bicentennial_baby
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Thu Nov-13-08 05:37 PM
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I really, really need a hug right now...They say it's time for my Mom to get a feeding tube |
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I'm just sitting here alone in the apartment crying my eyes out.
We knew this time would come but...I just don't know what to say.
:cry: :cry: :cry:
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Parche
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Thu Nov-13-08 05:38 PM
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I have been through it this year :cry: :cry: :hi: :hug: :hug: :hug: :hug:
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ghostsofgiants
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Thu Nov-13-08 05:39 PM
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2. I'm really sorry to hear that. |
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Edited on Thu Nov-13-08 05:39 PM by primate1
:(
:hug:
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AlCzervik
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Thu Nov-13-08 05:40 PM
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i wish i was there with you, I am really sorry.
:hug:
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tigereye
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Thu Nov-13-08 05:41 PM
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Shakespeare
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Thu Nov-13-08 05:41 PM
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5. Oh, sweetie. I'm so sorry. |
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Just keep moving, keep breathing; that's all you can do. PM me if you need a-n-y-t-h-i-n-g. :hug: :loveya:
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KitchenWitch
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Thu Nov-13-08 05:41 PM
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:hug:
I wish there were more I could do for your.
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Phentex
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Thu Nov-13-08 05:42 PM
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JVS
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Thu Nov-13-08 05:42 PM
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I thought they were getting ready to discharge her. Sorry to hear this! :hug:
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SeattleGirl
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Thu Nov-13-08 05:44 PM
Response to Original message |
9. Babykins, will it be hooked up through the nose or her abdomen? |
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My mom had both; the abdominal one was preferable to her.
It's not that bad, really it's not. I know it's difficult to think about, but it should be fine.
They do have alarms that go off if the tube gets blocked or the pump stops working for some reason. They are usually pretty easy to re-set, though. Make sure you and your brother and anyone else who will be around her for any length of times learns how it works, and how to troubleshoot.
Also be aware that it make take some adjusting of the dose (i.e. how much of the formula goes through the tube per hour).
But really, it's okay. I know you're freaked, but in my experience with my mom, it's not as bad as you might fear it will be.
:hug:
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bicentennial_baby
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Thu Nov-13-08 06:26 PM
Response to Reply #9 |
21. I assume the abdominal one... |
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That's SOP for patients with ALS.
It's not the actual tube that upsets me, it's what it means re: the progression of her disease. Also, how we are going to handle it as a family. I'm 100 miles from home, my brother works 9-5, my sister is MIA since my Mom got sick. I'm just...terribly worried and anxious.
:hug:
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SeattleGirl
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Thu Nov-13-08 06:42 PM
Response to Reply #21 |
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Have you looked into getting some home health care for her? That might be a possibility (and it could help ease your mind a little bit).
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bicentennial_baby
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Thu Nov-13-08 07:03 PM
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26. I think the team at the hospital is working on that |
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I assume I'll be spending yet another wrenching day there tomorrow. Sigh. But I'll know more after that.
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Gormy Cuss
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Thu Nov-13-08 05:45 PM
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:hug: It's a terrible disease.
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malta blue
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Thu Nov-13-08 05:46 PM
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:hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug::hug:
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Guava Jelly
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Thu Nov-13-08 05:47 PM
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Danger Mouse
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Thu Nov-13-08 05:47 PM
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13. To some degree, I know what you're going through. |
Tom Kitten
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Thu Nov-13-08 05:48 PM
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Lincolngirl
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Thu Nov-13-08 05:49 PM
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15. Here is a hug from a stranger |
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I'm so sorry to hear about your mom.
:hug:
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redqueen
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Thu Nov-13-08 05:49 PM
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:pals:
Dunno what to say at times like this... just :hug:
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GoddessOfGuinness
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Thu Nov-13-08 05:50 PM
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:hug::hug::hug: Wish I could give you real hugs...
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Sugar Smack
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Thu Nov-13-08 05:51 PM
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18. I'm really sorry, bebe. |
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I wish I could be right there with you. There are no words for this. I wish I could be there to give you a hug.
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arcadian
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Thu Nov-13-08 05:52 PM
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19. I'm sorry your mom is going through this. |
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It's hard for me to even respond to this, I had to watch as my mother went through something similar over a period of a couple of years. It's hard.
:hug:
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Midlodemocrat
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Thu Nov-13-08 05:57 PM
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20. Oh, honey. I'm so sorry. |
BarenakedLady
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Thu Nov-13-08 06:29 PM
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VenusRising
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Thu Nov-13-08 06:41 PM
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I'm so so sorry.
Sending good thoughts and vibes out to your mom.
And lots of hugs for you.
:hug::hug::hug::hug::hug::hug: :hug::hug::hug::hug::hug::hug: :hug::hug::hug::hug::hug::hug: :hug::hug::hug::hug::hug::hug:
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eyesroll
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Thu Nov-13-08 06:52 PM
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:hug:
I've gotten some recent expected, but still crappy, news about my mom's health, and while it's nothing compared to what your family's going through, I do understand how something can be devastating even if it's nothing surprising.
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4_Legs_Good
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Thu Nov-13-08 07:05 PM
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I can't imagine how hard this must be.
:hug:
David
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skygazer
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Thu Nov-13-08 07:07 PM
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That's got to be beyond hard. :cry:
:hug: :grouphug: :hug:
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LeftyMom
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Thu Nov-13-08 07:08 PM
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jpgray
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Thu Nov-13-08 07:15 PM
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Blue Diadem
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Thu Nov-13-08 07:27 PM
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Hugs for you and prayers for your Mom. I hope somehow there will be a way for home health care to help your brother and you out. How is your Mom handling it? Can she still talk or has it affected her speech along with her swallowing.
:hug:
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Inchworm
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Thu Nov-13-08 07:29 PM
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DU GrovelBot
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Thu Nov-13-08 07:29 PM
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33. ## PLEASE DONATE TO DEMOCRATIC UNDERGROUND! ## |
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================== GROVELBOT.EXE v4.1 ==================
This week is our fourth quarter 2008 fund drive. Democratic Underground is a completely independent website. We depend on donations from our members to cover our costs. Please take a moment to donate! Thank you!
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JackBeck
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Thu Nov-13-08 07:31 PM
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:hug:
I wish there was something else I could do. Let me know if you need anything else, k?
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1gobluedem
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Thu Nov-13-08 07:34 PM
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billyskank
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Thu Nov-13-08 07:38 PM
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jellen
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Thu Nov-13-08 09:57 PM
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I'm really sorry about your mom. What is her problem? You don't have to tell me, but consider yourself hugged.
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mainegreen
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Thu Nov-13-08 10:07 PM
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latebloomer
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Thu Nov-13-08 10:15 PM
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ALS is a horrible disease.
Light and Love to you and the family.
:hug:
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1awake
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Thu Nov-13-08 10:16 PM
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40. My thoughts and prayers are with you and your mom.. n/t |
Zuiderelle
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Thu Nov-13-08 10:17 PM
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woo me with science
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Thu Nov-13-08 10:44 PM
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42. I am so very sorry. nt |
RFKHumphreyObama
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Thu Nov-13-08 10:50 PM
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43. My thoughts, prayers, best wishes and positive vibes to your mom, you and your family |
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Edited on Thu Nov-13-08 10:51 PM by socialdemocrat1981
No words are adequate at the moment, I know, but you, your mom and your family are in my thoughts and prayers :hug: :hug:
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Haole Girl
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Thu Nov-13-08 10:51 PM
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Fenris
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Thu Nov-13-08 10:54 PM
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:hug:
Such an awful disease. :cry:
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RevolutionaryActs
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Thu Nov-13-08 11:01 PM
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:hug::hug::hug::hug::hug::hug::hug: :loveya::loveya::loveya::loveya::loveya::loveya:
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grannylib
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Thu Nov-13-08 11:06 PM
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47. I am so sorry to hear that...even with advance knowledge, that can |
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not be easy. I'm so sorry! :hug:
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amitten
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Fri Nov-14-08 02:18 AM
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48. So so sorry--I wish it weren't so. |
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