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Tripper11

(4,338 posts)
Thu Aug 14, 2014, 02:49 PM Aug 2014

Robin Williams Was Battling Parkinson’s Disease, Wife Says

Source: Time

Says "sobriety was intact" when he died

by Taboola
The wife of Robin Williams revealed Thursday that at the time of his death, the late comedian was not only battling depression and anxiety but the early stages of Parkinson’s Disease.

“Robin’s sobriety was intact and he was brave as he struggled with his own battles of depression, anxiety as well as early stages of Parkinson’s Disease, which he was not yet ready to share publicly,” said Susan Schneider, in a statement.

Parkinson’s affects nearly 10 million people, according to the Parkinson’s Disease Foundation. The National Institutes of Health cites that “for people with depression and Parkinson’s disease, each illness can make symptoms of the other worse.”

Statement from his wife

"Robin spent so much of his life helping others. Whether he was entertaining millions on stage, film or television, our troops on the frontlines, or comforting a sick child — Robin wanted us to laugh and to feel less afraid.
Since his passing, all of us who loved Robin have found some solace in the tremendous outpouring of affection and admiration for him from the millions of people whose lives he touched. His greatest legacy, besides his three children, is the joy and happiness he offered to others, particularly to those fighting personal battles.
Robin’s sobriety was intact and he was brave as he struggled with his own battles of depression, anxiety as well as early stages of Parkinson’s Disease, which he was not yet ready to share publicly.
It is our hope in the wake of Robin’s tragic passing, that others will find the strength to seek the care and support they need to treat whatever battles they are facing so they may feel less afraid.”

Read more: http://time.com/3111911/robin-williams-dead-parkinsons/

51 replies = new reply since forum marked as read
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Robin Williams Was Battling Parkinson’s Disease, Wife Says (Original Post) Tripper11 Aug 2014 OP
Perhaps it was the final straw, the one thing that made the rest unbearable. CaliforniaPeggy Aug 2014 #1
I have a feeling that this is right on point! hamsterjill Aug 2014 #5
The article says these two diseases make each other worse. sybylla Aug 2014 #18
Also, he had heart surgery in '09 laundry_queen Aug 2014 #50
Interestingly enough, there is a video up right now on depression that is inherent to Parkinson's... 1monster Aug 2014 #19
That is a good thought! Thank you. n/t CaliforniaPeggy Aug 2014 #20
I was interested to discover that many autoimmune diseases (lupus, RA, Sjogren's) hedgehog Aug 2014 #21
I have RA.... Punkingal Aug 2014 #49
The potential problem as I understand it is cleduc Aug 2014 #33
I just read the other day that baseball great Dave Parker also has Parkisons LynneSin Aug 2014 #2
I have been expecting to find out something like this. Exultant Democracy Aug 2014 #3
He wasn't himself mainstreetonce Aug 2014 #4
Depression is actually a side-effect of Parkinson's. justiceischeap Aug 2014 #9
Give your mom a hug from me. brer cat Aug 2014 #14
Me too. Yesterday I found myself thinking that news would come magical thyme Aug 2014 #8
Ditto. eom littlemissmartypants Aug 2014 #43
Key fact: silverweb Aug 2014 #6
He apparently had to keep working for $$$, but imagine how hard that would be TwilightGardener Aug 2014 #7
Parkinson's and depression locks Aug 2014 #10
MAN, locks, what a great post. calimary Aug 2014 #11
hear, hear roguevalley Aug 2014 #16
I and thought that if I hadn't cried by now that I wouldn't... Exultant Democracy Aug 2014 #12
Outstanding post, locks! nt brer cat Aug 2014 #15
I hadn't thought of that - if his therapists didn't understand his depression was associated with hedgehog Aug 2014 #22
But Parkinson's won't be helped with SSRI's -- they could even make the symptoms worse, pnwmom Aug 2014 #23
Another reason why depression should be treated as a serious disease - hedgehog Aug 2014 #26
excellent observation LittleGirl Aug 2014 #25
Beautiful. I believe that art can save the world. eom littlemissmartypants Aug 2014 #44
As I've said before I too suffer from depression. Add Parkinsons to that and I can understand. dballance Aug 2014 #13
My father had Parkinson's. In the last stages you get dementia. Cleita Aug 2014 #17
I'm thinking maybe he decided to check out while he still had the capacity to magical thyme Aug 2014 #29
Katharine Hepburn area51 Aug 2014 #41
you're right...I had to google. I had read years ago that she had Parkinson's magical thyme Aug 2014 #46
It killed my dad two years ago. eggplant Aug 2014 #32
Lyme Disease may be a contributing factor to Parkinson's Disease... cureautismnow Aug 2014 #24
As a side note - I suspect that many (all?) of the people with hedgehog Aug 2014 #27
As another side note - I suspect that you are wrong. cureautismnow Aug 2014 #37
I didn't know that - thank you for putting that package together. hedgehog Aug 2014 #48
medicinal marijuana J_J_ Aug 2014 #28
My Best Friend Ever Died of Parkinson's Ten Years ago colsohlibgal Aug 2014 #30
The loss of Robin Williams was a shock, so sad to know he also was suffering from Parkinson's. Thinkingabout Aug 2014 #31
This message was self-deleted by its author ailsagirl Aug 2014 #34
So terribly sad. Rhinodawg Aug 2014 #35
Robin was already dealing with depression, having heart surgery, and being a recovering addict davidpdx Aug 2014 #36
The heart surgery Williams had in 2009 could have played major role in depression Hawaii Hiker Aug 2014 #38
What the medical profession does not like to talk about is that the correlation between open heart dflprincess Aug 2014 #39
I'd guess moondust Aug 2014 #40
I have known some close people to commit suicide daleo Aug 2014 #42
Pain, littlemissmartypants Aug 2014 #45
Last night Sweet Freedom Aug 2014 #47
Yesterday I went by locks Aug 2014 #51

hamsterjill

(15,220 posts)
5. I have a feeling that this is right on point!
Thu Aug 14, 2014, 03:03 PM
Aug 2014

And I echo your sentiment of "so very sad".

What a loss - way too soon.

sybylla

(8,496 posts)
18. The article says these two diseases make each other worse.
Thu Aug 14, 2014, 04:13 PM
Aug 2014

Probably not so much the final straw but the most unwinnable battle of his life.

laundry_queen

(8,646 posts)
50. Also, he had heart surgery in '09
Sat Aug 16, 2014, 03:44 AM
Aug 2014

Apparently a side effect of that is depression (they aren't sure why - may have to do with using a bypass machine). Odds were stacked against him.

1monster

(11,012 posts)
19. Interestingly enough, there is a video up right now on depression that is inherent to Parkinson's...
Thu Aug 14, 2014, 04:16 PM
Aug 2014

A person with Parkinson's has a deficiency in dopamine -- the brain doesn't make enough. Serotonin is manufactured in by the same areas of the brain that dopamine is. (Video is on DU Video and Multimedia)

My husband, who has suffered from bouts of depression and anxiety all his life was diagnosed with Parkinson's in March. I have noticed that since he started meds for Parkinson's, he has had a more positive outlook and seems much less depressed.

Perhaps some research should be done to determine if some kinds of chronic or clinical depression might be an early warning sign for Parkinson's. If so, perhaps the problem could be treated BEFORE Parkinson's develops.

hedgehog

(36,286 posts)
21. I was interested to discover that many autoimmune diseases (lupus, RA, Sjogren's)
Thu Aug 14, 2014, 04:21 PM
Aug 2014

are also associated with depression/anxiety.

Punkingal

(9,522 posts)
49. I have RA....
Sat Aug 16, 2014, 03:00 AM
Aug 2014

And I have been treated for depression for a long time. The depression for me is that I can't do all the things I used to do, plus I have constant pain and fatigue.

 

cleduc

(653 posts)
33. The potential problem as I understand it is
Thu Aug 14, 2014, 07:35 PM
Aug 2014

A person who does not have bipolar hypomania (as I believe Robin did) can develop that condition with Parkinson's drugs or treatment. In Robin's case, since he appears to have already had bipolar hypomania, Parkinson's drugs or treatments can exacerbate it into full blown mania, psychosis and at times, double down on the depression effects of both conditions. It's apparently pretty rare for one to have bipolar and then develop Parkinson's. And they don't seem to have much in terms of knowledge or treatment options when that happens.

I posted more on this here:
http://www.democraticunderground.com/?com=view_post&forum=1002&pid=5386570

The prognosis he may have faced after trying the few options they had without success might have been:
- you won't be able to do your manic comedy to make people happy anymore because what little medication we have for this will mess that up
- you're going to go nuts at times with full blown mania & psychosis because from this point forward, we'll be trying to manage a moving target with eroding dopamine levels
- your depression may be twice as bad as any of the awful depression you've experienced to date because it will snowball with both conditions - but we may be able to take the edge off that
- in this condition, you're likely to be a burden on your family and will be hard pressed to enjoy life as you have known it
= Robin Williams as we've known him is over

So he skipped the bow and exited the planet stage left.

The point is: this is different than the Michael J Fox's Parkinson's diagnosis for example, because Robin appears to have had a preexisting condition that would be significantly complicated with this new Parkinson's diagnosis.

just my two cents

LynneSin

(95,337 posts)
2. I just read the other day that baseball great Dave Parker also has Parkisons
Thu Aug 14, 2014, 02:54 PM
Aug 2014

He was inducted into the Reds Hall of Fame and they had mentioned it in an article about him.

Parkisons is such a wretched thing to deal with, this had to be tough to deal with on top of all the other issues that Robin Williams had to deal with.

mainstreetonce

(4,178 posts)
4. He wasn't himself
Thu Aug 14, 2014, 03:00 PM
Aug 2014

in that recent T.Vseries. It was like the light had gone out.

How ironic that the show was opposite Michael J Fox and neither show succeeded.

Could drugs for Parkinson's make the depression worse?

justiceischeap

(14,040 posts)
9. Depression is actually a side-effect of Parkinson's.
Thu Aug 14, 2014, 03:24 PM
Aug 2014

My mom is struggling with Parkinsons (she's so bad I joke with her about turning her coffee into a shake by the time she lifts it from the table to her mouth--and that's on medication. We have to laugh or we'll cry) and one problem we have with her is she doesn't want to leave the house or do anything, so she's packed on so much weight she's developed diabetes on top of her Parkinsons. Severe memory loss is another side-effect--I went home 2 years ago for my middle sisters funeral and my mom was sitting in a chair, kinda spacing out (another side-effect) and turned to me, kinda jumped, teared up and told me my sister had died--which was the reason I was home in the first place, to take care of the funeral arrangements.

brer cat

(24,523 posts)
14. Give your mom a hug from me.
Thu Aug 14, 2014, 04:05 PM
Aug 2014

My father had Parkinsons...I know what a struggle it is. You are both going to benefit from keeping a good sense of humor. You are making good memories that you will remember as the bad memories fade, and they will in time.

silverweb

(16,402 posts)
6. Key fact:
Thu Aug 14, 2014, 03:04 PM
Aug 2014
[font face="Arial"]The National Institutes of Health cites that “for people with depression and Parkinson’s disease, each illness can make symptoms of the other worse.”

[font color="navy" face="Verdana"]So very sad....

TwilightGardener

(46,416 posts)
7. He apparently had to keep working for $$$, but imagine how hard that would be
Thu Aug 14, 2014, 03:06 PM
Aug 2014

when you are becoming old and debilitated. I hear he had several movies in the works, maybe he just wanted off the treadmill finally--but couldn't find a way to do that in a healthy or dignified manner.

locks

(2,012 posts)
10. Parkinson's and depression
Thu Aug 14, 2014, 03:31 PM
Aug 2014

Please read the Parkinson's Disease Assoc. site. I've known many people with Parkinson's; each one was affected in a different way. It seems Robin sought help all his life; perhaps we simply do not know enough about the brain to find the right treatment when it is not healthy.

I am so grateful to live in a time when there are people like Robin Williams who brought so many joy even while he himself was suffering. They are true heroes and we need to teach our children that it is with love and joy, not war, where men win glory.

calimary

(81,110 posts)
11. MAN, locks, what a great post.
Thu Aug 14, 2014, 03:41 PM
Aug 2014

Especially the second paragraph.

I am so grateful to live in a time when there are people like Robin Williams who brought so many joy even while he himself was suffering. They are true heroes and we need to teach our children that it is with love and joy, not war, where men win glory.

Nothing can be added to that except "Amen!"

hedgehog

(36,286 posts)
22. I hadn't thought of that - if his therapists didn't understand his depression was associated with
Thu Aug 14, 2014, 04:26 PM
Aug 2014

Parkinson's, it may be why the treatment wasn't effective.

It certainly offers food for the "best cure for depression is talking therapy/ antidepressants are a scam by Big Pharma" crowd. That may be true for some individuals, but try to cure Parkinson's with talking therapy!

pnwmom

(108,955 posts)
23. But Parkinson's won't be helped with SSRI's -- they could even make the symptoms worse,
Thu Aug 14, 2014, 04:37 PM
Aug 2014

since they can cause leg jerks, for example.

And the earliest symptoms of Parkinson's could potentially be overlooked by doctors who thought they were reactions to his depression meds.

It's sad how little doctors really know about treating many serious illnesses.

hedgehog

(36,286 posts)
26. Another reason why depression should be treated as a serious disease -
Thu Aug 14, 2014, 05:28 PM
Aug 2014

if you go to your GP or internist for a 5 minute visit and walk out with a script for an SSRI, odds are you aren't getting appropriate care.

It's also an example of why specialists need to coordinate with each other to avoid drug interactions and/or side effects.

 

dballance

(5,756 posts)
13. As I've said before I too suffer from depression. Add Parkinsons to that and I can understand.
Thu Aug 14, 2014, 04:02 PM
Aug 2014

I can understand why life became untenable.

Cleita

(75,480 posts)
17. My father had Parkinson's. In the last stages you get dementia.
Thu Aug 14, 2014, 04:10 PM
Aug 2014

Maybe he wasn't ready to lose his brilliant mind. I don't blame him.

 

magical thyme

(14,881 posts)
29. I'm thinking maybe he decided to check out while he still had the capacity to
Thu Aug 14, 2014, 05:34 PM
Aug 2014

You don't know in advance when you will lose capacity. I do know that to be 60+ and looking not to a decent future, but one forced to work at jobs you don't want as a debt slave, is tough enough. Add to that a disease that will rob you of the capacity even to work at jobs you don't want....nothing to look forward to but misery at work, misery in between, and ultimately the health care system sucking up whatever money the other creditors haven't taken...

He helped the Reeves early on when their insurance $$ ran out. And his best friend Christopher Reeves mentor and lifelong friend, Katherine Hepburn, suffered Parkinson's for how long? He probably had pretty good insight into what he was looking forward to.

 

magical thyme

(14,881 posts)
46. you're right...I had to google. I had read years ago that she had Parkinson's
Fri Aug 15, 2014, 10:26 AM
Aug 2014

so never questioned that.

I am familiar with essential tremor because I show mild signs of it under enough stress.

cureautismnow

(1,676 posts)
24. Lyme Disease may be a contributing factor to Parkinson's Disease...
Thu Aug 14, 2014, 04:49 PM
Aug 2014

...along with strokes, meningitis, and Alzheimer's.

http://www.parkinsonsresource.org/general-information/lyme-disease-a-parkinsons-imitator/

http://guardianlv.com/2014/04/stroke-meningitis-alzheimers-caused-by-lyme-disease-video/

Anxiety can be a huge issue for those suffering with lyme disease.

Just last month, a 33-year-old lady suffering from lyme disease laid down on the train tracks in Wisconsin and committed suicide.

http://www.wsaw.com/home/headlines/Gilman-Woman-Killed-After-Being-Hit-by-Train-268747671.html

http://whatislyme.com/heather-askeland/

"Suicide rates amongst Lyme patients are high. (It has been noted that about 1/3 of neuropsychiatric Lyme patients exhibit suicidal tendencies."

http://www.dailykos.com/story/2012/04/10/1082312/-My-Friend-with-Lyme-Committed-Suicide






hedgehog

(36,286 posts)
27. As a side note - I suspect that many (all?) of the people with
Thu Aug 14, 2014, 05:30 PM
Aug 2014

"imaginary" chronic Lyme disease are actually suffering from autoimmune disease(s) triggered by the original Lyme disease infection.

cureautismnow

(1,676 posts)
37. As another side note - I suspect that you are wrong.
Thu Aug 14, 2014, 09:34 PM
Aug 2014

ILADS would also disagree with you. You are behind the times.

Interdiscip Perspect Infect Dis. 2010;2010:876450. doi: 10.1155/2010/876450. Epub 2010 May 25.

Proof that chronic lyme disease exists.
The evidence continues to mount that Chronic Lyme Disease (CLD) exists and must be addressed by the medical community if solutions are to be found. Four National Institutes of Health (NIH) trials validated the existence and severity of CLD. Despite the evidence, there are physicians who continue to deny the existence and severity of CLD, which can hinder efforts to find a solution. Recognizing CLD could facilitate efforts to avoid diagnostic delays of two years and durations of illness of 4.7 to 9 years described in the NIH trials. The risk to society of emerging antibiotic-resistant organisms should be weighed against the societal risks associated with failing to treat an emerging population saddled with CLD. The mixed long-term outcome in children could also be examined. Once we accept the evidence that CLD exists, the medical community should be able to find solutions. Medical professionals should be encouraged to examine whether: (1) innovative treatments for early LD might prevent CLD, (2) early diagnosis of CLD might result in better treatment outcomes, and (3) more effective treatment regimens can be developed for CLD patients who have had prolonged illness and an associated poor quality of life.

http://www.ncbi.nlm.nih.gov/pubmed/20508824

Saying it's an "auto-immune" disorder is a lazy insurance company cop-out to earn profit by denying healthcare. IDSA and insurance companies are in bed together. At the link below, you will find 273 peer-review studies of the existence for chronic lyme disease.

http://www.change.org/petitions/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf

The only thing "imaginary" is the made-up term, "post-lyme" syndrome.

hedgehog

(36,286 posts)
48. I didn't know that - thank you for putting that package together.
Fri Aug 15, 2014, 01:32 PM
Aug 2014

I didn't mean any disrespect by suggesting autoimmune disease; I was just guessing based on the description of the symptoms I've seen. Many people with autoimmune disease go 10-20 years without diagnosis. Many are told somewhere along the way that the symptoms are all in their head and they need to see a psychiatrist.

Our medical establishment is too reliant on blood work and imaging (x-ray, MRI) to diagnose diseases. If the symptom can't be measured, it must be imaginary. Even if there is a diagnosis, often only the measurable symptoms are given any attention. Most people with Sjogren's will tell you that their main problem is fatigue, yet most research is aimed at treating the dry eyes and dry mouth that are the differntial (and measurable) symptoms.

I recall that it took something like 20 years before chronic fatigue syndrome was recognized as a real disease. For years, it was "all in their heads".

 

J_J_

(1,213 posts)
28. medicinal marijuana
Thu Aug 14, 2014, 05:30 PM
Aug 2014

Smoking Pot Eases Tremors in Parkinson's
Medical marijuana is legal in Israel for the treatment of Parkinson's disease
http://www.medpagetoday.com/meetingcoverage/mds/39933

colsohlibgal

(5,275 posts)
30. My Best Friend Ever Died of Parkinson's Ten Years ago
Thu Aug 14, 2014, 05:40 PM
Aug 2014

It was awful seeing the swift decline in my long time friend. This diagnosis, on top of his heart surgery, may have pushed Robin over the edge.

Thinkingabout

(30,058 posts)
31. The loss of Robin Williams was a shock, so sad to know he also was suffering from Parkinson's.
Thu Aug 14, 2014, 06:02 PM
Aug 2014

This is one of the diseases which hopefully research will find a cure or better ways to treat.

Response to Tripper11 (Original post)

davidpdx

(22,000 posts)
36. Robin was already dealing with depression, having heart surgery, and being a recovering addict
Thu Aug 14, 2014, 08:36 PM
Aug 2014

Parkinson's on top must have been difficult to deal with. Any one of those is tough, but all four is a lot to handle.

Hawaii Hiker

(3,165 posts)
38. The heart surgery Williams had in 2009 could have played major role in depression
Thu Aug 14, 2014, 09:42 PM
Aug 2014

I've heard that correlation before - heart surgery and depression...Then you add Parkinson's, his struggles with alcohol & drugs, that's alot of medical issues....While i don't think Parkinson's is a death sentence like Lou Gehrig's Disease generally is, it is still very debilitating....

dflprincess

(28,072 posts)
39. What the medical profession does not like to talk about is that the correlation between open heart
Thu Aug 14, 2014, 10:32 PM
Aug 2014

surgery and depression is the bypass machine.

CC Goldwater was talking about this on Stephanie Miller's show today and yesterday one of Robin Williams' good friends talked about the changes after his heart surgery and that there is evidence that it's the machine and how it delivers oxygen that can exacerbate previous problems.

My friend's husband went a drastic personality change after bypass surgery (he became a hoarder for one thing). His cardiac doctor finally did admit to her that he didn't believe the changes they see in patients are strictly psychological.

moondust

(19,958 posts)
40. I'd guess
Thu Aug 14, 2014, 11:49 PM
Aug 2014

Robin decided to spare his family and others the financial and emotional toll of perhaps years of debilitating disease and care.

daleo

(21,317 posts)
42. I have known some close people to commit suicide
Fri Aug 15, 2014, 05:32 AM
Aug 2014

In three of four cases a chronic physical disease was present, apart from depression. In one case, none of these was present, though he was being treated for social anxiety, with SSRIs, which is an off-label use for those medications. That makes me think it may be a case where the treatment did more harm than good.

But, main point, chronic illness and pain can be a significant contributor to suicide.

littlemissmartypants

(22,572 posts)
45. Pain,
Fri Aug 15, 2014, 06:53 AM
Aug 2014

the emotional and the physical are both potentially devastating. Sans autoimmune disease.

I have it all and I am braced for impact.

Love, Peace and Shelter.
~Lmsp

Sweet Freedom

(3,995 posts)
47. Last night
Fri Aug 15, 2014, 11:25 AM
Aug 2014

E! showed video of an interview with Robin (when his TV show was on). He just wasn't himself. He was quiet, never stood up or raised his voice. They noted he never moved his left arm and his right arm made a repetitive jerking motion. He clasped his hands every time it happened. Watching that video, you can see how Parkinson's would prevent Robin from being Robin. It just looked like his light had already stopped shining.

locks

(2,012 posts)
51. Yesterday I went by
Sat Aug 16, 2014, 01:42 PM
Aug 2014

the Mork and Mindy House in Boulder. It has been kept just as it was for the tv series 1978-1982. There were many flowers, miss-you notes, and a big Mork from Ork rock. And young people talking, "I watched every episode with my parents when I was a child"; "Have you seen World's Greatest Dad?" No, have you seen "What Dreams May Come?"

We will miss you, Robin, not only for making us smile and laugh but through your own pain showing us the many facets of life (and death).

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