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Lotusflower70

(3,077 posts)
Mon Feb 18, 2019, 02:08 PM Feb 2019

My son's migraine journey

So I took him for his appointment with his neurologist and he is being switched from Botox to Emgality. I am so thankful for the insurance and the great healthcare that he has. His neurologist is phenomenal. The University hospital is so supportive. I knew it was only a matter of time before he was switched. Here's hoping this is the answer. I guess at his next appointment she is thinking about getting rid of the Zolmig too. This medicine can only be authorized by 4 neurologists at the University hospital, luckily he has one of them. Hopefully things will start to go in a more positive direction for him.

8 replies = new reply since forum marked as read
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My son's migraine journey (Original Post) Lotusflower70 Feb 2019 OP
Positive thoughts your son's way. It's so hard to watch our children suffer. Laffy Kat Feb 2019 #1
I feel so helpless Lotusflower70 Feb 2019 #4
Best of luck to him. Aimovig has worked well for me so far. unblock Feb 2019 #2
He got to pick Lotusflower70 Feb 2019 #6
Hopefully you will have positive results soon. littlemissmartypants Feb 2019 #3
Thank you Lotusflower70 Feb 2019 #5
Not much of a quality of life. littlemissmartypants Feb 2019 #7
I know right Lotusflower70 Feb 2019 #8

Laffy Kat

(16,366 posts)
1. Positive thoughts your son's way. It's so hard to watch our children suffer.
Mon Feb 18, 2019, 02:17 PM
Feb 2019

It's helpful that he has such a supportive parent. My father had migraines so bad he was often suicidal. He learned biofeedback and swore by it. Just throwing that out there. I'm sure everyone is different.

Lotusflower70

(3,077 posts)
6. He got to pick
Mon Feb 18, 2019, 11:57 PM
Feb 2019

The medication he could switch to. He chose to try Emgality. His neurologist is really empowering him with his own health care. She is just phenomenal.

littlemissmartypants

(22,512 posts)
7. Not much of a quality of life.
Tue Feb 19, 2019, 04:51 AM
Feb 2019

I know it must be heartbreaking for you as his mom. Be sure to take care of yourself. ❤

Lotusflower70

(3,077 posts)
8. I know right
Tue Feb 19, 2019, 12:13 PM
Feb 2019

I feel terrible for him. I am generally a positive person and it kills me to see him going through this. I would take all his pain if I could but I can't. But I will continue to fight like hell for him to get answers.

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