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Omaha Steve

(99,589 posts)
Tue May 14, 2013, 05:59 AM May 2013

Angelina Jolie says she had double mastectomy

Source: AP-Excite

LOS ANGELES (AP) - Angelina Jolie says that she has had a preventive double mastectomy after learning she carried a gene that made it extremely likely she would get breast cancer.

The Oscar-winning actress and partner to Brad Pitt made the announcement in the form of an op-ed she authored for Tuesday's New York Times ( ) under the headline, "My Medical Choice." She writes that between early February and late April she completed three months of surgical procedures to remove both breasts.http://nyti.ms/17o4A0f

Jolie, 37, writes that she made the choice with thoughts of her six children after watching her own mother, actress Marcheline Bertrand, die too young from cancer.

"My mother fought cancer for almost a decade and died at 56," Jolie writes. "She held out long enough to meet the first of her grandchildren and to hold them in her arms. But my other children will never have the chance to know her and experience how loving and gracious she was."

FULL story at link.


Read more: http://apnews.excite.com/article/20130514/DA690BH02.html





Actress Angelina Jolie arrives for the British Gala premiere for the film 'Salt', at a central London cinema, in this Aug. 16, 2010 file photo. Jolie authored an op-ed for Tuesday’s May 14, 2013 New York Times where she writes that in April she finished three months of surgical procedures to remove both breasts as a preventive measure. She says she’s kept the process private but is writing about it now with hopes she can help other women. (AP Photo/Joel Ryan, File)

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Angelina Jolie says she had double mastectomy (Original Post) Omaha Steve May 2013 OP
Question for our medical experts shawn703 May 2013 #1
She had an 87% chance of getting breast cancer before surgery and 5% now lunatica May 2013 #4
Dear 5%: you're next. Deep13 May 2013 #53
Yes it is. Greybnk48 May 2013 #19
Not rare, and yes - it's done for high risk patients Dash87 May 2013 #23
women are getting it done for DCIS plus other risk factors zazen May 2013 #31
There are a few lineages that contain gene[s] that up the risk of breast cancer. Ashkenazi women byeya May 2013 #35
Certain people have genes which make them highly susceptible to various forms of cancer Yo_Mama May 2013 #36
A friend had this done in her 30% as pretty much every female relative older than that had had nasty uppityperson May 2013 #38
I guess that's why she was acting a fool in that Oscar dress geek_sabre May 2013 #2
That's an incredibly nasty thing to say lunatica May 2013 #3
And a lie. denem May 2013 #6
From the NY times OpEd (her words geek_sabre May 2013 #10
Subthread is useless without pictures. Here's her "leg dress" moment(s) Bucky May 2013 #16
Smart lady. Baitball Blogger May 2013 #26
Her surgery was done in 2013 - your "Oscar" moment was 2012. Your timeline & posts... Melinda May 2013 #43
Oversensitive, reactive comments are what make DU suck psychopomp May 2013 #50
Just an observation. At the time, I thought it was very much out of character; this would explain it geek_sabre May 2013 #7
Saying she made a fool of herself is "just an observation"? lunatica May 2013 #9
It was talked about incessantly for a couple of weeks after. Because it was funny/strange for her geek_sabre May 2013 #14
Funny i thought that was incredibly sexy... Locut0s May 2013 #59
Popular Celebrity Culture - WTF? denem May 2013 #5
I'm glad I read the story lunatica May 2013 #8
Many women don't know that testing is available or about the option Yo_Mama May 2013 #37
I agree. These "tracer" genes can happen to anyone, it seems. Eleanors38 May 2013 #40
Actually it is all over the news everywhere. And good for her for being so open. Warren Stupidity May 2013 #11
"I demand" - I think you can request, but demands only count if you have hostages. Bucky May 2013 #15
I have two posts killed in LBN denem May 2013 #17
Actually, this is about women and breast cancer Marrah_G May 2013 #30
It is about women and breast cancer, not about popular celebrity culture. What she had for uppityperson May 2013 #39
lol La Lioness Priyanka May 2013 #51
It is not as rare as you may think.... JustinBulletin May 2013 #12
I worked with a women who's Mom and Grandmother both died from BC. Walk away May 2013 #41
It would be great if all women could afford preventative health care... midnight May 2013 #13
+1000 nt abelenkpe May 2013 #24
She could indicate to congress how pricey this is, and how it's not affordable with the way the midnight May 2013 #25
That's what I tell my Medicare Mother.... peace13 May 2013 #28
I think your explanation is spot on... The insurance industry mantra has been selling midnight May 2013 #33
Ahem..........Wouldn't it? maddiemom May 2013 #29
Yes..... midnight May 2013 #34
But PROpaganda makes SENSE, so we don't. Occulus May 2013 #69
+1,000,000!!!!!!!!!!!!! Walk away May 2013 #42
brca2 tova May 2013 #18
Thanks for sharing your experience and courageous choice. Hope you're doing well now. appacom May 2013 #56
Wow. That's a courageous decision. Faygo Kid May 2013 #20
A wise decision on her part. It allows you to control the circumstances of surgery mainer May 2013 #21
My goodness, how times have changed.. Flora May 2013 #22
I wish her the best! hrmjustin May 2013 #27
I'm a guy but I have to assume deciding to have your breasts removed... Bay Boy May 2013 #32
It would be a tough decision... neversaydie May 2013 #66
My heart goes out to her and any woman who had to make such a tough decision. Beacool May 2013 #44
This makes me sad. AngryAmish May 2013 #45
Preventive mastectomies allow the surgeon to save the nipples, creating an attractive result. SunSeeker May 2013 #46
I think it involved courage. David__77 May 2013 #54
Brave woman! smirkymonkey May 2013 #47
Indeed, tough decision. Deep13 May 2013 #52
totally apart from whether it was necessary, I have more respect for her because of her reason yurbud May 2013 #48
This from a friend of mine regarding this procedure.... GoneOffShore May 2013 #49
This message was self-deleted by its author Dash87 May 2013 #61
My friend has had a double mastectomy - And works in medicine. GoneOffShore May 2013 #62
I'm sorry then. I must have misunderstood. Dash87 May 2013 #63
No worries - There's a lot of stuff floating around on the 'net re this. GoneOffShore May 2013 #64
not sure I agree completely... neversaydie May 2013 #67
K&Ring.... DeSwiss May 2013 #55
OK Everybody. When I grew up, breast cancer was whispered about. spiderpig May 2013 #57
Good christx30 May 2013 #58
My wife had this surgery 2 1/2 years ago Bombero1956 May 2013 #60
I don't think that I could have done that AnnieBW May 2013 #65
can I just say one more thing.... neversaydie May 2013 #68

shawn703

(2,702 posts)
1. Question for our medical experts
Tue May 14, 2013, 06:58 AM
May 2013

I'm sure this procedure as a preventative measure is pretty rare, since I would be surprised if insurance would pay for it unless there was cancer present - but is this something a doctor would recommend to a patient simply based on genetics?

lunatica

(53,410 posts)
4. She had an 87% chance of getting breast cancer before surgery and 5% now
Tue May 14, 2013, 07:26 AM
May 2013

They pinpointed the bad gene. I think that will end up being a huge help to a lot of women who have relatives with breast cancer. This is actually really good news and I'm glad she's talking about it.

Greybnk48

(10,167 posts)
19. Yes it is.
Tue May 14, 2013, 08:05 AM
May 2013

As a former surgical tech and someone that knows a family of women who have had this done, it is recommended when necessary. And I think insurance covers it, but someone else may know the true answer to that part of it.

Dash87

(3,220 posts)
23. Not rare, and yes - it's done for high risk patients
Tue May 14, 2013, 09:07 AM
May 2013

Otherwise, they will more than likely get cancer.

zazen

(2,978 posts)
31. women are getting it done for DCIS plus other risk factors
Tue May 14, 2013, 10:15 AM
May 2013

Extreme breast density combined w/ certain types of precursor lesions are about as high risk as the gene (estimates of 60-70% by one Mayo clinic study), and certainly as high risk as family history, and if you want a double mastectomy with reconstruction in those circumstances it's typically covered, even though, eg, no one's found anything amiss in your contralateral breast.

Some people (docs and patients) are arguing that this is overtreatment and hysteria, but as long as women are informed as to the latest research, I'm glad we can freely make whatever decision feels most right for us.

Now that one can get pretty amazing cosmetic outcomes, the whole terror-that-I'm-losing-my-femininity stuff has largely abated.

 

byeya

(2,842 posts)
35. There are a few lineages that contain gene[s] that up the risk of breast cancer. Ashkenazi women
Tue May 14, 2013, 10:40 AM
May 2013

are one of these groups. If the gene[s] is not present, the risk is no greater than the general population Fortunately, a fairly inexpensive test is now available to determine if you are at risk.
I think it's a positive thing for people in the public eye to make known these seldom-discussed but vitally important matters.

Yo_Mama

(8,303 posts)
36. Certain people have genes which make them highly susceptible to various forms of cancer
Tue May 14, 2013, 11:09 AM
May 2013

There's one gene out there, for example, which makes it very likely that you will develop kidney cancer. There's at least one which makes it almost certain that you will develop colon cancer.

The gene complex she had makes it extremely likely that she would develop breast cancer and greatly increases the risk of ovarian cancer. A lot of insurances will pay for such surgery for younger women, especially since some states require coverage:
http://ww5.komen.org/BreastCancer/PreventiveSurgery.html
http://breastreconstructionnetwork.com/will-my-insurance-company-pay-for-a-mastectomy-to-reduce-my-risk-of-breast-cancer/

There is a federal law which requires that if insurance covers the mastectomy, it must also cover reconstructive surgery.

It is much cheaper to do preventative mastectomies than to treat disseminated cancer, so generally most insurance cos in the US do cover this for higher risk individuals.

uppityperson

(115,677 posts)
38. A friend had this done in her 30% as pretty much every female relative older than that had had nasty
Tue May 14, 2013, 11:46 AM
May 2013

type of breast cancer. She was bummed about the whole situation and ended up not being able to get prosthesis after also. But dramatically decreased her chance of getting the cancer.

geek_sabre

(731 posts)
2. I guess that's why she was acting a fool in that Oscar dress
Tue May 14, 2013, 07:08 AM
May 2013

No one talked about anything but her leg. That would have been after the mastectomies, but before the implants.



geek_sabre

(731 posts)
10. From the NY times OpEd (her words
Tue May 14, 2013, 07:37 AM
May 2013
http://www.nytimes.com/2013/05/14/opinion/my-medical-choice.html?hp

Feb 2: nipple delay
Two weeks later (Feb 16-Feb 22): Breast tissue removed, fillers added
9 weeks later (April 5th-12) reconstruction + implants.

2012 oscars: Feb 26

So... perhaps the dress/leg thing was purely a coincidence. Maybe she's always been wacky at the shows (I've never noticed). But it falls in the timeline I proposed.



Melinda

(5,465 posts)
43. Her surgery was done in 2013 - your "Oscar" moment was 2012. Your timeline & posts...
Tue May 14, 2013, 01:29 PM
May 2013

are what's wacky - not Jolie. Your posts on this matter are incredibly insensitive and disrespectful, and seriously make DU suck today.

geek_sabre

(731 posts)
7. Just an observation. At the time, I thought it was very much out of character; this would explain it
Tue May 14, 2013, 07:32 AM
May 2013

I think she made the best possible decision for herself and her family in having the mastectomy. It was incredibly brave of her to make an intensely private decision public. I can only hope that some other women who find themselves in similar genetic circumstances will see her account, and be open to this option.

lunatica

(53,410 posts)
9. Saying she made a fool of herself is "just an observation"?
Tue May 14, 2013, 07:36 AM
May 2013

Sure, I get it. You were just claiming you admire her right?

geek_sabre

(731 posts)
14. It was talked about incessantly for a couple of weeks after. Because it was funny/strange for her
Tue May 14, 2013, 07:40 AM
May 2013

There were memes.


Locut0s

(6,154 posts)
59. Funny i thought that was incredibly sexy...
Wed May 15, 2013, 03:25 PM
May 2013

Don't know why she 'made a fool' of herself. It was a bit showy sure but then she is a huge celebrity.

 

denem

(11,045 posts)
5. Popular Celebrity Culture - WTF?
Tue May 14, 2013, 07:29 AM
May 2013

I demand the Admins to delete this. Not news. Stupid. Stupid know-nothings. Fame is not LBN.

lunatica

(53,410 posts)
8. I'm glad I read the story
Tue May 14, 2013, 07:34 AM
May 2013

I think it's very hopeful for women who have a family history of breast cancer. Many women opt for this surgery but they don't go public with it which is very important. Someone as famous as Jolie is doing a great service!

Yo_Mama

(8,303 posts)
37. Many women don't know that testing is available or about the option
Tue May 14, 2013, 11:12 AM
May 2013

I think this is an important story to publicize. Maybe it doesn't belong in LBN, but could it be moved to GD?

 

Warren Stupidity

(48,181 posts)
11. Actually it is all over the news everywhere. And good for her for being so open.
Tue May 14, 2013, 07:38 AM
May 2013

Women with this gene are faced with really tough choices. A dear friend of mine died just over a year ago at 31, she had this gene, her mom died in her 50s from breast cancer, and she might have had a long and heathy life had she known earlier that this option was available.

 

denem

(11,045 posts)
17. I have two posts killed in LBN
Tue May 14, 2013, 07:58 AM
May 2013

about the No. 1 YouTube guy being banned at home on Korean TV.

"I demand" was tongue in cheek.

Marrah_G

(28,581 posts)
30. Actually, this is about women and breast cancer
Tue May 14, 2013, 10:13 AM
May 2013

And frankly, I think it is very good to have celebrities, especially one known for her appearance come out and say that she had this procedure done. It's a very traumatic thing for a woman and many women put their own lives in jeopardy because they fear the stigma, the trauma to their self image so much.

Having the media attention on this is a good thing.

uppityperson

(115,677 posts)
39. It is about women and breast cancer, not about popular celebrity culture. What she had for
Tue May 14, 2013, 11:48 AM
May 2013

breakfast, where she went on vacation, now that isn't LBN worthy.

JustinBulletin

(73 posts)
12. It is not as rare as you may think....
Tue May 14, 2013, 07:38 AM
May 2013

I once worked with a woman who had lost both of her sisters, mother, aunts and grandmother to breast cancer. When she was in her early forties she decided to do the same thing. This was years ago around 1980. She had already had years of biopsy test on cysts in her breast that had always been benign. She was tired of "waiting for the other shoe to drop" so she had a double mastectomy and implants put in later after she healed when her doctor thought it was safe. He did the surgery because he believed she would eventually develop breast cancer and wanted to give her peace of mind. I saw her years later and I don't think she ever regretted doing it. It was an easy decision in her case, and I think she probably had a better quality of life not having to worry all the time and go through the invasive biopsy tests every few months.

Walk away

(9,494 posts)
41. I worked with a women who's Mom and Grandmother both died from BC.
Tue May 14, 2013, 12:33 PM
May 2013

Her Father and Husband are both surgeons. He Dad performed the surgery. She did it for her kids.

midnight

(26,624 posts)
25. She could indicate to congress how pricey this is, and how it's not affordable with the way the
Tue May 14, 2013, 09:55 AM
May 2013

insurance industry has created all these out of pocket expenses... She could be a great force for examining the difference between millions health care and those who are not....

 

peace13

(11,076 posts)
28. That's what I tell my Medicare Mother....
Tue May 14, 2013, 10:08 AM
May 2013

...Mom wouldn't it be nice if every woman in the US could have a lumpectomy and radiation if she needed it? But mom doesn't get it. You see, medical care is a privilege and she has a right. Women who make bad choices end up with no medical care...go figure!

midnight

(26,624 posts)
33. I think your explanation is spot on... The insurance industry mantra has been selling
Tue May 14, 2013, 10:29 AM
May 2013

rationed health care.. But I see the use of dollars being put into providing health care as a win win for everyone... Jobs, economy, better health.... We need to get passed this austerity nonsense that seems to sell like hot cakes from the top down.

tova

(28 posts)
18. brca2
Tue May 14, 2013, 08:04 AM
May 2013

Insurance does cover the surgeries. I have a strong family history of breast/ovarian cancer. I was tested for the gene in 2004 and came up positive for Brca2. The genetic counselors and doctors all said I needed to have the surgeries. The surgeries and recovery were extremely painful. I did not have cancer. The insurance had to cover both the surgery and reconstruction.

Faygo Kid

(21,478 posts)
20. Wow. That's a courageous decision.
Tue May 14, 2013, 08:12 AM
May 2013

Her father is a total right-wing asshole, but I give it up to her for this decision.

mainer

(12,022 posts)
21. A wise decision on her part. It allows you to control the circumstances of surgery
Tue May 14, 2013, 08:27 AM
May 2013

When it's preventive, it can be done without extensive resection, and implants can be inserted to minimize disfigurement.

Flora

(126 posts)
22. My goodness, how times have changed..
Tue May 14, 2013, 08:53 AM
May 2013

I'm old enough to remember the outrage when Nancy Reagan had her breast removed after the discover of a cancerous tumor. Many in the medical field claimed her decision would scare other women into avoiding detection procedures and Rose Kushner, the executive director of the Breast Cancer Advisory Center in Kensington, Md., went so far as to say that Mrs. Reagan's decision ''set us back 10 years.''

I'm happy that we have evolved over the last 20 or so years and recognize a women's right to made decisions concerning her own health and body.

Bay Boy

(1,689 posts)
32. I'm a guy but I have to assume deciding to have your breasts removed...
Tue May 14, 2013, 10:24 AM
May 2013

...is a VERY hard thing to do. But with an 87% chance of getting cancer I suppose that makes that decision easier to make.
but still...

neversaydie

(69 posts)
66. It would be a tough decision...
Fri May 17, 2013, 02:46 AM
May 2013

but I'd do the same if the risk was high. I'd also do the same as an alternative to a lumpectomy. My mom, her sister and mother, my sister, my great aunt, a close friend, all had breast cancer. My mom, thank god, survived and is still with us. She had a mastectomy in 1989 and she's still here. But her sister and my close friend both chose lumpectomy as opposed to mastectomy. Both ended up having to go back in to find that the cancer spread. Both ended up dying from the cancer that had spread to their lungs, liver and brain.

Angelina has children and so do I. I want to be here for my children, so, yeah... mastectomy would be my choice.

Beacool

(30,247 posts)
44. My heart goes out to her and any woman who had to make such a tough decision.
Tue May 14, 2013, 01:37 PM
May 2013

I wish her many healthy years to come.





SunSeeker

(51,550 posts)
46. Preventive mastectomies allow the surgeon to save the nipples, creating an attractive result.
Tue May 14, 2013, 02:37 PM
May 2013

Unlike mastectomies necessitated by the presence of cancer, a woman undergoing a preventative mastectomy can look forward to a much better cosmetic result, including keeping her nipples, and less scarring. Once there is ductal carcinoma present, the nipples have to go, and the fake nipples they make out of your own tissues just do not look the same. Also, depending on the location of the tumor(s), the surgeon tends to leave long scars that start at the armpit and span the chest, because at that point they need to get a clean margin to save your life. And if you need to have radiation treatment, those scars will harden, as will the surrounding tissue. Hence, post-cancer reconstructive efforts often have disappointing results.

As Angelina points out, she saved her nipples, after first making sure there was no cancer in her ducts. http://www.nytimes.com/2013/05/14/opinion/my-medical-choice.html?hp I am sure she had the best plastic surgeons and her breasts look beautiful. Except now they won't kill her. To me, her decision was a no-brainer and did not involve any particular courage, just rational thought. You want to see courage? Go to a cancer ward.

David__77

(23,372 posts)
54. I think it involved courage.
Wed May 15, 2013, 02:04 AM
May 2013

Even though the risk is high, and the cosmetic result may have been relatively good, it is not a risk-free procedure, and surely not straight-forward from a psychological standpoint - not immediately in any case.

 

smirkymonkey

(63,221 posts)
47. Brave woman!
Tue May 14, 2013, 07:08 PM
May 2013

I applaud her openness about this in trying to help other women and to bring about awareness.

Deep13

(39,154 posts)
52. Indeed, tough decision.
Wed May 15, 2013, 12:02 AM
May 2013

Made the courageous choice.

A friend of mine did that for the same reason. The docs replaced the breast material from the inside, but left the external bits.

GoneOffShore

(17,339 posts)
49. This from a friend of mine regarding this procedure....
Tue May 14, 2013, 10:26 PM
May 2013
Very disturbing that prophylactic bilateral mastectomy is being normalized -- even promoted as a viable option. Clearly there has been much effort and many many dollars invested in finding this inherited gene mutation that affects a very small percentage of women (and men) and puts them at risk for cancer(s). WHY HAVEN'T WE INVESTED THE SAME EFFORT AND DOLLARS IN RESEARCH TO PREVENT THIS DISEASE THAT KILLS 300,000 WOMEN EVERY YEAR? Let's stop normalizing mutilation and extremely toxic treatments and focus on preventing the disease from the start.

Response to GoneOffShore (Reply #49)

GoneOffShore

(17,339 posts)
62. My friend has had a double mastectomy - And works in medicine.
Thu May 16, 2013, 01:16 PM
May 2013

She is studying the link between HPV and various forms of cancer.

Dash87

(3,220 posts)
63. I'm sorry then. I must have misunderstood.
Thu May 16, 2013, 01:21 PM
May 2013

I took her statement to mean that mastectomies are somehow unnecessary, or that women should not get them.

I'll eat my crow and delete the post. I was intemperate because of the idiotic statements I've been hearing for the last 2 years.

I'm sorry.

GoneOffShore

(17,339 posts)
64. No worries - There's a lot of stuff floating around on the 'net re this.
Thu May 16, 2013, 01:35 PM
May 2013

And it's easy when an issue this important comes along to get upset by something that is possibly vaguely worded.

But, if you want light entertainment, just to relieve the tension as it were, check out the Kitchen Nightmares meltdown with Amy's Baking Company in Scottsdale - An intertubes sensation!

neversaydie

(69 posts)
67. not sure I agree completely...
Fri May 17, 2013, 02:49 AM
May 2013

but I get it, really. women shouldn't have to make such a drastic choice, and they wouldn't have to if more research and preventive treatments

 

DeSwiss

(27,137 posts)
55. K&Ring....
Wed May 15, 2013, 02:09 AM
May 2013

...for a woman's right to make decisions concerning her body and her health.

- No matter what part of her body it is......

spiderpig

(10,419 posts)
57. OK Everybody. When I grew up, breast cancer was whispered about.
Wed May 15, 2013, 12:40 PM
May 2013

Among women! My mother would say (name) had a mastectomy and couldn't wear sleeveless dresses anymore, because the surgeons removed all the arm muscles to make sure they "got it all".

I grew up feeling it was the most horrible thing ever to go through. Flame away, but that was the thinking of the time. 1960s.

While my sister and I don't have the gene, we know many people who do. So back off on AJ. There are a lot of other people to spew your venom at.

christx30

(6,241 posts)
58. Good
Wed May 15, 2013, 02:54 PM
May 2013

Reduce your risk of cancer. Stay alive and be with your kids. If my wife was found with that gene, I'd be behind her 100% in getting it done, if she wanted it done.
To hell with cancer.

Bombero1956

(3,539 posts)
60. My wife had this surgery 2 1/2 years ago
Thu May 16, 2013, 12:49 AM
May 2013

Right after finishing her 6 rounds of chemo for a stage 2 ovarian cancer diagnosis. She had the genetic testing done just before getting the cancer news. We discussed it and decided that the best course of action was breast removal and reconstructive surgery. She recently had a follow up CT scan and blood work and it appears she's still cancer free for which I'm grateful. This is the doctor who did my wife's surgery.

http://www.masslive.com/living/index.ssf/2013/05/area_surgeon_steven_schonholz_specializes_in_identifying_women_with_brca_mutation_for_breast_cancer.html

AnnieBW

(10,424 posts)
65. I don't think that I could have done that
Thu May 16, 2013, 11:57 PM
May 2013

I have a lot of respect for this kind of courage. Face it, she makes a very good living on how she looks, and her breasts are a big part of that. If I was in the same position, I don't think that I could do that. Hell, I think for a living and I don't think that I could do it.

My mom is a breast cancer survivor, but it wasn't the least of her health problems. She caught it early with a mammogram and had a lumpectomy. Hers came from taking Provera, not genetics.

neversaydie

(69 posts)
68. can I just say one more thing....
Fri May 17, 2013, 02:58 AM
May 2013

and don't take this the wrong way, but I've always found my "girls" to be a bit of a pain... most of the time. Hard to find the right bra size, bras don't last that long, they're expensive. I can't go bra-less because it's uncomfortable; not because I give a damn what anyone thinks, but it's just more comfortable to have those puppies restrained.

Other that their most beautiful and amazing function which allowed me to nurse both of my children, which is an incredible experience that I'm fortunate to have had, they can be bothersome.

is it just me?

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