Big Prayers needed....My Mom got her diagnosis today...

[bicentennial_baby]

ALS.

I haven't cried yet, b/c if I do, I might not stop. I had to be there for the diagnosis, take my Mom home, and then inform both my brother and my father.

Could somebody stop the planet, b/c I wanna get off now please! x(

I'm not even dealing with this until Monday. I leave tomorrow morning for my honeymoon, and I will be firmly planted on the beach, or by the pool, and drunk either way. Might be my last chance to relax for some time....

Anyway, prayers, vibes, whatever you got, send them our way, if you can.

:)

[alarimer]

1. I am very sorry to hear that

Take care.

[LeftyMom]

2. Shit.

:hug:

[SarahB]

3. I'm very sorry.

No other words. :(

:hug:

[RevolutionaryActs]

4. :(

:loveya::hug::loveya::hug::loveya::hug::loveya::hug::loveya::hug:

[RetroLounge]

5. Oh, Shit... i am so sorry...

:hug:

Call if you need to...

RL

[Blue Diadem]

6. Oh gosh..I'm so sorry.

Prayers and hugs for you, your Mom and your family. :hug:

[CaliforniaPeggy]

7. My dear bi_baby....

I am so sorry......

There are no words for this, truly none...

Just my best vibes heading your way, and your mom's.......:hug: :hug: :hug: :hug:

[BleedingHeartRN]

8. that f-ing sucks

I cannot tell you how sorry I am. I HATE that disease. Hugs to you and your family.

[laylah]

9. Oh no!

I am so sorry to hear this! :hug: to you and your family. What a tough thing to face; however, reading your posts many a time, I feel you are up to it. May not like it, who would, but you will persevere.

My thoughts and prayers are with you and yours.

[YDogg]

10. I am very, very sorry.

Catch every moment of peace and tranquility you can this weekend ...

[BarenakedLady]

11. Oh no!

I'm so sorry.

:hug:

[SeattleGirl]

12. Oh, baby, I'm so sorry to hear this.

Prayers for you mom, you, and your family. :hug:

[bicentennial_baby]

13. Thanks guys....

:grouphug:

First issue: to find a way to get her $1000/month prescription covered. Ugh.

[Haole Girl]

14. Sending prayers, thoughts, and vibes...

:hug:

[Radio_Lady]

15. Oh, my God. How sad... what can I say? I hope you have the strength to go on.

[bicentennial_baby]

16. Damn right I do...

I gotta do what I gotta do, and that's take care of my family. :shrug:

[Radio_Lady]

17. There is always the Stephen Hawking living lesson...

...the greatest mind in physics since Albert Einstein.

http://www.hawking.org.uk/home/hindex.html

Read about how he handles his disability at:

http://www.hawking.org.uk/disable/dindex.html

[Phentex]

18. I'm so sorry...

:hug:

I wish the news had been better.:cry:

[KamaAina]

19. I tender you, of all things, a book selection

(my) Dying is Fun: A Comedy of Disabled Misadventures, by Christopher Day. I happen to be (supposed to be) reviewing it for a disability journal published at UH.

http://www.amazon.com/My-Dying-Fun-Disabled-Misadventures/dp/1425106226/ref=sr_1_8/105-5842004-2510833?ie=UTF8&s=books&qid=1185501413&sr=1-8

Can terminal illness ever be fun? At the peak of his career as an eco-architect, Christopher Day developed Motor Neurone (Lou Gehrig's) Disease. Initially, the future seemed bleak, but as the illness progressed, his attitude changed. The more things went wrong, the more hilarious life became. He began to appreciate the gifts illness has brought.

(my) Dying is Fun is for anyone, or anyone who knows anyone, who might one day die. Especially, it's for anyone who needs to laugh. This book transforms disability and dying into a testament for life.

My capsule review: If Monty Python were to get back together and do a sketch about ALS, it'd probably come out something like this. Day may have ALS, but more importantly, he has that classic dry British sense of humo(u)r. Not for reading whilst drinking hot tea or whatever.

[bicentennial_baby]

21. Thank you

:pals: I'll check it out...

[Debi]

20. Oh bi baby

:hug:

Get yourself a support system/group as soon as you get back.

This will not be an easy ride and you will need help.

Good for you for being there for your Mom and family, you are a strong one!

:hug:

[bicentennial_baby]

22. I will...Going to therapy first thing on Monday

:hug:

[Debi]

23. And stay here

With all the craziness here, we're better than therapy?

Any chance of nekkid honeymoon photos for Matcom?? :evilgrin:

[elshiva]

24. God bless you and your mother, bicentennial_baby

Our Lady of Lourdes intercede to heal, and bless.

[femmocrat]

25. So sorry to hear this, bi_baby.

You and your mom are in my prayers.

[Starbucks Anarchist]

26. I'm so sorry.

:hug: :hug: :hug:

[crim son]

27. You can do nothing by freaking out right now, or ever.

I wish you the happiest of honeymoons and will send vibes & pray for your family. ALS is a tough diagnosis and I'm very sorry to hear that it's now part of your reality. :hug: :hug: :hug:

[slj0101]

28. I am very sorry.

I hope the best, for you, your mother and all your loved ones.

[Mz Pip]

29. Sending positive thoughts your way

and :hug: Take care and know that you have people who care about you all around.

Mz Pip
:dem:

[wildhorses]

30. sorry to hear this.

~~~~~~~~~~~~healing prayers, positive vibes and powerful mojo~~~~~~~~~~

:hug::grouphug::hug::grouphug::hug::grouphug::hug::grouphug::hug::grouphug::hug::grouphug::hug::grouphug::hug:

[MassLiberal]

31. I'm very sorry

and sending prayers your way... :hug:

[Lone_Star_Dem]

32. OK, first things first.

Have your honeymoon and try and relax and charge your battery as much as possible. You're going to need the energy to feed your inner-strength.

Draw those you love near and lean on each other. You're not in it alone and neither are they.

Lastly, let your mom do as much as she can for herself for as long as she can. It's hard, I know, but unless she says otherwise it's usually the way to go.

I really sorry. :grouphug:

[bicentennial_baby]

33. She's actually pretty damn active...

Her Dr said that A) In her case, it's verrry slow-progressing (started about 2 years ago), and B) that of the 4 primary centers typically affected, hers is focused in one, for now. So, that's something. She still drives, does laundry, takes care of my Dad with MS, walks the dogs, etc. It's just so bizarre... :crazy:

Thank you :hug:

[deadparrot]

34. Hugs for you and yours.

:hug:

How's your dad doing?

[bicentennial_baby]

35. He looks very well, thank you!

A bit blown back by Mom's diagnosis, naturally, but otherwise good. Going in for a Cytoscopy on 8/2 to get rid of those damn stones, hopefully. :)

[PassingFair]

36. My father died from ALS 10 year ago.

I hope your mother is strong mentally,
and likes TV.

It takes a mentally strong person to
go on living with ALS.

PM me is you need to talk some time....

[bicentennial_baby]

39. She's as tough as nails...

And yes, she likes TV very much. Hers is an odd case. Very slow progressing, limited mainly to Bulbar symptoms, very little in the arms, legs, lungs. Been almost 2 years since onset. I'm trying to remain optimistic, and doing a motherlode of research, at the moment.

And I will probably take you up on that soon, thank you :pals:

[PassingFair]

68. My dad was still talking right up to the last day.

His progression was from the feet up, and he
was GLAD that it wasn't from the other end
down, as it were....

Will your father be primary caretaker?

[swag]

37. Best wishes to you and your family, loved ones, friends.

[bicentennial_baby]

41. Thanks, friend.

:)

[KitchenWitch]

38. That is terrible news!

:hug:

I am really sorry.

[bicentennial_baby]

40. Or is it an opportunity?

I'm starting to wonder...An opportunity to bring this family closer than ever, to give my Mom a new life. To live with ALS instead of dying with it...Hmmm.

Thank you :hug:

[KitchenWitch]

47. True - perhaps time to mend a lot of fences?

:hug:

The veil of life passes so quickly.

[bicentennial_baby]

48. There are some to be mended, yes...

Not on my end, but some others...yes. I think my SIster is going to get a *big* wake-up call when I inform her. I'm not calling anyone until Monday. I'm spent, and I have to call her, my Mom's sister, Mom's brother, and Mom's mother. And probably Dad's sister too. Sigh. And fight with the VA to cover her medicine. Should be an interesting day. :P

[MrScorpio]

42. Sending you good vibes

And a big hug

:hug:

[bicentennial_baby]

43. Thanks, Papi...I'm ok

I've had a mental turn for the better, for now. :)

:hug:

[Shakespeare]

44. I am so, so sorry, sweetie.

Huge prayers, hopes, vibes and good thoughts for you. I'm here if you need anything. :hug:

[bicentennial_baby]

45. Thank you love...

I'm strangely calm right now...The show must go on. Momma is a tough woman, and I'm right there with her. The fight is not lost, not by a long shot. I have hope. :)

:hug:

[Left Is Write]

46. Of course!

I'm sorry. :hug:

[bicentennial_baby]

49. Thank you

:hug:

[Der Blaue Engel]

50. I'll light a candle on my altar for her

And in looking up what ALS stood for, because I couldn't remember, I found this:

http://www.alsa.org/patient/diagnosed.cfm?CFID=4382818&CFTOKEN=20576389

Maybe it will be helpful.

:hug:

[bicentennial_baby]

52. That is a great resource, thank you!!

Bookmarked.

:hug:

[njdemocrat106]

51. Will do

ALS is an awful disease. My best thoughts and prayers go out to her, and to you and your loved ones.

:hug:

[bicentennial_baby]

53. Indeed it is.

I'm ready for the fight. :hug:

[Ptah]

54. I hope for the best for you and yours.

[bicentennial_baby]

56. awww, what a sweet picture...

thank you :hug:

[Ptah]

60. I really hope the best for youand your family, bicentennial_baby

Just for a grin, here's a smile to carry with you:

Simon & Garfunkel: Bridge Over Troubled Water

[Gormy Cuss]

55. You get all the positive energy that I can send.

I'm sorry, sweetie.
:hug:

[bicentennial_baby]

57. Me too!

x( I'm holding up though...

Yankee blood, and all that jazz :P

:hug:

[SPKrazy]

58. Oh bibi!

I'm so sorry, I was afraid this was the case.

breathe deeply and easily sweetie. that just sucks and there is no easy way to look at it. Timing, yeah, it sucks, but that is what it is bibi!

:hug: :hug: :hug: :hug: :hug: :hug:


pm me if you need to!

but go relax and enjoy your honeymoon, there is nothing that you can do to change it by worry and I'm sure your mother would want you to be happy at this time of your life.


:loveya: bibi

[bicentennial_baby]

61. It is what it is, Edward..

Exactly.

I was afraid of this too, but more prepared for it than Mom, Dad, or Brother was, Sigh.

I'm going to do my level best to have a great weekend, promise!!

:hug:

[rockymountaindem]

59. God be with you

[bicentennial_baby]

62. Thank you...

[UrbScotty]

63. Oh dear. What lousy timing.

But do remember that we are here for you. :hug:

[bicentennial_baby]

65. Isn't it though?

Thank you :hug:

[judaspriestess]

64. my sincerest heart felt wishes to your family

only the best for your mom.

[bicentennial_baby]

66. thank you so much

:hug:

[Tektonik]

67. That fucking sucks

Life isn't fair sometimes, but I guess all you can do is help your mom cherish every moment of her life, and you should cherish every moment you have with her as well.

[Bassic]

69. I'm sorry

:( :hug:

[seemunkee]

70. I'm so sorry bibaby

Please find a way to enjoy your honeymoon. Recharge yourself so you can be a help to your mom.

[QMPMom]

71. I am so sorry. I will keep your mom and all of you in my thoughts.

[YankeyMCC]

72. So sorry to hear that...

I don't know much about ALS and what options your daughter will have to help her deal with this or what you can do, but you're still both there for each other, enjoy and take strength from that and my best wishes. I hope you can find a way to grab a little joy on your honeymoon even with this news on your mind.

[NC_Nurse]

73. OMG, I'm SO sorry!

:hug:

You got my good vibes. Leave the problem at home and enjoy your honeymoon. There will be plenty of time to deal with
the diagnosis when you get home.

[MissMillie]

74. the prayers and vibes are coming

as is a big hug :hug:

Your friends are here for whatever you need. Do not hesitate to ask.

[Inchworm]

75. You and yours are in my thoughts

Sad news.

:hug:

[huskerlaw]

76. I´m so sorry

My mom has a friend who was diagnosed with ALS way back in the early 80s. She is still alive, and though very limited by the disease, she is still active with her family and friends. She recently got a computer that speaks for her...by reading her eye blinks!
`
I know that ALS is a horrible disease and the diagnosis had to have been shocking, but please don´t give up hope. She can still have a long and productive life.

:hug:

[Hugin]

77. Terrible news BB...

You will of course have my full support.

:hug:

[1gobluedem]

78. So sorry

It's going to be a tough fight but it looks as though you're getting the support you need. Enjoy your honeymoon, clear you head, and marshal your resources when you get back.

[applegrove]

79. I'm sorry. Sending your mom vibes.

[redqueen]

80. Oh honey...

So sorry to hear that... prayers and good vibes on the way.

:pals:

Hope you manage to have a nice time on your honeymoon. :hi:

[TheProphetess]

81. Big prayers coming to you

from both of us. :hug:

BTW, a movie about ALS, Tuesdays with Morrie, is one of my favorite movies - the book was good but I think Jack Lemmon is amazing in the movie. Morrie really shows us how to live with an illness, rather than focusing on dying from an illness (as you mentioned). It's a tear-jerker but it has a great lesson in it.

Good vibes and mighty prayers to you and yours. :hug:

[ulysses]

82. you got it.

:hug: