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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsTeen needs 7 machines to live. Utility turns off power. Fireman pays $1000 electric bill
CLINTON TOWNSHIP, Michigan (March 18, 2016) When the call comes, firefighters like Ryan McCuen always rush in, never quite sure what theyll encounter.
On February 11, McCuen walked into this: a mother at wits end, a bedridden 18-year-old on a ventilator, his emergency battery power soon running out, and electricity to the home cut off by the local power company.
I just happened to be put in that spot to do what I was supposed to do, said 35-year-old McCuen. I was just doing what youre supposed to do.
They needed their bill paid
It started as a routine call in Michigan for Clinton Townships Engine 5, a nonemergency medical as firefighters call it.
What they found in the living room of this suburban Detroit double-wide mobile home was Troy Stone, who suffers Duchenne muscular dystrophy, a particularly debilitating variation of the muscle-wasting disease. Stone, who has limited movement of his limbs and is no longer able to breathe on his own, had a tracheotomy last December. His family has struggled financially, and they had fallen behind on payments to the local utility.
Christy Stone, Troys mother, said their electric bill has gone up threefold since Troy had the breathing tube inserted. It now takes seven machines, all running on electricity, to keep him alive.
Despite having a letter from their doctors office informing DTE Energy that there must be electrical power in the home to maintain
life support equipment, the power was still cut off.
http://fox59.com/2016/03/18/michigan-firefighter-pays-electric-bill-to-keep-teen-on-ventilator/
Christy Stone was astonished at the matter-of-factness of this firefighter she didnt even know.
Ryan was standing there and he looks at me and goes, Im going to pay your electric bill, and I was just like are you serious!?
He was, and he did.
Snapping a picture of her bill, McCuen paid it, all $1,023.76 of it.
A struggle to make ends meet
Stone and her husband, Guy, had been struggling for years to make ends meet. Together they have five children, and two of them suffer from Duchenne muscular dystrophy, a rare genetic condition affecting mostly males.
Stone watched her brother die from the disease and her son, who was otherwise healthy until he was around 8 years old, is now in steady decline; the muscles throughout his body, genetically robbed of a crucial protein, slowly ebbing away. Stones 15-year-old son Tyler, now using a wheelchair, suffers the same condition.
Guy Stone, who works in shipping and receiving, was out of work for a year-and-a-half. Hes been back at work for a year but with five kids, two with extreme health issues, catching up has not been easy.
In January, his pay was garnished because a car was repossessed when he was unemployed. That started a slide into further financial instability, the family sinking a little further into debt every month. Theyve had help along the way from friends and family, a local church and other organizations helping with everything from house and trailer-lot payments to food.
http://fox59.com/2016/03/18/michigan-firefighter-pays-electric-bill-to-keep-teen-on-ventilator/
https://www.gofundme.com/ssa9ruw4
CaliforniaPeggy
(149,517 posts)FreakinDJ
(17,644 posts)2010 during the height of the Great Recession too and I really needed the job.
Kalidurga
(14,177 posts)informing DTE Energy that there must be electrical power in the home to maintain
life support equipment, the power was still cut off.
Someone should lose their job over this. And have to pay fine something like $1,023.76, just an arbitrary number I chose, cuz I dunno how much people are fined for similar offenses. OTOH I think they should have to pay that fine several times a year. Just sayin, it could cover someone's electric bill.
Warpy
(111,124 posts)Letter is written, doctor doesn't sign it for some reason (emergency? early tee time?), nurse signs it, officious twit bucking for promotion at the electric company thinks a nurse isn't good enough and sends out the order to cut the power off, kid's life is threatened.
It's doubly sad because the poor kid doesn't have a lot of time left.
DTE calls it an "unfortunate incident." How sensitive of them.
dixiegrrrrl
(60,010 posts)"As a leading corporate citizen, we recognize our responsibility to our communities."
Fortunately, there are a lot of comments below that taking them to task for what they did to the kid.
https://www.facebook.com/dteenergy/
( I am really now appreciative of what a resource Facebook can be if used correctly)
Gormy Cuss
(30,884 posts)Last edited Sat Mar 19, 2016, 04:23 PM - Edit history (1)
and give the family X days to get the proper authorization.
What kind of cold hearted jerk would let a shutoff happen after reading the letter? For that matter, why is the cost of electricity to maintain these devices covered by the insurer? Oh right, because America.
Warpy
(111,124 posts)but I'll bet the rent it was some eager beaver shithead who's bucking for promotion by making his collections numbers look really good.
mythology
(9,527 posts)It's unfortunate that somebody at that company is such a dumbass. It's unfortunate that dumbass was in a position to do something this heartless and stupid. It's unfortunate that nobody in the company was willing to rectify the situation under the circumstances.
Hopefully the company can learn from this incident and remedy that situation.
Fantastic Anarchist
(7,309 posts)... or negligent homicide. They knew the kid needed electricity to live, yet deliberately cut off the power ...
dixiegrrrrl
(60,010 posts)They need a whole lot more comments, IMHO.
https://www.facebook.com/dteenergy/
Liberal_in_LA
(44,397 posts)area51
(11,894 posts)hate its citizens so much they would let this happen? If it hadn't been for this man, McCuen, Troy would've died. And of course we don't have healthcare as a basic human right.
PufPuf23
(8,753 posts)Disgusting.
The fireman is a good person; may he be happy and prosperous.
davidthegnome
(2,983 posts)Always a great thing when we see awesome human beings doing awesome things.
Liberal_in_LA
(44,397 posts)Hassin Bin Sober
(26,311 posts)I looks like the page has been up for a couple months.
But this story is recent. I assume the story kicked the fund I to high gear. I wonder how much they had prior.
Odin2005
(53,521 posts)Wounded Bear
(58,590 posts)but this shit shouldn't happen. This is fucking insane.
Liberal_in_LA
(44,397 posts)1monster
(11,012 posts)story link and go fund me link
Vinca
(50,236 posts)I can't even imagine what a hard life these people must have. The stress must be overwhelming.
Liberal_in_LA
(44,397 posts)LisaL
(44,972 posts)A carrier female shows no symptoms but if she passes onto her sons they will develop disease (which is why two of her sons have it).
panader0
(25,816 posts)I have to admit, that if I had a genetic disease, I would think very hard about having a child, let alone five.
PasadenaTrudy
(3,998 posts)That's all I can say.
Avalon Sparks
(2,560 posts)Just wanted you to know I was thinking the same thing.....I hate to sound like an asshole, but yes, why 5 kids? For anyone really, but especially for some one with that serious of a genetic marker.
I really do not begrudge any one having 1 or even 2 kids, even if they can't really afford them, or even if there's some serious genetic possibilities.
I know I'm not the boss of how many kids people should have, but having 4 or more to me seems excessive under any circumstances... Theses days....
I hate that I silently judge anyone that has more than 3 - for a bunch of reasons having to do with quality of life and also over population.... I just can't help it, I always immediately think "why would you do that, it's so vain". At least adopt some if you really want that many...
I chose not to have any though, and I am adopted, so what do I know....
panader0
(25,816 posts)The eldest is my step-son, and then my ex had a daughter, my first child, then twins.
Then I got snipped and stapled.
They're all grown and gone now. So I get my kid fix by looking at the little ones at the grocery store.
I just can't help loving the wee ones, so innocent and pure. I try to get a smile out of them.
Avalon Sparks
(2,560 posts)Sorry if I sounded judgemental, I wasn't considering step-kids!
Hell Hath No Fury
(16,327 posts)and every single one of them had a genetic disorder (can't remember which, it was a very long time ago) that caused their death by their early 20s. Family kept having kids even after they found the problem out. I knew the youngest daughter, who had watched all of her siblings die -- she was 18 when I first met her and was already showing signs of the disease. The parents viewed it as it was better to have 20 years then nothing, but I thought there was a profound bit of cruelty about the whole thing.
Kittycat
(10,493 posts)I was literally in tears reading this. So pissed that this country continues to make excuses for why we should continue making excuses for the status quo. This is a perfect example of our country, how our elected officials have failed us all through their illustrious greed. Fuck everyone that thinks any of us are going to continue bending over and taking it much longer. And while we of the shrinking middle and lower class continue to help families like this - here is what the class 1% did. They shut their power off while profiting.
And here are the politicians they gave to:
https://www.opensecrets.org/usearch/?q=Dte+energy&cx=010677907462955562473%3Anlldkv0jvam&cof=FORID%3A11
And who their Pac funded:
https://www.opensecrets.org/pacs/pacgot.php?cmte=C00081547&cycle=2016
Irony would have it, that the banner ad at the top of the screen reads "devil's cut".
Hassin Bin Sober
(26,311 posts).... I remind them our system is the best "leave a penny take a penny" system in the world.
How many times have you seen a charity change jar in a convenience store for some kid with cancer?
Rex
(65,616 posts)Poor kids. Money should never trump human life, but it does all the time.
ohnoyoudidnt
(1,858 posts)The person at the power company who was informed of the family's situation and apparently did nothing to help must have a very sick mind to be able to sleep at night.