I'm on the waiting list for lung transplantation

[bixente]

I know I rarely post here and I doubt I'm familiar with anyone, but for a few years I've been so weak, I've been unable to go out as merely walking from room to room in our house is enough to exhaust me. My family are great but they're not with me now, so I feel very lonely. I'm desperate to exchange messages with any of my fellow human beings, to be honest. First there was agoraphobia as a teen, and after I recovered from that, not long afterwards, pulmonary hypertension set in, hence why I need a double lung transplant, I believe.

[WinkyDink]

1. {{{bixente}}} Keep posting, and hanging in there.

[Sanity Claws]

2. Keep posting

We want to get to know you.
How lon have you been on the list? Are you an easy or hard match?

[bixente]

8. Around a month or so

I've been told I'm more likely than others as I'm young, thus will be granted priority. Also I'm tall which will also count in my favour. Why is that? I'm aware the organ will have to match mine in size and blood type. I'm embarrassed to admit that I don't know what my blood type is. But all in all, I have reason to hope.

Also, if I can survive the initial few weeks, I'll join fellow organ recipients in an aerobics class in order to build up the strength we'll lose in intensive care. I can meet people in that way, I was informed that people who find themselves in this boat grow to know each other and throw parties, "we survived the year, let's celebrate".

Thanks for the kind words.

[mikita]

3. from another infrequent poster...

I hope things look up for you, and that you get the transplant you need.

Consider yourself hugged.... :hug:

Mikita

[RainDog]

4. hugs to you

it helps to have a place when you need to sing the blues.

[CaliforniaPeggy]

5. My dear bixente...

You're new to me, but that doesn't matter!

I'm here a lot, and I will always come by and say hello...

Please take care, and feel free to vent about your situation...

I'm here for you!

:hug:

[Pushed To The Left]

6. Keep posting here, bixnette. DU is a very supportive community.

:hug: :grouphug: Hang in there!

[Ellen Forradalom]

7. bixente, you always have a friend here

For all your concerns, from the smallest to the most overwhelming.

Hang in there.

[SPKrazy]

9. Very sorry to hear of your difficulty

double lung transplant needed, I bet you are weak with PH.

I'll hope that some lungs come soon and that you are able to feel that you have a life again soon.

:hug: :hug:

[auntAgonist]

10. bixente, I hope you continue to post here and take

some comfort in the kindness of the folks who frequent the lounge. I will keep you in my thoughts and send good vibes for the lung transplant and good health in the future.

:hi:

aA
kesha

[auntAgonist]

11. duplicate post

[Cabcere]

12. Hey, bixente

:hug: Sorry to hear about your trouble, and you have my best wishes on the lung transplantation! :pals: Keep us posted, OK? I'll be sending good vibes your way. :hi:

[shaniqua6392]

13. I am glad you are posting here.

This is a good place to let out your feelings and get some support. I hope you feel better soon. You will be in my thoughts and prayers bixente!!! :loveya:

[Rhiannon12866]

14. Thank you so much for sharing this with us. DU is the place to do so...

DU is more compassionate for those of us going through hard times, more than anyplace I've ever known. Take great care, my friend, and wishing you a successful, and speedy, recovery. I'm an asthmatic, myself, and have had three surgeries, for other reasons, but nothing compares to what you're facing. Always remember that DU will be thinking of you and looking forward to your return...

Rhiannon:hug:

[bixente]

15. Thanks again

I find it easier to focus on the short-term. Looking at the big picture, I'm not a strong person so it can easily overwhelm me. Easier to just take it day by day, easier to just focus on the book I'm reading at the present moment, see?

I'm on a voyage of French literature. I'm almost done with "The Count of Monte Cristo", then I'll set my sights on "Les Miserables". I won't say anything but to give my strongest recommendation for the former. No spoilers. :D

[Rhiannon12866]

17. I've read "Les Miserables," my friend, ages ago, and it's one of my favorites of all time...

Look forward to seeing the classic movie. It's a keeper... :D

When I had my surgeries, one major, though not as complicated as yours, I think, I felt that the thing that kept me going was retaining a sense of humor. I was scared witless, but I still made jokes about things, with both the hospital staff and my friends. It helped keep me sane, and I recommend that, if you can manage it. Godspeed, my friend. I'll be thinking of you and sending you my best positive karma. I'm not very brave, either, would never have made it without Xanax, just facing the damn thing. But if I can make it, you can. And I'm still here, and well, and you will be too, before very long...:hi:

Rhiannon:hug:

[nuxvomica]

21. I read "The Count of Monte Cristo" when I was a kid

I had heard just brief cultural references about it and decided I had to get it out of the library and see what it was all about. What a great story! That led me to Jules Verne's "20,000 Leagues Under the Sea," another rousing adventure. Great narrative journeys that more people would enjoy if they didn't think of them as hoary old classics.

[bixente]

24. Yes

From my experiences with the classics, the majority have been heavy going - exceptionally well written indeed, but at times I found myself swimming against a strong tide of text. Monte Cristo, however, was comparatively easy to rip through, and yet I wouldn't describe it as a light read! Some passages are truly meaningful and insightful.

Rhiannon, your words are so warm that they haven't failed to make me feel better. As indeed goes for the rest of you. Thank you.

[lightningandsnow]

16. Sending lots of hugs.

:hug:

Hope everything turns out well in the end. My cousin has had three kidney transplants over the course of his life... and he is currently doing very well.

[Tuesday Afternoon]

18. ~

:hug: :hi: :hug:

[Pool Hall Ace]

19. sending strengthening vibes to you, bexente

and lung vibes, too :hi:

Please hang in there and know that we care! :hug:

[malta blue]

20. bixenite...

Please post as often as you are able. We loungers are a supportive community.

[graywarrior]

22. Post the shit out of this place

Stir up trouble in GD-P, then come back here so we can all admire the crap out of you.

[NMDemDist2]

23. hang with us

we'll keep you busy

:hi:

[BOSSHOG]

25. Love Ya Man!

Post away ... Ya got hobbies? Favorite books?

[bixente]

27. Well

I feel that it's only in recent years that I've delved into the world of meaningful literature - prior to that there was, er, Goosebumps and Animorphs. :D One thing that does interest me is books which go into great detail as to how the mind of the leading character works. "The Trial" by Franz Kafka is an excellent example.

[BOSSHOG]

28. May I suggest

"A Great Improvisation" by Stacy Schiff. Its about Benjamin Franklin's time in France in the late 1770's and his chicanery and machinations to get French support for our revolution. He is definitely the lead character and it certainly delves into his minds workings. Interesting character and, in this case, truth better then fiction.

[bixente]

31. You may indeed

Hopefully I can get back to you on it sometime in the future.

Thanks for the suggestion.

[BOSSHOG]

32. May we chat

about the workings of the minds of lead characters for years to come My Friend!!!

[cordelia]

26. Best wishes to you.

And please keep us informed of your progress.

There are a lot of caring people here (I am an infrequent poster), but I lurk and have seen the goodness of those who contribute to this site.

[Darth_Kitten]

29. Feel free to chat up in the Lounge. :)

:hug:

I so hope you get what you need to feel better again. :)

[hedgehog]

30. Geeze, I don't know bixente , is it really safe for you to be hanging around the Lounge?

I'm not talking about the germ hazards from people leaving their dirty dishes around and all the pet dander, but this place really makes me laugh sometimes. You're sure you can handle that?

:hi:

[riderinthestorm]

33. Tell us more about yourself

The lounge loves that stuff. What movies do you like? Do you have any pets, kids, or family drama? :D

We're big gossip mongers here and the crazy stuff is great. Don't be a stranger and start jumping in, perhaps we'll even make you laugh! Even if you log in and just give us all a wave, there's a lot of people here who really understand. You'll definitely get some love back.

Hope you get your transplant soon. Hang in there! :hug:

[bixente]

34. Alrighty then

One of my uppermost desires is to meet people. I left high school not long after joining and in the ensuing years, developed agoraphobia. I feel I've overcome that, alas only a few months after I started venturing outdoors on a regular basis, this pulmonary hypertension reared its unpleasant face. For those who are in the dark, and I wouldn't blame you as it's quite a rare condition I've been told... well, this is embarrassing, as it's been explained to me, at length, a number of times by various doctors and nurses. The long and short of it is that my blood vessels are especially narrow, thus blood and oxygen cannot distribute itself as freely as would be the case in a healthy person. As such, I tire easily - oxygen concentrators have been set up in our house, I'm on six litres of pure oxygen, 24 hours a day. The concentrators gather oxygen from the surrounding air, pumping it through a long tube which can reach to all areas of our house. They don't know why this is afflicting me so.

So yeah, I'm desperate to meet people - it's been longer than a decade since I've been in an environment where I can socialise with people of my own age, longer than a decade since I could develop significant relationships.

My real name is Jeff, I'm a 22 year old male who has resided south of Melbourne all my life.

I have many interests which constantly fluctuate. It's frustrating for me at times, because it's not uncommon for me to say to myself, "I was so interested in whatever, and now that passion has disappeared as suddenly as it appeared". At the moment, my passions lie with French literature and Siberian Huskies. I found it curious to find a thread today focusing in part on this breed. And as for pets, despite what I just said, we are a cat family by and large. "We" - me, my parents and my brother.

My favourite writer is Haruki Murakami. I agree with those who say his work is complex yet easily accessable. My favourite works by this man would be "Kafka on the Shore," "The Wind-up Bird Chronicle" and "Norwegian Wood". Also I found enjoyable his collection of short stories as can be found in "Blind Willow, Sleeping Woman". I think that's it's name? Embarrassing. Well, I'm quite sure.

As some of you may of noticed, I am sensitive as to how I'm perceived by others. I've been told that since agoraphobia, I've most on to GAD . To give one example, once I ended up in tears as I missed a commercial my brother wished me to see. It would be repeated, right. He didn't appear upset, right. Alas I'm irrational to the core and the thought whirled around inside my head, terrorizing, "you've let him down! What is he thinking about you?!"

About Murakami. In general I'm passionate about his homeland. My favourite writer is Japanese, my favourite food is Japanese , some of my favourite films and directors are Japanese <"Kikujiro", "Tony Takitani", Takeshi Kitano>, I enjoy Japanese music, the language sounds pleasant enough to my ears... I'd dearly love to travel there someday.

Another country I love is Iceland. Iceland is a country with the most mind blowing landscape, at least that I've encountered. It's truly from another planet . Also, the population is so small, only around 300,000, and yet they've done so much - one of the great writers of the 20th century was Icelandic - Halldor Laxness. Some of my favourite artists are Icelandic - Sigur Ros and mum. I'm forgetting the accents, forgive me. A country which punches above their weight.

[hedgehog]

36. Seriously, don't let anything said here bother you. It's easy for any of

us to say the wrong thing at the wrong time without meaning to. What's meant as a joke can come out wrong when all you have is the words and not the facail expression to go with it! I think there are a lot of people here who are housebound for one reason or another, so you're in good company.

[bixente]

43. It is a problem

When I read posts from people responding to me, I do imagine their tone of voice to be a certain way, invariably negative.

I haven't had one of my patented mental breakdowns for some time, though. I'll try not to let my irrational head get the better of me. We'll see.

We have a library near to our residence. Today I want to make my way down there and choose a book. Looking forward to that.

[abq e streeter]

45. My voice would be friendly and compassionate

and I guarantee every single person responding to your posts would be the same. We're responding because we all care about you. As God is my witness, that's the truth.

[abq e streeter]

35. Sending good thoughts your way, my friend.

and a prayer that your doctors can help get you healthy again. Looking forward to hearing one day that you're better, able to get out into the world a little more, and alleviate that isolation and loneliness. Till then, I and all the other people replying to you tonight are here for you ( and each other).

[Sugar Smack]

37. Hey. Post here. We'll keep you company.

See what graywarrior said. She has the right idea. And hang in there.

[Pierre.Suave]

38. There are lots of people here to communicate with...

Now, the real question is, will you actually WANT to communicate with us after you get to know us?

:rofl:

All kidding aside, I do hope you get your transplant, that it goes well, and you live with peace, love, and kindness.

[GreenPartyVoter]

39. Sending you healing, loving vibes your way *hugs*

[Maddy McCall]

40. Will say many prayers for you and keep my fingers crossed.

:hug:

This will happen. I know it!

:hug:

[The Straight Story]

41. a kick for you my friend

keep your hopes up am PM me if ya need to talk.

[applegrove]

42. Sending you vibes.

[Midlodemocrat]

44. Hang in here. You'll get to know everyone really quickly.

And, best of luck to you. Prayers and good thoughts headed your way for a successful surgery.

:hug:

Oh, and stay away from sasquatch. He's a serial killer.

[dpbrown]

46. Here's a hug for you

:hug:

I'm glad you're here.

[GoddessOfGuinness]

47. Please keep us posted...

You'll be in my thoughts and prayers. :hug::hug::hug: