HomeLatest ThreadsGreatest ThreadsForums & GroupsMy SubscriptionsMy Posts
DU Home » Latest Threads » Forums & Groups » Main » General Discussion (Forum) » In need of prayers, good ...

Thu May 8, 2014, 05:44 PM

In need of prayers, good feelings any thing that might help. I have written about my severely

disabled daughter her often. She has seizures, developmental disability and digestive problems. Does not talk, can no longer walk, needs full care. I cared for her for the first 45 years of her life and she is now in a foster home at the age of 56.

For the last year she has gone from 8-10 seizures a month to 2 a month. Several days ago she had a terrible seizure. It lasted 12 minutes and she was rigid during the whole thing scraping the inside of her arms and other damage. We have no idea what is happening to her or why. Have a full physical scheduled in two days.

Please pray for her or whatever form of thoughts you use in emergencies. Her name is Terri. Thank you.

118 replies, 22250 views

Reply to this thread

Back to top Alert abuse

Always highlight: 10 newest replies | Replies posted after I mark a forum
Replies to this discussion thread
Arrow 118 replies Author Time Post
Reply In need of prayers, good feelings any thing that might help. I have written about my severely (Original post)
jwirr May 2014 OP
KT2000 May 2014 #1
a kennedy May 2014 #2
Lifelong Protester May 2014 #3
Wait Wut May 2014 #4
elleng May 2014 #5
alsame May 2014 #6
Squinch May 2014 #7
Coventina May 2014 #8
frylock May 2014 #9
newfie11 May 2014 #10
louslobbs May 2014 #11
WinkyDink May 2014 #12
msanthrope May 2014 #13
shenmue May 2014 #14
freshwest May 2014 #15
sheshe2 May 2014 #16
LineReply .
JI7 May 2014 #17
kairos12 May 2014 #18
In_The_Wind May 2014 #19
StarryNite May 2014 #20
calimary May 2014 #21
HangOnKids May 2014 #22
winter is coming May 2014 #23
rurallib May 2014 #24
onecaliberal May 2014 #25
Sassysdad May 2014 #26
brer cat May 2014 #27
pnwmom May 2014 #28
malaise May 2014 #29
DUgosh May 2014 #30
historylovr May 2014 #31
NYC_SKP May 2014 #32
secondwind May 2014 #33
HockeyMom May 2014 #34
FailureToCommunicate May 2014 #35
WillowTree May 2014 #36
magical thyme May 2014 #37
lovemydog May 2014 #38
hopemountain May 2014 #39
democrank May 2014 #40
cilla4progress May 2014 #41
Mnemosyne May 2014 #42
mcar May 2014 #43
fadedrose May 2014 #44
Marshall III May 2014 #45
KoKo May 2014 #46
TBF May 2014 #47
meti57b May 2014 #48
LiberalEsto May 2014 #49
Peacetrain May 2014 #50
Mz Pip May 2014 #51
Lint Head May 2014 #52
locks May 2014 #53
jwirr May 2014 #58
nomorenomore08 May 2014 #69
gademocrat7 May 2014 #54
Starry Messenger May 2014 #55
DeSwiss May 2014 #56
Iwillnevergiveup May 2014 #57
Auntie Bush May 2014 #59
grasswire May 2014 #60
pacalo May 2014 #61
lunasun May 2014 #62
Boomerproud May 2014 #63
840high May 2014 #64
PADemD May 2014 #65
Demo_Chris May 2014 #66
libodem May 2014 #67
cherokeeprogressive May 2014 #68
nomorenomore08 May 2014 #70
RainDog May 2014 #71
demigoddess May 2014 #104
sueh May 2014 #72
spanone May 2014 #73
Ilsa May 2014 #74
PumpkinAle May 2014 #75
stevil May 2014 #76
Tuesday Afternoon May 2014 #77
alittlelark May 2014 #78
Jenoch May 2014 #79
Unknown Beatle May 2014 #80
Hekate May 2014 #81
unionthug777 May 2014 #82
mia May 2014 #83
myrna minx May 2014 #84
appacom May 2014 #85
MannyGoldstein May 2014 #86
sorefeet May 2014 #87
Gothmog May 2014 #88
irisblue May 2014 #89
cntrygrl May 2014 #90
Jefferson23 May 2014 #91
jwirr May 2014 #93
Jefferson23 May 2014 #94
jwirr May 2014 #92
merrily May 2014 #95
jwirr May 2014 #99
merrily May 2014 #100
LineReply .
warrior1 May 2014 #96
Amaril May 2014 #97
rhett o rick May 2014 #98
MynameisBlarney May 2014 #101
DesertDiamond May 2014 #102
LoisB May 2014 #103
peace13 May 2014 #105
jwirr May 2014 #106
AlaneGrayGoddess May 2014 #107
jwirr May 2014 #110
ladyVet May 2014 #108
jwirr May 2014 #109
liberal_at_heart May 2014 #111
jwirr May 2014 #114
lunatica May 2014 #112
jwirr May 2014 #113
McCamy Taylor May 2014 #115
deek May 2014 #116
jwirr May 2014 #117
jwirr May 2014 #118

Response to jwirr (Original post)

Thu May 8, 2014, 05:47 PM

1. Will do -

sending good thoughts and best wishes to Terri. To you too!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:47 PM

2. Positive thoughts and hugs....

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:48 PM

3. I will send positive thoughts

and prayers your way.

I'm not sure if this helps, but as I read this a lovely ruby-throated hummingbird came up to my feeder-so I am sending the good feeling from seeing that your way (I'm sorry if that seems a little 'out there' but I see nature as healing).

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:48 PM

4. I will send all the positive thoughts I can...

...to Terri, and to you. I can't imagine.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:49 PM

5. WITH you and Terri, jwirr.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:50 PM

6. Sending positive

vibes and hugs for Terri - and for you too

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:50 PM

7. Absolutely.

Hang in there jwirr. I wish you and Terri health and peace, and quick relief from this terrible worry

45 years is amazing. There is nothing harder, and you did it for 45 years.

You are in my thought.



Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:51 PM

8. Holding both of you in my heart.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:53 PM

9. positive thoughts coming your way

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:54 PM

10. Done. Nt

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:55 PM

11. Keeping you in our thoughts here in CA. May you find peace in this difficult struggle and we wish

all the best for Terri. I can't even Imagine how painful this is for everyone involved.
With heartfelt thoughts and love,
Lou and family

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:56 PM

12. {{{Terri and you, jwirr}}}

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 05:57 PM

13. Positive thoughts!!!! nt

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:02 PM

14. Lord have mercy

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:02 PM

15. ((((HUGS Terri and jwirr))))

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:04 PM

16. For you jwirr and Terri.

{{{{ }}}}}

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:04 PM

17. .

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:04 PM

18. Strength and peace to you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:09 PM

19. My positive thoughts are with you and your daughter.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:13 PM

20. Positive thoughts...

to Terri and you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:13 PM

21. Damn. I'm so sorry to hear this.

All I can say is - I certainly will keep you in my prayers. I know we all will. I just wish we could do more.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:16 PM

22. For Terri

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:19 PM

23. Prayers for both of you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:27 PM

24. My most sincere hopes for your daughter

and of course for you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:29 PM

25. Definitely will

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:39 PM

26. Thoughts

 

and prayers.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:41 PM

27. Will do, jwirr.

Praying for both of you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:42 PM

28. Thoughts and prayers for Terri, and for you, jwirr.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:43 PM

29. Sending good vibes for Terri

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:56 PM

30. Yes

Yes I will.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 06:56 PM

31. Will do.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:00 PM

32. Good vibes to Terri, what a beautiful child.

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:02 PM

33. Awwww... my heart goes out to you! I will surely send out a prayer to the powers that be, to be

vigilant over Terri...

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:08 PM

34. My good vibes go out to BOTH of you

 

Your daughter is so, so fortunate to have a parent like you. From your post, I will assume you must be a Senior yourself. Having worked with adults with these special needs, I know how difficult it is, especially for someone who is older themselves.

Your love for your daughter has gotten her this far in her life. You are a wonderful parent. Good vibes to BOTH of you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:08 PM

35. Prayers... and more prayers for your strength!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:08 PM

36. Consider it done. Also, consider it ongoing........for both of you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:14 PM

37. more healing vibes headed your way, for Terri and for you...

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:14 PM

38. Sending good thoughts

to you and your daughter jwirr!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:23 PM

39. good thoughts to you and your loved ones

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:23 PM

40. Bless you, jwirr.

And bless Terri.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:25 PM

41. Blessings.

...

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:26 PM

42. ...

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:29 PM

43. Positive thoughts to your dear daughter

And to you jwirr for your love, support and strength.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:32 PM

44. I hurt for you...

and will ask Whatever it is that listens...to help Terri, you and your family...

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:39 PM

45. Prayers, certainly.

 

For comfort and strength.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:42 PM

46. Sending you good thoughts wishes and (((vibes))) for Terri..

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:49 PM

47. Sending you both positive vibes

and lots of virtual hugs ((Judy and Terri))

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:55 PM

48. May she be healed.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 07:58 PM

49. so sorry ... good vibes to you and your daughter

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:02 PM

50. We will keep Terri and all her family in our thoughts and prayers

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:07 PM

51. ...

⭐️

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:09 PM

52. Peace to her. I know it has to be frustrating.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:13 PM

53. Thinking of you and your daughter

Over 100 families from around the world have moved to Colorado so that their children who have uncontrolled seizures could be given a strain of cannabis high in CBD and low in TCH. It is called Charlotte's Web after 7 yr old Charlotte Figi from Colorado Springs whose parents had tried every possible medicine and whose life literally has been saved by taking this strain of cannabis in oil form. It has helped so many that it is getting amazing publicity. Please refer to Realm of Caring and CNN for more information.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to locks (Reply #53)

Thu May 8, 2014, 08:35 PM

58. Yes, MN Senate has voted to legalize medical mj for that very reason. I have been lobbying our

reps. That may be one of the hopes we have.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to locks (Reply #53)

Thu May 8, 2014, 09:46 PM

69. Have you considered making an OP about this subject? It's certainly important enough. n/t

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:13 PM

54. Sending healing thoughts and prayers.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:14 PM

55. (((Hugs)))

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:29 PM

56. K&R

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:32 PM

57. Jwirr, the care, love and devotion

you have shown your daughter for so many years qualifies you for sainthood. I'm sending positive, healing thoughts your way for Terri. And for you, peace and comfort in the knowledge of your incredible good deeds as her mother. Please report back to us on the outcome of Terri's physical. We care about you both.

(((((Terri))))) (((((jwirr)))))

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:35 PM

59. Sending healing prayers and good thoughts to Terri.

Bless you too jwirr...get some sleep tonight and good luck with her physical.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 08:50 PM

60. check your PM, jwirr nt

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:02 PM

61. That must be a mountain of worries for you, jwirr.

I'll pray for both Terri & you. I hope the physical will reveal to the doctor how to help Terri.

I'm so sorry for your pain.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:08 PM

62. Be well Teri !

hope it was a one time experience
For the last year she has gone from 8-10 seizures a month to 2 a month. that is a good thing

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:09 PM

63. Sending prayers for healing to your daughter

and prayers for strength to you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:21 PM

64. Prayers for you and Terri.

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:33 PM

65. Sending Reiki energy to Terri

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:34 PM

66. Good vibes. nt

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:41 PM

67. Love and light

Sent your way.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:45 PM

68. Prayers and good vibes for you and Terri.

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:47 PM

70. Good thoughts to your family. Whatever happens, I hope her suffering is minimized

as much as possible.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 09:49 PM

71. You are yours are in my thoughts

Are you aware of the reports among parents with children with epilepsy and autism about the positive results of medical marijuana for those with these issues?

also - marijuana causes remission of symptoms in Crohn's disease and is also used for people with IBS.

For someone in such a situation, simply eating a small amount of marijuana butter before sleep would be enough to see if your daughter would benefit.

http://www.epilepsycolorado.org/index.php?s=10784&item=5985

http://www.cghjournal.org/article/S1542-3565(13)00604-6/abstract

Reply to this post

Back to top Alert abuse Link here Permalink


Response to RainDog (Reply #71)

Fri May 9, 2014, 10:52 AM

104. I second this

I have a 42 year old severely handicapped daughter with many of the same problems you describe. Marijuana butter has been a real help. Adding to the prescription drugs that did not complete the job, she has been happier, not hitting herself nearly as much and eating better.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 10:08 PM

72. (((hugs))) and prayers for you and Terri.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 10:09 PM

73. .....

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 10:31 PM

74. I'll pray for Terri.


I'll keep it up, too.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 11:28 PM

75. Sending you and Teri

Love, Light, Positive thoughts and hugs.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 11:36 PM

76. Prayers for Terri

Love

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Thu May 8, 2014, 11:36 PM

77. sending positive vibes, healing energy and peacful prayers to Terri and you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 12:02 AM

78. ......

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 12:14 AM

79. You are indeed a special mom

 

who has taken care of of a special child for so many years.

My family and I will this Sunday will be praying for peace for your daughter.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 03:29 AM

80. Prayers and positive thoughts

to you and Terri.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 03:37 AM

81. Best wishes for you both in this hard situation

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 05:07 AM

82. best wishes to both of you !!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 05:23 AM

83. Best wishes for you both.

You'll be in my thoughts and prayers today.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 05:35 AM

84. My heart is with you both.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 06:33 AM

85. Blessings to you and your family.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 06:46 AM

86. God bless you and Terri

 

So much love for your daughter. To have a child with disabilities is such heartbreak, so difficult.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 07:35 AM

87. At least try a CBD adjunct

call Colorado and have someone send you an extract of cannabis cbd or drive there and get some. You are a wonderful caring and amazing person and you owe it to your daughter, yourself and the many others with the same problem. If it works, great, spread the news. After 56 years I would have to know the answer It has worked for hundreds, just maybe it will work for Terri.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 07:48 AM

88. Your daughter will be in my prayers

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 07:55 AM

89. (((vibes)))

for both of you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 08:33 AM

90. This is so sad. Prayers sent. n/t

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 08:44 AM

91. I am so sorry to hear your loved one can't live with you with all the assistance she and you deserve

I hope for her and you the results of her physical finds her some relief.

For Terri, may you receive all the help you need and to you jwirr, the strength to endure
such a painful time as you stand by her.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to Jefferson23 (Reply #91)

Fri May 9, 2014, 08:53 AM

93. We actually had a lot of assistance and I am very grateful for those years. What ended with her

going into a foster home was that I cannot lift and move her anymore. One blessing I was able to totally train her foster family into taking care of her my way. We have also had very good doctors and health care. There are benefits to being poor when there is an illness in the family.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Reply #93)

Fri May 9, 2014, 08:56 AM

94. I am glad to hear you had relief, you both deserve it, very much so.

Peace and all the best to your daughter and you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 08:49 AM

92. Many thanks for the love. So far she has not had another seizure. And this time her foster parents

are ready to help her with the damage that was done to her arms, etc. We had never seen a seizure like this before. She has always had 5 different kinds of seizures - mostly under control except the one kind. This came as a complete surprise especially when she had seemed to actually getting better.

When we go to the physical we will get Dilantin levels and that will help us understand some of it. I hope.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 09:35 AM

95. Wishing and praying for blessings.

I cannot imagine how worried you must be.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to merrily (Reply #95)

Fri May 9, 2014, 09:54 AM

99. Yes, when she was small the doctors told me her life expectancy would be 30 years old. Medicine

has improved since then but that is what I fear that it is her time and we will not be able to do anything about it. I also thought I was prepared. Ha.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Reply #99)

Fri May 9, 2014, 09:57 AM

100. I doubt anyone can ever be prepared, even for the passing of a beloved parent,

let alone one's child.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 09:42 AM

96. .

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 09:48 AM

97. {{{Terri}}} {{{jwirr}}}

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 09:48 AM

98. My best wishes for you daughter and family. nm

 

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 10:03 AM

101. Sending positive vibes your way!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 10:07 AM

102. Sending Nam Myoho Renge Kyo to Terri right now! Please post updates.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 10:09 AM

103. Positive thoughts coming your way.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 02:44 PM

105. I send both of you love and energy!

 

I am so sorry to hear this news.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 05:04 PM

106. So far she has not had another seizure like that one. I am going to be out of touch for the weekend

and will get back to all of you wonderful people on Sunday evening. Thank you for all of your concern.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 9, 2014, 05:23 PM

107. Seizures

Please research "Ketonic Diet". Look up 'The Charlie Foundation" Good luck.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to AlaneGrayGoddess (Reply #107)

Sun May 11, 2014, 01:44 PM

110. Thank you.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Sat May 10, 2014, 04:39 AM

108. Terri and I are the same age...

Sending energy and strength to you both, that you may be able to handle whatever comes.

My ex-husband has a cousin who was born profoundly mentally disabled, and was not expected to live more than a couple of years. She is in her sixties, and sometimes I think she will outlive me. Until recently, she lived at home (her mother has passed now), with some help from caretakers for several years now, and is loved and cherished by her family, and those who know her.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to ladyVet (Reply #108)

Sun May 11, 2014, 01:44 PM

109. Thank you for your wishes.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Sun May 11, 2014, 02:01 PM

111. Are you in a state where medical marijuana is legal?

The strain Charlotte's Web has been shown to dramatically decrease seizures. I hope Terri gets better.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to liberal_at_heart (Reply #111)

Sun May 11, 2014, 08:10 PM

114. No, our senate voted yes but the house has not yet addressed it.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Sun May 11, 2014, 02:05 PM

112. You got it!

Positive vibes going Terri's way!

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Sun May 11, 2014, 08:08 PM

113. No more seizures like that one and I think she is safe for now. The physical did not show any other

problems so we are just assuming that she had a fever or something like that. For now it is going to just be wait and see.

Thank you DU. This is truly our home away from home. We care about each other. This is a good place to be.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Sun May 11, 2014, 08:35 PM

115. Prayers for Terri.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Mon May 12, 2014, 01:22 AM

116. Sending positive thoughts your way

I also have a daughter who has severe disabilities. She is 30 yrs old and has had prolonged seizures. Perhaps hormonal changes? I often overlooked non-disability related causes for various changes, but learned it's just sometimes due to a "normal" stuff.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to deek (Reply #116)

Mon May 12, 2014, 09:01 AM

117. Yes, that is what we are looking at now also.

Reply to this post

Back to top Alert abuse Link here Permalink


Response to jwirr (Original post)

Fri May 23, 2014, 10:27 AM

118. Went to Terri's staffing yesterday. She looks great except older. Each time I see her I notice that.

She was alert and happy . No more of the really bad type of seizure and blood levels for Dilantin seem to be stable. We are starting to track a new behavior that will be used to lobby for persons who are not deaf or blind but rely on signing to communicate. We have begun recognizing many more actions she uses to communicate her needs and as we talked about it we realized she uses them in both of the locations she spends her days. One interesting thing is that her primary physician says he envies Terri's labs as they are better than most of his patients. This despite the seizures.

She recognizes me by my voice since I often call and talk to her over the speaker phone.

Reply to this post

Back to top Alert abuse Link here Permalink

Reply to this thread