Democratic Underground Latest Greatest Lobby Journals Search Options Help Login
Google

Wish me luck on Tuesday... neurosurgeon #2

Printer-friendly format Printer-friendly format
Printer-friendly format Email this thread to a friend
Printer-friendly format Bookmark this thread
This topic is archived.
Home » Discuss » The DU Lounge Donate to DU
 
Deja Q Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:18 PM
Original message
Poll question: Wish me luck on Tuesday... neurosurgeon #2
Edited on Fri Jan-07-05 11:20 PM by HypnoToad
I will explain to him the fine tremor, leg spasm, neck/arms tingling, arm weakness. I will say that the neurologist had seen my MRI and recommended surgery (obviously, what's going on is a bit significant for just physical therapy, and fuck my counselor for basically saying I'm crazy for wanting to go to surgery... I may have been quick in telling her the situation, but she could have ASKED me about the details instead of coming to a conclusion that I'm not considering all the options.)

Have I considered all the options?


(neurosurgeon #2 will hopefully listen, rather than ask me if I've been diagnosed with schizoprenia or say the MRI isn't good enough. My neurologist, after asking him since the other surgeon visit, said they ARE acceptable for use.)
Printer Friendly | Permalink |  | Top
roguevalley Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:22 PM
Response to Original message
1. good luck. trust your instincts. Who knows how you feel better than
you.
Printer Friendly | Permalink |  | Top
 
Deja Q Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:27 PM
Response to Reply #1
2. Apparently every counselor and psychiatrist... and I HAVE been told by
Edited on Fri Jan-07-05 11:27 PM by HypnoToad
a coworker that I might just have a legal case. And I also have a witness who has seenfirsthand how hamfisted those overpaid whelps are.

Given the hell I've been though, I intend to at the very least go to the HMO's management and make a gigantic stink. I've had it with that provider at this point. I'm also remembering what happened ayear ago and am writing down my thoughts. I doubt it can be used, and maybe that quack has retired or been fired (I doubt it), but it's still the truth and I am going to be a part of the solution for once.

Edit: Spelling
Printer Friendly | Permalink |  | Top
 
qnr Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:28 PM
Response to Original message
3. Good luck n/t
Printer Friendly | Permalink |  | Top
 
fluffernutter Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:34 PM
Response to Original message
4. wishing you luck.
Printer Friendly | Permalink |  | Top
 
man4allcats Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:44 PM
Response to Original message
5. Best of luck
I know how you feel. I had to call my doc today. I will see him Monday to discuss my own strange tingling in my arms and weakness in my legs. I wish I could backtrack about 20 years.
Printer Friendly | Permalink |  | Top
 
Deja Q Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:48 PM
Response to Reply #5
6. And best of luck to you too. I hope it isn't too serious.
Printer Friendly | Permalink |  | Top
 
FizzFuzz Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:53 PM
Response to Original message
7. I'll be thinking of you Toad
those symptoms all seem physical to me--certainly not psychological based. I mean, I'm just a layperson, but still....(well OK I have delusions of grandeur, so I must be right. It just seems so obvious! )

Damn HMO's....
keep fighting and if this result doesn't feel right, fight again.
Printer Friendly | Permalink |  | Top
 
blue neen Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jan-07-05 11:55 PM
Response to Original message
8. Good luck with this!
Did you have EMS and nerve conduction studies done? They ususally recommend those tests for the symptoms you are showing.

Sorry if I have missed other posts you have made about this. Why do you need surgery, if you don't mind my asking.
Printer Friendly | Permalink |  | Top
 
Deja Q Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Jan-08-05 12:01 AM
Response to Reply #8
9. I'd an MRI, EEG, hearing test, and ENG done so far... results are keen:
Edited on Sat Jan-08-05 12:02 AM by HypnoToad
MRI of head shows nothing; but neck MRI shows compressed cervical spine and pinching on nerves. The neurologist said he recommended surgery due to my age and relative seriousness of condition. I agreed. I've a history of work-related back/neck/shoulder injuries, a couple of car accidents (one wasn't my fault), and chiropractor therapy - one day he did go a tad overboard... (so it's really a culimation of things. Given the weakness in my arms, that was a determining factor in recommending surgery straight up. Even I wasn't seriously prepared at the time to hear the recommendation, but I agreed with it. I know my history. And if the counselor wanted to ask for details in the first place, she needs to remember to ask for details if I forget to mention any of them... The counselor has already admitted I have ADD, so what's the problem? :-) Heh, I'll bet she'll change her diagnosis...)

EEG showed nothing.

Hearing test was mostly normal.

ENG from 7 years ago suggested labyrinthitis. Next test will confirm.
Printer Friendly | Permalink |  | Top
 
blue neen Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Jan-08-05 12:05 AM
Response to Reply #9
10. Your symptoms do sound like a pinched nerve.
Is your counselor giving you a lot of grief about this?
Printer Friendly | Permalink |  | Top
 
Deja Q Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Jan-08-05 12:24 AM
Response to Reply #10
11. Yup. I got fed up at her too. And I told her how neurosurgeon #1 had
treated me...

She got on my case about not seeing the neurosurgeon's "perspective" and it's all a matter of "perception" and such. The counselor then took what I said and spun it into HER OWN interpretation of events. Now I was at the neurosurgeon's office. My counselor was NOT. The neurosurgeon did not tell me WHY she was asking if I had certain mental/emotional conditions. To me, that means there was no relevant reason why she was asking. She outright asked if I had been diagnosed with schizophrenia and not said why. She did whip out the MRI chart of my neck (I've two for the neck) and quickly dismissed them both as being too blurry... more on that in a moment...

Oh, I've been keeping notes on everybody. This new counselor is definitely getting closer into my "quack" category and I am going to tell their management, if not anything more serious,when the time comes. (A coworker says I have good cause for a lawsuit at this point, given the "treatment" I've gotten from 2 counselors, 2 psychiatrists, 1 dermatogist (she never listened, she was already pre-decided on what tshe thought was the issue but that;s nothing compared to everything else), and 2 general practitioners. I am fed up. Royally.

And (another) co-worker is a witness to how my current counselor AND current psychiatrist have treated me. Let's just say I'm gratified, because who knows what these shysters would have done instead. (they accused me of "playing it up" regarding my actions 3 weeks ago. They dragged me in and I was out of it. I FINALLY remembered what happened at the end of the counselor visit; I recall getting up and walking out on my own. And I did it slowly. (it was also 45 minutes later, and by then it's fair to assume that the klonopin I'd taken would have started wearing off.) I did not act as if I was fully on my feet again because I sure as hell was not. On my next visit, the counselor had the nerve to tell me I might have been faking some of it. BULL. I can't even remember most of what happened that day, and I've a lot of witnesses who can say what happened to me that morning. I estimate I was unconscious between 2 and 3 HOURS. (when I first made that assertion to the counselor, and said it was a GUESS, she took it as being a literal truth and was quick to snap and (politely) ask why I came to that conclusion. I told her what had happened before I'd gotten back to my desk. I told her that a co-worker found me. ((3 weeks later) I asked that co-worker for the time she took me to the shrink's office and she said 1:30. I estimated then that it was between 2 and 3 hours, as it was about 9:30 when I got back to my desk.)

I just want proper people in the system so I (and lots of others!!!) can get proper help. I do not deserve to be mistreated and yelled at and prejudged by these quacks. It is not stress. I now have proof. I am going to sock it to them; they do not deserve their jobs.

And I sure as hell do get paranoid because every time I see one of them, they prejudge me with stress or schizo-something disorder, then say that the schizo- prefix is not related to schizophrenia, then have a (differnt) co-worker who is a licensed counselor tell me IT IS RELATED. (amongst a number of other discrepancies made between the nitwits I see and others in the real field who work directly with the tools.)

And the neurosurgeon... I'm there trying to describe this shit and she goes into the mental health arena and says the MRI is blurry. Having contacted the neurologist who originally ordered the MRI, his personal nurse said that those prints are acceptable. Unless they're playing me off as a chump, but for some reason I doubt that - they took the time to look and find something, instead of blindly labelling me.

I have every reason to be frustrated, angry, and YES paranoid. And I bet the psycho-crackpots will spin that against me too.
Printer Friendly | Permalink |  | Top
 
blue neen Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Jan-08-05 12:42 AM
Response to Reply #11
12. I know what you mean.
I have epilepsy and sometimes I can have some very strange sensations (smell things that aren't in the room, etc.) It took me YEARS to find the right doctor and the right combination of meds to keep everything under control.

It's very frustrating to have physical symptoms and the "professionals" dismiss what you have to say or don't bother to listen at all!

I hope you have good luck with neurologist #2. Sometimes it takes some searching, but there are good ones out there.

Good health and peace to you. Keep us posted!
Printer Friendly | Permalink |  | Top
 
DU AdBot (1000+ posts) Click to send private message to this author Click to view 
this author's profile Click to add 
this author to your buddy list Click to add 
this author to your Ignore list Fri Apr 19th 2024, 10:33 PM
Response to Original message
Advertisements [?]
 Top

Home » Discuss » The DU Lounge Donate to DU

Powered by DCForum+ Version 1.1 Copyright 1997-2002 DCScripts.com
Software has been extensively modified by the DU administrators


Important Notices: By participating on this discussion board, visitors agree to abide by the rules outlined on our Rules page. Messages posted on the Democratic Underground Discussion Forums are the opinions of the individuals who post them, and do not necessarily represent the opinions of Democratic Underground, LLC.

Home  |  Discussion Forums  |  Journals |  Store  |  Donate

About DU  |  Contact Us  |  Privacy Policy

Got a message for Democratic Underground? Click here to send us a message.

© 2001 - 2011 Democratic Underground, LLC