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My mother just got her Medicare enrollment paperwork.

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Lyric Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:16 PM
Original message
My mother just got her Medicare enrollment paperwork.
She brought it all to me so I could look over it for her, because she was confused about what it all means. It says that she'll have to pay a premium of about $115 a month in order to have Medicare Part B (the health insurance part) and (if I'm interpreting the handbook correctly) that her prescription drug coverage (Part D) is a separate thing that will cost extra.

She is very, very ill. She's on oxygen 24/7 for emphysema, recently had a coronary bypass, and usually can't even walk from the couch to the toilet without help. She can't shower by herself. She can't dress herself. She can't cook. She can't do ANYTHING. She is 100%, completely and permanently disabled. She gets less than $800 a month in Social Security Disability, plus Food Stamps and (up until now) Medicaid. That's not even enough to pay all of her bills without help. Because she runs an oxygen concentrator and a humidifier 24 hours a day and lives in a small, broken-down, rented shack of a house with old, energy-hogging appliances, her electric bill is sky high. She can't afford another $115 a month for the Medicare premiums. She can't even afford an extra $50 a month. If the government substantially cuts the Food Stamp program, her finances are so tight that she'll be eating even less than the one decent meal a day that she eats right now.

But her biggest fear is about medical expenses. Right now, she has Medicaid--but she's terrified that if she waits and keeps getting Medicaid instead of signing up immediately for Medicare, her eventual Medicare premiums will just keep getting higher and higher. I think the state Medicaid program will pay her Part B premiums for her, but not her Part D premiums, and apparently if they pay the Part B premiums, then she can't get any other Medicaid assistance...including prescription drug coverage. She takes about 12 medications a day, none of which she can afford without Medicaid.

We are very worried about this. We're scared that Medicaid will be eliminated or severely cut, and she'll lose the one health insurance program that doesn't require her to pay a premium that she can't afford. We're scared that if she gives up the Medicaid and joins Medicare voluntarily now, she'll lose the only avenue she has to pay for her medications. We're scared that is she keeps Medicaid and passes up the chance to get Medicare Part B, the Republicans will find a way to eliminate or cut Medicaid and she'll be stuck with Medicare premiums that are even more unaffordable for her than they are right now. We're scared that if the right-wing continues its march toward Randian insanity, both Medicaid AND Medicare will be lost (or compromised so much that they might as well be lost) and then she'll have no help left at ALL.

Mom is the only parent that my siblings and I have left, and the only grandparent that my son has ever known. She dropped out of high school to care for her sick grandmother, and worked hard, manual labor jobs for minimum wage all her life until she got too sick to do that work anymore. She has an amazing life story and family history. Even though her immediate family has always been poor, she comes from the strongest progressive, working-class roots imaginable--the same family as Friedrich Engels, the famous contemporary of Marx and co-father of the communist theory, and George Engel, one of the seven men who were wrongly hanged in the aftermath of the Haymarket Massacre. Her life is not worthless just because she's poor. She, along with ALL of the people who need Medicaid and Medicare, deserves better than to be tossed aside by the heartless right-wing as an unwanted social parasite. Her grandchildren deserve better. Her kids, who've already suffered enough hardship and loss to last a lifetime, deserve better than to lose their last remaining parent. In the wealthiest nation in America, nobody should have to die of poverty.

She's not old. She's only 55. Her bypass was very successful and what seemed to be a terminal health situation for her has improved amazingly in the past year. She might still have years, maybe even a decade or more of life ahead of her unless she loses access to healthcare. If she hadn't spent the first 39 years of her life without access to any preventative medical care beyond the emergency room, she probably wouldn't be as sick as she is right now. That's ironic, actually. For all that our right-wing fellow citizens complain about how "expensive" Medicare is, it would be far less expensive if only we'd had the generosity and foresight to provide universal healthcare decades ago. So many of the sick, older people whose medicals bills are so high would be much LESS sick right now and would have fewer expensive medical bills if only they'd had healthcare all along. We never seem to learn that lesson.

This is my Mom, taken today at my house. This is the face of a real person who's at risk if the Democratic Party fails to protect programs like Medicaid, Medicare, and Food Stamps. She's not a number. She's not a faceless statistic. She's right here, along with two of her grandsons (my nephews) who need her very much. Her name is Debbie, and she's NOT a lazy person looking for a handout. She's a sincerely needy person who worked her ass off to raise three kids in poverty, and her abused body just gave out. She can't work anymore, but that doesn't mean that she doesn't deserve to live.

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FloridaJudy Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:26 PM
Response to Original message
1. Rec'ed and kicked n/t
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UndertheOcean Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:28 PM
Response to Original message
2. Can't your siblings and you share the $115 premium for now ?
That is the only short term solution I see. It seems universal health care will not happen this decade.
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Lyric Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:34 PM
Response to Reply #2
6. I wish we could.
But all three of us are low-income too, we have our own kids to care for, and we're *already* helping her more than we can afford. If we can just hold on for a few more years until I make it out of college, hopefully I'll get a decent-enough job to be able to swing it. But right now, we're struggling hard to pay *our* bills, plus part of Mom's.

I've been thinking about trying to sell my blood plasma. I don't have any diseases or tattoos, and although I'm gay, I'm not a gay *man* so I think they'll accept me. My blood is O+, which makes me a semi-universal donor. I've heard that you can make $40 a week that way. That might be enough to make up the difference for a while. We have time to research options; her "effective enrollment date" isn't for another few months.

We're also looking into a state plan that SAYS it covers Medicare premiums and still leaves open eligibility for Medicaid as a supplement/prescription program. It's called SLIMB or something like that--but I don't know what the special qualifications for that program are yet.
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Riftaxe Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:36 PM
Response to Reply #2
8. Medicare is not what you think it is
I could write volumes on it. To even get care when you are qualified takes one hell of a loud voice, which I happen to possess, and i employ freely.

Medicare will the the first bulwark many will meet, and you will be dealing with government employees who care more about 9-5 then their jobs. Don't let the fact that their surnames are widely on the government payroll fool you, nepotism is more rampant then people who even bother with the details.

Of course that is also the weakness in getting them to perform the jobs allotted to them, not even caller ID will save them.
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marybourg Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 12:29 AM
Response to Reply #8
16. What?? nt.
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Riftaxe Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 03:47 AM
Response to Reply #16
19. Title XVIII
Edited on Mon Apr-11-11 03:55 AM by Riftaxe
Knowing your rights and forcing the government to give them to you are very different things.

From your tone, Would it be save to assume you are a button pusher in some cog?

Because exercising the rights given to us by law, takes a hell of a lot more effort then "what?? nt."

It takes months if your lucky, and years even if you are still lucky. When it comes to medicare, the government and their employees are banking on you dying before they have to live up to the contract.


Gods help you if you ever need this program, because, your ignorance is palpable.

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Obamanaut Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 03:54 AM
Response to Reply #8
20. I've had no problems at all with Medicare. nt
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Riftaxe Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:29 PM
Response to Original message
3. I love the picture!
K&R
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Lyric Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:37 PM
Response to Reply #3
9. I do too.
I gave Mom hell though, because she never smiles. She's embarrassed about the state of her teeth. But aren't the boys adorable?
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Riftaxe Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:55 PM
Response to Reply #9
11. Your to modest..
they all are adorable!
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midnight Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:31 PM
Response to Original message
4. We need to remember that these programs are what are taxes pay for, and
we gladly pay them... But G.E pays no taxes and wants more wealth than they deserve...
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Lyric Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:36 PM
Response to Reply #4
7. The GE thing makes me crazy-angry.
It's just sickening that a corporation THAT big can get away with paying NO taxes. Sickening.
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Safetykitten Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:32 PM
Response to Original message
5. Kick...
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glinda Donating Member (1000+ posts) Send PM | Profile | Ignore Sun Apr-10-11 11:41 PM
Response to Original message
10. K & R n/t
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murphyj87 Donating Member (570 posts) Send PM | Profile | Ignore Mon Apr-11-11 12:05 AM
Response to Original message
12. The US is backward
Edited on Mon Apr-11-11 12:15 AM by murphyj87
In Canada, we Seniors (yes WE Seniors, I'm a Senior now too) get the same health care as anyone else, with no out of pocket cost, and twice as good in access and quality as most Americans have. Americans pay 250% for taxes PLUS health costs (insurance, deductables, and copays), as we Canadians pay for taxes (and those taxes INCLUDE HEALTH COSTS). Uninformed Americans think that Canadians pay high taxes, but fail to realize that the amount we pay in taxes covers our health costs too. Americnas pay health costs which are 150% of what Canadians pay in taxes, and then, after that, Americans pay taxes almost as high as ours, amounting to Americans paying 250% for taxes + health costs compared to what we Canadians pay in taxes.

We seniors get Canada Pension as early as age 60 which is 120% what equivalent Americans get for Social Security, PLUS Old Age Security $600 a month in addition to Canada Pension at age 65.

Canadians get better pensions and benefits, and far better health care at much less than half the cost (what we pay for taxes) when compared to what Americans have, a pittance in pensions and massively expensive health care system that leaves 38% of Americans without the health care they need. If your mother were a Canadian, she would have no financial worries and her health care would be GUARANTEED regardless of age or income, with no out of pocket costs.

When Canadians think about the American health care system (your insurance run and insurance rationed health care, and even your Medicare), we kiss the Canadian ground we walk on that we don't have the kind of inferior and massively expensive health delivery system here that you Americans have.

Americans living in exile in Canada, unable to return to the US

Canadians look at US (so called) "Health care"

Canadians discuss Canadian health care
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eridani Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 04:14 AM
Response to Reply #12
21. Yes, I know. In WA State we send people to Canada to get basic care
They have to pay cash, but it's half what they would pay here.
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elehhhhna Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 08:05 AM
Response to Reply #12
23. Murphy, welcome to DU & please make that post an OP. PLEASE.
Numbers don't lie. This is news to many of us. Let's get it out there.
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laundry_queen Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 10:25 AM
Response to Reply #12
28. "We kiss the Canadian ground we walk on"
You aren't kidding. I have yet to meet any of my fellow Canadians who would give up their health care for lower taxes. Even some of my far right relatives, when discussing politics, sit around and trash the US system. I think many Americans are totally unaware that we pay far less in taxes. I think because it wasn't that way years ago. Many people moved to the US because WITH insurance premiums for health care it was cheaper. Those days are LONG gone. Americans now pay way, way more of their income towards taxes/premiums than us Canadians do. Don't even get me started on the idiotic myths about 'government controlling your health care'. I have way more choice than any of my *fully insured* American counterparts. I forever thank my lucky stars I was born Canadian.
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Lugnut Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 12:13 AM
Response to Original message
13. Dammit!
This should never be happening to any citizens of the so-called "greatest nation" on earth. :cry:

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demodonkey Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 12:13 AM
Response to Original message
14. If she already has Medicaid, she may become a dual-eligible...

...my late, disabled brother was such. A GOOD THING -- try to get her on Medicare and Medicaid both. But get advice -- there should be some disability groups in your state that know the in-state rules or even Agency on Aging might be able to help.

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grasswire Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 12:26 AM
Response to Original message
15. there is help for low-income peeps to pay medicare premium
....and medicaid should still carry her as well, as a supplemental.

People who don't qualify for Medicaid have to buy a supplemental for themselves or pay co-payments. But she already qualifies for medicaid, so actually she is luckier than some who have a bit more income.

I don't know what the medicaid in your state pays for prescriptions -- that's something to learn more about.
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pengillian101 Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 12:45 AM
Response to Original message
17. Prayers sent for your family.
My best wishes.
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Justitia Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 01:09 AM
Response to Original message
18. sounds like she is probably a "dual eligible" - make sure she applies for the "extra help"
Edited on Mon Apr-11-11 01:22 AM by Justitia
http://www.ssa.gov/pubs/10525.html

My son is a "dual eligible".

Dual eligible means eligible for both Medicare and Medicaid.

He has Medicare parts A, B & D - all his premiums are covered. He also has Medicaid (QMB).

He used to have a Supplemental policy, and that premium was covered also (he's no longer eligible for that, but I highly recommend a supplemental if your mom is eligible).

Your mom will have many more options available to her once she is on Medicare (esp in getting in to see a doctor).

Also, check with her local utility company - in my city, Medicaid recipients receive credits on their highest utility bills. I don't know if that applies everywhere, but it is definitely worth checking.

Best wishes.
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Lyric Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 10:10 AM
Response to Reply #18
26. Yes, that's what we're hoping too.
The only problem is that because the 1996 welfare reforms allowed states to implement their own individual rules about Medicaid programs and eligibility, we're not sure yet how this is going to work in our state. Mom's gonna make some calls, but she's still very afraid.
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Faux pas Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 04:41 AM
Response to Original message
22. Has she applied for Social Security Disability? My heart goes
out to her and your family. Sending you all prayers.
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Lyric Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 09:50 AM
Response to Reply #22
25. Oh yes--that's why she's getting Medicare.
She finally got Disability almost two years ago, and now she'll be eligible for Medicare as a result. And thank you.

Sometimes it's so hard, because when the political world goes berserk, she looks to me to be able to explain it to her, and I don't even have the answers right now. I don't think ANY of us know exactly why half the nation has lost its collective mind.

It's just hell right now. :(
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mysuzuki2 Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 09:48 AM
Response to Original message
24. there may be help for this.
on a federal level, if she has only 800/mo and no major financial assets she will qualify for extra help for the drug coverage. Apply for this at social security. If I hadn't retired recently I would help you with this. Secondly, she possibly can get help with the part B under a program called QMB. This is administered through the county welfare office. BUT, when applying for extra help with the drug plan you have the option of choosing to have the financial info transmitted to the county to apply for the QMB program. Unless she has a big 401k or rel estate holdings she can probably get help with both programs. Good luck!
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Lyric Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 10:12 AM
Response to Reply #24
27. She doesn't have any assets at all.
Other than her clothes and household things, none of which are worth anything. I'm writing down the QMB thing so I can tell her to ask about it when she calls the welfare office today. She's waiting until after 1:30 pm so they'll all be back from lunch.

In the meantime, it's so sad that people have to scramble and worry like this. Universal healthcare would solve this problem. :(
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Canuckistanian Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 06:46 PM
Response to Original message
29. K&R
Your Mom wouldn't be living in such poverty in Canada.

Stories like this both touch my heart AND make me mad as hell.
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barbtries Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Apr-11-11 08:12 PM
Response to Original message
30. there's gotta be a way
somehow, to get her the help that she needs and yes, deserves! i can't answer your questions but would recommend calling - social workers, social security, maybe an SSI attorney. i don't know much but hoping for the best for you all.

please keep us posted.
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