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All Hospices are NOT created equal

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William769 Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 09:46 AM
Original message
All Hospices are NOT created equal
Edited on Tue Feb-07-06 09:52 AM by William769
I had to enroll my partner in Hospice last week. He's been have severe pain for the past two weeks. The Hospice Doctor prescribed Hydrocodone/APAP 5/500 for pain, David has been eating these like candy with no comfort. I have constantly been on the phone with Hospice Doctor & nurses to no avail. Yesterday Morning at 7:00am I called begging & pleading that his pain is so bad that can not tolerate it any longer, they said they were looking into it. At 2:00pm I couldn't stand him in pain any longer so I took him to the Emergency room. They were surprised he was still alive, his Kidneys had been shut down for awhile.

Now I know Hospice won't help with Dialisis, But my problem is them letting him suffer in pain. I spoke to his regular Doctor before going into Hospice & he about went bonkers. His advice to me was not to do Dialisis & let David go peacefully in his sleep. :cry: He said he would manage his pain for him. I am so pissed at Hospice right now I can't even begin to tell you. I know many people have swore Hospice is the best thing but ppearently not in my area.

If you don't see me for awhile you will know why. I want to thank all of you who have given me support in the past.

Bill
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NMDemDist2 Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 09:52 AM
Response to Original message
1. oh William, I"m so sorry
cherish the time you have left and I hope David is more comfortable now.

:hug:
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oc2002 Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 09:54 AM
Response to Original message
2. My condolences.

When my mom passed away from Alzhiemers, they just gave us liquid form of morphine, she passed away in her sleep and did not suffer.
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wicket Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 09:56 AM
Response to Original message
3. William, I am so sorry
You and your partner are in my thoughts and prayers. May he be able to go in peace and not be suffering any more. :hug:
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libnnc Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 09:59 AM
Response to Original message
4. I'm so sorry
We'll be thinking about you :grouphug:
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Texasgal Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 10:00 AM
Response to Original message
5. William..
I am so sorry to hear about this. May peace be with you and your partner.

I am also so sorry to hear about this hospice, please, please... find another one. Hospice's are generally a very good thing.

I hope that your partner is able to pass peacefully, I am so sorry. :hugs:
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jbnow Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 10:02 AM
Response to Original message
6. Bill,
my heart goes out to you and David. Knowing you are loosing your partner breaks your heart but watching a loved one suffer is such pain in itself.
Sorry that Hospice let you down, really sorry. Like you I thought pain relief was something they came through on.

I hope David's pain has eased.

Nothing I can say but thoughts and prayers are with you and David. Know those words don't ease the anguish.
Joy
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TallahasseeGrannie Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 10:12 AM
Response to Original message
7. This is so difficult
and I hope you find someone to be his advocate..and yours.

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eve_was_framed Donating Member (288 posts) Send PM | Profile | Ignore Tue Feb-07-06 10:18 AM
Response to Original message
8. g.dammit Bill this pisses me off, the inhumanity of it all!!! My thoughts
and strengthening vibes are with you friend. I'm so sorry for the pain you are both going through and may peace come to you at the end of this journey you are now in.

Peace, Eve
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goodboy Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Feb-07-06 10:25 AM
Response to Original message
9.  vicodin 5's are a joke. He should be made comfortable, even
if that means taking something stronger like Oxy's or MScontin

Hospice helped my mom to die at home with dignity surrounded by us kids and my dad and I can't say enough about them. I'm so sorry to hear that these fucks aren't doing you and David right.

This is important enough, though, to find someplace else., and find a doc who'll give him something that'll make him feel like he's already got one foot across the threshold into heaven.

peace and love to you both.

goodboy and goodgirl
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