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Related: Culture Forums, Support ForumsDiagnosis this morning
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Excuse my English, but oh shit.
CaliforniaPeggy
(149,588 posts)But at least now you know what the problem is.
That is half the battle.
shenmue
(38,506 posts)I'm still around. I'll be pissing people off for years.
CaliforniaPeggy
(149,588 posts)I mean....uh..........wait a minute, that's not what I meant..........phooey!
shenmue
(38,506 posts)I know what'cha mean.
CaliforniaPeggy
(149,588 posts)rurallib
(62,406 posts)I intend to be here watching you!
shenmue
(38,506 posts)TexasBushwhacker
(20,174 posts)Check out Dr. Terry Wahl's. She was able to reverse the symptoms of her progressive MS with a Paleo diet.
http://terrywahls.com/about/about-terry-wahls/
ailsagirl
(22,896 posts)We're rooting for you, and the DU group can be a formidable force!!
shenmue
(38,506 posts)Stuart G
(38,419 posts)catbyte
(34,373 posts)it in any way, but at least it isn't something like ALS--when my dad was diagnosed with that, there was nothing we could do. I'm rooting for you, and I'm sure that Chief Inspector Murphy will be a great nurse, too.
shenmue
(38,506 posts)Fla Dem
(23,650 posts)hamsterjill
(15,220 posts)I'm sorry that this has happened to you. I hope you will learn as much as you can about MS and be an advocate for yourself demanding the best care possible.
You'll be in my thoughts and prayers, and I wish you peace and comfort.
hedgehog
(36,286 posts)no more anyone telling you it's all in your head!
shenmue
(38,506 posts)Turned out it was the lamp.
LiberalElite
(14,691 posts)to steal this
shenmue
(38,506 posts)femmocrat
(28,394 posts)I hope it is easily managed with medication. Please take care of yourself.
steve2470
(37,457 posts)LiberalEsto
(22,845 posts)gvstn
(2,805 posts)You seem to have great attitude so I'm sure that will help in the years ahead.
You are in my thoughts.
LiberalElite
(14,691 posts)sending good vibes your way
irisblue
(32,968 posts)this sucks massively
shenmue
(38,506 posts)I realize that now.
irisblue
(32,968 posts)shenmue
(38,506 posts)riderinthestorm
(23,272 posts)FWIW, I know people who live with this disease and cope very well.
I sincerely hope you find some relief with the current treatment protocol.
UTUSN
(70,683 posts)TexasTowelie
(112,122 posts)I hope that they can find a treatment plan that will minimize the impact of what is occurring to you.
redwitch
(14,944 posts)ohheckyeah
(9,314 posts)I'm so sorry. I hope it can be managed.
blogslut
(37,999 posts)I hope you only get stronger.
Skittles
(153,150 posts)we are here for you
malthaussen
(17,187 posts)Think of it as an opportunity to show how stubborn you are. "I spit in the face of MS!"
-- Mal
shenmue
(38,506 posts)mopinko
(70,078 posts)if it was me, i would get myself to a research hospital. northwestern here in chicago has some very exciting research on ms going on now.
look for trials to join.
and ngu.
shenmue
(38,506 posts)Very good idea.
mopinko
(70,078 posts)my sister has had it for a very long time, and now her daughter has it.
nasty of nasties.
i understand they are starting to do autologous bone marrow transplants for it. amazing success rates. but a nasty and dangerous procedure.
google this- northwestern hospital ms research
jakeXT
(10,575 posts)magical thyme
(14,881 posts)MerryBlooms
(11,767 posts)I'm so sorry you got this kick in the gut.
shenmue
(38,506 posts)I've got my Mom and Dad, my friends here at Dee Yoo, and of course, my dog.
MerryBlooms
(11,767 posts)and you're a tough cookie.
shenmue
(38,506 posts)MerryBlooms
(11,767 posts)Coventina
(27,101 posts)We love you!!
shenmue
(38,506 posts)Is someone chopping onions?
Arugula Latte
(50,566 posts)Hugs ... We've got your back.
shenmue
(38,506 posts)Nac Mac Feegle
(970 posts)You Are Not Alone
The Acronym Diseases are not as scary as they once were. As mentioned above, medical science has progressed more than a little bit. You can find a LOT of info on the internet, but be careful. There are no cures (curing is what they do to hams), so do not let anyone give you a false hope; they're probably trying to scam you.
'Google University' is helpful, but beware of too much information. People can be too quick to attribute an effect in error. You could just be tired after a late night and need a nap, it may not be a side effect of the meds.
Autoimmune conditions are a 'lifetime committment', so be aware of that. Find a support group if you can, there is a lot of info available from people in the same boat that doesn't get into the pamphlets and Web pages. Make a committment to yourself that you will deal with this s**t and not let it get the better of you, and remember that. Do not let it define you. It may set a few limits, but you have to find them, and learn if they can be pushed.
This may sound a bit odd, but it has been mentioned above, also.
Having a diagnosis is actually a good thing. You now know your opponent. It is an axiom that the better you know your enemy, the better the chance of victory. The Acronym Diseases are notoriously hard to diagnose, but when that is done, the course of treatment is well known. There may be individual quirks, but they are usually dealt with, someone else has probably had them before.
Be sure to gather a list of medications and dosages, so that you can tell your Doctors and prevent drug interaction problems. Find out if you need any specific devices or strategies to make it through your day. And set your phone alarm clock to remind you to take your meds. Get a good, durable pill container to keep with you, preferably watertight. Some pills are sensitive to moisture.
If you wish, P.M. me and we can discuss things privately, I'll give whatever help I can.
My 'challenge' is MG; related, but a little further down the scale. What I'm saying is that I understand, from experience.
shenmue
(38,506 posts)You are very kind.
btrflykng9
(287 posts)laughter and positive thinking are both assets to heath so I'm wishing you lots of both.
shenmue
(38,506 posts)Enthusiast
(50,983 posts)BlancheSplanchnik
(20,219 posts)Great suggestion about finding a research hospital.
Kick MS ass, shenmue!