Three Years Waiting...PET Negative

[bmichaelh]

Hello:

I just had a PET scan and it was negative.

I am currently taking Monjuvi and Revlimid.

This is my first 'clean' PET Scan for three years.
I have tried multiple treatments and all to varying degrees failed to achieve 100% optimum results.

In the fall of 2019, I had R-CHOP.
In the first of 2020, I had radiation.
In the fall of 2020, I had Polivy, Bendeka, and Ritixumab.
In the first of 2021, I had CAR-T.
In the fall of 2021, I began Monjuvi and Revlimid.

In January 2021, I was given 2 options.
CAR-T or Monjuvi and Revlimid.
My condition had deteriorated that I needed the use of the walker.
I asked my oncologist at the time to get approval from my insurer for both.
I contacted my insurer and they never got any paperwork for Monjuvi and Revlimid in early 2021
My oncologist felt that CAR-T was the best option.
He was wrong.
Also, in early 2022, his nurse practitioner said I would never achieve any kind of remission with Monjuvi and Revlimid.
She was wrong.
After three months of Monjuvi and Revlimid, I no longer needed the walker.
About 6 months ago, I switched oncologists because I no longer trusted my oncologist's judgment.

I am grateful that my PET scan was negative but I am considering suing.
Not sure I can sue someone for being wrong or not filing paperwork.

Thanks,

[brer cat]

1. I'm glad you received some good news.

Three years is a long wait for a clean Pet scan.

[Staph]

2. Congratulations!

As a nine year survivor of endometrial cancer, I know the lightness of the soul when a test finally comes back negative.

Good luck!

[XanaDUer2]

3. Great! Nt

[Karadeniz]

4. Yippee! Glad you're changing doctors !!!

[bmichaelh]

5. Insurance is all messed up in this country

I thank Obama for the ACA.
I am glad that Trump lost because not sure where I will be now without the ACA.

Insurance is so messed up this country that the treatment that worked was only given to me only after the other treatments failed.
And halfway through the last treatment, my insurer tried to pull coverage for the treatment.
That decision was made by a pediatrician and not an oncologist.
Luckily they reversed themselves on appeal.