Local Teens Organize Rock Concert To Raise Money for The Lupus FoundationA local high school is small, only 245 students in total, so there's maybe 70 kids in the senior class this year. My son didn't attend this high school but he is dating a girl from this high school and he works with one of these organizers of this fund raiser at his job. Tess works there part-time. Anyway, he worked a full shift yesterday and then came home and was off again in a hurry and I asked where he was going in such a hurry and he said, "I'm working as a bouncer tonight at a rock concert!" Well; he'd never mentioned it before this so it was the first I'd heard about it. So, I did a little searching this morning and found the info. online. (He got home early this morning (3 AM) and just said it went well.) Apparently, his friend Tess had organized a 'rock concert' or in my day 'a dance' :P at the high school and they raised over $500.00 for
http://www.lupus.org/newsite/index.html">The Lupus Foundation and donated all the profits to them! I just thought that was so awesome that I wanted to share it with all of you!
http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendID=23802601">Here is one of the the bands that donated their time and talent.
http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendid=253601130">Benefit show for Lupus
Kudo's to them!! :applause: :applause:
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Lupus Advocates Urge Increased Funding for Lupus Research and Educationhttp://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=1683&zoneid=99March 11, 2008
On Tuesday, March 11, more than 300 individuals with lupus, their families, and health professionals urged Members of Congress to increase government funding for lupus medical research and enact legislation that will greatly expand federal efforts on lupus. The advocates, representing 37 states, participated in the Tenth Annual Lupus Foundation of America (LFA) Advocacy Day.
Advocates urged lawmaker to increase funding for biomedical research supported by the National Institutes of Health and epidemiological research sponsored by the Centers for Disease Control and Prevention. They also urged Members of Congress to enact the Lupus REACH (Research, Education, Awareness, Communications and Healthcare) Amendments Act (H.R. 1192 and S. 1359).
United States Senators Patty Murray (D-WA) and Robert Bennett (R-UT), who introduced the Lupus REACH Amendments Act in the Senate, received the Distinguished Lupus Leadership Award for sponsoring the legislation which will further federal efforts to combat lupus, address gaps in research, and heighten awareness of lupus symptoms and health effects among the public and health professionals.
Advocates met with approximately 200 Senators, Representatives and congressional staff members to educate policy makers on lupus and its impact on individuals and families. The advocates were supported by thousands of lupus eAdvocates across the nation who also participated in LFA Advocacy Day by sending email messages or placing phone calls to the offices of their United States Senators and U.S. Representative.
In past years, LFA lupus advocates have been effective in advancing lupus research and education programs conducted by the federal government, including:
* coordinating efforts among the various federal agencies with an interest in lupus;
* securing millions of dollars for the first-ever comprehensive national epidemiological study on lupus;
* opening new sources of federal funding for biomedical research on lupus;
* obtaining changes in draft Social Security Disability regulations which will enable more people disabled by lupus to receive benefits;
* securing changes to regulations governing the Medicare Part D Prescription Drug Benefit to pay for prescription drugs required to treat lupus;
* partnering with various agencies of the U.S. Department of Health and Human Services to increase public recognition of the serious consequences of lupus.
About Lupus
More than 1.5 million Americans have a form of lupus, an unbalanced immune system that can be destructive to any major organ or tissue in the body. Lupus can be very unpredictable and is potentially fatal, yet no satisfactory treatment or cure exists. It has been nearly 50 years since the U.S. Food and Drug Administration approved a new therapy for lupus.
About the Lupus Foundation of America
The LFA is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus, and providing support, services and hope to all people affected by lupus. Founded in 1977, the LFA has a nationwide network of nearly 300 chapters and support groups and operates programs of research, education and advocacy.