AlterNet: Google Wants to Track Your Medical History -- And Your Genome

[marmar]

Google Wants to Track Your Medical History -- And Your Genome

By Jesse Reynolds, AlterNet. Posted September 20, 2007.


Are you ready to entrust this deeply personal information to a company that recently received a failing grade in privacy?


In a recent review of 23 internet companies by a consumer watchdog group, Privacy International, Google was the only one to receive the lowest grade, reserved for those with "comprehensive consumer surveillance and entrenched hostility to privacy."

With that low mark in mind, you might find the idea of Google's having its virtual hands on your medical history a bit disturbing. The company, and its rival Microsoft, are each taking the first steps toward the burgeoning, and lucrative, industry of electronic health-records management.

Having your medical records in an accessible, searchable and consistent format is certainly appealing. But you, and your doctor, would also become a magnet for advertisers offering services based on your particular medical history.

Eminent technology investor and pundit Esther Dyson isn't worried about privacy policies, her personal records being hacked, or these companies cooperating with the National Security Agency. In fact, she wants you to turn over not just your medical records, but your personal genetic sequence as well.

In a recent interview on Charlie Rose, Dyson explained that she's among ten people about to put their health histories and genetic sequences on the internet for public viewing. She optimistically predicts that lots of us will soon entrust such information to online companies, albeit in private accounts.

Although Dyson acknowledged some of the troubling questions this prospect raises, she quickly dismissed them: "Like it or not, it's gonna happen."

Her rhetorical dodge is unfortunate. The convergence of biotechnology, the web, and big business is, in fact, quite alarming. ......(more)

The complete piece is at: http://www.alternet.org/healthwellness/62847/

[Donnachaidh]

1. Just how much money has this Dyson woman got invested in this program?

Of course she wouldn't worry about putting her info out there if it snookers others into doing the same - and SHE sees a profit when it gets rolling.

[silverweb]

2. It sounds purely voluntary, at least.

And somewhat costly. I really don't think there's any way this thing is going to take off or attract very many people. Maybe people with rare genetic diseases or something would be interested -- as if there aren't already support groups for pretty much anything you can imagine -- but I'd think that would be about all.

Here's the scenario: After signing up online, you receive a kit in the mail. In your home, you provide a saliva sample in the supplied cup and ship it off to a lab. For a few hundred dollars, much of your genome is sequenced, and the company places it on a website. It's then linked to your complete medical history, also online.

At this point, the company says, you can learn about your predispositions to diseases, conditions for which you carry a recessive gene, and genealogical information. The website offers medical advice, along with advertisements for potentially useful products and services. You can even communicate with people with similar genetic characteristics, making "friends" and forming "groups."

That seems to be the plan of a Silicon Valley start-up, 23andMe, named for the 23 pairs of chromosomes that hold your genome. Google, Genentech, and venture capital firms have invested at least $10 million in 23andMe. Its founder recently married one of Google's founders. Ms. Dyson is also an investor and board member -- something that didn't come up during her interview.

I'd just say, "No, thanks."

On Edit: Highlighting the money, of course.