now I am really scared. New tests to be ordered-test for leukemia and pancreatic cancer

[demtenjeep]

Jesus it just gets worse

maybe they should not make doctor notes and plans available before discussion takes place.

I am more scared now than I was before

https://www.gofundme.com/pamelas-crohns-disease-relief

[alittlelark]

1. "This is only a test"....

This kind of stuff can get really scary.... Just remember that they are ruling out problems 90% of the time...

Take a few really deep breaths.....

[sueh]

2. (((hugs))), demtenjeep. I don't know what to say.

[dixiegrrrrl]

3. For now, 3 things

1. A lot of tests are to "rule out" any possibility of something...they are "just in case" type tests. I recently have had several, they all came back negative.

2. You can save enormous amounts of money on prescribed drugs, esp. if you can get generic, using this site: goodrx.com.
I have gotten a year's worth of very expensive meds for mere pennies on the dollar. And in fact we filled 70.00 worth of other prescriptions today for 28.00

3. Do check out the cancer group here, lots of strength, wisdom, and tricks to cope with a serious illlness.

I hope the days get brighter for you soon.

[Hekate]

4. 5th Rec for visibility

[barbtries]

5. hang in there

all the best for a successful conference and curable diagnosis!

[demtenjeep]

6. I know. I probably don't understand everything

I do know that Leukemia is a risk with the infusions I have been getting for 8 + years

[noamnety]

10. That seems unlikely.

Q. Can leukemia be acquired through a blood transfusion?

A. Because there is no known cause of leukemia, the only way it could be acquired through a blood transfusion would be the the direct introduction of leukemic cells in the recipient. However, because the cells of a random donor would be seen as foreign, they would be immediately destroyed by the recipient. There is no evidence that leukemia has ever been acquired from a blood transfusion.

source: http://www.nationalcmlsociety.org/faq/general-leukemia-questions

[demtenjeep]

11. no-not transfusions. Chemical therapy infusions and leukemia has always been a risk

and when I first started them there was a lot of talk because my father died from leukemia

[noamnety]

12. Ah, I read infusion as transfusion

(obviously)

[LeftishBrit]

7. I hope all turns out well...

sometimes people just want to give every possible test to cover themselves.

[Skittles]

8. someone is always here for you demtenjeep

talk to us

[spanone]

9. ...

[hunter]

13. Waiting for lab results sucks.

I've experienced that a few times; my own, and my wife's.

I've lost some skin and my left testicle. Big deal. My beloved has lost more bits, by weight and biological importance, by much more invasive surgeries.

Or, you could be like my little brother... after some horrifying major surgeries and chemo therapies, lost body parts, and some truly awesome scars that make him look like the victim of a shark attack (his fellow surfers are always impressed!), he decided to quit having tests, decided to quit seeing doctors. My mom's hair turned gray. My hair fell out. My brother's hair grew back. Mine didn't.



I'm not like my brother. He lives enthusiastically for the day, for decades now, but I've suspicion maybe his survival is the luck of fools. Or God's Will, as our religiously insane relatives and in-laws believe. Even though my brother is not religious and occasionally anti-religious, more than I am.

Given choice, I usually choose to know what is going on.

[renate]

14. that does sound scary--I'm really sorry you're going through this

I'd be scared too--it's human nature to hate uncertainty, and when the thoughts going through your head are so dire, it's existentially awful.

I've been in your shoes (everything turned out fine--good test results really do happen) but I remember the terror and feeling of unreality. I wish I could give you a hug.

[Ilsa]

15. I'm hoping this will turn out well for you, demtenjeep.