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mnhtnbb

(31,382 posts)

4. The neurologist who is following my husband

Reply to Stellar (Original post)

Sat Oct 1, 2016, 10:46 AM

Oct 2016

was one of the docs who was asked to review Robin Williams' medical records.

There really is great difficulty in diagnosing LBD. At our last visit, the doc handed me a book written by
the wife of a former LBD patient (now deceased). She documented that they'd been to 11 docs before
the LBD diagnosis was made--and confirmed by the 12th--the neurologist we're seeing.

If anyone is interested in reading more about the disease, the LBD Association website is a good place to start.
If anyone has a family member that they suspect might have LBD and would like to talk to someone who is
going through this--although my husband is in the early stages--please pm me.

https://www.lbda.org/category/3437/what-is-lbd.htm

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26 replies

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Highlight:

Robin Williams’ Widow Writes A Devastating Account Of His Final Year [View all] Stellar Oct 2016 OP

This is so tragic B2G Oct 2016 #1

It makes me so sad!!! Stellar Oct 2016 #2

His suicide hit me so hard LWolf Oct 2016 #3

That gave me chills..Me either! Stellar Oct 2016 #5

I'm the same-- can't watch anything with him in it ailsagirl Oct 2016 #19

I'm able to watch him TexasBushwhacker Oct 2016 #23

It would be. LWolf Oct 2016 #25

The neurologist who is following my husband mnhtnbb Oct 2016 #4

I am sorry - you are so kind to offer to help others. Justice Oct 2016 #11

Thanks. Friends-- whose parents were diagnosed with LBD long after mnhtnbb Oct 2016 #13

How tragic! smirkymonkey Oct 2016 #6

How terrible. MicaelS Oct 2016 #7

Such sadness we endure in life at times. lonestarnot Oct 2016 #8

As I approach an age that's closer to sixty than fifty... Iggo Oct 2016 #9

Losing my brain awoke_in_2003 Oct 2016 #21

Still don't want to admit he is gone. Guilded Lilly Oct 2016 #10

Robin Williams is not gone FrodosPet Oct 2016 #22

Laugh with him... BlancheSplanchnik Oct 2016 #24

we still deny the hell that long term care givers go thru dembotoz Oct 2016 #12

Heartbreaking. nt fleabiscuit Oct 2016 #14

I am still fucked up from his suicide. Rex Oct 2016 #15

Not stupid. The Robin that lives inside you still can be there. That's important too. nolabear Oct 2016 #17

Thanks nolabear, we all have a part of Robin inside us. Rex Oct 2016 #18

I also sorry this happened to him. I hope his family finds some peace and understanding. nolabear Oct 2016 #16

He was such a pure, special soul it's so hard to think he's not here anymore. Boomerproud Oct 2016 #20

On top of all that, he had to struggle with considering suicide. We need legal Euthanasia. Hoyt Oct 2016 #26