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Nomad559 Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:17 PM
Original message
Florida Family Has Daughter Born Without a Face
This News Story Is really sad, I hope that some day medical Science can help her. :cry:

http://www.firstcoastnews.com/news/local/news-article.aspx?storyid=28372

Direct link to video
http://wm.gannett.speedera.net/wm.gannett/wtlv/2004-12-07/juliana.wmv
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medeak Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:23 PM
Response to Original message
1. took care of baby with just a hole on face
where mouth should have been.

Mercifully it didn't live long. Mother was dental hygienist and they believe she was exposed to too many dental xrays.

Ironically dental hygienist friend died of rare cancer at age 30..always wondered if she was exposed to something.
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sadinred Donating Member (529 posts) Send PM | Profile | Ignore Wed Dec-15-04 08:23 PM
Response to Original message
2. I think she was born into the right family. They sound loving
and she will need that. I'm sure their love will help make her strong.
I can't watch the video.
How sad.
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UCLA Dem Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:25 PM
Response to Original message
3. poor thing.
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Dastard Stepchild Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:29 PM
Response to Original message
4. well, that was really sad...
I mean, I knew it was going to be, but I must be a glutton for misery :(
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secedeeconomically Donating Member (380 posts) Send PM | Profile | Ignore Wed Dec-15-04 08:29 PM
Response to Original message
5. With all the imaging technology available to doctors, how
the hell did their doctor miss this? How incompetent cant this doctor be? But rest assure, if Bush has his way, this little girl wont be able to get a penny from the doctor.

Very sad
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Deja Q Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:30 PM
Response to Original message
6. I wonder what the fundies are thinking...
Put the woman in the slammer for creating a baby that isn't pure enough to be considered viable in their 'culture of life'. x(
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mondo joe Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 10:01 AM
Response to Reply #6
21. If the parents are repubs, freepers are thinking they're heroic
If the parents are dems, freepers are thinking they deserve worse.
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diamondsoul Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:33 PM
Response to Original message
7. It's beautiful imo.
These are parents like me who love their child regardless of her physical flaws and wish others could do the same.

They are brave and loving people and I'm betting little Juliana is the same as her parents. Juliana is not a "poor thing", she's a lovely and fortunate child.
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supernova Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:34 PM
Response to Original message
8. What a lovely and loving baby
she is! :D

They are a wonderfully supportive family.
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LynzM Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:35 PM
Response to Original message
9. What an amazing family
They sound incredible to being dealing so well with that... I cannot imagine what that must be like. I hope that Juliana continues to improve, and can teach at least a few people some lessons in judging by appearances.
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MuseRider Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 08:49 PM
Response to Original message
10. There are quite a few
children like this, not to this degree perhaps, but they are there. Mostly they can be found in Neurological Institutes, that is where I worked with them. Many never have a family, or nothing like this one. They have my respect. Rather than sad this is a truly inspiring story. It has to be terrifically difficult for all of them but the love is so apparent that you have to feel good inside, at least I do.
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thedailyshow Donating Member (695 posts) Send PM | Profile | Ignore Wed Dec-15-04 09:00 PM
Response to Original message
11. that's so sad....that baby is beautiful inside as well as on the outside
I'm glad she has a family that loves her so much---she'll need that support to help insure against many of life's indignities.
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ElsewheresDaughter Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 09:03 PM
Response to Original message
12. this is so sad..i wonder if her dad is a Gulf War vet...DU exposure?
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Marnieworld Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 10:04 AM
Response to Reply #12
22. i thought the same thing eom
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Kire Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 09:10 PM
Response to Original message
13. I can't watch the whole thing.
sorry, that was intense

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CatBoreal Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 09:11 PM
Response to Original message
14. Anybody else...
...feel like flying down to Florida and giving that little girl and her parents a hug.

I'm in tears over here.
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fujiyama Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-15-04 09:45 PM
Response to Original message
15. Those parents are truly amazing
It is fortunate she was born into such a loving family.
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ScreamingMeemie Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 09:30 AM
Response to Original message
16. Kicking and donating. What a beautiful family. Listening to the parents
talk about her so proudly fills my heart to full. Thanks for sharing.
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ElsewheresDaughter Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 10:13 AM
Response to Reply #16
23. ditto
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ZoCrowes Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 09:33 AM
Response to Original message
17. How horrible
That poor little girl. Just think of the huge advancements in plastic surgery over the past 15 years so imagine what they can do for that poor little girl over the next 15.
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gollygee Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 09:33 AM
Response to Original message
18. I grew up with someone with this same birth defect
It is a sad story. I wish the best for the little girl and her family.
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Beware the Beast Man Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 09:35 AM
Response to Original message
19. I saw a program on Treacher-Collins a while back.
I had no idea it could be this severe.
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mondo joe Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 09:59 AM
Response to Reply #19
20. I had an uncle w Treacher Collins
He died (car accident) when I was a baby so I never knew him. But the family has always been accutely aware of Treacher Collins - and I NEVER knew it could be so bad.

:-(
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ScreamingMeemie Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 06:25 PM
Response to Original message
24. Kicking in the spirit of helping out others during this season.
It would be cool to see a whole lot of DU donations! :bounce:
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rene moon Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 07:27 PM
Response to Original message
25. This is sad but I am terribly grossed out
Sorry, but I am. I dont think I could have a child like that, honestly. I've been thinking that makes me a "bad" person but I dont think so. It just makes me, well, human, I guess.

I wish the family well and I hope medical advnces can help this little girl.
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flamingyouth Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-16-04 07:39 PM
Response to Original message
26. That is just so sad
I cannot imagine what those poor parents have been through. :cry:
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Willy Wonka Donating Member (283 posts) Send PM | Profile | Ignore Thu Dec-16-04 08:19 PM
Response to Original message
27. After looking at this, I recall a kid that I knew in elementary school
that had TC, and I had never realized this until today.
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