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NanceGreggs Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:11 PM
Original message
Just Wonderin'
So I have this friend. And my friend has a niece. And that niece had cancer. Diagnosed at fifteen with Ewing’s Sarcoma, Brittani’s chemotherapy treatments destroyed her lungs, which led to a double-lung transplant last May.

The sad news is that Brittani's condition is now deteriorating, and the cause is not readily known. And the sadder news is that in what is continually touted as "the richest nation on earth", our healthcare system still runs on the premise that money talks, and kids like Brittani walk - or, more correctly, get shuffled out the nearest door the minute her parents' wallet is diagnosed as slim bordering on empty.

Outside of her immediate family and friends, no one knows about Brittani. I’m just wonderin’ why.

If Brittani had been born a spoiled heiress with more money than brains, everyone would know her. She’d be all over the news shows every time she “wore” a new designer. And if she got in trouble with the law for being hooked on heroin, her story would be front-page fodder for weeks at a time.

But Brittani is just another good kid, one of tens of thousands, hopelessly addicted to expensive, life-saving medication. There are no headlines about her in any newspaper I can find; just wonderin’ why.

If Britanni went missing in the Bahamas, her face would be as familiar to every American’s as that of their own child. The MSM would run with her story 24/7; they would delve into every detail of her life – including the fact that she hasn’t had much of a life since tragedy struck. But Brittani doesn’t warrant so much as a mention, because even though she meets the usual criteria for a media feeding frenzy (she’s white, blonde and heartbreakingly pretty), she’s very sick and faces an uncertain future due to her parents’ lack of financial resources.

And that is one of Brittani's biggest problems, because no one wants to discuss that topic in a public forum – people might start thinking about the billions we’ve wasted in Iraq while kids like Brittani suffer. People might start wonderin’ why that is.

Britanni’s health insurance is about to come to an end. Her insurance carrier has decreed that her coverage has reached its lifetime maximum benefits. I can’t help thinking about how much the CEO of her insurance company made last year, and whether he truly considers that reaching the ripe old age of seventeen constitutes “a lifetime”. And I can’t help just wonderin’ what tiny fraction of his year-end bonus it would take to keep Brittani, and kids like her, alive.

It was just a few short years ago that Terri Schiavo’s condition was propagandized by the Republicans into a weeks-long cause celebre, meant to be interpreted by the voters as their party’s unwavering dedication to the preservation of life.

But Brittani isn’t in a vegetative state with no hope of a meaningful life. Quite the contrary; she recently graduated with her high school class – no small feat considering the extra effort it takes to concentrate on one’s studies while one is facing the prospect of death – and hopes to go on to college. Brittani wants to be a nurse, so she can help others who, through no fault of their own, find themselves in situations like hers.

Again, I can’t help but question where those politicians are, the ones who insisted that Terri Schiavo’s life (such as it was) was worth the investment of their time and effort. Where are they now, when a viable life can be saved? Again, just wonderin’.

The thing to remember is that Brittani is not alone in her plight; she is just one of countless thousands of Americans who are depending on the rest of us to insist on access to affordable heathcare for their families. Her fight is our fight, because there but for the grace of God go any one of us, or any one of our children.

My friend, Brittani’s aunt, is a fellow DUer (JFN1). If you have any support to offer, any ideas for getting Brittani’s story out to the masses, any thoughts on how to help in any way, please PM her. I have no doubt your efforts, along with your prayers and good vibes, will be greatly appreciated.

Brittani needs help now, and when it comes to ensuring that we will all do our best to see to it that she gets that help, she – and everyone like her – shouldn’t be left just wonderin’ if and when that help will arrive.

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TomInTib Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:16 PM
Response to Original message
1. And there are stories like Brittani's in every community in this country.
And they just can't get no traction, no purchase.
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NanceGreggs Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:21 PM
Response to Reply #1
3. Precisely the problem.
Christie Brinkley's divorce is just way more important, I guess.
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TomInTib Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:26 PM
Response to Reply #3
4. OH! NO!!!!
Christie Brinkley is getting divorced?

I'll be back in a couple of weeks, Nance.

You can find me hard-wired to my teevee set, watching CNN.

I cannot believe that I didn't know about this.

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NanceGreggs Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:34 PM
Response to Reply #4
6. Yes, she'll soon be on the marriage market again ...
But it looks like her divorce settlement will only be in the millions.

If you're willing to live on Caviar Helper the rest of your life, you can give her a call.
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TomInTib Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:39 PM
Response to Reply #6
10. Nah, she's too American for me.
Edited on Wed Jul-09-08 06:40 PM by TomInTib
As for me, give me a cool Canadian chick in a hot red dress and shoes.

Standin' on a corner

Waitin' to go for a ride

Across America


Now, as far as I'm concerned...
that's living, Nance...
That's living.

Tom
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PDJane Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:18 PM
Response to Original message
2. I have nothing to offer but prayers..........and tears.
I am so sorry, Nance, and wish there were something I could do to assist.
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ms liberty Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:34 PM
Response to Original message
5. K&R - I'm so sorry, Nance...
Hopefully someone here at DU will be able to help.
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Mojorabbit Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:39 PM
Response to Reply #5
8. Here is the thread
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FlyingSquirrel Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 05:30 AM
Response to Reply #8
24. And the original thread (not sure if there's more info there or not)
http://www.democraticunderground.com/discuss/duboard.php?az=show_mesg&forum=389&topic_id=2858191&mesg_id=2858191

I like the Michael Moore idea, although I'm sure he's constantly inundated with this kind of story. But it doesn't hurt to try.
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malaise Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:38 PM
Response to Original message
7. So sad
Send her story to KO and Rachel.
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CaliforniaPeggy Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:39 PM
Response to Original message
9. My dear Nance...
There are so many things wrong in our country...

And your story is a big one...

I already know how it will end: She will die, and the few who heard her story will mourn...

And then we will go on, because we don't know what else to do...

We're not bad people, just helpless in the face of this tragedy...

K&R, of course...

*sigh*

Thank you...
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sicksicksick_N_tired Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:49 PM
Response to Original message
11. Every local market has donation buckets sitting at the checkout for neglected American people.
It's incredible!!!!

If our government fails to PROTECT the lives of its citizens via healthcare, how on earth can it (the government) possible claim to be acting in our defense,...national defense?

Without a healthy and productive people, our national security is POOR.

But, hey,...we live in a nation of profit, not people! National defense and security is about those able to make as much money as possible in as short a time period as possible.

Yeah,...that's America! HOORAH!!!! United States OF MONEY AND PROFIT!!! woohoo
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Faygo Kid Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:51 PM
Response to Original message
12. Thanks, NanceGreggs. I'm trying to get some attention for today's Medicare vote, related to this.
Edited on Wed Jul-09-08 07:14 PM by faygokid
Your post is excellent as usual, and recommended. Today millions of people were helped, and it is not getting the attention it deserves. No, it's not enough. But it's important to a lot of families, and it just might be a foot in the door for future Brittanis and their families.

Thank you so much for this post.
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NanceGreggs Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:58 PM
Response to Reply #12
13. Thanks for adding this ...
Step One: Get foot firmly placed within doorframe.

Step Two: Break the door down - and take no prisoners.

:hi:
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JeffR Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 06:59 PM
Response to Original message
14. K & R
:kick:

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a la izquierda Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 08:45 PM
Response to Original message
15. K & R
Wow. Just...wow.
:(
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prairierose Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 09:19 PM
Response to Original message
16. Thanks Nance...
I think the only we can do is to keep talking about these stories and try to get more people to talk about them and think about them. My brother died in 2005 because we do not have universal health care in this country. He did not have insurance so he died.

Whenever I am in the grocery store and they ask me to donate to some health care cause, I tell them "I think that it is obscene that in this country people are always having to beg for money for some health care cause. What are you doing to try to change things so that we have universal single-payer health care?"

I don't have much hope for the future of this country and it is stories like this that make me sad and angry every day.
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Divine Discontent Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 09:29 PM
Response to Original message
17. Denial is more than just a river in Egypt...
People in general do NOT like to have horrible things put on THEIR conscience, case in point, the 9/11 heroes suffering cancers. There are nutsos in NYC who scream at the families and their supporters, and tell these hurting people to just move on and QUIT TALKING ABOUT THE PAST... So, it shocks me little, that people would rather here celeb gossip, and read email forwards mocking Obama, then pay attention the suffering around them. If you recall, (and I just thought of this) I was verbally assaulted by the wealthy woman in the Mercedes SUV, when trying to help that homeless lady and giving her a blanket. People don't want to hear about other people's suffering. :(

My prayers go out for the young lady.
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Divine Discontent Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 09:42 PM
Response to Original message
18. any family friends who could make a youtube video to get her message out?
they could block all comments from being posted, but could receive private messages from people. Someone with little video skill could take some video of her doing her favorite things, and then a parent could discuss her plight, and then someone could put music to it. That's the only way I can think of to get the word out for free that would reach thousands. Of course, they always can call their congressperson and ask what can be done for her...

my heartfelt hopes are with them...
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Jackpine Radical Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 09:50 PM
Response to Original message
19. K&R of course.
If I know anything about programming, &'d write a little bot program that just dings an alert bell every time a new Nance Greggs thread shows up, and then automatically gives it a K&R while loading it into my browser.

There are a million tragedies like this in America. But that's ok. Any reasonable fix for the problem would be "socialism" and cut into the profits of some fat wart protruding somewhere from the apex of the corporate heap.

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ccharles000 Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 10:39 PM
Response to Original message
20. ...
:hug:
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antigop Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Jul-09-08 10:41 PM
Response to Original message
21. Nance, have you thought about sending this post to Michael Moore?
If he could get it on his website, it would be a great way to get her story out.
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pnwmom Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 12:51 AM
Response to Original message
22. Maybe her aunt should call MoveOn.org with her story.
If her family could stand the publicity -- it would be a great statement in favor of Obama's health care plan, which would require insurance companies to accept all comers.

My heart goes out to your friend's family.
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Jeanette in FL Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 04:46 AM
Response to Original message
23. So Sad
Very sad that in a country where the budget for the military is bottomless and where the salaries for the CEO's of the insurance companies soar to new heights every year that a story of Brittani can exist.

I'm wonderin' why too!

As others have suggested, we all need to send this story out to KO, Rachel and Michael Moore and to everyone else on our internet path.

There should not have to be little buckets in every community collecting our change to help some family that has come to the end of the financial road to help their loved ones. This is so wrong.

Where are the "right to lifers" for Brittani.

My prayers to her and her family.
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dccrossman Donating Member (530 posts) Send PM | Profile | Ignore Thu Jul-10-08 07:43 AM
Response to Original message
25. Healthcare
Truth.

My daughter plays on a special needs baseball team that someone organized in my area several years ago. My daughter has a genetic condition, but it's been much easier on us than the situation you described, or several that we see each weekend at the ball game.

The gaps in our health system are truly abhorrent.
That the richest nation on earth is the worst in avoiding preventable death.

Check out this NPR story on France's health care system.
http://www.npr.org/templates/story/story.php?storyId=92116914
The kicker that we should all hear, in my opinion:
"To the French, all of this care is intended to help parents succeed and to make sure children grow up healthy, says Victor Rodwin, who studies the French health care system."

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iquiring mind Donating Member (128 posts) Send PM | Profile | Ignore Thu Jul-10-08 07:12 PM
Response to Reply #25
30. Florida Kid Care & Florida WIC AND Georgia Children 1st & Georgia WIC
http://doh.state.fl.us/family/mch/mch.html
http://www.doh.state.fl.us/family/kidcare/index.html
http://www.floridakidcare.org/

http://www.doh.state.fl.us/family/wic/

My single step-daughter received free medical care for herself and her child including preventive care through the FloridaKidCare program. Maybe somebody in Florida with knowledge of this program speak of it's effectiveness?

I noticed you are in Georgia so I'm including some links to that state's programs:
http://health.state.ga.us/epi/mch/
http://health.state.ga.us/programs/wic/index.asp

My point... don't these programs provide this care "to help parents succeed and to make sure children grow up healthy?" It's not like American's are heartless, non-feeling, cretins. The NPR stories makes it seem that unless you well off you won't receive health care.
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JFN1 Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 11:44 AM
Response to Original message
26. Thanks to Nance
For bringing attention to this story...you give us hope, Nance...
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question everything Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 11:51 AM
Response to Original message
27. Submit this to your local paper
or to Newsweek "My Turn." http://www.newsweek.com/id/39258

There are enough local venues that are more than willing to talk about "human issues," and with your exceptional writing skills, they would be open.

Good luck!
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LuckyLib Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 05:24 PM
Response to Original message
28. But, but, William McGuire, CEO of United Health, only made $297.21 million over a 5 year period!
Obscene, that's what it is. Obscene.

http://www.forbes.com/lists/2006/12/RI3M.html

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NanceGreggs Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 06:06 PM
Response to Reply #28
29. Oh, the humanity!
It must be hell living on Caviar Helper.
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Name removed Donating Member (0 posts) Send PM | Profile | Ignore Thu Jul-10-08 07:26 PM
Response to Original message
31. Deleted sub-thread
Sub-thread removed by moderator. Click here to review the message board rules.
 
Ilsa Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 07:36 PM
Response to Original message
32. Almost every five & dime, convenience store, or restaurant I happen to walk into
Edited on Thu Jul-10-08 07:37 PM by Ilsa
has a can or jar with a "I need money for healthcare" story attached to it. All they are asking for is peoples' change. There is a barbeque or two every weekend to help someone with an acute condition. And this doesn't even touch on what patients with chronic illnesses need.

The system is so broken. If only Phil Gramm or John McCain had to endure the same problem, then maybe people in washington would get it.
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ChimpersMcSmirkers Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-10-08 08:20 PM
Response to Original message
33. Sorry to hear this, very sad. If I were in your shoes I'd think about launching a
PR campaign on her behalf. Call the local tv stations, newspapers, etc. It's utterly contemptable that this is what your left with, but it's something I guess.

I don't understand why more insurance execs don't get whacked over these attrocities. If that were my child, let's just say I might become gun owner...
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LongTomH Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jul-11-08 12:40 AM
Response to Original message
34. It's happening all over, Nance!
I sent a link to your post on my 'SAMIZDAT' maillist. Here's the reply I got from a good friend:

This really hits home – had the same experience with my mother. The hospital approached me REPEATEDLY for days and said her insurance was running out and I needed to make other arrangements because they would literally put her out on the curb on the designated day. I can’t tell you what a blow that was while dealing with everything else that was going on. my mother was generous, she passed away 2 days before they would have expelled her. that was back in 1995.

This is the same hospital that I now work for, and I think of it each and every time I enter that building. Irony, huh?


This is incredibly sad. When my Dad died back in the 70s; there wasn't any problem getting insurance to pay for his surgeries, chemo or radiation treatments. And, just before he died, his doctor came to his room - and cried when he saw Dad's condition.
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DFW Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jul-11-08 11:28 AM
Response to Original message
35. Here's an address of some very interested MSM to send this to
Please check your inbox

Unfortunately, they are not in America. But they are VERY interested in such stories,
and the first editor whose email I gave you is chief editor for much of their daylight
hours programming. Their programs are heard by about 25% of Germany, which means that
stories like this do reach US consular personnel whose job it is to report back in what
kind of light our allies see us. The second is the political editor of the Guardian of
London. She and I have corresponded on occasion, and she would at least look at it if
you use my name. If the American MSM couldn't care less, maybe they will get shamed into
caring if the MSM in other countries do.
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LongTomH Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Jul-11-08 12:10 PM
Response to Reply #35
36. Great idea!
Don't forget, a lot of people in the US read the Guardian online. They're losing confidence in 'our' media.
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