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Please Help Recognize Multiple Sclerosis (MS) Awareness Week - Ask Congress link:

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1776Forever Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Mar-04-10 12:08 PM
Original message
Please Help Recognize Multiple Sclerosis (MS) Awareness Week - Ask Congress link:
Edited on Thu Mar-04-10 12:19 PM by 1776Forever
Help Recognize MS Awareness Week

Next week, March 8-14th is MS Awareness Week and Representative Barbara Lee (CA-9) has introduced a resolution (H. Res. 1116) to formally recognize MS Awareness Week in Congress. Take action today and urge your Congressmen to support MS Awareness Week.

The MS Awareness Week resolution stresses the following important goals of MS Awareness Week: reaffirming our nation's commitment to creating a world free of MS, recognizing people living with MS, and saluting the health care professionals and medical researchers who continue to work toward a world free of MS. The resolution is a true indicator of the collective and bold support for the MS community.

Make sure that your Members of Congress join the MS movement. Take action today and send a letter to your Representative now, asking them to co-sponsor the MS Awareness Week bill.

http://capwiz.com/nmss/issues/alert/?alertid=14678051

.......

This is near to my heart! Please do what you can and remember this hits mostly young adults in the late 30's and 40's. My son has Progressive MS and I salute his courage!

:loveya:
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NoNothing Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Mar-04-10 12:11 PM
Response to Original message
1. Anyone else read this as
Microsoft Awareness Week?
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1776Forever Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Mar-04-10 12:18 PM
Response to Reply #1
2. I will change it - thanks.
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SharonRB Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Mar-04-10 12:37 PM
Response to Original message
3. Thanks for the heads up.
My daughter was diagnosed with MS almost two years ago.
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SharonRB Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Mar-04-10 12:42 PM
Response to Original message
4. Done!
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1776Forever Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Mar-04-10 12:43 PM
Response to Reply #4
5. Thank you - I know what it is like for a family to go through this with your loved one.
Blessings sent you way - :hi:
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SharonRB Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Mar-04-10 12:55 PM
Response to Reply #5
6. Thanks, and same to you
My daughter is actually doing very well. She's been on one of the newer drugs, Tysabri, for almost two years and her disease hasn't progressed any further than when it was first diagnosed. She has MRIs every six months to check on the progression. She goes to the doctor every four weeks for an infusion of the medication. Thank goodness she has health insurance from work, because the drug is about $6,000 every four weeks and an MRI every six months isn't cheap either. I hope they come out with an oral version in the coming years -- I know they're working on one -- which should be less costly.
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