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csziggy

(34,131 posts)
Tue Oct 17, 2017, 11:09 PM Oct 2017

Next Tuesday by this time I will have a new aortic valve

At least that is the schedule - next Tuesday morning I go into the hospital for a trans arterial valve replacement (TAVR). They will put a wire up my femoral artery to my heart, then a balloon which will be inflated in the old valve to open it up, then insert the new valve. I'll spend probably one night in the hospital so they can monitor my heart to make sure everything is working, then I go home the next afternoon.

About a month later when they can get me off the blood thinners, I have to go back to have a kidney removed - they found a mass when doing the tests to get me ready for valve replacement. In addition I have a hernia that they will fix at the same time.

I stressed all weekend since I had not heard anything as of Friday what the plan was. They had to get the TAVR surgeon, the kidney surgeon and the internal medicine surgeon together to sort out a plan of action. No wonder there was a delay!

44 replies = new reply since forum marked as read
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Next Tuesday by this time I will have a new aortic valve (Original Post) csziggy Oct 2017 OP
It's not sexy stuff, csziggy True Dough Oct 2017 #1
Hopefully it will beat for decades more! csziggy Oct 2017 #4
Fantastic news! Stonepounder Oct 2017 #40
BEST of luck, csziggy! elleng Oct 2017 #2
Thank you! csziggy Oct 2017 #5
All the best... keep us posted. InAbLuEsTaTe Oct 2017 #3
Thanks! csziggy Oct 2017 #7
I will be thinking of you, let us know as soon as you feel up to it. Kali Oct 2017 #6
I'm taking my tablet to the hospital csziggy Oct 2017 #9
oh excellent, I didn't know if this was one of those "quick improvement" things Kali Oct 2017 #11
Keep in touch . My MIL will have this operation soon . She is only 66 I think but needs it they say. lunasun Oct 2017 #16
I hope it all goes well for you. Lifelong Protester Oct 2017 #8
Thank you! csziggy Oct 2017 #10
That is amazing!! Lifelong Protester Oct 2017 #13
Here is a video of the procedure - it's totally amazing! csziggy Oct 2017 #21
My God that's a lot of repair work. But they're not doing it all at once at least. CousinIT Oct 2017 #12
Yeah - it's been adding up csziggy Oct 2017 #20
While you recuperate, lots of time to post on DU! CousinIT Oct 2017 #23
I'm taking my tablet to the hospital csziggy Oct 2017 #24
Best wishes for an excellent recovery. eom guillaumeb Oct 2017 #14
Thanks! nt csziggy Oct 2017 #25
Sending positives vibes your way. Amazing that it is so routine (for them) that applegrove Oct 2017 #15
Thanks! I posted a video of what the procedure will be above csziggy Oct 2017 #26
Let us know how it is all going. applegrove Oct 2017 #31
Wow! Wishing you all the best - and a safe and speedy recovery! Rhiannon12866 Oct 2017 #17
Thanks! I know the vibes here are strong csziggy Oct 2017 #27
Well, you also know that DUers have very long memories! We sure won't forget! Rhiannon12866 Oct 2017 #30
Sounds like they have a plan. Watch some good movies and relax and let the doctors take care of you. The Wielding Truth Oct 2017 #18
A plan is a good thing! csziggy Oct 2017 #29
I wish you all the best Csziggy... TheDebbieDee Oct 2017 #19
Thank you! csziggy Oct 2017 #35
Best wishes, AnotherDreamWeaver Oct 2017 #22
If they are low risk tell them to wait until next year csziggy Oct 2017 #32
I hope all goes well! Solly Mack Oct 2017 #28
Thank you! csziggy Oct 2017 #33
That is 1st world medicine co-ordination! Fantastic! peacebuzzard Oct 2017 #34
Thank you! csziggy Oct 2017 #37
Good thoughts and vibes, csziggy. sarge43 Oct 2017 #36
Best wishes for a quick recovery! MLAA Oct 2017 #38
get well grantcart Oct 2017 #39
So pleased you can take your laptop and keep us, your family, posted. Laffy Kat Oct 2017 #41
Good luck!!!!! Demsrule86 Oct 2017 #42
Best wishes, csziggy! femmocrat Oct 2017 #43
So happy for you your journey has started. Please keep us posted on your progress. Fla Dem Oct 2017 #44

True Dough

(17,255 posts)
1. It's not sexy stuff, csziggy
Tue Oct 17, 2017, 11:11 PM
Oct 2017

But I wish you well. Hope that fortified ticker beats for many, many years to come.


csziggy

(34,131 posts)
4. Hopefully it will beat for decades more!
Tue Oct 17, 2017, 11:14 PM
Oct 2017

My Mom was diagnosed with a bad valve ten years ago - refused surgery and is still hanging on. She's 96 so I've been planning on at least thirty more years.

Thanks!

Stonepounder

(4,033 posts)
40. Fantastic news!
Wed Oct 18, 2017, 01:50 AM
Oct 2017

I had open heart surgery (triple bypass, clot removal, and maze procedure) about 10 years ago and I've had doctors tell me that if they hadn't seen the scar they wouldn't believe I had surgery. They do amazing things with the heart these days, so yeah, another 30 years or so sounds eminently reasonable! (I'm planning on another 20+ at yeast myself.)

csziggy

(34,131 posts)
9. I'm taking my tablet to the hospital
Tue Oct 17, 2017, 11:17 PM
Oct 2017

I'm thinking I may be up to posting on DU by Tuesday evening. The surgery time isn't set but probably between 5:30 and 8:30 AM and it only takes two hours. By mid afternoon I should be fully awake and feeling better than in a long time since the blood flow will be much better.

Kali

(55,004 posts)
11. oh excellent, I didn't know if this was one of those "quick improvement" things
Tue Oct 17, 2017, 11:21 PM
Oct 2017

and obviously it isn't as invasive as opening up the chest so that is even better news.

lunasun

(21,646 posts)
16. Keep in touch . My MIL will have this operation soon . She is only 66 I think but needs it they say.
Tue Oct 17, 2017, 11:25 PM
Oct 2017

Take care

csziggy

(34,131 posts)
10. Thank you!
Tue Oct 17, 2017, 11:20 PM
Oct 2017

Yes, I remember - and everyone who I've talked to that had valve replacement or knows someone who did did well and felt much better after. With the TAVR, there is no even serious surgery recovery time. The only incision will be a small (maybe 1/2 inch) cut in my groin.

csziggy

(34,131 posts)
21. Here is a video of the procedure - it's totally amazing!
Tue Oct 17, 2017, 11:32 PM
Oct 2017


At the time this video was made, the procedure was only approved for patients at high risk for surviving open heart surgery. This spring it was approved for intermediate risk patients. I was trying to get into a clinical trial to get it approved for low risk patients. Before they found the mass on my kidney, I was low risk and the trial was my only chance of getting TAVR.

Because of the kidney I was reclassified so they could do the TAVR. It's a bizarre thing to celebrate, but I am happy - first, that they found the kidney before it could metastasize if it is cancer; second that I can get the TAVR; third that they can combine the other two procedures.

I've had eleven operations since 2001. I heal up pretty fast so I am not too worried. I'm just tired of spending so much of my time healing!

CousinIT

(9,225 posts)
12. My God that's a lot of repair work. But they're not doing it all at once at least.
Tue Oct 17, 2017, 11:21 PM
Oct 2017

I hope you do well with all this and recover well from each stage. Wishing you the best! GOOD LUCK!

csziggy

(34,131 posts)
20. Yeah - it's been adding up
Tue Oct 17, 2017, 11:30 PM
Oct 2017

The hernia has been getting worse over the last couple of years. I planned to pursue getting it repaired this year but last year they heard the heart murmur. Even my hand doctor wouldn't talk to me about fixing my trigger thumb until the heart was fixed. It's taken since January to get the heart diagnosed partly because of insurance (old policy holder would not approve some of the tests) and partly because of family issues (mother in law died in January after a very bad year).

The kidney was a complete surprise - no symptoms and it would not have been found if I had no been trying to get into a clinical trial for a chance at the TAVR procedure - and even the trial would have been a 50% chance. Because of the kidney, I was downgraded to an intermediate risk for open heart surgery - and intermediate risk has been approved for TAVR as of last spring.

After all of this, I have to go back to the hand doctor - now I have more fingers that are locking up. I may go in between to get injections to put that off.

Getting old sucks.

Thanks for the best wishes!

csziggy

(34,131 posts)
24. I'm taking my tablet to the hospital
Tue Oct 17, 2017, 11:40 PM
Oct 2017

And an old painted needlepoint canvas that is simple - needlework is my zen activity that keeps my blood pressure down and my fingers nimble. So when DU GD gets too stressful, I will stitch!

applegrove

(118,501 posts)
15. Sending positives vibes your way. Amazing that it is so routine (for them) that
Tue Oct 17, 2017, 11:24 PM
Oct 2017

you only spend one night in hospital.

Rhiannon12866

(204,798 posts)
17. Wow! Wishing you all the best - and a safe and speedy recovery!
Tue Oct 17, 2017, 11:26 PM
Oct 2017

Thanks for letting us know - DU healing vibes are powerful medicine!

Rhiannon12866

(204,798 posts)
30. Well, you also know that DUers have very long memories! We sure won't forget!
Tue Oct 17, 2017, 11:47 PM
Oct 2017

Anymore than we'd forget about Olive Garden or cornflake chicken, LOL. (Not that you're in the same category ) Just know that - whenever you think of us - numerous DUers are also thinking of you - and wishing you well.

The Wielding Truth

(11,411 posts)
18. Sounds like they have a plan. Watch some good movies and relax and let the doctors take care of you.
Tue Oct 17, 2017, 11:27 PM
Oct 2017

Best of luck. Think of your plans after recuperation. Here's a BIG hug! Enjoy the pain meds. Don't be a hero and remember you don't need the pain pills when you start getting stronger. Lean on your friends. Plant your spring bulbs and remember every day we have is gravy.

Oh yea. Buy a beautiful rob.

csziggy

(34,131 posts)
29. A plan is a good thing!
Tue Oct 17, 2017, 11:47 PM
Oct 2017

I'm a very cooperative and obedient patient. Frankly I don't need much in the way of pain meds - I have a very high resistance to pain. When my knees were bone on bone for years I found other medications to reduce the inflammation and didn't use the opiods the doctors gave me.

The weeds have gotten away from us so as soon as possible after the second operation I will be out in the garden pulling those!

Thanks!

csziggy

(34,131 posts)
32. If they are low risk tell them to wait until next year
Tue Oct 17, 2017, 11:52 PM
Oct 2017

If they can - then they can get the TAVR rather than open heart surgery. The Medtronic low risk clinical trial will finish next March and they should be able to get approval fro the FDA quickly. Edwards is also running a clinical trial which is just a little behind.

If they are intermediate or high risk for open heart surgery, they should get TAVR.

Even the head of surgery at the hospital (who was the urologist I consulted about the kidney) was surprised that low risk patients could not currently get TAVR. He's the one who insisted I needed to have TAVR so the kidney operation could be done sooner.

peacebuzzard

(5,148 posts)
34. That is 1st world medicine co-ordination! Fantastic!
Tue Oct 17, 2017, 11:53 PM
Oct 2017

Wishing you the best through the procedures and a rapid fire recovery. Post when you are able.

csziggy

(34,131 posts)
37. Thank you!
Tue Oct 17, 2017, 11:57 PM
Oct 2017

I feel very special (short burst of self involved simpering here) to have THREE surgeons consulting over me!

Another holiday season shot to hell, though. Last year on Thanksgiving my husband's appendix burst - but we didn't figure it out for days. So no Thanksgiving, no Christmas.

Laffy Kat

(16,373 posts)
41. So pleased you can take your laptop and keep us, your family, posted.
Wed Oct 18, 2017, 02:38 AM
Oct 2017

You're right it's amazing what they are doing these days with minimal invasion. Years ago, you'd be looking at open heat bypass machine and a long recovery. Best of luck!!

Demsrule86

(68,471 posts)
42. Good luck!!!!!
Wed Oct 18, 2017, 09:08 AM
Oct 2017

Man...the Kidney is scary. Sending good thoughts...good they found it...often one surgery can save a life by showing another issue.

Fla Dem

(23,591 posts)
44. So happy for you your journey has started. Please keep us posted on your progress.
Wed Oct 18, 2017, 09:59 AM
Oct 2017

Wishing you all the best for a speedy and full recovery.

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