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annabanana

(52,791 posts)
Thu Feb 13, 2014, 09:04 PM Feb 2014

To those who recognize my handle,

You may have noticed that my usual scatter-shot posts running along the early replies to threads in GD, mostly, but also here in the lounge have been few and far between as of late.

The banana family has been dealing with some serious health issues for the past 7 months, and my DU participation has dwindled as my responsibilities have increased.

The Mister suffered from a serious bone infection in his hip and was hospitalized last June. The antibiotic that was strong enough to kill the infection was also, unfortunately, strong enough to kill his already compromised kidneys and he has had to start dialysis, three times a week, probably for the rest of his life. In the balancing act trying to save his kidneys, his heart became burdened and he now also suffers from congestive heart failure, which comes with it's own challenges to the lifestyles of the barely holding on.

After having 4 stents placed in heart-adjacent arteries, he then suffered what is called a "V-Tach", which is a dangerously rapid beating of the ventricles and resulted in the implantation of a defibrillator (like the one that Cheney recently had "turned off" for fear of it's being hacked).

After exactly 7 months of back and forth visits to hospitals and rehab facilities, the Mister finally was allowed to come home. Being pretty much flat on his back for that long has rendered him, at least temporarily, bed and wheelchair bound. We have a kind of body crane called a "hoyer" to lift him from one to the other, and visits twice a week (for as long as the insurance allows) of a physical therapist to try and help motivate him to keep pushing himself.

We rely on the services of an ambulette service to transport him back and forth to dialysis, three times a week at $75 a pop. Too young for medicare, and with a pension that rules out medicaid this expense is causing us some drastic changes in lifestyle.

But with ALL of this,
on Valentines Day Eve,

I am so so grateful to have him home with me. To not have the sick sinking feeling each night of locking up, knowing that he is at the mercy of efficient and competent, but cold institutions through the nighttime hours is a blessing that brings me to the brink of tears.

I know that the road ahead of us is long and dangerous, and hard... but to still have this man with me fills my heart with gratitude that defies expression.

Everyone out there, hold those you love as close as you can. There is no substitute for love.

50 replies = new reply since forum marked as read
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To those who recognize my handle, (Original Post) annabanana Feb 2014 OP
Nice to see you here anna. redwitch Feb 2014 #1
wow, what a journey !! BlancheSplanchnik Feb 2014 #2
ah Blanche, annabanana Feb 2014 #4
yep....i love toads---the cute, fat lumpy kind. BlancheSplanchnik Feb 2014 #9
Regarding Medicare DebJ Feb 2014 #3
I'm pretty sure that medicare doesn't pay for transport. annabanana Feb 2014 #6
Oh, I see. I know the cost of dialysis itself DebJ Feb 2014 #10
I hope things continue to get better for you and your family LiberalEsto Feb 2014 #5
Thank you LE annabanana Feb 2014 #7
Remember to take care of yourself as well as you take care of him. In_The_Wind Feb 2014 #8
I confess to having a significant backlog of things to attend to.. annabanana Feb 2014 #11
Good for you. That's very important at this time. In_The_Wind Feb 2014 #15
One goes out to you... MrMickeysMom Feb 2014 #12
Best wishes to you and your husband as you navigate this new reality. bluesbassman Feb 2014 #13
Oh, Anna... babylonsister Feb 2014 #14
One does what needs doing.. annabanana Feb 2014 #19
Hugs. Scuba Feb 2014 #16
Thanks Scuba dear. . .n/t annabanana Feb 2014 #20
I remember you! pamela Feb 2014 #17
Still wear them.. annabanana Feb 2014 #21
Lovely to see you here again. MerryBlooms Feb 2014 #18
Hugs to you and welcome back! Hope your husband's health improves since he is at home and love is livetohike Feb 2014 #22
K&R DeSwiss Feb 2014 #23
I am so sorry for all the difficulties, but glad that you all seem GreenPartyVoter Feb 2014 #24
... Kali Feb 2014 #25
Good luck to you and Mr. Banana, Anna, on all fronts Jack Rabbit Feb 2014 #26
Awww… annabanana! So good to hear from you again! calimary Feb 2014 #27
Amen. lumberjack_jeff Feb 2014 #28
I'm familiar with Hoyer sling and ambulette service, so can relate to your situation. No Vested Interest Feb 2014 #29
That rate IS the "agreement" , :( annabanana Feb 2014 #41
Gosh! Keep very good track of all medical expenses, including ambulette. No Vested Interest Feb 2014 #44
my best to you and the mister fizzgig Feb 2014 #30
Ouch! But it's good to see your voice again struggle4progress Feb 2014 #31
You need hugs... progressoid Feb 2014 #32
aww. . . thanks. How cute. . . .n/t annabanana Feb 2014 #42
Much love to you and your sweetie! Texasgal Feb 2014 #33
it's good to hear from you annabanana Skittles Feb 2014 #34
My best wishes for you and hubby. 840high Feb 2014 #35
i wish you both all the best. barbtries Feb 2014 #36
dear annabanana (one of the du names i've always loved) orleans Feb 2014 #37
I know what your gratitude means. WinkyDink Feb 2014 #38
extra hearts to you my dear WinkyDink. annabanana Feb 2014 #43
I appreciate them more than I can say. Thank you. WinkyDink Feb 2014 #50
(((annabanana))) Solly Mack Feb 2014 #39
I'm so sorry for what you and the Mister have been through Triana Feb 2014 #40
Oh, anna. My heart is with you and your husband. I hope things get easier for both of you. Squinch Feb 2014 #45
Warmest wishes, annabanana, to you both! pnwmom Feb 2014 #46
Medicare is supposed to cover end-stage renal failure regardless of age KamaAina Feb 2014 #47
May he be healed and have many more years. meti57b Feb 2014 #48
I'm so sorry you are having to deal with this passiveporcupine Feb 2014 #49

redwitch

(14,944 posts)
1. Nice to see you here anna.
Thu Feb 13, 2014, 09:13 PM
Feb 2014

You really have had a rough go of it. I am glad he is home so sorry you are both going through this.

BlancheSplanchnik

(20,219 posts)
2. wow, what a journey !!
Thu Feb 13, 2014, 09:16 PM
Feb 2014

Wishing you continued strength together, and better times!!!!!

I've loved a few intensely, given my heart and trust in good faith, but chosen very poor partners, since I had no idea what someone capable of loving back acts or feels like.

BlancheSplanchnik

(20,219 posts)
9. yep....i love toads---the cute, fat lumpy kind.
Thu Feb 13, 2014, 09:23 PM
Feb 2014

I gotta turn away the human ones.

Thought i finally found my soulmate when i was 50. Oops, another big mistake.

DebJ

(7,699 posts)
3. Regarding Medicare
Thu Feb 13, 2014, 09:17 PM
Feb 2014

My husband has Chronic Kidney Disease and I called them last year. They said after 3 months of dialysis,
anyone on dialysis qualifies for Medicare.


http://www.medicare.gov/Pubs/pdf/10128.pdf
Who’s eligible?
You can get Medicare no matter how old you are if your kidneys
no longer work, you need regular dialysis or have had a kidney
transplant, and:

You’ve worked the required amount of time under Social Security,
the Railroad Retirement Board, or as a government employee.

You’re already getting or are eligible for Social Security or Railroad
Retirement benefits.

You’re the spouse or dependent child of a person who meets either
of the requirements listed above.
You must also file an application, and meet any waiting periods
that apply.
If you qualify for Part A, you can also get Part B. As noted above,
enrolling in Part B is your choice, but
you’ll need both Part A and
Part B to get the full benefits available under Medicare to cover
certain dialysis and kidney transplant services.
If you don’t qualify for Medicare, you may be able to get help from
your state to pay for your dialysis treatments. See
pages 45–46

annabanana

(52,791 posts)
6. I'm pretty sure that medicare doesn't pay for transport.
Thu Feb 13, 2014, 09:21 PM
Feb 2014

THAT is what's killing us, financially...

DebJ

(7,699 posts)
10. Oh, I see. I know the cost of dialysis itself
Thu Feb 13, 2014, 09:24 PM
Feb 2014

here is between $800 and $1200 per visit. That's what the nephrologists info class told us.
We aren't there yet.

annabanana

(52,791 posts)
11. I confess to having a significant backlog of things to attend to..
Thu Feb 13, 2014, 09:25 PM
Feb 2014

Like dental work, mammograms, pap tests, painful calluses that need attending to... As soon as the weather gives us a breather, I'll start scheduling Mon, Wed, and Fri early morning appointments....

In_The_Wind

(72,300 posts)
15. Good for you. That's very important at this time.
Thu Feb 13, 2014, 09:41 PM
Feb 2014

Stress is hard on anyone's body. You'll be able to give more if you are feeling well.

Take breaks with your friends.
Their emotional support will help carry you through the times ahead.

Lurk around the happy parts of DU. Laughter will be good for you.

MrMickeysMom

(20,453 posts)
12. One goes out to you...
Thu Feb 13, 2014, 09:26 PM
Feb 2014


It's a long road you have ridden. May you get all the help and guidance you need, annabanana.

bluesbassman

(19,370 posts)
13. Best wishes to you and your husband as you navigate this new reality.
Thu Feb 13, 2014, 09:28 PM
Feb 2014

Drop in when you have time, you know you're among friends.

pamela

(3,469 posts)
17. I remember you!
Thu Feb 13, 2014, 09:45 PM
Feb 2014

You won one of my pairs of earrings in the John Edwards contest. I'm so sorry about your husband but so glad he is home with you. Have a happy Valentine's Day.

MerryBlooms

(11,761 posts)
18. Lovely to see you here again.
Thu Feb 13, 2014, 10:02 PM
Feb 2014

Hang tight to the honor of being his wife, and continue to draw strength from it.

livetohike

(22,138 posts)
22. Hugs to you and welcome back! Hope your husband's health improves since he is at home and love is
Thu Feb 13, 2014, 10:07 PM
Feb 2014

the best medicine : hug:

 

DeSwiss

(27,137 posts)
23. K&R
Thu Feb 13, 2014, 10:16 PM
Feb 2014

[center][font size=10 color=red]♥♥♥♥♥♥♥♥♥♥[/font]

[font size=10 color=red]♥♥♥♥♥♥♥♥♥♥[/font][/center]

GreenPartyVoter

(72,377 posts)
24. I am so sorry for all the difficulties, but glad that you all seem
Thu Feb 13, 2014, 10:23 PM
Feb 2014

to be weathering it as well as possible under difficult circumstances.

Jack Rabbit

(45,984 posts)
26. Good luck to you and Mr. Banana, Anna, on all fronts
Thu Feb 13, 2014, 10:32 PM
Feb 2014

Yes, I recogonize your handle.

Anna Banana was Ranger Roy's pet monkey on an afternoon kiddie show in Sacramento when I was a young pre-schooler, back around World War I.

Please click here.

calimary

(81,209 posts)
27. Awww… annabanana! So good to hear from you again!
Thu Feb 13, 2014, 10:44 PM
Feb 2014

Don't care what kind of report it is. Just glad to hear from you again.

I'm sorry the last seven months have been such an uphill slog. But Happy Valentine's Day to you both!!! I'm glad you still have each other! Remember what the Beatles said: "And in the end, the love you take is equal to the love you make!"

No Vested Interest

(5,165 posts)
29. I'm familiar with Hoyer sling and ambulette service, so can relate to your situation.
Thu Feb 13, 2014, 11:08 PM
Feb 2014

I've often said we learn much more about medical terminology than we ever wanted to know, when health problems beset us or a loved one.

My spouse was in nursing care for six years before passing; we hoped to have him come home permanently during the first two years, then gradually came to realize it wasn't going to be. And I know, like you, that even a fine nursing facility is not perfect.
So I can also appreciate how precious it is to you to have him back at home.

Is there any chance you can work an agreement with an ambulette service, since you will be using them so regularly?

No Vested Interest

(5,165 posts)
44. Gosh! Keep very good track of all medical expenses, including ambulette.
Fri Feb 14, 2014, 05:25 PM
Feb 2014

They are taxable when they exceed a percentage of your annual income.
It used to be 7.5%; I believe it has gone up to a higher percentage in the last year or two.
Because my spouse was in nursing care, the expenses for the year were very great, and brought our tax liability down considerably.

Texasgal

(17,042 posts)
33. Much love to you and your sweetie!
Thu Feb 13, 2014, 11:30 PM
Feb 2014

I hope that things get better! What a sweetheart you are.

Keep us posted?

orleans

(34,048 posts)
37. dear annabanana (one of the du names i've always loved)
Thu Feb 13, 2014, 11:50 PM
Feb 2014

such a trying time for both of you...such a journey....my heart goes out to you.

but he is home--he is home--and how fortunate for that and that you are together.

wishing you both much love, peace, and happiness tonight, tomorrow, and always.

 

WinkyDink

(51,311 posts)
38. I know what your gratitude means.
Fri Feb 14, 2014, 12:11 AM
Feb 2014

My husband has this week entered one of those institutions, for forever. He is 73; I am 64. We are "it" for each other. My house is now empty, but I am assured "he's being taken care of."

 

Triana

(22,666 posts)
40. I'm so sorry for what you and the Mister have been through
Fri Feb 14, 2014, 01:14 AM
Feb 2014

But I'm joyous for you also, that he's there with you.

I wish you both many more moments, hours, days, years together and I wish you prosperity, health, and peace.

 

KamaAina

(78,249 posts)
47. Medicare is supposed to cover end-stage renal failure regardless of age
Fri Feb 14, 2014, 07:34 PM
Feb 2014

Your local independent living center (like the one where I'm posting from) may have a benefits expert who can help. Find it here:

http://www.ilru.org/html/publications/directory/index.html

passiveporcupine

(8,175 posts)
49. I'm so sorry you are having to deal with this
Fri Feb 14, 2014, 08:00 PM
Feb 2014

but am understanding of your gratitude that he is home now!

May this year come easier as it flows along.

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