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fightforfreedom

(4,913 posts)
Tue Apr 26, 2022, 07:36 AM Apr 2022

My melanoma nightmare update.

Today I get the results of the biopsy, wish me luck. My insurance company denied the pet scan my surgeon requested. I just received a letter from my insurance company, the pet scan is now approved. Go figure.

If you are unlucky and are told you have melanoma, pray you get it somewhere on your body, not on your face. They had to cut my face wide open and it has been hell to eat, sleep, walk, having trouble with my vision because of the swelling. Pray you get a warning sign so it's caught early. I got no warning, my skin looked normal.

31 replies = new reply since forum marked as read
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My melanoma nightmare update. (Original Post) fightforfreedom Apr 2022 OP
Fingers crossed! SheltieLover Apr 2022 #1
Hoping for the best outcome for you! Ilsa Apr 2022 #2
I'm wishing you the best possible outcome. Some years ago I had a melanoma removed abqtommy Apr 2022 #3
Good luck! Hardly anything more stressful than waiting for the results of a biopsy Walleye Apr 2022 #4
I hope it is good news!! brer cat Apr 2022 #5
Stage 3 Survivor - 14 years later Pachamama Apr 2022 #6
Wishing you the best cate94 Apr 2022 #7
In the VERY near future, we may have a tool to detect most types of cancers with a blood draw 70sEraVet Apr 2022 #8
Thank you for posting this. Would you consider posting as its own OP niyad Apr 2022 #22
I will, thanks. 70sEraVet Apr 2022 #23
Excellent! niyad Apr 2022 #24
Wow great post. I didn't know about this test. Pepsidog Apr 2022 #28
Wishing for the best outcome for you. ramen Apr 2022 #9
Hope it's all good news. spanone Apr 2022 #10
Thanks for updating us. Your DU family is with you! Nt spooky3 Apr 2022 #11
good luck! Nt XanaDUer2 Apr 2022 #12
Thinking of you! ❤️ MLAA Apr 2022 #13
Sending healing, positive thoughts your way! woodsprite Apr 2022 #14
Wishing you only good news today! dixiechiken1 Apr 2022 #15
I wish you the best of luck area51 Apr 2022 #16
Hoping you get good news bluestarone Apr 2022 #17
Visualizing bright green for you. Green - for healing and renewal. calimary Apr 2022 #18
Hoping you ace your test!!! Karadeniz Apr 2022 #19
Chemo or not Cryptoad Apr 2022 #20
Sending hugs and vibes for best possible outcome. niyad Apr 2022 #21
Hugs. onecaliberal Apr 2022 #25
Like your screen name says, "fight". Wishing you good news. Pepsidog Apr 2022 #26
Your skin looked normal? That's chilling. How did you discover it? rainin Apr 2022 #27
I had a small cyst removed (not related to the melanoma) from my upper cheek. fightforfreedom Apr 2022 #29
Never quit. n/t EndlessWire Apr 2022 #30
Hoping for good news for you AmBlue Apr 2022 #31

abqtommy

(14,118 posts)
3. I'm wishing you the best possible outcome. Some years ago I had a melanoma removed
Tue Apr 26, 2022, 07:49 AM
Apr 2022

from the left side of my face, just below my left eye and close to my nose. It was a
traumatic experience for me but the doctor got it all and it hasn't recurred. My Mom
experienced a benign growth in the same area long before my experience. It's good to
pay attention. Many members of my family experience 'bad' skin with blemishes and
infections. Survival is good.

Pachamama

(16,887 posts)
6. Stage 3 Survivor - 14 years later
Tue Apr 26, 2022, 08:31 AM
Apr 2022

I am hoping you get good news. I am so sorry for what is happening to you and your awful experience made so much worse by how the insurance is handling this.

I was fortunate on all fronts. I had it on my lower leg (I am female and over 75% of melanoma in women is on our lower legs whereas men primarily on torso and upper body). I was also in the SF Bay Area and outside of Australia they have some of the top doctors treating Melanoma and research. I was able to have surgery and immunotherapy and all available care through a great PPO insurance at the time.

Do not give up - fight like hell against the insurance company and do all you can to beat this with your doctor. Sending you lots of good thoughts and that the insurance coverage is provided for all needed treatment. Stay strong.

70sEraVet

(3,529 posts)
8. In the VERY near future, we may have a tool to detect most types of cancers with a blood draw
Tue Apr 26, 2022, 08:48 AM
Apr 2022

MENLO PARK, Calif., February 2, 2022 – “We applaud President Biden for reigniting the Cancer Moonshot and highlighting the critical role of early detection in achieving the ambitious, but attainable, goal of reducing the cancer death rate by at least 50 percent in the next 25 years. Improving quality of life for patients and survivors, while addressing inequities in access to cancer screening, diagnostics and treatment is a critical part of the plan. Importantly, the President’s plan recognizes that the rigorous study of multi-cancer detection blood tests, to date, has brought us to a crucial inflection point where detecting many cancers at once is now an essential pillar of any effort to end cancer as we know it today.”



“In partnership with preeminent cancer institutions across the country, we validated the science behind our MCED technology and, in 2021, introduced Galleri® as a prescription only test for adults with an elevated risk of cancer, including those age 50 and older. As a result, today, we can detect more than 50 types of cancer, including in early stages, using a simple blood draw, vastly expanding the benefits of screening to more cancers and more people. We look forward to continuing our evidence generation with scientific and clinical partners and engaging with policymakers and the cancer stakeholder community so that more Americans can benefit from this paradigm shift in early cancer detection.”

https://grail.com/press-releases/grail-statement-on-president-bidens-bold-initiative-to-reignite-the-cancer-moonshot/

woodsprite

(11,940 posts)
14. Sending healing, positive thoughts your way!
Tue Apr 26, 2022, 09:51 AM
Apr 2022

And prayers of strength and perseverance to get through this and deal with the insurance company. Having to deal with insurance companies while battling cancer adds insult to injury. I'm waging my own battle re: PET scans. Here's to us both that we win our battles

calimary

(81,559 posts)
18. Visualizing bright green for you. Green - for healing and renewal.
Tue Apr 26, 2022, 09:55 AM
Apr 2022

It’s not the color of Spring for nothing!

I hope the results are all favorable.

Cryptoad

(8,254 posts)
20. Chemo or not
Tue Apr 26, 2022, 09:57 AM
Apr 2022

at age 73,,,,, that my decision to make soon,,,,, at 53 there would be no question as to my answer,,,,,,,,Is dying a little sooner worth some more quailty time with the Grands..........?

rainin

(3,011 posts)
27. Your skin looked normal? That's chilling. How did you discover it?
Tue Apr 26, 2022, 10:36 AM
Apr 2022

My father had multiple melanomas in his later years and as I get closer to the age he passed, I'm increasingly worried about hidden cancers. Would you share how you found it?

I wish you a full recovery and I hope you get relief from the surgical pain quickly.

 

fightforfreedom

(4,913 posts)
29. I had a small cyst removed (not related to the melanoma) from my upper cheek.
Tue Apr 26, 2022, 11:22 AM
Apr 2022

The cyst was tested and it came back normal. About a month later a small bump appeared under the incision. It was scar tissue. They removed and tested the scar tissue and it came back aggressive melanoma. There is a chance that small cyst may have saved my life.

AmBlue

(3,118 posts)
31. Hoping for good news for you
Tue Apr 26, 2022, 01:12 PM
Apr 2022

I know this stress too well as my brother had melanoma. I am thinking of you and hoping for all good news.

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