Robin Williams Was Battling Parkinson’s Disease, Wife Says
Source: Time
Says "sobriety was intact" when he died
by Taboola
The wife of Robin Williams revealed Thursday that at the time of his death, the late comedian was not only battling depression and anxiety but the early stages of Parkinsons Disease.
Robins sobriety was intact and he was brave as he struggled with his own battles of depression, anxiety as well as early stages of Parkinsons Disease, which he was not yet ready to share publicly, said Susan Schneider, in a statement.
Parkinsons affects nearly 10 million people, according to the Parkinsons Disease Foundation. The National Institutes of Health cites that for people with depression and Parkinsons disease, each illness can make symptoms of the other worse.
Statement from his wife
"Robin spent so much of his life helping others. Whether he was entertaining millions on stage, film or television, our troops on the frontlines, or comforting a sick child Robin wanted us to laugh and to feel less afraid.
Since his passing, all of us who loved Robin have found some solace in the tremendous outpouring of affection and admiration for him from the millions of people whose lives he touched. His greatest legacy, besides his three children, is the joy and happiness he offered to others, particularly to those fighting personal battles.
Robins sobriety was intact and he was brave as he struggled with his own battles of depression, anxiety as well as early stages of Parkinsons Disease, which he was not yet ready to share publicly.
It is our hope in the wake of Robins tragic passing, that others will find the strength to seek the care and support they need to treat whatever battles they are facing so they may feel less afraid.
Read more: http://time.com/3111911/robin-williams-dead-parkinsons/
CaliforniaPeggy
(149,523 posts)So very sad.
hamsterjill
(15,220 posts)And I echo your sentiment of "so very sad".
What a loss - way too soon.
sybylla
(8,496 posts)Probably not so much the final straw but the most unwinnable battle of his life.
laundry_queen
(8,646 posts)Apparently a side effect of that is depression (they aren't sure why - may have to do with using a bypass machine). Odds were stacked against him.
1monster
(11,012 posts)A person with Parkinson's has a deficiency in dopamine -- the brain doesn't make enough. Serotonin is manufactured in by the same areas of the brain that dopamine is. (Video is on DU Video and Multimedia)
My husband, who has suffered from bouts of depression and anxiety all his life was diagnosed with Parkinson's in March. I have noticed that since he started meds for Parkinson's, he has had a more positive outlook and seems much less depressed.
Perhaps some research should be done to determine if some kinds of chronic or clinical depression might be an early warning sign for Parkinson's. If so, perhaps the problem could be treated BEFORE Parkinson's develops.
CaliforniaPeggy
(149,523 posts)hedgehog
(36,286 posts)are also associated with depression/anxiety.
Punkingal
(9,522 posts)And I have been treated for depression for a long time. The depression for me is that I can't do all the things I used to do, plus I have constant pain and fatigue.
cleduc
(653 posts)A person who does not have bipolar hypomania (as I believe Robin did) can develop that condition with Parkinson's drugs or treatment. In Robin's case, since he appears to have already had bipolar hypomania, Parkinson's drugs or treatments can exacerbate it into full blown mania, psychosis and at times, double down on the depression effects of both conditions. It's apparently pretty rare for one to have bipolar and then develop Parkinson's. And they don't seem to have much in terms of knowledge or treatment options when that happens.
I posted more on this here:
http://www.democraticunderground.com/?com=view_post&forum=1002&pid=5386570
The prognosis he may have faced after trying the few options they had without success might have been:
- you won't be able to do your manic comedy to make people happy anymore because what little medication we have for this will mess that up
- you're going to go nuts at times with full blown mania & psychosis because from this point forward, we'll be trying to manage a moving target with eroding dopamine levels
- your depression may be twice as bad as any of the awful depression you've experienced to date because it will snowball with both conditions - but we may be able to take the edge off that
- in this condition, you're likely to be a burden on your family and will be hard pressed to enjoy life as you have known it
= Robin Williams as we've known him is over
So he skipped the bow and exited the planet stage left.
The point is: this is different than the Michael J Fox's Parkinson's diagnosis for example, because Robin appears to have had a preexisting condition that would be significantly complicated with this new Parkinson's diagnosis.
just my two cents
LynneSin
(95,337 posts)He was inducted into the Reds Hall of Fame and they had mentioned it in an article about him.
Parkisons is such a wretched thing to deal with, this had to be tough to deal with on top of all the other issues that Robin Williams had to deal with.
Exultant Democracy
(6,594 posts)mainstreetonce
(4,178 posts)in that recent T.Vseries. It was like the light had gone out.
How ironic that the show was opposite Michael J Fox and neither show succeeded.
Could drugs for Parkinson's make the depression worse?
justiceischeap
(14,040 posts)My mom is struggling with Parkinsons (she's so bad I joke with her about turning her coffee into a shake by the time she lifts it from the table to her mouth--and that's on medication. We have to laugh or we'll cry) and one problem we have with her is she doesn't want to leave the house or do anything, so she's packed on so much weight she's developed diabetes on top of her Parkinsons. Severe memory loss is another side-effect--I went home 2 years ago for my middle sisters funeral and my mom was sitting in a chair, kinda spacing out (another side-effect) and turned to me, kinda jumped, teared up and told me my sister had died--which was the reason I was home in the first place, to take care of the funeral arrangements.
brer cat
(24,523 posts)My father had Parkinsons...I know what a struggle it is. You are both going to benefit from keeping a good sense of humor. You are making good memories that you will remember as the bad memories fade, and they will in time.
magical thyme
(14,881 posts)of a physical illness.
littlemissmartypants
(22,572 posts)silverweb
(16,402 posts)[font color="navy" face="Verdana"]So very sad....
TwilightGardener
(46,416 posts)when you are becoming old and debilitated. I hear he had several movies in the works, maybe he just wanted off the treadmill finally--but couldn't find a way to do that in a healthy or dignified manner.
locks
(2,012 posts)Please read the Parkinson's Disease Assoc. site. I've known many people with Parkinson's; each one was affected in a different way. It seems Robin sought help all his life; perhaps we simply do not know enough about the brain to find the right treatment when it is not healthy.
I am so grateful to live in a time when there are people like Robin Williams who brought so many joy even while he himself was suffering. They are true heroes and we need to teach our children that it is with love and joy, not war, where men win glory.
calimary
(81,110 posts)Especially the second paragraph.
I am so grateful to live in a time when there are people like Robin Williams who brought so many joy even while he himself was suffering. They are true heroes and we need to teach our children that it is with love and joy, not war, where men win glory.
Nothing can be added to that except "Amen!"
roguevalley
(40,656 posts)Exultant Democracy
(6,594 posts)brer cat
(24,523 posts)hedgehog
(36,286 posts)Parkinson's, it may be why the treatment wasn't effective.
It certainly offers food for the "best cure for depression is talking therapy/ antidepressants are a scam by Big Pharma" crowd. That may be true for some individuals, but try to cure Parkinson's with talking therapy!
pnwmom
(108,955 posts)since they can cause leg jerks, for example.
And the earliest symptoms of Parkinson's could potentially be overlooked by doctors who thought they were reactions to his depression meds.
It's sad how little doctors really know about treating many serious illnesses.
hedgehog
(36,286 posts)if you go to your GP or internist for a 5 minute visit and walk out with a script for an SSRI, odds are you aren't getting appropriate care.
It's also an example of why specialists need to coordinate with each other to avoid drug interactions and/or side effects.
LittleGirl
(8,279 posts)thanks for sharing. awesome.
littlemissmartypants
(22,572 posts)dballance
(5,756 posts)I can understand why life became untenable.
Cleita
(75,480 posts)Maybe he wasn't ready to lose his brilliant mind. I don't blame him.
magical thyme
(14,881 posts)You don't know in advance when you will lose capacity. I do know that to be 60+ and looking not to a decent future, but one forced to work at jobs you don't want as a debt slave, is tough enough. Add to that a disease that will rob you of the capacity even to work at jobs you don't want....nothing to look forward to but misery at work, misery in between, and ultimately the health care system sucking up whatever money the other creditors haven't taken...
He helped the Reeves early on when their insurance $$ ran out. And his best friend Christopher Reeves mentor and lifelong friend, Katherine Hepburn, suffered Parkinson's for how long? He probably had pretty good insight into what he was looking forward to.
area51
(11,896 posts)had essential tremor as opposed to Parkinson's.
magical thyme
(14,881 posts)so never questioned that.
I am familiar with essential tremor because I show mild signs of it under enough stress.
eggplant
(3,908 posts)It's an evil fucking disease to die from.
cureautismnow
(1,676 posts)...along with strokes, meningitis, and Alzheimer's.
http://www.parkinsonsresource.org/general-information/lyme-disease-a-parkinsons-imitator/
http://guardianlv.com/2014/04/stroke-meningitis-alzheimers-caused-by-lyme-disease-video/
Anxiety can be a huge issue for those suffering with lyme disease.
Just last month, a 33-year-old lady suffering from lyme disease laid down on the train tracks in Wisconsin and committed suicide.
http://www.wsaw.com/home/headlines/Gilman-Woman-Killed-After-Being-Hit-by-Train-268747671.html
http://whatislyme.com/heather-askeland/
"Suicide rates amongst Lyme patients are high. (It has been noted that about 1/3 of neuropsychiatric Lyme patients exhibit suicidal tendencies."
http://www.dailykos.com/story/2012/04/10/1082312/-My-Friend-with-Lyme-Committed-Suicide
hedgehog
(36,286 posts)"imaginary" chronic Lyme disease are actually suffering from autoimmune disease(s) triggered by the original Lyme disease infection.
cureautismnow
(1,676 posts)ILADS would also disagree with you. You are behind the times.
Interdiscip Perspect Infect Dis. 2010;2010:876450. doi: 10.1155/2010/876450. Epub 2010 May 25.
Proof that chronic lyme disease exists.
The evidence continues to mount that Chronic Lyme Disease (CLD) exists and must be addressed by the medical community if solutions are to be found. Four National Institutes of Health (NIH) trials validated the existence and severity of CLD. Despite the evidence, there are physicians who continue to deny the existence and severity of CLD, which can hinder efforts to find a solution. Recognizing CLD could facilitate efforts to avoid diagnostic delays of two years and durations of illness of 4.7 to 9 years described in the NIH trials. The risk to society of emerging antibiotic-resistant organisms should be weighed against the societal risks associated with failing to treat an emerging population saddled with CLD. The mixed long-term outcome in children could also be examined. Once we accept the evidence that CLD exists, the medical community should be able to find solutions. Medical professionals should be encouraged to examine whether: (1) innovative treatments for early LD might prevent CLD, (2) early diagnosis of CLD might result in better treatment outcomes, and (3) more effective treatment regimens can be developed for CLD patients who have had prolonged illness and an associated poor quality of life.
http://www.ncbi.nlm.nih.gov/pubmed/20508824
Saying it's an "auto-immune" disorder is a lazy insurance company cop-out to earn profit by denying healthcare. IDSA and insurance companies are in bed together. At the link below, you will find 273 peer-review studies of the existence for chronic lyme disease.
http://www.change.org/petitions/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf
The only thing "imaginary" is the made-up term, "post-lyme" syndrome.
hedgehog
(36,286 posts)I didn't mean any disrespect by suggesting autoimmune disease; I was just guessing based on the description of the symptoms I've seen. Many people with autoimmune disease go 10-20 years without diagnosis. Many are told somewhere along the way that the symptoms are all in their head and they need to see a psychiatrist.
Our medical establishment is too reliant on blood work and imaging (x-ray, MRI) to diagnose diseases. If the symptom can't be measured, it must be imaginary. Even if there is a diagnosis, often only the measurable symptoms are given any attention. Most people with Sjogren's will tell you that their main problem is fatigue, yet most research is aimed at treating the dry eyes and dry mouth that are the differntial (and measurable) symptoms.
I recall that it took something like 20 years before chronic fatigue syndrome was recognized as a real disease. For years, it was "all in their heads".
J_J_
(1,213 posts)Smoking Pot Eases Tremors in Parkinson's
Medical marijuana is legal in Israel for the treatment of Parkinson's disease
http://www.medpagetoday.com/meetingcoverage/mds/39933
colsohlibgal
(5,275 posts)It was awful seeing the swift decline in my long time friend. This diagnosis, on top of his heart surgery, may have pushed Robin over the edge.
Thinkingabout
(30,058 posts)This is one of the diseases which hopefully research will find a cure or better ways to treat.
Response to Tripper11 (Original post)
ailsagirl This message was self-deleted by its author.
Rhinodawg
(2,219 posts)no words.
davidpdx
(22,000 posts)Parkinson's on top must have been difficult to deal with. Any one of those is tough, but all four is a lot to handle.
Hawaii Hiker
(3,165 posts)I've heard that correlation before - heart surgery and depression...Then you add Parkinson's, his struggles with alcohol & drugs, that's alot of medical issues....While i don't think Parkinson's is a death sentence like Lou Gehrig's Disease generally is, it is still very debilitating....
dflprincess
(28,072 posts)surgery and depression is the bypass machine.
CC Goldwater was talking about this on Stephanie Miller's show today and yesterday one of Robin Williams' good friends talked about the changes after his heart surgery and that there is evidence that it's the machine and how it delivers oxygen that can exacerbate previous problems.
My friend's husband went a drastic personality change after bypass surgery (he became a hoarder for one thing). His cardiac doctor finally did admit to her that he didn't believe the changes they see in patients are strictly psychological.
moondust
(19,958 posts)Robin decided to spare his family and others the financial and emotional toll of perhaps years of debilitating disease and care.
daleo
(21,317 posts)In three of four cases a chronic physical disease was present, apart from depression. In one case, none of these was present, though he was being treated for social anxiety, with SSRIs, which is an off-label use for those medications. That makes me think it may be a case where the treatment did more harm than good.
But, main point, chronic illness and pain can be a significant contributor to suicide.
littlemissmartypants
(22,572 posts)the emotional and the physical are both potentially devastating. Sans autoimmune disease.
I have it all and I am braced for impact.
Love, Peace and Shelter.
~Lmsp
Sweet Freedom
(3,995 posts)E! showed video of an interview with Robin (when his TV show was on). He just wasn't himself. He was quiet, never stood up or raised his voice. They noted he never moved his left arm and his right arm made a repetitive jerking motion. He clasped his hands every time it happened. Watching that video, you can see how Parkinson's would prevent Robin from being Robin. It just looked like his light had already stopped shining.
locks
(2,012 posts)the Mork and Mindy House in Boulder. It has been kept just as it was for the tv series 1978-1982. There were many flowers, miss-you notes, and a big Mork from Ork rock. And young people talking, "I watched every episode with my parents when I was a child"; "Have you seen World's Greatest Dad?" No, have you seen "What Dreams May Come?"
We will miss you, Robin, not only for making us smile and laugh but through your own pain showing us the many facets of life (and death).