This is how it was treated in Canada.
http://www.youtube.com/watch?v=9TWuO5dBYjoHere in the good ole USA it was a different scenario for my son in 1990.
It took almost eight months to get a simple blood test. I suspected Lupus because I have a sister and an aunt with Lupus and recognized the symptoms. I only got the blood test (I first asked for it in early June) that was positive for muscle enzymes in the blood (many autoimmune disorders have similar symptoms) because I saw a lawyer and threatened a lawsuit. It took another month to see a specialist at Children's Los Angeles (January 21, 1991). By this time my son was so weak he could barley walk.
I then spent the next ten years fighting my insurance company (Blue Cross of California and later Cigna). They delayed and denied treatment, refused to pay for very expensive medications (because they didn't fit their protocol for treatment) if that wasn't bad enough every six months I was forced to fight their 'reviews'. Because of all the delays an interruptions of care my son is permanently disabled. I had to sell my home to pay for medical care they denied. Lost my job along with my Insurance. My position was deleted, but the truth was the small company could not afford the increase in premiums due to my son's illness.
You will find a lot more stories like mine in the US than you will in Canada. I met many families with stories just like mine during my son's frequent and lengthy stays at Children's LA.
http://www.ninds.nih.gov/disorders/dermatomyositis/dermatomyositis.htmWhat is Dermatomyositis?
Dermatomyositis is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic muscle inflammation accompanied by muscle weakness.Dermatomyositis’ cardinal symptom is a skin rash that precedes or accompanies progressive muscle weakness. The rash looks patchy, with bluish-purple or red discolorations, and characteristically develops on the eyelids and on muscles used to extend or straighten joints, including knuckles, elbows, heels, and toes. Red rashes may also occur on the face, neck, shoulders, upper chest, back, and other locations, and there may be swelling in the affected areas. The rash sometimes occurs without obvious muscle involvement. Adults with dermatomyositis may experience weight loss or a low-grade fever, have inflamed lungs, and be sensitive to light. Children and adults with dermatomyositis may develop calcium deposits, which appear as hard bumps under the skin or in the muscle (called calcinosis). Calcinosis most often occurs 1-3 years after the disease begins. These deposits are seen more often in children with dermatomyositis than in adults. In some cases of dermatomyositis, distal muscles (muscles located away from the trunk of the body, such as those in the forearms and around the ankles and wrists) may be affected as the disease progresses. Dermatomyositis may be associated with collagen-vascular or autoimmune diseases, such as lupus.