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kiranon

(1,727 posts)

9. 50% of those with NF are the first ones in their family to have it.

Reply to ChazII (Original post)

Sun Nov 10, 2013, 07:33 PM

Nov 2013

Half of the cases of NF result from a spontaneous mutation in the genes and the other half is an inherited condition. My adopted daughter has NF1. She has multiple plexiform tumors deep inside and along her spine. She has no outward signs of NF but the deep internal plexiforms are dangerous and can turn cancerous rather quickly.

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18 replies

= new reply since forum marked as read

Highlight:

Is it okay to shun the disfigured? (Warning it talks about the Pope) [View all] ChazII Nov 2013 OP

thank you for this thread... magical thyme Nov 2013 #1

Excellent question ChazII Nov 2013 #5

aaack! that is not at all what I meant by my last statement... magical thyme Nov 2013 #7

Wow! Talk about how sometimes we ChazII Nov 2013 #8

Absolutely not. rug Nov 2013 #2

Thanks for your courage in telling us about your life and your family. I don't have NF, but it's freshwest Nov 2013 #3

Of course not, that is cruelty. Bluenorthwest Nov 2013 #4

Are you aware that Pope Francis is having questionnaires sent to laypeople pnwmom Nov 2013 #12

Disfigured people should never be shunned. Vashta Nerada Nov 2013 #6

50% of those with NF are the first ones in their family to have it. kiranon Nov 2013 #9

Kiranon, your daughter is a heroine and a fighter ChazII Nov 2013 #10

Thank you for your reply. kiranon Nov 2013 #17

I am so glad you spoke up pnwmom Nov 2013 #11

pnwmom, thank you for understanding. ChazII Nov 2013 #14

I knew what that man's condition was the second I saw the picture. pnwmom Nov 2013 #16

We share a similar blessing and curse. Ms. Toad Nov 2013 #13

A blessing and a curse ChazII Nov 2013 #15

online is one place where people judge more on what's going on in your head than on your skin yurbud Nov 2013 #18