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HipChick

(25,485 posts)
Mon Jul 10, 2017, 12:53 AM Jul 2017

Fmr. Rep. Donna Edwards: " Congress colleagues: I have MS. Don't make my insurance unaffordable


Dear colleagues in Congress,

I struggled over whether to write, but following the House passage of the American Health Care Act, and now the work that’s going on in the Senate,
As a member of Congress, I had pretty decent health care. After the passage of the Affordable Care Act — Obamacare — we were required to leave the Federal Employees Health Benefit Plan and go into the D.C. Health Exchange. I chose a gold-tier Blue Cross-Blue Shield plan with a $400-a-month premium (plus deductibles and copays) that enabled me to see all the specialists I needed. I finally got my diagnosis after nearly two months of tests and analysis. It came June 22, 2016 — the day of the House sit-in in support of gun-control legislation.
<Snip>
That morning, I went to the House floor to join the sit-in. But hours into our protest, the House attending physician called me to his office to tell me I had multiple sclerosis, an autoimmune disease that attacks the central nervous system. At first, I couldn’t process what he was saying. I thought I had a pinched nerve; I didn’t know anything about MS. Devastated, I blinked away my tears and went back to the chamber, where I stayed for the remainder of the evening.
A year later, I am no longer in Congress, and my future health care is uncertain. I am not employed, and I pay $800 a month for my COBRA coverage, which ends in June 2018. I’m not sure what I’ll do then. My medication, which has thankfully halted the progression of my MS, costs roughly $73,000 a year. I’ve had three sets of MRI scans and will require one each year to check my progress; that’s roughly $7,000 each. I admit, I do not completely understand all of the bills. It’s very confusing.

Unlike some of you, I am not wealthy. When I was younger, I had the experience of not having health insurance, and I almost lost my home after landing in the emergency room. One reason I ran for Congress was to help make sure no one would have to go through that, and I was proud to be one of the presiding officers when the Affordable Care Act passed. I did not think the law was perfect; I believed it was a good start. I never thought I could have to go back to a time when I would not have health-care coverage.
I’m worried that one day I will have to sell my home or spend my retirement savings on my health care. I don’t know what I will do next or whether I will run for public office again. I do know that my MS will not stop me. But not having health-care coverage because of my MS could stop me permanently.
Full Story:https://www.washingtonpost.com/opinions/to-my-colleagues-in-congress-i-have-ms-dont-make-my-insurance-unaffordable/2017/07/07/bd7bcaea-630b-11e7-8adc-fea80e32bf47_story.html
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Fmr. Rep. Donna Edwards: " Congress colleagues: I have MS. Don't make my insurance unaffordable (Original Post) HipChick Jul 2017 OP
;-( elleng Jul 2017 #1
A for effort, Glamrock Jul 2017 #2
KnR. Such courage. Hekate Jul 2017 #3
Her story is almost identical to mine (the dates, costs, past history, etc) BigmanPigman Jul 2017 #4
There are thousands facing similar problems malaise Jul 2017 #5
I'm sorry for your situation and for Donna's. I don't know what's wrong with Republicans. Vinca Jul 2017 #6

Glamrock

(11,787 posts)
2. A for effort,
Mon Jul 10, 2017, 01:43 AM
Jul 2017

But really? The GOP will listen to a black female Democrat? Appreciate the effort though and wish her the best.

BigmanPigman

(51,569 posts)
4. Her story is almost identical to mine (the dates, costs, past history, etc)
Mon Jul 10, 2017, 03:33 AM
Jul 2017

I hope they listen to a colleague's situation since they haven't been taking mine seriously for the past 6 months. I have been calling, writing, going to marches and die-ins. This stress is not good for my health either. I hate Ryan and McConnel and the rest of the GOP monsters.

malaise

(268,718 posts)
5. There are thousands facing similar problems
Mon Jul 10, 2017, 05:14 AM
Jul 2017

Meanwhile they want to tell women they can't have abortions while they take away healthcare from people with real needs.

Vinca

(50,237 posts)
6. I'm sorry for your situation and for Donna's. I don't know what's wrong with Republicans.
Mon Jul 10, 2017, 05:25 AM
Jul 2017

You'd think they all were in perfect health and could all afford great coverage.

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