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Edited on Sun Jul-16-06 04:47 AM by Divernan
But (and again, we don't know the facts, so this is speculation upon speculation), in cases where you have to be able to physically restrain a teenage boy 24/7, that means finding and hiring 3 strong men with training in caring for the autistic (and then some other people part time to cover weekends, holidays, vacations/illnesses of those 3 - because they're going to put in a 40 hour work week, with benefits) You're looking at something like $100,000 a year. If you throw in health insurance/retirement- plan for these skilled employees-now stay with me here and don't go haring off on whether a republican would provide those to an employee- the economic costs climb another 30%. These costs would not likely end during the parents' lifetime, because autistic people have normal life expectancies, so the child will outlive the parents by a generation. It is an absolutely horrible problem for the parents who know that when they die, even if the money has not run out, there will be no one to oversee care and protection of their adult child.
So you would realistically need enough invested capitol to return $100,000 to 130,000 per year for the projected normal life expectancy of another 60 years for this 12 year old. I think the father was currently working as a law professor at George Mason University Law School. I have a former colleague on the faculty there, and I also used to teach at a law school. I would estimate that if the man was a full professor, he'd make maybe $100,000 a year. With his Harvard law degree and connections, he could have made a lot more at a law firm, but that would have meant putting in 70 hour weeks. As a law professor, he had a lot more free time to spend with his son, and that may be why he chose that job. Even if the parents could afford the financial costs, the emotional costs of a lifetime spent living in the same household with a potentially violent teenager/adult autistic person, plus their caregivers, demand a psychological strength and a sacrifice of personal privacy and normal social interactions with non-family members that some people just don't have. For example, if there were other children in the household, those kids could never invite friends over to play. All it takes is one violent explosion for neighbors to ostracize a family.
I well know there are different degrees of autism, and I am presenting the worst case scenario above. But I saw literally hundreds of such worst case scenarios within my home state. I was in awe of the parents who were able to cope with the challenges - and in the cases I saw, the parents had very little outside help - perhaps a day program for six or eight hours a day, five days a week. They were desperate for some kind of respite care program to give them a break from their caregiving duties so they could do things together, such as to attend a family wedding or graduation, or take a very well deserved week off from the constant vigilance. The bottom line was that the couple could never do anything as a couple anymore, because one of them always had to remain with their autistic child. There were no respite care programs available. The autistic family member was not welcome at restaurants or movie theaters - they wouldn't dare take him/her to even the mildest movie because something in a preview or another member of the audience's actions might set them off. These are things I never thought about until I started working with these families.
Again, I don't know what the circumstances in this case were, but this seemed a good opportunity to point out to the majority of people who have no experience in the area, what a daunting level of physical and emotional strength is demanded of parents under such circumstances, 24/7, for a lifetime. I can understand how a parent would crack under the strain.
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