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mentalsolstice

(4,459 posts)
Sat Sep 12, 2015, 10:02 PM Sep 2015

PSA: If you have a sudden hearing loss, don't f*ck around with it!

If you suddenly lose your hearing, don't mess around with it. Six weeks ago, I woke up and my right ear was totally clogged up. At the same time I had a sinus problem that I was trying to self treat, because I had already been on 2 rounds of antibiotics last Fall and in January. So I dicked around with for 2 days, with Sudafed. When that didn't work I went into Urgent Care, they said yeah I had bronchitis and a sinus/ear infection. Antibiotics improved my sinuses and chest, but not my right ear. A couple of weeks later I went back in when my left ear clogged up, more antibiotics, and nothing.

After the end of that round of meds, I went to an ENT last Wednesday, and I had 80% hearing loss, and it looked like it may be permanent. He was ANGRY, PISSED...so much so he scared the bejeezus out of me. He is elderly, and strained his voice just trying to talk to me. He's a practitioner in the largest ENT practice in our state, and in with the group that has treated my husband's Meniers.

Since then he's had me on an aggressive treatment, with steroid and antibiotic shots, every day for 3 days, with audiologist testing, and oral antibiotics and prednisone, and its not fun! I have now improved up to 60% hearing loss, and he is optimistic, but I still have several weeks of daily shots and oral stuff. However, I may never recover to the hearing level I had, simply because I went for the cheap treatment, and THEY didn't advise me to go to a specialist. I'm not posting this for pity, just as a warning, don't fool around!

I know money and copays are a concern for many who are short on money, like me, but that day when my ENT said that 80% hearing loss may be permanent...I had a $50 copay. I really wish I had spent that $50 several weeks earlier, and would've had a better peace of mind than I have now.

14 replies = new reply since forum marked as read
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PSA: If you have a sudden hearing loss, don't f*ck around with it! (Original Post) mentalsolstice Sep 2015 OP
This was almost me CrawlingChaos Sep 2015 #1
That sounds horrible PennyK Sep 2015 #6
yes, it was a very illuminating experience CrawlingChaos Sep 2015 #10
Clear ears from here on out! mentalsolstice Sep 2015 #13
"Get to the doctor within hours, not days" - AARP The Magazine, Aug/Sep 2015 progree Sep 2015 #2
kick Tobin S. Sep 2015 #3
I had that happen laundry_queen Sep 2015 #4
I can confirm this DFW Sep 2015 #5
I'm sorry shenmue Sep 2015 #7
Updated mentalsolstice Sep 2015 #8
I know a guy that lost most of his sense of smell to an upper respiratory infection Major Nikon Sep 2015 #9
I am going back to the ENT PennyK Sep 2015 #11
Hope all is well! NT mentalsolstice Sep 2015 #12
Thank you, mentalsolstice PennyK Sep 2015 #14

CrawlingChaos

(1,893 posts)
1. This was almost me
Sat Sep 12, 2015, 10:40 PM
Sep 2015

Late last year I developed an ear infection that would not respond to antibiotics. It was in both ears and was the result of unclean equipment used on me at an urgent care clinic.

No ENT would see me because of my ACA insurance, no matter how much I begged and waved cash and credit cards, they would not see me. The only ENT in my area who agreed to see me made me wait months for an appointment. The infection raged on for 5 months total. My eardrums ruptured, closed and re-ruptured I don't know how many times. It was so much pain I thought I would lose my mind and I could barely hear most of the time. When I finally saw the ENT he fixed me in ONE appointment.

But I had to suffer for 5 months and it's a minor miracle that I had no hearing loss from it. Especially considering I have a brother who has permanent, profound hearing loss that resulted from an ear infection (he now has limited hearing with hearing aids).

I'm so glad you are responding to treatment. The fact that it's improving at all is very encouraging. In my brother's case they tried everything you're describing and he never got the slightest improvement, and in his case the hearing loss really was permanent. But you are responding so I would be cautiously optimistic. Fingers crossed for some BIG improvements and wishing you the best!

PennyK

(2,301 posts)
6. That sounds horrible
Sun Sep 13, 2015, 08:17 PM
Sep 2015

I, also, have insurance I got through the marketplace. When I wanted to go to an ENT I called my insurer, got a list of ENTs who accept their coverage, and then got a referral from my primary-care physician. It seems insane that you had to wait like you did.
I was lucky! I had a partially clogged-feeling ear, was told I was recovering from an infection (I had, in fact, been taking antibiotics for bronchitis). He prescribed Prednisone, which did temporarily un-clog my ear, but which lowered my resistance just enough for me to break out in a lovely case of shingles!

That's over and done with, but the clog came back....it seems to be fading away for good. Still waiting to see if I need to see the ENT again.

CrawlingChaos

(1,893 posts)
10. yes, it was a very illuminating experience
Mon Sep 14, 2015, 06:21 AM
Sep 2015

When I initially called my ACA insurer, which is Anthem, for the names of ENTs who would accept my policy they gave me a list of 6 in my area. I got on the phone. 3 turned out to be plastic surgeons who only hold the certification so they can do nose jobs, 2 insisted they were on the list by mistake and would absolutely under no circumstances see Covered California patients (even if I paid cash) and the one I finally saw made me wait months for an appointment, despite the urgency of my problem as explained in the referral from my PCP. I'm just so glad I didn't wind up in the hospital with some heinous complication, which was my big fear. That and losing my hearing, needless to say.

The thing that kills me too, is there was one person all along who knew exactly what I needed, and that was my pharmacist! My husband kept picking up one prescription after another for me for various antibiotics and steroids prescribed by my PCP. The pharmacist would always tell him, if these aren't working for her, they'll make her worse. And he was so right. Ironically, if I had never gone to the doctor at all, my body would have probably cleared the infection on it's own, but the drugs I was taking cleared the field of all competing microorganisms and caused my infection to really flourish. He was also completely correct about what meds would cure me, and had been saying so all along. Wish I could go to HIM for my medical treatment!

I'm sorry for what you've been through too. Shingles on top of everything else must have been awful. I hope all your ear troubles are behind you. I know mine are still very sensitive - like their defensive mechanisms are in hyperdrive. Seems like they are slow to calm down after the trauma. My ENT said that was to be expected.

Wishing us both trouble-free ears from here on out!

progree

(10,892 posts)
2. "Get to the doctor within hours, not days" - AARP The Magazine, Aug/Sep 2015
Sat Sep 12, 2015, 11:20 PM
Sep 2015
Act now if you suddenly lose most, or all, of your hearing. "Get to the doctor within hours, not days", Newman cautions (section head of audiology at the Cleveland Clinic). Sudden dizziness and hearling loss accompanied by ringing in the ears should also get you to a doc stat.

AARP The Magazine, Aug/Sep 2015, p. 24


STAT: A common medical abbreviation for urgent or rush. From the Latin word statum, meaning 'immediately.'


Just to let you know that AARP agrees completely.

Good luck with your hearing.

laundry_queen

(8,646 posts)
4. I had that happen
Sun Sep 13, 2015, 06:15 PM
Sep 2015

Severe pain suddenly in my jaw and ear (while I was travelling alone with 3 children no less, had no painkillers on me either). Then in the middle of the night my ear clogged up like I was underwater and started leaking pink fluid. Went to a walk in clinic the next day (when I finally reached my travelling destination) where I was diagnosed with a nasty ear infection and perforated ear drum. Antibiotics cleared up the 'underwater' feeling within days. I definitely wouldn't wait longer than that to get my hearing back. The doctor I saw at the walk-in told me to come back if my hearing didn't clear up in a few days, but it did.

I'm lucky though, I'm in Canada. No co-pays or anything, so I would not have hesitated to go back. I was told it's possible even from that little infection I may have permanent, mild, hearing loss in that ear. Ear infections are not something to mess around with, that's for sure.

DFW

(54,293 posts)
5. I can confirm this
Sun Sep 13, 2015, 06:22 PM
Sep 2015

I have had numerous antibiotic treatments for infections, and two major surgeries on my left ear to replace a rotted-away anvil. It's not trivial, and it is too serious to leave to someone not trained enough/caring enough to check out if the symptoms may be an indication of serious damage.

mentalsolstice

(4,459 posts)
8. Updated
Sun Sep 13, 2015, 09:33 PM
Sep 2015

My hearing test on Friday showed a 20% improvement, so up from 80 to 60% loss. My Doc said ears are like plants, if they're dead no amount of watering will bring them back. That I'm responding is a good sign. Whether I'll get my full hearing back, we'll see.

My spouse has Meniers, it started as vertigo. And after that he had SHL in his left ear while on a camping trip (outside of Murphy, NC, the same weekend they caught Eric Robert Rudolph, another story for another time). He never recovered hearing in that ear. Fortunately, through VA he has top-of-the-line hearing aids at no cost. While I anguished when he was going through that, he's been such a supporter now. We already have tools at home, and have learned to navigate out in the world.

I wrote my OP as a warning to not ignore SHL. However, thank you for good thoughts and vibes!

Major Nikon

(36,818 posts)
9. I know a guy that lost most of his sense of smell to an upper respiratory infection
Sun Sep 13, 2015, 10:19 PM
Sep 2015

It's not something you want to roll the dice with.

PennyK

(2,301 posts)
11. I am going back to the ENT
Mon Sep 14, 2015, 10:20 AM
Sep 2015

I don't really have hearing loss, but something is clogging my ear-passage. If I dip a Q-tip in distilled water and gently apply, the "whatever' goes back in place, or gets un-inflamed...but it doesn't stay like that long. Seeing the doctor tomorrow morning. It's driving me nuts.
I have three months 'til Medicare...why couldn't this have waited?!?

PennyK

(2,301 posts)
14. Thank you, mentalsolstice
Mon Sep 14, 2015, 11:27 AM
Sep 2015

Again, I don't have hearing loss, just this clogged-up feeling. And it actually kept me awake at night.

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