Thu May 8, 2014, 05:44 PM
jwirr (39,215 posts)
In need of prayers, good feelings any thing that might help. I have written about my severely
disabled daughter her often. She has seizures, developmental disability and digestive problems. Does not talk, can no longer walk, needs full care. I cared for her for the first 45 years of her life and she is now in a foster home at the age of 56.
For the last year she has gone from 8-10 seizures a month to 2 a month. Several days ago she had a terrible seizure. It lasted 12 minutes and she was rigid during the whole thing scraping the inside of her arms and other damage. We have no idea what is happening to her or why. Have a full physical scheduled in two days. Please pray for her or whatever form of thoughts you use in emergencies. Her name is Terri. Thank you.
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118 replies, 22250 views
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Author | Time | Post |
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jwirr | May 2014 | OP |
KT2000 | May 2014 | #1 | |
a kennedy | May 2014 | #2 | |
Lifelong Protester | May 2014 | #3 | |
Wait Wut | May 2014 | #4 | |
elleng | May 2014 | #5 | |
alsame | May 2014 | #6 | |
Squinch | May 2014 | #7 | |
Coventina | May 2014 | #8 | |
frylock | May 2014 | #9 | |
newfie11 | May 2014 | #10 | |
louslobbs | May 2014 | #11 | |
WinkyDink | May 2014 | #12 | |
msanthrope | May 2014 | #13 | |
shenmue | May 2014 | #14 | |
freshwest | May 2014 | #15 | |
sheshe2 | May 2014 | #16 | |
JI7 | May 2014 | #17 | |
kairos12 | May 2014 | #18 | |
In_The_Wind | May 2014 | #19 | |
StarryNite | May 2014 | #20 | |
calimary | May 2014 | #21 | |
HangOnKids | May 2014 | #22 | |
winter is coming | May 2014 | #23 | |
rurallib | May 2014 | #24 | |
onecaliberal | May 2014 | #25 | |
Sassysdad | May 2014 | #26 | |
brer cat | May 2014 | #27 | |
pnwmom | May 2014 | #28 | |
malaise | May 2014 | #29 | |
DUgosh | May 2014 | #30 | |
historylovr | May 2014 | #31 | |
NYC_SKP | May 2014 | #32 | |
secondwind | May 2014 | #33 | |
HockeyMom | May 2014 | #34 | |
FailureToCommunicate | May 2014 | #35 | |
WillowTree | May 2014 | #36 | |
magical thyme | May 2014 | #37 | |
lovemydog | May 2014 | #38 | |
hopemountain | May 2014 | #39 | |
democrank | May 2014 | #40 | |
cilla4progress | May 2014 | #41 | |
Mnemosyne | May 2014 | #42 | |
mcar | May 2014 | #43 | |
fadedrose | May 2014 | #44 | |
Marshall III | May 2014 | #45 | |
KoKo | May 2014 | #46 | |
TBF | May 2014 | #47 | |
meti57b | May 2014 | #48 | |
LiberalEsto | May 2014 | #49 | |
Peacetrain | May 2014 | #50 | |
Mz Pip | May 2014 | #51 | |
Lint Head | May 2014 | #52 | |
locks | May 2014 | #53 | |
jwirr | May 2014 | #58 | |
nomorenomore08 | May 2014 | #69 | |
gademocrat7 | May 2014 | #54 | |
Starry Messenger | May 2014 | #55 | |
DeSwiss | May 2014 | #56 | |
Iwillnevergiveup | May 2014 | #57 | |
Auntie Bush | May 2014 | #59 | |
grasswire | May 2014 | #60 | |
pacalo | May 2014 | #61 | |
lunasun | May 2014 | #62 | |
Boomerproud | May 2014 | #63 | |
840high | May 2014 | #64 | |
PADemD | May 2014 | #65 | |
Demo_Chris | May 2014 | #66 | |
libodem | May 2014 | #67 | |
cherokeeprogressive | May 2014 | #68 | |
nomorenomore08 | May 2014 | #70 | |
RainDog | May 2014 | #71 | |
demigoddess | May 2014 | #104 | |
sueh | May 2014 | #72 | |
spanone | May 2014 | #73 | |
Ilsa | May 2014 | #74 | |
PumpkinAle | May 2014 | #75 | |
stevil | May 2014 | #76 | |
Tuesday Afternoon | May 2014 | #77 | |
alittlelark | May 2014 | #78 | |
Jenoch | May 2014 | #79 | |
Unknown Beatle | May 2014 | #80 | |
Hekate | May 2014 | #81 | |
unionthug777 | May 2014 | #82 | |
mia | May 2014 | #83 | |
myrna minx | May 2014 | #84 | |
appacom | May 2014 | #85 | |
MannyGoldstein | May 2014 | #86 | |
sorefeet | May 2014 | #87 | |
Gothmog | May 2014 | #88 | |
irisblue | May 2014 | #89 | |
cntrygrl | May 2014 | #90 | |
Jefferson23 | May 2014 | #91 | |
jwirr | May 2014 | #93 | |
Jefferson23 | May 2014 | #94 | |
jwirr | May 2014 | #92 | |
merrily | May 2014 | #95 | |
jwirr | May 2014 | #99 | |
merrily | May 2014 | #100 | |
warrior1 | May 2014 | #96 | |
Amaril | May 2014 | #97 | |
rhett o rick | May 2014 | #98 | |
MynameisBlarney | May 2014 | #101 | |
DesertDiamond | May 2014 | #102 | |
LoisB | May 2014 | #103 | |
peace13 | May 2014 | #105 | |
jwirr | May 2014 | #106 | |
AlaneGrayGoddess | May 2014 | #107 | |
jwirr | May 2014 | #110 | |
ladyVet | May 2014 | #108 | |
jwirr | May 2014 | #109 | |
liberal_at_heart | May 2014 | #111 | |
jwirr | May 2014 | #114 | |
lunatica | May 2014 | #112 | |
jwirr | May 2014 | #113 | |
McCamy Taylor | May 2014 | #115 | |
deek | May 2014 | #116 | |
jwirr | May 2014 | #117 | |
jwirr | May 2014 | #118 |
Response to jwirr (Original post)
Thu May 8, 2014, 05:47 PM
KT2000 (20,308 posts)
1. Will do -
sending good thoughts and best wishes to Terri. To you too!
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Response to jwirr (Original post)
Thu May 8, 2014, 05:47 PM
a kennedy (26,821 posts)
2. Positive thoughts and hugs....
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Response to jwirr (Original post)
Thu May 8, 2014, 05:48 PM
Lifelong Protester (8,421 posts)
3. I will send positive thoughts
and prayers your way.
I'm not sure if this helps, but as I read this a lovely ruby-throated hummingbird came up to my feeder-so I am sending the good feeling from seeing that your way (I'm sorry if that seems a little 'out there' but I see nature as healing). |
Response to jwirr (Original post)
Thu May 8, 2014, 05:48 PM
Wait Wut (8,492 posts)
4. I will send all the positive thoughts I can...
...to Terri, and to you. I can't imagine.
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Response to jwirr (Original post)
Thu May 8, 2014, 05:49 PM
elleng (121,838 posts)
5. WITH you and Terri, jwirr.
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Response to jwirr (Original post)
Thu May 8, 2014, 05:50 PM
alsame (7,784 posts)
6. Sending positive
vibes and hugs for Terri - and for you too
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Response to jwirr (Original post)
Thu May 8, 2014, 05:50 PM
Squinch (46,374 posts)
7. Absolutely.
Hang in there jwirr. I wish you and Terri health and peace, and quick relief from this terrible worry
45 years is amazing. There is nothing harder, and you did it for 45 years. You are in my thought. |
Response to jwirr (Original post)
Thu May 8, 2014, 05:51 PM
Coventina (24,987 posts)
8. Holding both of you in my heart.
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Response to jwirr (Original post)
Thu May 8, 2014, 05:53 PM
frylock (34,825 posts)
9. positive thoughts coming your way
Response to jwirr (Original post)
Thu May 8, 2014, 05:55 PM
louslobbs (2,950 posts)
11. Keeping you in our thoughts here in CA. May you find peace in this difficult struggle and we wish
all the best for Terri. I can't even Imagine how painful this is for everyone involved.
With heartfelt thoughts and love, Lou and family |
Response to jwirr (Original post)
Thu May 8, 2014, 05:56 PM
WinkyDink (51,311 posts)
12. {{{Terri and you, jwirr}}}
Response to jwirr (Original post)
Thu May 8, 2014, 05:57 PM
msanthrope (37,549 posts)
13. Positive thoughts!!!! nt
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Response to jwirr (Original post)
Thu May 8, 2014, 06:02 PM
shenmue (38,387 posts)
14. Lord have mercy
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Response to jwirr (Original post)
Thu May 8, 2014, 06:02 PM
freshwest (53,661 posts)
15. ((((HUGS Terri and jwirr))))
Response to jwirr (Original post)
Thu May 8, 2014, 06:04 PM
sheshe2 (77,619 posts)
16. For you jwirr and Terri.
{{{{
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Response to jwirr (Original post)
Thu May 8, 2014, 06:04 PM
kairos12 (11,922 posts)
18. Strength and peace to you.
Response to jwirr (Original post)
Thu May 8, 2014, 06:09 PM
In_The_Wind (72,300 posts)
19. My positive thoughts are with you and your daughter.
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Response to jwirr (Original post)
Thu May 8, 2014, 06:13 PM
StarryNite (8,600 posts)
20. Positive thoughts...
to Terri and you.
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Response to jwirr (Original post)
Thu May 8, 2014, 06:13 PM
calimary (73,912 posts)
21. Damn. I'm so sorry to hear this.
All I can say is - I certainly will keep you in my prayers. I know we all will. I just wish we could do more.
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Response to jwirr (Original post)
Thu May 8, 2014, 06:19 PM
winter is coming (11,785 posts)
23. Prayers for both of you.
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Response to jwirr (Original post)
Thu May 8, 2014, 06:27 PM
rurallib (60,283 posts)
24. My most sincere hopes for your daughter
and of course for you.
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Response to jwirr (Original post)
Thu May 8, 2014, 06:29 PM
onecaliberal (28,700 posts)
25. Definitely will
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Response to jwirr (Original post)
Thu May 8, 2014, 06:39 PM
Sassysdad (65 posts)
26. Thoughts
and prayers.
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Response to jwirr (Original post)
Thu May 8, 2014, 06:41 PM
brer cat (20,359 posts)
27. Will do, jwirr.
Praying for both of you.
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Response to jwirr (Original post)
Thu May 8, 2014, 06:42 PM
pnwmom (107,324 posts)
28. Thoughts and prayers for Terri, and for you, jwirr.
Response to jwirr (Original post)
Thu May 8, 2014, 06:43 PM
malaise (252,717 posts)
29. Sending good vibes for Terri
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Response to jwirr (Original post)
Thu May 8, 2014, 06:56 PM
DUgosh (2,985 posts)
30. Yes
Yes I will.
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Response to jwirr (Original post)
Thu May 8, 2014, 07:00 PM
NYC_SKP (68,644 posts)
32. Good vibes to Terri, what a beautiful child.
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Response to jwirr (Original post)
Thu May 8, 2014, 07:02 PM
secondwind (16,735 posts)
33. Awwww... my heart goes out to you! I will surely send out a prayer to the powers that be, to be
vigilant over Terri...
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Response to jwirr (Original post)
Thu May 8, 2014, 07:08 PM
HockeyMom (14,337 posts)
34. My good vibes go out to BOTH of you
Your daughter is so, so fortunate to have a parent like you. From your post, I will assume you must be a Senior yourself. Having worked with adults with these special needs, I know how difficult it is, especially for someone who is older themselves.
Your love for your daughter has gotten her this far in her life. You are a wonderful parent. Good vibes to BOTH of you. |
Response to jwirr (Original post)
Thu May 8, 2014, 07:08 PM
FailureToCommunicate (13,292 posts)
35. Prayers... and more prayers for your strength!
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Response to jwirr (Original post)
Thu May 8, 2014, 07:08 PM
WillowTree (5,324 posts)
36. Consider it done. Also, consider it ongoing........for both of you.
Response to jwirr (Original post)
Thu May 8, 2014, 07:14 PM
magical thyme (14,881 posts)
37. more healing vibes headed your way, for Terri and for you...
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Response to jwirr (Original post)
Thu May 8, 2014, 07:14 PM
lovemydog (11,833 posts)
38. Sending good thoughts
to you and your daughter jwirr!
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Response to jwirr (Original post)
Thu May 8, 2014, 07:23 PM
hopemountain (3,919 posts)
39. good thoughts to you and your loved ones
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Response to jwirr (Original post)
Thu May 8, 2014, 07:23 PM
democrank (10,383 posts)
40. Bless you, jwirr.
And bless Terri.
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Response to jwirr (Original post)
Thu May 8, 2014, 07:25 PM
cilla4progress (22,064 posts)
41. Blessings.
...
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Response to jwirr (Original post)
Thu May 8, 2014, 07:29 PM
mcar (40,342 posts)
43. Positive thoughts to your dear daughter
And to you jwirr for your love, support and strength.
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Response to jwirr (Original post)
Thu May 8, 2014, 07:32 PM
fadedrose (10,044 posts)
44. I hurt for you...
and will ask Whatever it is that listens...to help Terri, you and your family...
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Response to jwirr (Original post)
Thu May 8, 2014, 07:39 PM
Marshall III (69 posts)
45. Prayers, certainly.
For comfort and strength.
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Response to jwirr (Original post)
Thu May 8, 2014, 07:42 PM
KoKo (84,711 posts)
46. Sending you good thoughts wishes and (((vibes))) for Terri..
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Response to jwirr (Original post)
Thu May 8, 2014, 07:49 PM
TBF (31,869 posts)
47. Sending you both positive vibes
and lots of virtual hugs ((Judy and Terri))
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Response to jwirr (Original post)
Thu May 8, 2014, 07:55 PM
meti57b (3,584 posts)
48. May she be healed.
Response to jwirr (Original post)
Thu May 8, 2014, 07:58 PM
LiberalEsto (22,845 posts)
49. so sorry ... good vibes to you and your daughter
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Response to jwirr (Original post)
Thu May 8, 2014, 08:02 PM
Peacetrain (22,236 posts)
50. We will keep Terri and all her family in our thoughts and prayers
Response to jwirr (Original post)
Thu May 8, 2014, 08:09 PM
Lint Head (15,064 posts)
52. Peace to her. I know it has to be frustrating.
Response to jwirr (Original post)
Thu May 8, 2014, 08:13 PM
locks (2,005 posts)
53. Thinking of you and your daughter
Over 100 families from around the world have moved to Colorado so that their children who have uncontrolled seizures could be given a strain of cannabis high in CBD and low in TCH. It is called Charlotte's Web after 7 yr old Charlotte Figi from Colorado Springs whose parents had tried every possible medicine and whose life literally has been saved by taking this strain of cannabis in oil form. It has helped so many that it is getting amazing publicity. Please refer to Realm of Caring and CNN for more information.
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Response to locks (Reply #53)
Thu May 8, 2014, 08:35 PM
jwirr (39,215 posts)
58. Yes, MN Senate has voted to legalize medical mj for that very reason. I have been lobbying our
reps. That may be one of the hopes we have.
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Response to locks (Reply #53)
Thu May 8, 2014, 09:46 PM
nomorenomore08 (13,324 posts)
69. Have you considered making an OP about this subject? It's certainly important enough. n/t
Response to jwirr (Original post)
Thu May 8, 2014, 08:13 PM
gademocrat7 (9,807 posts)
54. Sending healing thoughts and prayers.
Response to jwirr (Original post)
Thu May 8, 2014, 08:14 PM
Starry Messenger (32,335 posts)
55. (((Hugs)))
Response to jwirr (Original post)
Thu May 8, 2014, 08:32 PM
Iwillnevergiveup (9,298 posts)
57. Jwirr, the care, love and devotion
you have shown your daughter for so many years qualifies you for sainthood. I'm sending positive, healing thoughts your way for Terri. And for you, peace and comfort in the knowledge of your incredible good deeds as her mother. Please report back to us on the outcome of Terri's physical. We care about you both.
(((((Terri))))) (((((jwirr))))) ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() |
Response to jwirr (Original post)
Thu May 8, 2014, 08:35 PM
Auntie Bush (17,528 posts)
59. Sending healing prayers and good thoughts to Terri.
Bless you too jwirr...get some sleep tonight and good luck with her physical.
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Response to jwirr (Original post)
Thu May 8, 2014, 08:50 PM
grasswire (50,130 posts)
60. check your PM, jwirr nt
Response to jwirr (Original post)
Thu May 8, 2014, 09:02 PM
pacalo (24,721 posts)
61. That must be a mountain of worries for you, jwirr.
I'll pray for both Terri & you. I hope the physical will reveal to the doctor how to help Terri.
I'm so sorry for your pain. ![]() |
Response to jwirr (Original post)
Thu May 8, 2014, 09:08 PM
lunasun (21,646 posts)
62. Be well Teri !
hope it was a one time experience
For the last year she has gone from 8-10 seizures a month to 2 a month. that is a good thing |
Response to jwirr (Original post)
Thu May 8, 2014, 09:09 PM
Boomerproud (6,671 posts)
63. Sending prayers for healing to your daughter
and prayers for strength to you.
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Response to jwirr (Original post)
Thu May 8, 2014, 09:21 PM
840high (17,196 posts)
64. Prayers for you and Terri.
Response to jwirr (Original post)
Thu May 8, 2014, 09:33 PM
PADemD (4,482 posts)
65. Sending Reiki energy to Terri
Response to jwirr (Original post)
Thu May 8, 2014, 09:34 PM
Demo_Chris (6,234 posts)
66. Good vibes. nt
Response to jwirr (Original post)
Thu May 8, 2014, 09:41 PM
libodem (19,288 posts)
67. Love and light
Sent your way.
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Response to jwirr (Original post)
Thu May 8, 2014, 09:45 PM
cherokeeprogressive (24,853 posts)
68. Prayers and good vibes for you and Terri.
Response to jwirr (Original post)
Thu May 8, 2014, 09:47 PM
nomorenomore08 (13,324 posts)
70. Good thoughts to your family. Whatever happens, I hope her suffering is minimized
as much as possible.
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Response to jwirr (Original post)
Thu May 8, 2014, 09:49 PM
RainDog (28,784 posts)
71. You are yours are in my thoughts
Are you aware of the reports among parents with children with epilepsy and autism about the positive results of medical marijuana for those with these issues?
also - marijuana causes remission of symptoms in Crohn's disease and is also used for people with IBS. For someone in such a situation, simply eating a small amount of marijuana butter before sleep would be enough to see if your daughter would benefit. http://www.epilepsycolorado.org/index.php?s=10784&item=5985 http://www.cghjournal.org/article/S1542-3565(13)00604-6/abstract |
Response to RainDog (Reply #71)
Fri May 9, 2014, 10:52 AM
demigoddess (6,482 posts)
104. I second this
I have a 42 year old severely handicapped daughter with many of the same problems you describe. Marijuana butter has been a real help. Adding to the prescription drugs that did not complete the job, she has been happier, not hitting herself nearly as much and eating better.
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Response to jwirr (Original post)
Thu May 8, 2014, 10:08 PM
sueh (1,716 posts)
72. (((hugs))) and prayers for you and Terri.
Response to jwirr (Original post)
Thu May 8, 2014, 10:31 PM
Ilsa (60,605 posts)
74. I'll pray for Terri.
![]() I'll keep it up, too. |
Response to jwirr (Original post)
Thu May 8, 2014, 11:28 PM
PumpkinAle (1,210 posts)
75. Sending you and Teri
Love, Light, Positive thoughts and hugs.
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Response to jwirr (Original post)
Thu May 8, 2014, 11:36 PM
stevil (1,513 posts)
76. Prayers for Terri
Love
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Response to jwirr (Original post)
Thu May 8, 2014, 11:36 PM
Tuesday Afternoon (56,912 posts)
77. sending positive vibes, healing energy and peacful prayers to Terri and you.
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Response to jwirr (Original post)
Fri May 9, 2014, 12:14 AM
Jenoch (7,720 posts)
79. You are indeed a special mom
who has taken care of of a special child for so many years.
My family and I will this Sunday will be praying for peace for your daughter. |
Response to jwirr (Original post)
Fri May 9, 2014, 03:29 AM
Unknown Beatle (2,641 posts)
80. Prayers and positive thoughts
to you and Terri.
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Response to jwirr (Original post)
Fri May 9, 2014, 03:37 AM
Hekate (81,686 posts)
81. Best wishes for you both in this hard situation
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Response to jwirr (Original post)
Fri May 9, 2014, 05:07 AM
unionthug777 (740 posts)
82. best wishes to both of you !!
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Response to jwirr (Original post)
Fri May 9, 2014, 05:23 AM
mia (8,170 posts)
83. Best wishes for you both.
You'll be in my thoughts and prayers today.
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Response to jwirr (Original post)
Fri May 9, 2014, 05:35 AM
myrna minx (22,772 posts)
84. My heart is with you both.
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Response to jwirr (Original post)
Fri May 9, 2014, 06:33 AM
appacom (296 posts)
85. Blessings to you and your family.
Response to jwirr (Original post)
Fri May 9, 2014, 06:46 AM
MannyGoldstein (34,589 posts)
86. God bless you and Terri
So much love for your daughter. To have a child with disabilities is such heartbreak, so difficult.
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Response to jwirr (Original post)
Fri May 9, 2014, 07:35 AM
sorefeet (1,241 posts)
87. At least try a CBD adjunct
call Colorado and have someone send you an extract of cannabis cbd or drive there and get some. You are a wonderful caring and amazing person and you owe it to your daughter, yourself and the many others with the same problem. If it works, great, spread the news. After 56 years I would have to know the answer It has worked for hundreds, just maybe it will work for Terri.
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Response to jwirr (Original post)
Fri May 9, 2014, 07:48 AM
Gothmog (124,300 posts)
88. Your daughter will be in my prayers
Response to jwirr (Original post)
Fri May 9, 2014, 07:55 AM
irisblue (30,129 posts)
89. (((vibes)))
for both of you.
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Response to jwirr (Original post)
Fri May 9, 2014, 08:33 AM
cntrygrl (356 posts)
90. This is so sad. Prayers sent. n/t
Response to jwirr (Original post)
Fri May 9, 2014, 08:44 AM
Jefferson23 (30,099 posts)
91. I am so sorry to hear your loved one can't live with you with all the assistance she and you deserve
I hope for her and you the results of her physical finds her some relief.
For Terri, may you receive all the help you need and to you jwirr, the strength to endure such a painful time as you stand by her. |
Response to Jefferson23 (Reply #91)
Fri May 9, 2014, 08:53 AM
jwirr (39,215 posts)
93. We actually had a lot of assistance and I am very grateful for those years. What ended with her
going into a foster home was that I cannot lift and move her anymore. One blessing I was able to totally train her foster family into taking care of her my way. We have also had very good doctors and health care. There are benefits to being poor when there is an illness in the family.
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Response to jwirr (Reply #93)
Fri May 9, 2014, 08:56 AM
Jefferson23 (30,099 posts)
94. I am glad to hear you had relief, you both deserve it, very much so.
Peace and all the best to your daughter and you.
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Response to jwirr (Original post)
Fri May 9, 2014, 08:49 AM
jwirr (39,215 posts)
92. Many thanks for the love. So far she has not had another seizure. And this time her foster parents
are ready to help her with the damage that was done to her arms, etc. We had never seen a seizure like this before. She has always had 5 different kinds of seizures - mostly under control except the one kind. This came as a complete surprise especially when she had seemed to actually getting better.
When we go to the physical we will get Dilantin levels and that will help us understand some of it. I hope. |
Response to jwirr (Original post)
Fri May 9, 2014, 09:35 AM
merrily (45,251 posts)
95. Wishing and praying for blessings.
I cannot imagine how worried you must be.
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Response to merrily (Reply #95)
Fri May 9, 2014, 09:54 AM
jwirr (39,215 posts)
99. Yes, when she was small the doctors told me her life expectancy would be 30 years old. Medicine
has improved since then but that is what I fear that it is her time and we will not be able to do anything about it. I also thought I was prepared. Ha.
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Response to jwirr (Reply #99)
Fri May 9, 2014, 09:57 AM
merrily (45,251 posts)
100. I doubt anyone can ever be prepared, even for the passing of a beloved parent,
let alone one's child.
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Response to jwirr (Original post)
Fri May 9, 2014, 09:48 AM
Amaril (1,267 posts)
97. {{{Terri}}} {{{jwirr}}}
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Response to jwirr (Original post)
Fri May 9, 2014, 09:48 AM
rhett o rick (55,981 posts)
98. My best wishes for you daughter and family. nm
Response to jwirr (Original post)
Fri May 9, 2014, 10:03 AM
MynameisBlarney (2,979 posts)
101. Sending positive vibes your way!
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Response to jwirr (Original post)
Fri May 9, 2014, 10:07 AM
DesertDiamond (1,616 posts)
102. Sending Nam Myoho Renge Kyo to Terri right now! Please post updates.
Response to jwirr (Original post)
Fri May 9, 2014, 10:09 AM
LoisB (4,013 posts)
103. Positive thoughts coming your way.
Response to jwirr (Original post)
Fri May 9, 2014, 02:44 PM
peace13 (11,076 posts)
105. I send both of you love and energy!
I am so sorry to hear this news.
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Response to jwirr (Original post)
Fri May 9, 2014, 05:04 PM
jwirr (39,215 posts)
106. So far she has not had another seizure like that one. I am going to be out of touch for the weekend
and will get back to all of you wonderful people on Sunday evening. Thank you for all of your concern.
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Response to jwirr (Original post)
Fri May 9, 2014, 05:23 PM
AlaneGrayGoddess (1 post)
107. Seizures
Please research "Ketonic Diet". Look up 'The Charlie Foundation" Good luck.
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Response to AlaneGrayGoddess (Reply #107)
Sun May 11, 2014, 01:44 PM
jwirr (39,215 posts)
110. Thank you.
Response to jwirr (Original post)
Sat May 10, 2014, 04:39 AM
ladyVet (1,587 posts)
108. Terri and I are the same age...
Sending energy and strength to you both, that you may be able to handle whatever comes.
My ex-husband has a cousin who was born profoundly mentally disabled, and was not expected to live more than a couple of years. She is in her sixties, and sometimes I think she will outlive me. Until recently, she lived at home (her mother has passed now), with some help from caretakers for several years now, and is loved and cherished by her family, and those who know her. |
Response to ladyVet (Reply #108)
Sun May 11, 2014, 01:44 PM
jwirr (39,215 posts)
109. Thank you for your wishes.
Response to jwirr (Original post)
Sun May 11, 2014, 02:01 PM
liberal_at_heart (12,081 posts)
111. Are you in a state where medical marijuana is legal?
The strain Charlotte's Web has been shown to dramatically decrease seizures. I hope Terri gets better.
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Response to liberal_at_heart (Reply #111)
Sun May 11, 2014, 08:10 PM
jwirr (39,215 posts)
114. No, our senate voted yes but the house has not yet addressed it.
Response to jwirr (Original post)
Sun May 11, 2014, 02:05 PM
lunatica (53,410 posts)
112. You got it!
Positive vibes going Terri's way!
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Response to jwirr (Original post)
Sun May 11, 2014, 08:08 PM
jwirr (39,215 posts)
113. No more seizures like that one and I think she is safe for now. The physical did not show any other
problems so we are just assuming that she had a fever or something like that. For now it is going to just be wait and see.
Thank you DU. This is truly our home away from home. We care about each other. This is a good place to be. |
Response to jwirr (Original post)
Sun May 11, 2014, 08:35 PM
McCamy Taylor (19,240 posts)
115. Prayers for Terri.
Response to jwirr (Original post)
Mon May 12, 2014, 01:22 AM
deek (3,414 posts)
116. Sending positive thoughts your way
I also have a daughter who has severe disabilities. She is 30 yrs old and has had prolonged seizures. Perhaps hormonal changes? I often overlooked non-disability related causes for various changes, but learned it's just sometimes due to a "normal" stuff.
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Response to deek (Reply #116)
Mon May 12, 2014, 09:01 AM
jwirr (39,215 posts)
117. Yes, that is what we are looking at now also.
Response to jwirr (Original post)
Fri May 23, 2014, 10:27 AM
jwirr (39,215 posts)
118. Went to Terri's staffing yesterday. She looks great except older. Each time I see her I notice that.
She was alert and happy . No more of the really bad type of seizure and blood levels for Dilantin seem to be stable. We are starting to track a new behavior that will be used to lobby for persons who are not deaf or blind but rely on signing to communicate. We have begun recognizing many more actions she uses to communicate her needs and as we talked about it we realized she uses them in both of the locations she spends her days. One interesting thing is that her primary physician says he envies Terri's labs as they are better than most of his patients. This despite the seizures.
She recognizes me by my voice since I often call and talk to her over the speaker phone. |