I don't blame you!!

Say you have a person who has always insisted that they want everything possible done to spare their life, but, while unmedicated for a psychiatric condition not immediately apparent, signs a DNR, and then things go wobbly.

The family of this person knows that were the individual compliant with their course of medications they never would have signed the DNR. They can show you videos and letters of the guy saying as much, but they don't have anything as "solid" as that recently signed DNR.

I'd hesitate. I can't lie. I'd feel like shit obeying my "last order first" on what might appear to be a technicality.

 

magical thyme

(14,881 posts)
9. when somebody is brain-dead, it is not "life support."
Sat Jan 11, 2014, 08:01 PM
Jan 2014

"Whole brain dead" is as dead as "cardiac dead." Mechanical support of a lifeless body is not life support.

 

magical thyme

(14,881 posts)
11. the family that wanted their daughter's body kept on the ventilator got their wish
Sat Jan 11, 2014, 08:14 PM
Jan 2014

I don't think it would be right to force that particular hospital to keep the body on the ventilator until it completely broke down, and apparently the judge agreed. But the judge also required the family to take full responsibility for moving their daughter's body and finding a place to move it to. So I think that is for the best.

So I vguess I vote that it is unethical to force either situation.

uppityperson

(115,677 posts)
12. Thanks, that is my take also. If they were willing to take responsibility, up to them.
Sat Jan 11, 2014, 08:48 PM
Jan 2014

If they had to move her to another facility, they needed time and support to get it done. Or home.

justiceischeap

(14,040 posts)
14. With modern medicine growing by leaps and bounds
Sat Jan 11, 2014, 09:38 PM
Jan 2014

we're going to come across situations like this more often. The real question to be asked is should you keep someone "alive" just because you can? What about quality of life? It kinda reminds me of Walt Disney having his head frozen, waiting on the day for medicine to transplant it. Those were his wishes, so his head is being frozen (unless that's an urban myth). If the power is given to the next of kin to make decisions when it comes to life support, then there shouldn't be exceptions where the hospital or state government or federal government should intervene--unless there are very valid reasons to do so (for example, a spouse or family member is a suspect in the harming of said individual). But in the case of the Texas woman, where they are specifically keeping her on "life" support to see if the baby will become viable, because lets be honest, this is nothing more than a ghoulish experiment by the anti-choicer's, then I think we really need to address this legislatively.

LongTomH

(8,636 posts)
16. Walt Disney being frozen IS an urban legend....albeit a persistant one
Sat Jan 11, 2014, 10:12 PM
Jan 2014

His ashes are interred at Forest Lawn:

A long-standing urban legend maintains that Disney was cryonically frozen, and that his frozen corpse was stored beneath the Pirates of the Caribbean ride at Disneyland, but Disney's remains were cremated on December 17, 1966, and his ashes interred at the Forest Lawn Memorial Park in Glendale, California. The first known human cryonic freezing was in January 1967, more than a month after Disney's death.

According to "at least one Disney publicist", as reported in the French magazine Ici Paris in 1969, the source of the rumor was a group of Disney Studio animators with "a bizarre sense of humor" who were playing a final prank on their late boss.

His daughter Diane wrote in 1972, "There is absolutely no truth to the rumor that my father, Walt Disney, wished to be frozen. I doubt that my father had ever heard of cryonics."


davidpdx

(22,000 posts)
15. I think it's always better if the family makes the decision
Sat Jan 11, 2014, 09:56 PM
Jan 2014

rather than the hospital or the government. The question for me always comes down to prognosis and the family's wish.

My vote is both are unethical.

Both of the cases mentioned I disagree with what is being done. The girl was dead and her family was allowed to drag her corpse around which is sick. The pregnant woman is being used as a incubator and (to borrow the words of Mark Garagos) is ghoulish.

DevonRex

(22,541 posts)
17. It is possible for it to be unethical to keep the body on support
Sat Jan 11, 2014, 10:37 PM
Jan 2014

after brain death. Sometimes the body deteriorates fairly soon (decays). Brain death is not a coma or vegetative state. In that case it can be unethical to continue past a certain point for obvious reasons.

 

Humanist_Activist

(7,670 posts)
18. I didn't vote because I find the poll choices to be inadequate...
Sun Jan 12, 2014, 01:30 PM
Jan 2014

For example, is it ethical to keep a brain dead person on mechanical support until their body breaks down on its own, which can take up months. Tying up a ventilator that can be better used on a patient with a chance for recovery, along with tying up the time for staff.

Generally we should cede to any request of a patient or patient's family, unless it is not in the patient's best interests.

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