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Young rheumatoid arthritis sufferer stands up (and speaks out) for medical cannabis in Tennessee

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Fly by night Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-26-10 05:19 AM
Original message
Young rheumatoid arthritis sufferer stands up (and speaks out) for medical cannabis in Tennessee
Edited on Mon Apr-26-10 05:21 AM by Fly by night
We are working hard here in Tennessee to re-establish our state's medical cannabis program through the Safe Access to Medical Cannabis Act. It has been a tough battle, but one in which we are making progress. For example, we were given almost an hour to testify for the bill two weeks ago in the House Health and Human Resources committee. Here's the link (the bill testimony begins about 8-10 minutes into the video):

http://tnga.granicus.com/MediaPlayer.php?view_id=28&clip_id=2841

After this link began to circulate around Tennessee, one young rheumatoid arthritis sufferer, John Donovan of Chattanooga, called the editorial board of his local paper and "outed" himself as a medical cannabis user. His story, published on the front page of the Chattanooga Times Free Press on Saturday, will be hand-delivered by John and other Safe Access supporters to members of the TN legislature today. As painful as it will be for John to walk the halls of our legislature delivering these papers, he is an excellent voice for the 300,000+ Tennesseans whose safe access to medical cannabis will be made possible by our bill.

This story is reprinted here in its entirety with permission of the author. If you are so inclined, please visit the article link, vote in their on-line poll on medical cannabis and post your comments. Thanks.

http://www.timesfreepress.com/news/2010/apr/24/debate-fires-up-over-medical-marijuana-use/

If we never stop fighting .... FBN

-----

Debate fires up over medical marijuana use

By: Emily Bregel, Chattanooga Times Free Press (4/24/10)

In a recurring dream, John Donovan can run without pain. He races down a football field as he did in middle school and glides down a flight of stairs with ease.

But in reality, the 25-year-old Red Bank resident wakes up to a relentless aching in his joints, mainly his hips, knees and ankles.

Just a few months after the onset of juvenile rheumatoid arthritis, when he was 16, Mr. Donovan struggled to run or even walk quickly, he recalled. He now walks with a heavy limp and spends some days in bed, trying to move as little as possible.

For Mr. Donovan -- who doesn't drink alcohol or smoke cigarettes -- daily hits of marijuana from a glass pipe lessen his pain, without inflicting the severe nausea and other side effects he experiences from prescribed painkillers.

He spends $400 to $600 a month to buy an ounce of marijuana from friends, and he usually smokes the illegal plant in the afternoon to remain "clear headed" in the daytime, he said.

"I'd much rather go to a pharmacy, but right now my choice is I have to go and partake in an illegal activity to acquire something that could be beneficial to me," he said. "That's not a choice that I want to make."

Mr. Donovan, who qualifies for TennCare under a disability category, said he is an avid proponent of a bill pending in the Tennessee General Assembly that would legalize medical marijuana use for people with certain conditions, such as cancer, multiple sclerosis and epilepsy, with a physician's recommendation.

Chattanooga oncologist Dr. B.W. Ruffner said he never has felt the need to suggest marijuana to a cancer patient.

"I don't think there are any benefits that you can't get in other ways," he said.

For nausea control, a synthetic form of THC -- the active ingredient in marijuana -- is available legally in pill form as Marinol, said Dr. Ruffner, president of the Tennessee Medical Association.

"That's a cleaner, safer way to give somebody cannabinoids if that's what you want to do," he said.

LEGISLATIVE OUTLOOK

The Tennessee bill, pending in the House Health and Human Resources committee, has no real chance of passing this session, as its counterpart in the Senate has not been debated yet, said the House sponsor, Rep. Jeanne Richardson, D-Memphis. She's hopeful about the bill's chances next session.

Next week the House committee likely will consider amending the bill to create a study committee on the issue, she said.

The suggestion of further study was made by Rep. Joey Hensley, R-Howenwald, who opposes the bill. The family medicine doctor said he's concerned about the lack of clinical guidelines for doctors to follow in recommending marijuana to patients.

"I'm a physician myself, and I have no idea how to prescribe marijuana and what it's really for," he said. "I don't deny that it probably does help with nausea for people with cancer, but I don't know about all these other things it's claimed to help."

Rep. Richardson said she's fully in support of a study committee on the issue.

"The study can't hurt us, because the more you objectively look at it, the more you understand" the benefits of medical marijuana, she said. "I've read the studies. I know what's out there, and I think if we can get people to do the same, I think it will pass."

A supporter of the bill, Rep. JoAnne Favors, D-Chattanooga, said she's heard from many pain medicine specialists who believe medical marijuana should be available to their patients.

"It has less side effects than many of the legal narcotics that we have prescribed for us, the hydrocodone and some of the others that have caused considerable addiction," said Rep. Favors, who is a registered nurse.

Rep. Stacey Campfield, R-Knoxville, voted against the bill when it was in the House government operations committee. He worried the bill would result in the "free-for-all" of the medical marijuana program in California, where he said people easily can access marijuana when it is not medically warranted. California became the first U.S. state to legalize medical marijuana in 1996.

"As it was written, (the bill) was too wide open for me," Rep. Campfield said.

Tennessee's bill would create one of the more highly regulated programs in the nation, said Tamar Todd, staff attorney for the New York-based Drug Policy Alliance, which advocates for the reform of drug laws, including legalized medical marijuana.

About 300,000 sick people in Tennessee are living with conditions that could qualify them for the proposed access program, proponents of the bill say.

Mr. Donovan might be able to qualify to use medical marijuana under the category of chronic, debilitating pain, bill supporters say.

HISTORICAL USE

Marijuana has been used therapeutically for at least 5,000 years, first recorded in ancient China. The mild hallucinogen was a part of the U.S. pharmacological list from the late-1800s to 1942, according to a 1999 Institute of Medicine report exploring the therapeutic uses of the drug.

Under a federal law passed in 1970, marijuana today is classified alongside drugs such as heroin and LSD as a Schedule I drug. That classification indicates marijuana has high potential for abuse and no known medical benefits.

The American Medical Association and American College of Physicians have requested a reassessment of marijuana's classification, since it hinders future research into the drug's medical benefits. The Institute of Medicine reported in 1999 that a range of biological studies show a number of therapeutic potentials for marijuana-based drugs but that clinical data is scarce due to legal constraints.

Marijuana's medical uses already documented range from an appetite stimulant and nausea suppressant for cancer patients to recent findings that the chemicals in cannabis can inhibit the growth of tumors in prostate cancer patients, according to a 2009 British Journal of Cancer article.

Based on patient surveys, it's likely that 25,000 patients in Tennessee with cancer, AIDS-HIV, hepatitis-C or multiple sclerosis already are using marijuana illegally, often with the quiet consent of their medical providers, said Bernard Ellis, a former National Institutes of Health official and public health epidemiologist, who wrote the Tennessee legislation.

For years Mr. Ellis grew cannabis on his farm outside Santa Fe, Tenn., to ease his pain from fibromyalgia, and he said he also quietly provided marijuana to a network of cancer and AIDS/HIV patients. In 2002, he faced federal prosecution and was put on probation after he refused to sell marijuana to a local drug dealer, who reported him to the authorities, he said.

PROGRAMS PROLIFERATING

Supporters of the legislation in Tennessee say the momentum toward legalization of marijuana for medical uses is growing nationwide.

Despite federal law prohibiting the use of marijuana, 14 states allow medical marijuana use, and at least 14, including Tennessee, are considering legislation to do so, Rep. Richardson said.

"This is no longer a fringe issue," Rep. Richardson said when introducing the bill last week to the House health and human resources committee.

Medical marijuana is not about "Cheech and Chong smoking a bong. That is not what we're talking about here. We're talking about compassion," she told legislators.

About 81 percent of Americans support legalizing the use of marijuana for medical purposes, according to a recent ABC News/Washington Post poll.

Dr. Gene Huffstutter, a local rheumatologist, said the medical data for the drugs' benefits for arthritic patients such as Mr. Donovan is very limited. But the drug's classification as a Schedule I drug is a barrier to more research, he said.

"There are some potential legitimate uses for it and, unless we're allowed to study it and capture that data, we won't know," Dr. Huffstutter said.

Mr. Donovan says he feels compelled to take a stand on the issue of medical marijuana.

"If it were just me, I probably would continue to just use illegally, because I can get the product," he said. "But it does affect so many people, so many lives."

THE LEGISLATION

Under the House bill, H.B. 2562, patients could be eligible for a doctor's recommendation to use medical marijuana if they have one of the following conditions: cancer, Hepatitis-C, multiple sclerosis, epilepsy, glaucoma, severe debilitating chronic pain, severe nausea, Crohn's disease, Alzheimer's, Lou Gehrig's disease, wasting syndrome or if they are enrolled in end-of-life care through hospice.

Any Tennessee farmer could apply to be licensed and overseen by the state Department of Agriculture as a supplier. The state Board of Pharmacy would regulate processors who package the drug, and the Tennessee Department of Health would license and oversee dispensaries. Patients and caregivers would not be permitted to grow their own marijuana.

FAST FACT

This year an ABC News poll found that 81 percent of Americans support legalizing use of marijuana for medical purposes. A 2004 AARP poll found that almost three-quarters of 1,706 adults 45 and older surveyed said they believe adults should be allowed to use marijuana legally if a physician recommends it.

The bill could make an ounce of pot available to patients for as little as $60 an ounce, supporters say. Within five years, proponents say the program could bring an estimated $450 million in revenues annually, $85 million of which would be excess revenues for the state.

POSSESSION

In Tennessee, possession of an ounce or less of marijuana is a misdemeanor offense punishable by up to 11 months and 29 days in jail or a fine of $250. Any amount over half an ounce is presumed as a "resale" quantity and can be classified as felony possession, punishable by a $2,000 fine and between one and six years in jail, depending on one's prior record. Possession of 20 to 99 marijuana plants also is considered a felony.
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Fly by night Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-26-10 05:54 AM
Response to Original message
1. Here's a side-bar article that accompanied the front-page story on John Donovan
(Also copied in its entirety with permission of the author)

Weighing the pros and cons of using marijuana

By: Emily Bregel

As the most commonly used illicit drug in the U.S., marijuana has been at the center of many politically charged debates because of its illegal status and widespread use.

At the request of the White House Office of National Drug Control Policy, the Institute of Medicine issued a report in 1999 summarizing researchers’ review of all scientific evidence on marijuana, which concluded the drug’s components have therapeutic qualities that warrant more clinical research. The institute did not recommend “crude marijuana,” particularly when smoked, as medicine.

In the short term, marijuana’s effects can include shortterm memory loss, distorted perception, a sense of euphoria or, in other users, paranoia and increased appetite.

Carcinogenic, or cancercausing, materials found in tobacco also are in marijuana, and smoking one marijuana cigarette can deposit three to four times as much tar in the respiratory tract as a single filtered tobacco cigarette, according to research from Dr. Donald Tashkin, a pulmonologist at the University of California at Los Angeles who has studied marijuana effects for 30 years.

As with tobacco cigarettes, smoking marijuana habitually has been shown to reduce respiratory function and harm the lining of the lungs, according to the institute report. Smoking marijuana regularly increases the risk of bronchitis and respiratory infection.

Supporters of medical marijuana contend that marijuana can be consumed in ways that don’t involve smoking’s harmful effects, including by eating it cooked in food products or using a vaporizer, which heats marijuana to the point of releasing THC, the active ingredient, but does not create toxin-containing smoke.

The largest studies of the relationship between marijuana and cancer have not found a link between marijuana and tobacco-related cancers. One large study, published in 1997 in the journal Cancer Causes and Control, found no association between marijuana and cancer, except in the case of prostate cancer in men who didn’t smoke tobacco.

Another large study, led by Dr. Tashkin and published in Cancer Epidemiology, Biomarkers and Prevention in 2006, focused on lung and upper aerodigestive tract cancers. The study included more than 2,200 subjects and found no elevated risk among smokers of marijuana, even heavy users.

There is no record of any death from a marijuana overdose, according to the Institute of Medicine report, which also concluded, “Compared with alcohol, tobacco and several prescription medications, marijuana’s abuse potential appears relatively small.”
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JustAnotherGen Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-26-10 06:27 AM
Response to Reply #1
2. Just saying
Edited on Mon Apr-26-10 06:28 AM by JustAnotherGen
I have Ankylosy Spondylitis. I have R.A. Factor.

Just saying - sometimes when it's damp, cold, and wet out - eh?


Good for him. I suspect like me he chooses not to take Nanoproxen or any of the other 'stomach burners'. Maybe he gives himself a shot of Enbrel weekly. If he's uninsured though - Enbrel costs about 1100 per month (4 shots). A little over 14K per year. Just wondering online. Just thinking his purchase of mj is probably more cost effective than Enbrel would be for him.

And just saying . . . :wink:

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Fly by night Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-26-10 07:01 AM
Response to Reply #2
3. This letter from John explains the drugs he was able to give up with medical cannabis.
Edited on Mon Apr-26-10 07:03 AM by Fly by night
(BTW, I hope this remains a wink-free thread. Just sayin'.)
-----

Dear Mr. Ellis,

My name is John Donovan I was diagnosed with systemic juvenille rheumatoid arthritis in 2001, I was 16 years old. The combinations of medications that I was provided (prednisone, vioxx, immuran, methotrexate, remicade, etc..) proved to be so nauseating that it pushed me to the brink of death. I spent my waking hours bedridden on a couch in a state of severe anemia; I no longer had the energy to walk up the stairs to my bed. I became very bitter, the small amount of comfort that my medication provided me was vastly overshadowed by the pain it brought about.

It was around this time when I had given up hope that a close friend suggested I try cannabis. I entertained his thought and he provided me with a small amount to try. I remember vividly it was the first time in at least three months that I was able to eat and enjoy it like anyone else should. Now nine years later I've chosen to give up most standard medication in place of using cannabis instead.

I became aware of HB 2562 around March, and I've been emailing my local legislators ever since. It wasn't until hearing about your farm, the people you've helped, and your speech at the Health & Human Resources Committee that I realised I could do more. I've been treated like a criminal ever since I applied for disability, from the judge who had to hear my case to the medicine I choose to treat myself, but now I no longer feel afraid.

That is why I contacted the executive editor of the Chattanooga Times Free Press to see if they would be interested in a story on the "Safe Access To Medical Cannabis bill, from the standpoint of a disabled citizen. I managed to get a interview with Emily Bregel from the paper, and I tried to address as many issues as I could, but I focused on why cannabis is the safer alternative to most current prescription drugs.

So, thank you Bernie Ellis from the bottom of my heart for being such a compassionate human being, and showing me that I don't have to live in fear because of my disability.

Sincerely,

John Donovan
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rudy23 Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-26-10 09:31 AM
Response to Reply #3
6. "Now nine years later I've chosen to give up most standard medication in place of using cannabis"...
That's why it's illegal, right there.
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JustAnotherGen Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-26-10 05:10 PM
Response to Reply #3
7. Aaahmen John Donovan
:fistbump:
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druidity33 Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-26-10 08:05 AM
Response to Original message
4. thank you Fly, for your continued efforts
and for being such a staunch supporter of Medical Marijuana. As an IBS sufferer, i can tell you that there isn't really even a medication on the market that can help me. MJ has been the only place i can go to for relief. I hope that people with afflictions that are not on the Tenn list can make an appeal somehow to be included. I also appreciate that the price regulated by your proposed legislation could make this medication affordable. Would a Health Care plan ever cover the cost?

K&R


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Fly by night Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-26-10 08:19 AM
Response to Reply #4
5. Our bill includes a Medical Advisory Board to review and accept other conditions.
Edited on Mon Apr-26-10 08:20 AM by Fly by night
We expect to double (at least) the eligible conditions within the first year of the program.

If we keep the price low and work with other states to demand that the DEA stop obstructing the reclassification of cannabis (I prefer Schedule 4), then we might be able to get third party reimbursement sooner than later.

Thanks for your kind thoughts.
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