Another Update on my brother
His anti-LGI-1 antibody came back positive, which means this is what we thought...it's an autoimmune kind of encephalitis more than likely and not anything cancerous. This means he'll probably respond to immunosuppressive treatments. He's had plasmapheresis x4 which is a primary treatment for this kind of encephalitis, and it's a good thing he is where he is and all this got started pretty early after he started exhibiting symptoms. Not that this is a great thing to have, but it's good that a) it's apparently NOT cancer, and b) they seem to know what they're doing.
He's still on the vent, but seizure activity has stopped. He is off the sedation, responds to simple commands, and appears to recognize his younger son, who was with him yesterday and was showing him pictures of his partner, his dog, his other son, and his granddaughter. He responded to those. He did have a lot of respiratory gunk, but chest x-rays yesterday were negative for pneumonia, and I've never cared for a vent patient who didn't have a lot of gunk after a week....it kinda goes with the territory since they can't get rid of secretions.
One thing that made me smile is that the doc who will be managing his treatment once he gets out of neuro ICU is named Sheherizade Le. I think we need a little sorcery and magic here, but let's hope it won't take 1001 nights!
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Ty so much for the update!
Continued healing vibes to him! 💓💓💓
