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matt819

(10,749 posts)
Thu Mar 28, 2013, 11:44 AM Mar 2013

Okay folks

I've been on DU since the beginning and this is one forum that I never thought I'd be checking in on or posting in.

Got the word yesterday that my wife has endometrial cancer, with surgery scheduled for mid-April. Well, how's that for a kick in the pants?

She's been on the phone repeatedly with one of the surgeons, and she's been super. She has an appointment next week to sit down and see where everything stands and to answer whatever questions haven't been answered so far by her or wikipedia.

In just about everything else in life I'm a pessimist, but for things medical I tend to think that everything can be sorted out. Maybe that's because so far - and I'm in my late 50s (gasp! horrors!) - everything has. And I'm pretty much thinking the same about this, or at least I will until all the lab results come back from the surgery.

So, my questions so far - What do I do or say? I haven't said the "things I'm not supposed to say," so that's a good start. But does blind optimism help or hurt? And does anyone have experience here with endometrial cancer, presumably (hopefully?) in the early stages?

Gotta head out now. Will check in later to see what you have to say.

6 replies = new reply since forum marked as read
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Okay folks (Original Post) matt819 Mar 2013 OP
Sorry to hear that, we're behind you! Tab Mar 2013 #1
This is a wonderful answer... YvonneCa Mar 2013 #3
ask your wife's doctors for support groups now olddots Mar 2013 #2
I'm sorry to hear about your wife. In my opinion, optimism is the best sinkingfeeling Mar 2013 #4
Thanks matt819 Mar 2013 #5
Staying positive always helped me. mwdem Apr 2013 #6

Tab

(11,093 posts)
1. Sorry to hear that, we're behind you!
Thu Mar 28, 2013, 12:03 PM
Mar 2013

Matt (assuming it's Matt),

The only thing not totally clear here is the staging of the disease (but you do say "in the early stages&quot . Late-stage metastatic (Stage IV) is a different animal than the previous stages. It sounds like she's at an earlier stage. Regardless, I'm sure she's scared and getting a good look at her mortality.

You don't say how old your wife is, although you mention that you're in your late 50s yourself, and I know endometrial cancer is more likely to hit women who have gone through menopause. If she young enough and hasn't, however, she may also be mourning the loss of her child-bearing years and/or even the loss of her female identity to a degree (depends on her personality).

Unfortunately, in medicine, not everything can be "sorted out" and in cancer in particular, there can be many curve balls. I would like to think that if no one is talking chemo or radiation, and only surgery, if it is really an early stage, that you're likely to have a positive outcome, assuming she's in decent enough physical shape to withstand surgery.

(IN MY OPINION) As to what you say or don't say, take your cues from her to start with. Don't trivialize it, but be what I like to call "cautiously optimistic". If she's worried about minor things while she's down, such as, who will pay the bills (if she handles them), who will keep the house cleaned, what if she loses her job, reassure here that those are minor things in big scheme of things, and she needn't worry about those - you'll take care of (or arrange for) those - her focus should be getting better. People are behind her, people are rooting for her, she should do what she needs to do to get health and not worry about the rest. As someone with cancer myself I find those the most reassuring - don't surgarcoat, recognize that you can't magically wave a wand and make it go away, but you CAN take everything off the plate for her so she can just focus on getting better. Marshall your forces with family and neighbors, employers (if applicable), and move the furniture out of the way so that she can just focus on what she needs to do without stressing about the rest.

On edit: If you want to PM me (outside of this forum) please feel free to do so, if you think I can offer any help/support.

YvonneCa

(10,117 posts)
3. This is a wonderful answer...
Thu Mar 28, 2013, 01:36 PM
Mar 2013

...to your question about how to be supportive. I would only re-emphasize that really listening and HEARING what she says is critical. I will hold good thoughts for you and your wife.

 

olddots

(10,237 posts)
2. ask your wife's doctors for support groups now
Thu Mar 28, 2013, 12:37 PM
Mar 2013

You need answers and support for what you're going thru as you wife gets treatment . Her doctors are specialists who do what they do in the facility --they go home and have lives as they should .You on the other hand are now living this partner of cancer patient life with questions about care and fear .

Optimism works .

sinkingfeeling

(51,444 posts)
4. I'm sorry to hear about your wife. In my opinion, optimism is the best
Thu Mar 28, 2013, 02:12 PM
Mar 2013

possible thing next to surgery, radiation, and chemo! The person with the cancer must get into the 'right' frame of mind. I went so far as to visualize my 'spots' of cancer while undergoing radiation treatments and played a 'video' game in my mind where I zapped those spots!

Get as much knowledge about her case as you can. Read and find a support group. If the one you find is half as good as my SPOHNC group, it'll be a blessing. Groups are full of people who have gone through all the treatments and side effects and have all kinds of tricks to deal with them.

matt819

(10,749 posts)
5. Thanks
Thu Mar 28, 2013, 03:37 PM
Mar 2013

Thanks for your kind words.

The questions raised are good ones, and here are the answers, to put this in perspective.

My wife is my age (late 50s if you must know, sheesh!). Post menopausal. I don't know what she, or other women, think about the loss of childbearing capacity, even though it is natural and long expected. Our youngest is in her early 20s, so those days are long behind.

I say early stage because at this point we don't know any more or any better. I understand that they are doing a hysterectomy and removing ovaries, cervix, and fallopian tubes, and that they will do the lab work to determine, first, what exactly it is/was and, second, to determine what stage it's in. Obviously, we hope it's early and that the surgery is all that's needed, i.e., no radiation/chemo.

We own our own business, and my wife is the breadwinner. I do the paperwork. Her incapacity is a very real concern, and while neither of us has spoken about this, it's a real concern that I don't think either of us has an answer to at the moment. Step at a time?

Points are taken re support groups, but she's not a support group kind of person. And the issue draws a chuckle based on a comment by my mother a few months ago. My father died in December at 85 years old. My mother is 83. We got to talking after the funeral about her maybe finding a support group of other seniors in the same boat. She laughed. She said the last thing she wanted to hear about was other people's problems. Hers aren't so bad, and those she has she has no desire to share with anyone. I think my wife has the same attitude. In any case, this is a "let's wait and see" issue.

We're in sort of a holding pattern for a bit, but stay tuned. And thanks for listening.

mwdem

(4,031 posts)
6. Staying positive always helped me.
Tue Apr 2, 2013, 06:13 PM
Apr 2013

I kept a truly positive outlook through both my cancers (breast and uterine, a year apart), and it helped everyone around me to do the same. My husband, my daughter and her husband, and my son all learned everything they could about my cancers, treatments, outlooks, everything. It started in the beginning of 2005, and I'm still kicking! It's not blind optimism, it's just being educated on the cancer and being positive. I did have a kick-ass group of doctors, and that helped a lot! Good luck, and I'm sure you'll know what to do and say through it all.

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