Parents hope 4-year-old with Hunter syndrome will one day roar like the little lion he is

[Omaha Steve]

REBECCA S. GRATZ / THE WORLD-HERALD
In a weekly ritual, Lindsay Austin administers enzyme replacement therapy to her son, Ryan, 4, who suffers from Hunter syndrome, at their home in Papillion. Dad Matt Austin holds an upset Ryan still while Lindsay accesses the port in his side. It’s a seven-hour process to administer the medication each week.


http://www.livewellnebraska.com/health/parents-hope--year-old-with-hunter-syndrome-will-one/article_d0e25eb6-52f4-5d09-a5a6-dc2ec4352f88.html

Posted: Thursday, October 15, 2015 12:30 am | Updated: 12:39 am, Thu Oct 15, 2015.
By Rick Ruggles / World-Herald staff writer

Ryan Austin’s family and friends call him a lion because of the gritty way he’s endured procedures, sickness and seven-hour drug infusions to fight his horrible disease.

But as his mother recently administered medication through a port, or hole, along his rib cage for his weekly marathon treatment, he was every bit a scared, wounded, perhaps angry 4-year-old.

“Oh, oh, oh!” he whimpered.

“I know,” his mother, Lindsay, said in a soothing voice. His father, Matt, held him tightly to prevent him from thrashing and rolling off the living-room cot his parents place him on for the weekly infusion of medication.

FULL story at link.


As 4-year-old Ryan Austin’s disease progresses, his parents Matt and Lindsay have watched his mental age lag.

[lamp_shade]

1. This is tearing (ripping) me up. Poor little fella.

[daleanime]

2. ........