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UglyGreed

(7,661 posts)
Wed Mar 16, 2016, 10:13 AM Mar 2016

Well my hopes of some sort of relief from chronic pain was crushed with Hillary's "sweep"

and a single payer system which would allow me to have the testing for my ongoing headaches due to Hydrocephalus and find some sort of answer for my chronic neupathic pain from multiple spinal issues.

Now on top of that, I was even denied being able to participate in a chronic lower pain study due to my shunt for hydrocephalus yesterday. Imagine having to go to a clinical trial for help and not even being accepted to be a fucking guinea pig. Wonderful health care system....for some.

Then as I walked less that a half mile home from the train station because my wife was unable to get off of work, I had to drop to my knees several times to relieve the horrible pain throughout my spine and legs. I thought I may have to get some help to get home even though I was two blocks away. It took over an hour for that walk.

As I was on the sidewalk on my knees I though I have no choice and must go back on the oxycodone. Then after a very bad night I wake up and read about the CDC.............

http://www.usatoday.com/story/news/2016/03/15/cdc-issues-new-guidelines-opiate-prescribing-reduce-abuse-overdoses/81809704/

The nation's top federal health agency urged doctors to avoid prescribing powerful opiate painkillers for patients with chronic pain, saying the risks from such drugs far outweigh the benefits for most people.

The Centers for Disease Control and Prevention in its first ever guidelines for dispensing the morphine-like, addictive drugs, such as Vicodin and OxyContin, said it took the action Tuesday to combat the nation's deadly prescription painkiller epidemic.

The guidelines carve out an exception for patients receiving cancer treatment or end-of-life care. When doctors determine that such drugs are necessary in other situations, the CDC advises doctors prescribe the lowest possible dose for the shortest amount of time.

About 40 Americans die each day from overdosing on prescription painkillers, according to
the CDC. In 2013, an estimated 1.9 million people abused or were dependent on prescription opiates.

.........................................................................................................................................

Where is the CDC on the 88,000 a year who die due to alcohol??? 1 in 10 between the ages of 22 and 64 are killed.......



So yesterday was another wonderful day.... I still have hope and believe in Bernie but it seems money trumps people and those who are comfortable with the status quo trumps compassion for those who have no way to help themselves.

Many here have told me here it's not all about me so I send a hearty congratulations to all those enjoying this "victory" life is good.





29 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Well my hopes of some sort of relief from chronic pain was crushed with Hillary's "sweep" (Original Post) UglyGreed Mar 2016 OP
How could anybody vote for anybody else? pangaia Mar 2016 #1
"It is the mark of an educated mind firebrand80 Mar 2016 #3
Enjoy your victory while others suffer UglyGreed Mar 2016 #6
I could say something really shitty.. but I won't. pangaia Mar 2016 #16
“Educating the mind without educating the heart is no education at all” Aristotle Loudestlib Mar 2016 #28
Health care IS a human right. polly7 Mar 2016 #2
Sad that some seem to be that way UglyGreed Mar 2016 #4
UG can just wait for incremental insurance improvements!!1!!!1 riderinthestorm Mar 2016 #15
It will happen, too many people are suffering and, thanks to Bernie Sanders, polly7 Mar 2016 #20
Yesterday was a sucker punch to the belly for sure. peace13 Mar 2016 #5
. NCTraveler Mar 2016 #7
Cherry pick whatever you like UglyGreed Mar 2016 #8
I appreciate you taking the time to read.. NCTraveler Mar 2016 #9
Well I haven't had any pain UglyGreed Mar 2016 #11
I am truly sorry about that. NCTraveler Mar 2016 #12
Very sorry for your situation. I don't think the CDC will affect you or most people with documented Hoyt Mar 2016 #10
Well I was UglyGreed Mar 2016 #13
I'm so, so sorry. I can't imagine now living without hope of healthcare riderinthestorm Mar 2016 #14
Thank you for your replies UglyGreed Mar 2016 #17
I am also on those powerful meds that you have to take dana_b Mar 2016 #18
Thank you for your UglyGreed Mar 2016 #19
thank you dana_b Mar 2016 #21
. Arazi Mar 2016 #22
Thanks for writing marions ghost Mar 2016 #23
I am very sorry this is happening to you. People say stupid things on the internet, this campaign Jefferson23 Mar 2016 #24
Thank you for your UglyGreed Mar 2016 #25
You're too kind, I wish I had more than that to offer you. Jefferson23 Mar 2016 #26
Well, you really should have thought about that before you became a peasant! Scootaloo Mar 2016 #27
Indeed!!! I should of told UglyGreed Mar 2016 #29

pangaia

(24,324 posts)
1. How could anybody vote for anybody else?
Wed Mar 16, 2016, 10:20 AM
Mar 2016

Bernie is the only genuine, honest, human being running for president.

firebrand80

(2,760 posts)
3. "It is the mark of an educated mind
Wed Mar 16, 2016, 10:24 AM
Mar 2016

to be able to entertain a thought without accepting it." - Aristotle

pangaia

(24,324 posts)
16. I could say something really shitty.. but I won't.
Wed Mar 16, 2016, 01:59 PM
Mar 2016

I'll just end with,--- you have no fucking idea about my mind..

zilch

polly7

(20,582 posts)
2. Health care IS a human right.
Wed Mar 16, 2016, 10:21 AM
Mar 2016

Anyone who thinks otherwise is a selfish, 'I've got mine' asshole, imo.

polly7

(20,582 posts)
20. It will happen, too many people are suffering and, thanks to Bernie Sanders,
Wed Mar 16, 2016, 03:32 PM
Mar 2016

too many now know that it can happen. He lit the fuse of many issues that really are life and death for so many suffering ... it won't be put out by any politician pooh-poohing it off.

 

peace13

(11,076 posts)
5. Yesterday was a sucker punch to the belly for sure.
Wed Mar 16, 2016, 10:29 AM
Mar 2016

I am so sorry to hear about your struggle. To the people who say it's not all about you, I say they should try to live with your pain and see how that works out. My guess is that they wouldn't last an hour. I hope you find some relief soon. Sending you love and healing energy. Don't let the haters get you down.

 

NCTraveler

(30,481 posts)
7. .
Wed Mar 16, 2016, 10:31 AM
Mar 2016
http://www.cdc.gov/alcohol/

I'm not sure as to your alcohol connection. I wasn't aware people think the CDC speaks in support of alcohol abuse.

UglyGreed

(7,661 posts)
8. Cherry pick whatever you like
Wed Mar 16, 2016, 10:37 AM
Mar 2016

Also do I have to google domestic violence perpetrated on women and children do to alcohol abuse...... give me a break. Go have a drink and enjoy the victory it's therapeutical I believe....

Drinking too much can harm your health. Excessive alcohol use led to approximately 88,000 deaths and 2.5 million years of potential life lost (YPLL) each year in the United States from 2006 – 2010, shortening the lives of those who died by an average of 30 years.1,2 Further, excessive drinking was responsible for 1 in 10 deaths among working-age adults aged 20-64 years. The economic costs of excessive alcohol consumption in 2010 were estimated at $249 billion, or $2.05 a drink.3


http://www.cdc.gov/alcohol/fact-sheets/alcohol-use.htm

 

NCTraveler

(30,481 posts)
9. I appreciate you taking the time to read..
Wed Mar 16, 2016, 10:40 AM
Mar 2016

What they say on alcohol.

I really don't drink much these days.

 

NCTraveler

(30,481 posts)
12. I am truly sorry about that.
Wed Mar 16, 2016, 10:45 AM
Mar 2016

Chronic pain is a nightmare. Have dealt with it myself. I took a non-opiate route and because of that the treatment consumed enormous amounts of time. It's truly a struggle. I wish we all had the appropriate health care. We are working toward that goal against enormous opposition. I will continue to fight for healthcare as a right.

Your link to the CDC really has nothing to do with it. Nor does alcohol except for those suffering from pain due to alcohol abuse. Once again, not promoted by the CDC.

We are in this fight together.

 

Hoyt

(54,770 posts)
10. Very sorry for your situation. I don't think the CDC will affect you or most people with documented
Wed Mar 16, 2016, 10:40 AM
Mar 2016

chronic pain.

Read this in an AMA publication -- [under CDC recommendations] physicians “would prescribe” pain medications “only after considering non-addictive pain relievers, behavioral changes and other options.” Additionally, “the CDC...wants” physicians “to prescribe the lowest effective dose possible.” Meanwhile, “for short-term pain, the CDC recommends limiting opioids to three days of treatment, when possible.”

That means, that if a physician thinks opiods are the best treatment, you will very likely get it. With a shunt and your other conditions, I think most docs would write a prescription without hesitation.

Rush Limbaugh will have a tougher time.

Good luck.

UglyGreed

(7,661 posts)
13. Well I was
Wed Mar 16, 2016, 10:54 AM
Mar 2016

pressured to get off the meds because of my neurosurgeon's belief that my ongoing headaches after shunt surgery was due to the low dose I was taking. Of course that was not the case and now on top of the headaches my neuropathic pain is running amok. I tried a few weeks ago to get medical marijuana and was told I could not because of NYS laws, even though I do have one of the inflictions listed.

I was treated like a doctor shopping drug seeker once again by the satellite office of my former pain management. I could not go to my old pain management office because no one is certified there. I had a feeling things were going towards a "purge" of chronic pain patients and I think I am right. I do not believe my chances are good to being able to get any relief or return to taking pain medication. IMO it is not fair t make someone suffer because of other people's actions.

 

riderinthestorm

(23,272 posts)
14. I'm so, so sorry. I can't imagine now living without hope of healthcare
Wed Mar 16, 2016, 12:12 PM
Mar 2016

HRC's embrace of the health insurance industry means you're stuck in that vicious loop for many more years.



Such a victory for "us".

dana_b

(11,546 posts)
18. I am also on those powerful meds that you have to take
Wed Mar 16, 2016, 03:07 PM
Mar 2016

I had three back surgeries in 3.5 years and I am worse off than I was before. If they reduce or take the meds away from me, I will be in bed for most of the day. Some life that will be!!

"Many here have told me here it's not all about me so I send a hearty congratulations to all those enjoying this "victory" life is good. "

I'm so sorry - it is about you and them and especially the weakest amongst us. I understand the pain that you endure although yours seems much more intense and from numerous sources. But I know that the pain can be all encompassing at times.

my heart does out to you. I pray (yes, I do - sorry) that we have single payer some time soon in order to help people like you who can;t get help from the f-ing insurance companies. After dealing with them for 10+ years, I curse anyone who thinks that this system is just fine.

Btw - not really curse. That sounds terrible. I just disagree with them vehemently!

UglyGreed

(7,661 posts)
19. Thank you for your
Wed Mar 16, 2016, 03:30 PM
Mar 2016

reply. I also had three surgeries two on my lower back (much worse after) and I had my neck fused which really did not get much better but I'm happy it did not get worse.

The Hydrocephalus after my neck collapse was the blow in which has caused the most harm. After getting shunted I was told that the reason for my continuing headaches was because of the 15mg Oxycodone I was taking. I stopped taking the medication last year and of course my headaches have continued to this day.

So now I just try to stay immobile and still my neuropathic pain rages on. I kept quiet for years and kept a stiff upper lip but now I don't care what people say about my whining.

I hope your own pain is being treated with compassion and you are being treated with respect and dignity. IMO the respect part goes a long way in the way we as chronic pain feel both mentally and physically.

dana_b

(11,546 posts)
21. thank you
Wed Mar 16, 2016, 03:44 PM
Mar 2016

I have a great doctor who is trying to get me into a functional restoration program but we'll see. I am actually lucky because I paid into a long term disability plan at work prior to my injury. But yeah, the mental and physical part together is wearing me out. I know that you understand.

I am on 15mg of oxy three times a day and sometimes get headaches but not often. The neuro pain is still there even with a spinal cord stimulator, although it has helped. The hydrocephalus though - wow - I am so - MORE than sorry about that! Back injuries can lead to so many more issues.

I hope that sooner rather than later that you get into that trial. it's so awful that THIS is how some have to go about getting care that they need!! It should not be like that in the U.S. It's enough to make some give up because they figure "what's the use?" I hope that never happens to you.

Arazi

(6,829 posts)
22. .
Wed Mar 16, 2016, 08:33 PM
Mar 2016

HRC and her supporters don't give a shit.

Incremental change baby, that's the ticket. Just gotta wait another generation

I am so sorry

Jefferson23

(30,099 posts)
24. I am very sorry this is happening to you. People say stupid things on the internet, this campaign
Wed Mar 16, 2016, 09:19 PM
Mar 2016

is indeed very much about you and millions more in situations like yours.

We still have a fighting chance, it was always a long shot but we
are still in to win. I wish I had more certainty to offer you, but
we'll keep trying.

UglyGreed

(7,661 posts)
25. Thank you for your
Wed Mar 16, 2016, 09:41 PM
Mar 2016

reply. You are one of the posters I have a great deal of respect for. I was just bombarded with bad news yesterday and this morning but my hopes for Bernie have not been crushed I still have faith and will support him till the bitter end.

Jefferson23

(30,099 posts)
26. You're too kind, I wish I had more than that to offer you.
Wed Mar 16, 2016, 09:49 PM
Mar 2016

In solidarity, we'll be fighting back like hell.

UglyGreed

(7,661 posts)
29. Indeed!!! I should of told
Thu Mar 17, 2016, 10:25 AM
Mar 2016

my spine and then my brain to behave and pick myself up by the boot straps and chase the American dream. Lazy spine and stupid brain of mine!!!! I deserve to be tossed aside and have my unrelenting pain mocked. Merica home of the wealthy, healthy and lack of empathy!!!!!!


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