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Diagnosis this morning (Original Post) shenmue Sep 2015 OP
I am so sorry, my dear shenmue... CaliforniaPeggy Sep 2015 #1
Yeah shenmue Sep 2015 #2
Yes, you will! CaliforniaPeggy Sep 2015 #3
We's be cool shenmue Sep 2015 #4
I know you do...it's just an example of my weird sense of humor! CaliforniaPeggy Sep 2015 #5
love that spirit! rurallib Sep 2015 #23
Rarrrrr! shenmue Sep 2015 #25
Sorry to hear that TexasBushwhacker Sep 2015 #6
I'm sorry, shenmue ailsagirl Sep 2015 #7
Thanks, everybody shenmue Sep 2015 #8
I am sorry for your illness. Stuart G Sep 2015 #9
That's a real bummer, but at least there's things that can be done to treat it. I'm not minimizing catbyte Sep 2015 #10
He will, no doubt shenmue Sep 2015 #11
So sad for your Dx. Take care of yourself, pamper YOU whenever you can. nt Fla Dem Sep 2015 #12
Nothing really to add here, except well wishes! hamsterjill Sep 2015 #13
At least getting the diagnosis maes it legit - hedgehog Sep 2015 #14
I thought the toaster was talking to me shenmue Sep 2015 #17
Asking for permission LiberalElite Sep 2015 #21
Yes, u can has shenmue Sep 2015 #22
Sorry you got bad news, shenmue. femmocrat Sep 2015 #15
sorry to hear this, take good care, shenmue steve2470 Sep 2015 #16
Sending you blessings of healing and hope LiberalEsto Sep 2015 #18
Sorry it as such a serious diagnosis. gvstn Sep 2015 #19
Thank you shenmue Sep 2015 #24
. LiberalElite Sep 2015 #20
((hugs)) irisblue Sep 2015 #26
Every day is a day to have ice cream shenmue Sep 2015 #27
princess peanut & I are having pizza, come on up irisblue Sep 2015 #28
I'll step in my teleporter shenmue Sep 2015 #29
Oh shit about sums it up. So so very sorry riderinthestorm Sep 2015 #30
I bless myself in gratitude that you are in my DU life now, before, and tomorrow UTUSN Sep 2015 #31
Hugs. TexasTowelie Sep 2015 #32
Damn. redwitch Sep 2015 #33
OH! elleng Sep 2015 #34
I agree - shit. ohheckyeah Sep 2015 #35
My thoughts are with you. blogslut Sep 2015 #36
someone is always here on DU, shenmue Skittles Sep 2015 #37
Thanks shenmue Sep 2015 #38
Yeah. oh shit about covers it. malthaussen Sep 2015 #39
I will! shenmue Sep 2015 #40
another oh shit. mopinko Sep 2015 #41
Thank you shenmue Sep 2015 #42
hang in there. this nasty disease runs in my family. mopinko Sep 2015 #43
You'll be fine /nt jakeXT Sep 2015 #44
just saw this....oh shit magical thyme Sep 2015 #45
Dang, kid. MerryBlooms Sep 2015 #46
I'll be okay shenmue Sep 2015 #47
:hug: elleng Sep 2015 #48
I am betting you will be okay. Modern medicine is pretty amazing these days... MerryBlooms Sep 2015 #49
With a chocolate center shenmue Sep 2015 #50
lol, indeed. MerryBlooms Sep 2015 #51
Hugs and all the best to you in this fight, shenmue! Coventina Sep 2015 #52
Oh my garsh shenmue Sep 2015 #57
I'm very sorry. Arugula Latte Sep 2015 #53
Kittens always win shenmue Sep 2015 #56
We'll be here to help Nac Mac Feegle Sep 2015 #54
Thanks! shenmue Sep 2015 #55
sorry to hear your news btrflykng9 Sep 2015 #58
Thanks shenmue Sep 2015 #59
... Enthusiast Sep 2015 #60
That sucks! BlancheSplanchnik Sep 2015 #61
Thank you shenmue Sep 2015 #62

CaliforniaPeggy

(149,588 posts)
1. I am so sorry, my dear shenmue...
Wed Sep 9, 2015, 02:17 PM
Sep 2015

But at least now you know what the problem is.

That is half the battle.

catbyte

(34,373 posts)
10. That's a real bummer, but at least there's things that can be done to treat it. I'm not minimizing
Wed Sep 9, 2015, 03:51 PM
Sep 2015

it in any way, but at least it isn't something like ALS--when my dad was diagnosed with that, there was nothing we could do. I'm rooting for you, and I'm sure that Chief Inspector Murphy will be a great nurse, too.

hamsterjill

(15,220 posts)
13. Nothing really to add here, except well wishes!
Wed Sep 9, 2015, 04:46 PM
Sep 2015

I'm sorry that this has happened to you. I hope you will learn as much as you can about MS and be an advocate for yourself demanding the best care possible.

You'll be in my thoughts and prayers, and I wish you peace and comfort.

femmocrat

(28,394 posts)
15. Sorry you got bad news, shenmue.
Wed Sep 9, 2015, 07:22 PM
Sep 2015

I hope it is easily managed with medication. Please take care of yourself.

gvstn

(2,805 posts)
19. Sorry it as such a serious diagnosis.
Wed Sep 9, 2015, 08:42 PM
Sep 2015

You seem to have great attitude so I'm sure that will help in the years ahead.

You are in my thoughts.

 

riderinthestorm

(23,272 posts)
30. Oh shit about sums it up. So so very sorry
Wed Sep 9, 2015, 09:23 PM
Sep 2015

FWIW, I know people who live with this disease and cope very well.

I sincerely hope you find some relief with the current treatment protocol.



TexasTowelie

(112,122 posts)
32. Hugs.
Wed Sep 9, 2015, 09:44 PM
Sep 2015

I hope that they can find a treatment plan that will minimize the impact of what is occurring to you.

malthaussen

(17,187 posts)
39. Yeah. oh shit about covers it.
Thu Sep 10, 2015, 09:42 AM
Sep 2015

Think of it as an opportunity to show how stubborn you are. "I spit in the face of MS!"

-- Mal

mopinko

(70,078 posts)
41. another oh shit.
Thu Sep 10, 2015, 12:25 PM
Sep 2015

if it was me, i would get myself to a research hospital. northwestern here in chicago has some very exciting research on ms going on now.
look for trials to join.

and ngu.

mopinko

(70,078 posts)
43. hang in there. this nasty disease runs in my family.
Thu Sep 10, 2015, 12:38 PM
Sep 2015

my sister has had it for a very long time, and now her daughter has it.
nasty of nasties.
i understand they are starting to do autologous bone marrow transplants for it. amazing success rates. but a nasty and dangerous procedure.

google this- northwestern hospital ms research

 

magical thyme

(14,881 posts)
45. just saw this....oh shit
Fri Sep 11, 2015, 05:41 PM
Sep 2015
Well now you know what's going on and it's official and all. So there's that. And ice cream, of course.

MerryBlooms

(11,767 posts)
49. I am betting you will be okay. Modern medicine is pretty amazing these days...
Fri Sep 11, 2015, 06:45 PM
Sep 2015

and you're a tough cookie.

Nac Mac Feegle

(970 posts)
54. We'll be here to help
Fri Sep 11, 2015, 09:15 PM
Sep 2015

You Are Not Alone


The Acronym Diseases are not as scary as they once were. As mentioned above, medical science has progressed more than a little bit. You can find a LOT of info on the internet, but be careful. There are no cures (curing is what they do to hams), so do not let anyone give you a false hope; they're probably trying to scam you.

'Google University' is helpful, but beware of too much information. People can be too quick to attribute an effect in error. You could just be tired after a late night and need a nap, it may not be a side effect of the meds.

Autoimmune conditions are a 'lifetime committment', so be aware of that. Find a support group if you can, there is a lot of info available from people in the same boat that doesn't get into the pamphlets and Web pages. Make a committment to yourself that you will deal with this s**t and not let it get the better of you, and remember that. Do not let it define you. It may set a few limits, but you have to find them, and learn if they can be pushed.

This may sound a bit odd, but it has been mentioned above, also.

Having a diagnosis is actually a good thing. You now know your opponent. It is an axiom that the better you know your enemy, the better the chance of victory. The Acronym Diseases are notoriously hard to diagnose, but when that is done, the course of treatment is well known. There may be individual quirks, but they are usually dealt with, someone else has probably had them before.

Be sure to gather a list of medications and dosages, so that you can tell your Doctors and prevent drug interaction problems. Find out if you need any specific devices or strategies to make it through your day. And set your phone alarm clock to remind you to take your meds. Get a good, durable pill container to keep with you, preferably watertight. Some pills are sensitive to moisture.

If you wish, P.M. me and we can discuss things privately, I'll give whatever help I can.

My 'challenge' is MG; related, but a little further down the scale. What I'm saying is that I understand, from experience.

btrflykng9

(287 posts)
58. sorry to hear your news
Fri Sep 11, 2015, 10:52 PM
Sep 2015

laughter and positive thinking are both assets to heath so I'm wishing you lots of both.

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