The DU Lounge
Related: Culture Forums, Support ForumsTo those who recognize my handle,
You may have noticed that my usual scatter-shot posts running along the early replies to threads in GD, mostly, but also here in the lounge have been few and far between as of late.
The banana family has been dealing with some serious health issues for the past 7 months, and my DU participation has dwindled as my responsibilities have increased.
The Mister suffered from a serious bone infection in his hip and was hospitalized last June. The antibiotic that was strong enough to kill the infection was also, unfortunately, strong enough to kill his already compromised kidneys and he has had to start dialysis, three times a week, probably for the rest of his life. In the balancing act trying to save his kidneys, his heart became burdened and he now also suffers from congestive heart failure, which comes with it's own challenges to the lifestyles of the barely holding on.
After having 4 stents placed in heart-adjacent arteries, he then suffered what is called a "V-Tach", which is a dangerously rapid beating of the ventricles and resulted in the implantation of a defibrillator (like the one that Cheney recently had "turned off" for fear of it's being hacked).
After exactly 7 months of back and forth visits to hospitals and rehab facilities, the Mister finally was allowed to come home. Being pretty much flat on his back for that long has rendered him, at least temporarily, bed and wheelchair bound. We have a kind of body crane called a "hoyer" to lift him from one to the other, and visits twice a week (for as long as the insurance allows) of a physical therapist to try and help motivate him to keep pushing himself.
We rely on the services of an ambulette service to transport him back and forth to dialysis, three times a week at $75 a pop. Too young for medicare, and with a pension that rules out medicaid this expense is causing us some drastic changes in lifestyle.
But with ALL of this,
on Valentines Day Eve,
I am so so grateful to have him home with me. To not have the sick sinking feeling each night of locking up, knowing that he is at the mercy of efficient and competent, but cold institutions through the nighttime hours is a blessing that brings me to the brink of tears.
I know that the road ahead of us is long and dangerous, and hard... but to still have this man with me fills my heart with gratitude that defies expression.
Everyone out there, hold those you love as close as you can. There is no substitute for love.
redwitch
(14,944 posts)You really have had a rough go of it. I am glad he is home so sorry you are both going through this.
BlancheSplanchnik
(20,219 posts)Wishing you continued strength together, and better times!!!!!
I've loved a few intensely, given my heart and trust in good faith, but chosen very poor partners, since I had no idea what someone capable of loving back acts or feels like.
annabanana
(52,791 posts)I kissed a lot of frogs before I met this one in my mid-30's....
BlancheSplanchnik
(20,219 posts)I gotta turn away the human ones.
Thought i finally found my soulmate when i was 50. Oops, another big mistake.
DebJ
(7,699 posts)My husband has Chronic Kidney Disease and I called them last year. They said after 3 months of dialysis,
anyone on dialysis qualifies for Medicare.
http://www.medicare.gov/Pubs/pdf/10128.pdf
Whos eligible?
You can get Medicare no matter how old you are if your kidneys
no longer work, you need regular dialysis or have had a kidney
transplant, and:
■
Youve worked the required amount of time under Social Security,
the Railroad Retirement Board, or as a government employee.
■
Youre already getting or are eligible for Social Security or Railroad
Retirement benefits.
■
Youre the spouse or dependent child of a person who meets either
of the requirements listed above.
You must also file an application, and meet any waiting periods
that apply.
If you qualify for Part A, you can also get Part B. As noted above,
enrolling in Part B is your choice, but
youll need both Part A and
Part B to get the full benefits available under Medicare to cover
certain dialysis and kidney transplant services.
If you dont qualify for Medicare, you may be able to get help from
your state to pay for your dialysis treatments. See
pages 4546
annabanana
(52,791 posts)THAT is what's killing us, financially...
DebJ
(7,699 posts)here is between $800 and $1200 per visit. That's what the nephrologists info class told us.
We aren't there yet.
LiberalEsto
(22,845 posts)annabanana
(52,791 posts)one foot in front of the other
In_The_Wind
(72,300 posts)annabanana
(52,791 posts)Like dental work, mammograms, pap tests, painful calluses that need attending to... As soon as the weather gives us a breather, I'll start scheduling Mon, Wed, and Fri early morning appointments....
In_The_Wind
(72,300 posts)Stress is hard on anyone's body. You'll be able to give more if you are feeling well.
Take breaks with your friends.
Their emotional support will help carry you through the times ahead.
Lurk around the happy parts of DU. Laughter will be good for you.
MrMickeysMom
(20,453 posts)It's a long road you have ridden. May you get all the help and guidance you need, annabanana.
bluesbassman
(19,370 posts)Drop in when you have time, you know you're among friends.
babylonsister
(171,056 posts)I'm so glad he's home with you. That is wonderful advice; hang in there.
annabanana
(52,791 posts)weary but warm inside.
Thanks for the hug
Scuba
(53,475 posts)annabanana
(52,791 posts)pamela
(3,469 posts)You won one of my pairs of earrings in the John Edwards contest. I'm so sorry about your husband but so glad he is home with you. Have a happy Valentine's Day.
annabanana
(52,791 posts)Still like 'em!
MerryBlooms
(11,761 posts)Hang tight to the honor of being his wife, and continue to draw strength from it.
livetohike
(22,138 posts)the best medicine : hug:
DeSwiss
(27,137 posts)[center][font size=10 color=red]♥♥♥♥♥♥♥♥♥♥[/font]
[font size=10 color=red]♥♥♥♥♥♥♥♥♥♥[/font][/center]
GreenPartyVoter
(72,377 posts)to be weathering it as well as possible under difficult circumstances.
Jack Rabbit
(45,984 posts)Yes, I recogonize your handle.
Anna Banana was Ranger Roy's pet monkey on an afternoon kiddie show in Sacramento when I was a young pre-schooler, back around World War I.
Please click here.
calimary
(81,209 posts)Don't care what kind of report it is. Just glad to hear from you again.
I'm sorry the last seven months have been such an uphill slog. But Happy Valentine's Day to you both!!! I'm glad you still have each other! Remember what the Beatles said: "And in the end, the love you take is equal to the love you make!"
lumberjack_jeff
(33,224 posts)Thanks annabananna.
No Vested Interest
(5,165 posts)I've often said we learn much more about medical terminology than we ever wanted to know, when health problems beset us or a loved one.
My spouse was in nursing care for six years before passing; we hoped to have him come home permanently during the first two years, then gradually came to realize it wasn't going to be. And I know, like you, that even a fine nursing facility is not perfect.
So I can also appreciate how precious it is to you to have him back at home.
Is there any chance you can work an agreement with an ambulette service, since you will be using them so regularly?
annabanana
(52,791 posts)Usual charges around here are $90-$125 per round trip.
No Vested Interest
(5,165 posts)They are taxable when they exceed a percentage of your annual income.
It used to be 7.5%; I believe it has gone up to a higher percentage in the last year or two.
Because my spouse was in nursing care, the expenses for the year were very great, and brought our tax liability down considerably.
fizzgig
(24,146 posts)you are lucky to have such love in your life.
struggle4progress
(118,274 posts)progressoid
(49,976 posts)annabanana
(52,791 posts)Texasgal
(17,042 posts)I hope that things get better! What a sweetheart you are.
Keep us posted?
Skittles
(153,142 posts)wishing the best for you and Mister
840high
(17,196 posts)barbtries
(28,787 posts)i'm happy he's home with you too. your post is very moving.
orleans
(34,048 posts)such a trying time for both of you...such a journey....my heart goes out to you.
but he is home--he is home--and how fortunate for that and that you are together.
wishing you both much love, peace, and happiness tonight, tomorrow, and always.
WinkyDink
(51,311 posts)My husband has this week entered one of those institutions, for forever. He is 73; I am 64. We are "it" for each other. My house is now empty, but I am assured "he's being taken care of."
annabanana
(52,791 posts)Your voice echoes clear here.
WinkyDink
(51,311 posts)Solly Mack
(90,762 posts)Lots and lots of hugs.
Triana
(22,666 posts)But I'm joyous for you also, that he's there with you.
I wish you both many more moments, hours, days, years together and I wish you prosperity, health, and peace.
Squinch
(50,944 posts)pnwmom
(108,974 posts)KamaAina
(78,249 posts)Your local independent living center (like the one where I'm posting from) may have a benefits expert who can help. Find it here:
http://www.ilru.org/html/publications/directory/index.html
meti57b
(3,584 posts)passiveporcupine
(8,175 posts)but am understanding of your gratitude that he is home now!
May this year come easier as it flows along.