The great gaslighting: how Covid longhaulers are still fighting for recognition

[Nevilledog]

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Mike Mariani
@mikesmariani
My piece for @guardian on Long Covid, the incredible work of the Patient Led Research Collaborative (@patientled), and the past and present of medical gaslighting was published today:

theguardian.com
The great gaslighting: how Covid longhaulers are still fighting for recognition
People with long Covid face an uphill battle convincing skeptics their malady is real – but discrediting uncommon conditions is hardly a new phenomenon
10:14 AM · Feb 3, 2022

https://www.theguardian.com/society/2022/feb/03/long-covid-fight-recognition-gaslighting-pandemic


Before the coronavirus pandemic swept through New York City like a foaming white storm surge in the spring of 2020 and irrevocably displaced the trajectory of her life, Hannah Davis was an expert in artificial intelligence and machine learning. She gave talks on her projects, which included working with a computer program that generated music from literature, at Ted conferences, technology expos, even the Library of Congress.

Toward the end of March 2020, as the first wave was gathering speed and the number of new cases in the US was inching upward toward 20,000 a day, Davis was living in the Bedford-Stuyvesant neighborhood of Brooklyn – an area that would become one of the hardest-hit communities in the borough. She was stocking up on supplies one final time at a local grocery store before sheltering in place when she believes she got infected with Covid-19.

In the days that followed, Davis, who is 33, experienced a debilitating array of symptoms that only partly matched the symptomatology broadcast by major media outlets and published by health agencies. While she registered a temperature of 100F and felt chills and fatigue, she was also experiencing headaches, tremors and neurological manifestations.

When she traveled to a local emergency room, the doctor seemed to dismiss the non-respiratory symptoms she anxiously detailed, sending her home with a prescription for an albuterol inhaler.

*snip*

[mnhtnbb]

1. The risk of long haul COVID

is not being discussed much at all. Personally, that's what I fear we're going to see explode as a result of letting up on masks and social distancing among people who are vaccinated and boosted because everyone is just so damn tired of the whole thing and figures they are protected from severe disease and hospitalization/death because of their vaccination status.

[Tickle]

2. But we are

protected from severe illness as long as we stay on top of the booster shot. At least that’s what I understand

[Meowmee]

3. I am lh

Still lots of problems after double pneumonia in the very beginning.