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McCamy Taylor

(19,240 posts)
Wed Feb 12, 2014, 05:38 PM Feb 2014

A Sleep Revolution is Coming in Public Health

In the 19th century, people knew that their water was clean. They could tell by looking at it. Sniffing it. Tasting. Then Louis Pasteur showed them what they could not see, smell or taste---microbes that caused disease. Once we became aware of the danger, we were willing to invest in sanitation services, sewage treatment, water filtration.

In the 21st century, people know that they get a good night's sleep. They go to bed at 11 pm. They set the alarm for 7 am. They lose consciousness for the next eight hours. They wake up feeling tired, achy and groggy, but that is just caffeine withdrawal kicking in. After a cup of java, they are good to go--for a couple of hours. Boy, age sure has crept on them. They sit at a desk all day, but they are always hungry. None of their old clothes fit. When they get home, they don't want to do the dishes. They don't even want to go out. They just want to pop a pizza in the microwave, fall asleep on the couch watching TV---and then go to bed at 11 pm, ready for that good night sleep that will make all the difference.



In the 19th century, people did not know that what they could not see, smell or taste could kill them. That's because they could only see it with a microscope. In the 21st century, people do not know what happens when they are unconscious can kill them. That's because it only happens when they are unconscious.

By now some of you know that I am talking about sleep disorders. More of you know that I am writing about sleep disorders than members of the average population would know if forced to read this. You are reading this because it has the words "public health" in it, and therefore you have an interest in health. Since those reading this have an interest in health, 100% of you should know all about sleep disorders, one of the most common chronic medical conditions in our society today. 100% of you should know how you sleep, whether you snore or stop breathing, whether you grind your teeth, whether you kick all night, because you will have made a point of asking friends and family---it is very important that we know how we sleep.

Sadly, more of you probably know your ldl cholesterol than know about your own sleep. More of you have probably asked your significant other "Are there any funny looking moles on my back that might be cancerous?" than have asked "Do I show signs of restless leg syndrome?"

Sleep disorders are one of those tricky medical conditions that do not announce themselves with a great big billboard, the way that--say--angina from coronary artery disease does. When you are carrying the groceries in the house and suddenly a bull elephant is sitting on your chest and you have been transported from sea level to the top of Mount Everest and your head is swimming and you feel like puking---when all that happens, you listen.

Sleep disorders are more like high blood pressure. Sometimes you get symptoms, more often you don't. Once upon a time, no one knew their blood pressure. Now, you can get it checked in the grocery store. Almost every adult knows that blood pressure is important. So is cholesterol. So is blood sugar. So is not smoking. If you want to avoid a heart attack, you pay attention to these things---and heart disease is the number one killer in this country right now.

Pop quiz. Name another independent risk factor for heart disease. You said obesity, didn't you? Close. Sleep apnea. Name a risk for car wreck--besides DUI. Blindness? I guess so. But most blind people know not to drive. People who are sleep deprived do not know that they are sleep deprived, because they were unconscious when their body was failing to get restful, restorative sleep.

Our current insurance system, which offers many of us essentially no insurance between the ages of 40 and 65---too many pre-existing conditions to get individual policies and not yet old enough for Medicare---has contributed to the sleep apnea crisis. When folks reach 40 and the sleep disorder they inherited from Mom kicks in, they do not know that they have a sleep disorder. They know that they have high blood pressure, depression, fibromyalgia, erectile dysfunction, low back pain, migraine headaches---and they can no longer perform the necessary functions of their jobs so they make mistakes and get fired.

Once they start working as a cashier at Quickee Mart, they no longer have health insurance, so even if they begin to suspect that there is something wrong with their sleep, they can not see a doctor and get tested. But most of them do not suspect. They know that they can not work and so they file for Social Security Disability. They are turned down because high blood pressure, depression, fibromyalgia, erectile dysfunction, low back pain, migraine headaches can not keep a person from working--the judge knows this. If the people appealing their disability denial could bring in the results of a pulse oximetry test done overnight or a sleep study showing that they stop breathing 60 times an hour, the judge would exclaim "You have sleep apnea! No wonder you can't work! Here's your Medicare. Get that treated!"

No, this is not a fairy tale. I have lost track of the number of patients whom I treat at a public health clinic for the uninsured who lost their jobs and insurance due to a sleep disorder that their old doctors never suspected and who are able to successfully appeal their disability denial and get Medicare---insurance!---once they prove to the judge that there really is something wrong with them. I have lost count of the number of people who think that I am psychic, because I look over their medical record and ask "Do you snore or stop breathing at night?" No, I am not psychic. I just have first hand experience with what it is like to have an unrecognized sleep disorder that costs you your career in the prime of your life.

Now, on to the revolution. This is not how it should be. People who develop sleep disorders in middle age should not lose their memory, their energy, their concentration and finally their jobs because doctors are so bad at diagnosing sleep disorders. This should be one the first things that their doctor screens them for when they first go in saying "I can't remember things. My driving sucks. I can't get an erection. I hurt all over." They should not go into their doctor's office unaware of their own snoring, apnea, restless leg jerks and bruxism, since---being educated professionals---they keep track of their own health. They should not be forced out of the professional job market and into the hourly minimum wage job market just when their professional skills are at their best. They should not have to leave the job market altogether---in effect, retire---in order to get their sleep disorder treated. If they and their doctors recognized the first clues about a sleep disorder and started treatment while the patient was still employed with insurance and did not carry the stigma of long term unemployment, a big chunk of the American workforce would continue to be productive beyond Medicare retirement age---and we would never have to worry about Medicare and Social Security going bankrupt.

Ten percent of Americans over 40 have a sleep disorder. 80% of them do not know it. Among them are professionals like me, a family physician. Society lost ten years of my medical skills, because neither I nor my doctors knew what was wrong with me for years after I retired. And then, after I figured it out and got treatment, I had to scramble to find a way to get back into a workforce that does not trust those who have been out of it, it would rather see you stay on disability and Medicare, just to be safe.

As we move closer to the goal of Cradle to Grave Insurance for all of us, those who pay the bills will have an incentive to keep us healthy. As it stands, Blue Cross would just as soon see your sleep apnea go untreated--if it means you lose your job and your insurance. If Blue Cross is going to pay your medical bills whether you can work or not, Blue Cross wants you as healthy as possible---because people with undiagnosed sleep disorders accumulate thousands of dollars a year in unnecessary medical tests and treatments, and if you have Cradle to Grave insurance, Blue Cross will have to pick up that bill. Blue Cross (and United and Aetna and Medicaid and Medicare) will realize that increasing physician and public awareness of sleep disorders will keep you healthier and save them money.

Eventually, you will see pamphlets like the ones that the American Cancer Society used to hand out with the 10 warning signs of cancer. Yes, once upon a time, people did not know that rectal bleeding could be a sign of cancer that could be treated and cured if found early. One day, they will know that snoring can be a sign of a serious medical condition that is treatable--if found before you die in a car wreck or of a stroke. Eventually, High School Health classes will teach sleep hygiene. Eventually, no one would dream of NOT telling you "You snored and stopped breathing last night" anymore than they would dream of NOT telling you "Don't eat that potato salad. It was left out all night. There is no telling what kind of bacteria are growing on it."

Raise sleep medicine awareness. Keep our roads safer. Keep middle aged workers at their jobs longer. Reduce the strain on Social Security and Medicare. It's gonna happen. The only variable to the equation is when.

And, as before, if you want a free Word document copy of "Life After CPAP" send me an email at McCamyTaylor@earthlink.net

10 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
A Sleep Revolution is Coming in Public Health (Original Post) McCamy Taylor Feb 2014 OP
Excellent! defacto7 Feb 2014 #1
McCamy Taylor! Hissyspit Feb 2014 #2
Sleep Apnea is a life-changing diagnosis. canoeist52 Feb 2014 #3
I have been dedicated to getting enough sleep SheilaT Feb 2014 #4
"Restless leg syndrome" Flying Squirrel Feb 2014 #5
Casual ignorance? Empathy2 Feb 2014 #6
"restless leg syndrome" is very much not "couldn't sleep". Here's link and info for you. uppityperson Feb 2014 #7
Alrighty then. Flying Squirrel Feb 2014 #8
They signed up yesterday, so you can take credit for having someone sign up to tell you you uppityperson Feb 2014 #9
I actually have had the restless leg experience Flying Squirrel Feb 2014 #10

canoeist52

(2,282 posts)
3. Sleep Apnea is a life-changing diagnosis.
Wed Feb 12, 2014, 06:06 PM
Feb 2014

Been using my mask for over ten years now. It's been a love/hate relationship with "the elephant", but I believe it has saved my life. Until they come up with something better, I'll never sleep without it.

 

SheilaT

(23,156 posts)
4. I have been dedicated to getting enough sleep
Thu Feb 13, 2014, 02:50 AM
Feb 2014

my entire adult life. And I'm now 65.

I've also been reading lots of stuff over the years that says basically: Get enough sleep and you'll be better off.

In my youth I was famous for being able to sleep 10, 12, even 14 hours straight.

Here's my favorite sleep story: First trip to London, I was about 21. Overnight flight, arrived in the morning, got to the hotel, then to my room at noon. I was pretty tired, so I decided I should nap for a bit, then explore the city. So I set the alarm clock that was conveniently in the room for 3pm, figuring three hours should do it.

Apparently the alarm didn't go off, because when I rolled over and looked at the clock, it was midnight. Damn! Lost the entire day! So I got up, took a bath, read a little. When I went back to bed at 3am, I figured the alarm clock didn't work, and there was really no point in asking the front desk for a wake-up call, because surely I'd wake up at a reasonable time. I don't think I even put a Do Not Disturb Sign on my doorknob.

When I next rolled over and looked at the clock, it was 3pm. Holy crap! I slept a full 24 hours! But I can tell you I don't think I've ever felt so rested in my entire life.

I am honestly convinced that among the reasons I am in such amazing good health, and that I look about ten years younger than my actual age, is that most of my life I have gotten plenty of sleep. It really does make a difference.

 

Flying Squirrel

(3,041 posts)
5. "Restless leg syndrome"
Thu Feb 13, 2014, 03:50 AM
Feb 2014

One of those ridiculous things that sounds like a disease but really just means you should lay off the caffeine (altogether). I remember a friend of mine posting on fb that she couldn't sleep, no sleep aid was working anymore and she was shocked when I suggested no caffeine after noon. But she tried it anyway - she ended up with a massive headache (withdrawal, of course) but a very restful night's sleep.

Empathy2

(1 post)
6. Casual ignorance?
Thu Feb 13, 2014, 06:52 PM
Feb 2014

Having experienced severe RLS one night as a side effect of a medication I'd just started (which I immediately stopped), I'm going to very generously describe your post as dangerously ignorant.

Attributing this solely to caffeine consumption is remarkably uninformed (side note: I certainly wasn't consuming caffeine in any form), as it is a serious condition that appears to be related to dopamine receptor subtypes. Its easy to dismiss when you haven't experienced it, but it took only one night with a severe case of it to develop an inkling of understanding why it can negatively impact some people so badly that they are driven to suicide.

In general, how about trying not to belittle people's suffering? No matter what we are inclined to believe in any situation, it might be useful to acknowledge that perhaps -- just perhaps -- we don't have perfect understanding. Fair enough?

uppityperson

(115,677 posts)
7. "restless leg syndrome" is very much not "couldn't sleep". Here's link and info for you.
Thu Feb 13, 2014, 07:50 PM
Feb 2014
http://www.ninds.nih.gov/disorders/restless_legs/detail_restless_legs.htm
What is restless legs syndrome?

Restless legs syndrome (RLS) is a neurological disorder characterized by throbbing, pulling, creeping, or other unpleasant sensations in the legs and an uncontrollable, and sometimes overwhelming, urge to move them. Symptoms occur primarily at night when a person is relaxing or at rest and can increase in severity during the night. Moving the legs relieves the discomfort. Often called paresthesias (abnormal sensations) or dysesthesias (unpleasant abnormal sensations), the sensations range in severity from uncomfortable to irritating to painful.

The most distinctive or unusual aspect of the condition is that lying down and trying to relax activates the symptoms. Most people with RLS have difficulty falling asleep and staying asleep. Left untreated, the condition causes exhaustion and daytime fatigue. Many people with RLS report that their job, personal relations, and activities of daily living are strongly affected as a result of their sleep deprivation. They are often unable to concentrate, have impaired memory, or fail to accomplish daily tasks. It also can make traveling difficult and can cause depression.

(clip)

What causes restless legs syndrome?

In most cases, the cause of RLS is unknown. However, it may have a genetic component; RLS is often found in families where the onset of symptoms is before age 40. Specific gene variants have been associated with RLS. Evidence indicates that low levels of iron in the brain also may be responsible for RLS.

Considerable evidence suggests that RLS is related to a dysfunction in the brain’s basal ganglia circuits that use the neurotransmitter dopamine, which is needed to produce smooth, purposeful muscle activity and movement. Disruption of these pathways frequently results in involuntary movements. Individuals with Parkinson’s disease, another disorder of the basal ganglia’s dopamine pathways, often have RLS as well.
 

Flying Squirrel

(3,041 posts)
8. Alrighty then.
Fri Feb 14, 2014, 03:11 AM
Feb 2014

Hey, at least I brought someone out of the woodwork who is even more of a lurker than myself

uppityperson

(115,677 posts)
9. They signed up yesterday, so you can take credit for having someone sign up to tell you you
Fri Feb 14, 2014, 12:27 PM
Feb 2014

were ignorant and not very empathetic.

 

Flying Squirrel

(3,041 posts)
10. I actually have had the restless leg experience
Fri Feb 14, 2014, 05:56 PM
Feb 2014

but it went away after quitting coffee... so I do empathize, but can't argue with the ignorant portion.

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