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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsKinda scared shitless
and on the other hand wonder if I'm just trolling for sympathy, but I have to start this new regimen tomorrow. I don't want to.I can't. I 'm thinking that once I get into it I'll just go for the flow but it's what? My fourth time on chemo? Fifth? I'm tired of this shit, but no one knows what to say except people in exact situations and at best they can commiserate. Options are running out.
- t
femmocrat
(28,394 posts)You can "troll" (you're not!) here all you want and find many sympathetic friends. Whatever you need, we're here.
villager
(26,001 posts)More chemo?
Stay plugged in here, and let us know how it's going!
Be well, and take care!
malaise
(268,968 posts)FSogol
(45,481 posts)steve2470
(37,457 posts)City Lights
(25,171 posts)Wounded Bear
(58,648 posts)Best wishes and 's to you. Good luck!
Tsiyu
(18,186 posts)and that the chemo takes and you are whole and healthy again. You must be exhausted from all you've been through, but you're still here and that means a lot to us.
grahamhgreen
(15,741 posts)mimi85
(1,805 posts)I've written before on here that I've decide to forego chemo. My beautiful, inside and out, SIL just went through 6 months of chemo and passed last week. I miss her beyond words. I'm glad I've finally made my decision - it's a huge weight off my shoulders.
Tab, do what YOU think is best, no one else.
In fact, that's what any of us can do. No, the fear doesn't pass as it's the fear of the unknown which is why we have religion. Well, I don't have "religion" but it seems most do. Whatever gets you through the night.
TBF
(32,056 posts)I think I'd be apprehensive as well.
SammyWinstonJack
(44,130 posts)brer cat
(24,562 posts)Sending good vibes, Tab, and a big DU hug.
sheshe2
(83,751 posts)Drew Richards
(1,558 posts)It sucks...and sucks some more...a small joint or a little whiskey makes things a bit better its true....but I found chilled lotion and slushies made the pain bearable...
Cant really do anything about the weakness but sleep...
Depression...well support helps but keeping your mind BUSY helps keep the blues away.
Drew.
redwitch
(14,944 posts)niyad
(113,284 posts)remember that your du family is here for you, any time of the day or night.
please let us know how you are faring with all this.
WillyT
(72,631 posts)& Rec !!!
Liberal_in_LA
(44,397 posts)Sissyk
(12,665 posts)I will have you in my thoughts.
Please try to get support from DU and your family and friends around you. I'm sure you do.
Also, hang in there one day at a time. Just one day more, then one day more. Hopefully this session will be your last.
octoberlib
(14,971 posts)onecaliberal
(32,852 posts)irisblue
(32,971 posts)vibes
aikoaiko
(34,169 posts)polly7
(20,582 posts)It's tough, but so are you. Sending strong vibes for healing and a pain-free, good recovery. You can do this!
ladyVet
(1,587 posts)I think being scared is the norm for this sort of thing, so it would probably be more frightening if you weren't scared.
You've got good folks here who care, so don't be afraid to let us know what's going on.
elleng
(130,895 posts)and you get it, as well as good vibes! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
MissDeeds
(7,499 posts)Positive thoughts are your friend. I recently read a book written by Alice Hoffman called "Survival Lessons", about her battle with breast cancer. It is wonderfully inspirational and uplifting, regardless of your condition or gender. I have never faced cancer, but found her book to be full of encouragement and hope. Seek out any book, poem or prayer that speaks to you and let it guide you during the challenges ahead. You aren't alone.
Best wishes for a swift and full recovery. You are in my thoughts and prayers.
magical thyme
(14,881 posts)roguevalley
(40,656 posts)vibes I can. Always come here. We're here for what its worth, Tab.
WCLinolVir
(951 posts)Feel free to troll for sympathy and support. I would be scared too.
Vattel
(9,289 posts)FailureToCommunicate
(14,013 posts)A friend of mine wrapped up his latest of multiple chemo rounds recently...he said they're pretty certain they licked it this time. He was not wanting to go this latest round either of course, but now feels a great weight has been lifted.
Wishing you similar luck, Tab.
it sucks.
Sending good thoughts and healing vibes.
mike dub
(541 posts)Although I can't understand your situation emotionally, a great friend of ours who has metastisized breast cancer and lives now with us full time, is going through a similar situation.
Her oncologist recently told her chemo and anything else available won't make much of a difference at this stage, so she's going on a huge roadtrip, and living it up!
Again, no idea what it's like, but definitely hoping to commiserate with her, and with you, Tab! At some level. Wishing you peace and love right now and in time to come.
jwirr
(39,215 posts)WinkyDink
(51,311 posts)LibDemAlways
(15,139 posts)with DU all these years. There are many caring, compassionate people here. I hope the thoughts expressed here in addition to the support you receive from your own family and friends helps to give you the strength you need in the days ahead.
lunasun
(21,646 posts)Good as reason as any I suppose. Post and let us know after tomorrow when you feel up to it
sorefeet
(1,241 posts)experimental at medical schools. My friend with liver and pancreas cancer will start that as soon as the pills he's on now fail. And they will. But the school where he has already visited and been approve claim they will be able to fix him. My friends options were pretty slim until this. Never give up hope for modern medicine.
slipslidingaway
(21,210 posts)and wish I had some other words of wisdom. As you mentioned in the cancer forum you have beaten the odds before and I hope this time you will as well, also wish that these next drugs will not be too hard on you. I'm glad that you reached out in the GD forum, there are many good people on DU and you will be surrounded by hugs and positive thoughts.
How long does this next session of chemo last and when do they do another test of this marker?
Big hugs!!!
treestar
(82,383 posts)and wish you all the strength you need.
Moostache
(9,895 posts)My mom has been in and out of remission and chemo 7 times in the last 12 years.
I was fortunate in the fact that my renal cell carcinoma was discovered early enough for a complete surgical removal and I have had (knock on wood) 6 years of cancer-free living myself.
I know its hard, but if it helps any, my children have been able to know their grandmother - something that I never got because my maternal grandmother passed of the same cancer my mother has fought for more than a decade...it can't make the pain, discomfort or misery of chemo any less, but it helps to have a reason to suffer and a goal to achieve.
I wish you all the luck I can and positive feelings as well.
2theleft
(1,136 posts)I have read your posts in the cancer group, and remember last year when you didn't feel like eating. I hope this round isn't as bad. Please take good care of yourself. Sending you all of the healing vibes I have.
grasswire
(50,130 posts)...and that is not an empty claim.
Always.
Ditto
blackspade
(10,056 posts)My father has pancreatic cancer. He went through at least 4 rounds of therapy including an experimental protocol.
He ended up stitching oncologists. His new one recommended a treatment that places radioactive pellets into the tumors which blows them up. He has been healthy for over a year. He will never be cancer free, but at least he has an active life.
Maybe a second look by another Dr might be worth it.
Take care!
slipslidingaway
(21,210 posts)maybe that has already happened. But people always need to advocate for themselves and ask questions, difficult to do when you are feeling so bad.
Very happy to hear your father is doing well a year later!
A Little Weird
(1,754 posts)I don't know what to say either except good luck. I hope everything goes well for you!
840high
(17,196 posts)lob1
(3,820 posts)as I've had cancer 3 times myself. I had lung cancer surgery last year. Throat and prostate before that, and all of them required surgery. I've not had chemo, but I had radiation treatments for 2 of my cancers. I understand being tired of the shit.
Someone upthread recommended medical marijuana. I would, too. Since I've had lung and throat cancer, I haven't smoked for a long time. I take the edibles. As far as I know, there's no manmade medicine that can make you hungry, but grass can. And grass really helped me with my depression. Before my lung cancer surgery, I got really depressed. Was it gonna get me this time? Am I gonna be alive next week? A bite of a brownie didn't necessarily get me stoned, but it made me feel normal again. I could make small talk with people, I could laugh at a joke, I could enjoy a TV show. Just like normal. I could not think about cancer for a few hours. At least that was the way it effected me.
I'm sure your friends and family are supporting you, and I hope you get well fast. Try not to let it get you down.
mimi85
(1,805 posts)My primary prescribed some liquid shit that they give AIDs people. I read the side effects - no thanks.
WheelWalker
(8,955 posts)Blessings.
Warpy
(111,255 posts)at least as much good time between sessions as the sessions last, you need to look at it and decide whether that good time is worth the bad time.
If it's not buying you much of any good time, that calls for a much harder look at what it's doing to you and family around you.
When/if you've decided that you've had enough, you are within your rights to ask for palliative care that will allow you to live whatever time you've got in a fair amount of comfort.
I can't make any decisions for you, I can only help you think about what they are.
I just hope you're here to give Republicans the skewering they so richly deserve for a very long time to come.
Look up "astragalus for chemo" on the internet
calimary
(81,238 posts)Glad you're here. Let's all crowd together and make sure our shoulders are all touching, so our friend Tab has a nice broad support on which to stretch out. Maybe if we crank up some music, we can make him think he's crowd surfing!
[IMG][/IMG]
mimi85
(1,805 posts)recommended to me and it turns out it is very dangerous for leukemia.
calimary
(81,238 posts)Seems to me you deserve it. That's yet another thing I love about DU - people here do share personal strife, issues, complications, dreads, losses, fears, cheers, expectations, and celebrations. People share so much of their personal lives and inner struggles. Our own Skittles is the one who once said "someone's always here." You need not struggle through this alone! Man, I still think about the time I posted the night my mom died. It was late. Everybody else at the house was asleep. I was up, couldn't shut my brain off. And sure enough, somebody replied. Then three more. Then a dozen more. Then the deluge! DU helped me get through that. DU has helped all of us get through bush/cheney. And it'll help you get through this, too.
And truly - if you're up late, in difficulty and discomfort from the chemo, post about it here. Someone's always awake. Don't hesitate to reach out. We'll walk through this with you as much as we can. Some here have even been through this same kind of thing, either themselves or aiding and comforting loved ones in treatment. You will get sympathy AND empathy here. As much as you need, and then some.
polly7
(20,582 posts)with .... whatever anyone needs. This is a very, very caring place.
Iwillnevergiveup
(9,298 posts)you already are a survivor. Don't forget that. And stay in touch....we care to know how you are doing and wish only the best for you.
LittleBlue
(10,362 posts)It isn't trolling your fifth time on chemo.
Posts like yours make me appreciate every day. Thank you. I hope after this time you will be cancer free. Best wishes and a speedy recovery.
mimi85
(1,805 posts)I posted in the cancer group and have decided to forego chemo. Now I just have to get up the nerve to tell my oncologist.
My very best wishes to you!!
Arugula Latte
(50,566 posts)I just have to say: FUCK CANCER!!! Goddamn, it has just had a reign of terror through so many lives, including the lives of so many of my friends and family.
Cancer, this is for you:
And this is for you, Tab:
adirondacker
(2,921 posts)and you have a lot of sympathy from this corner of the world, along with many beautiful responses from people that care.
I wish you wellness and hope matters turn around briskly.
Blue_Tires
(55,445 posts)I've never had to go through chemo, so it would be insulting for me to suggest I understand your plight...
But I can say I've had to deal with some difficult, unpleasant phases in my life without a single real friend to count by my side; which nobody should ever have to do regardless of situation...Anything I can do within my next-to-nonexistent powers and influence to make you feel even .001% better about your situation, please ask...
Good night, and good luck...
sueh
(1,826 posts)Live and Learn
(12,769 posts)Life is so unfair sometimes.
KitSileya
(4,035 posts)However, I read your post, I wish you the strength you need, and good luck.
Skittles
(153,160 posts)talk to us..........there may be people here who do know, Tab, and it might help
DFW
(54,370 posts)My wife went through chemo just once, and she said if she was faced with another round, she didn't know if she could do it. I can't imagine four or five times.
cbayer
(146,218 posts)I can't even imagine what you are going through.
We miss you in C & B. I know that food is probably the last thing on your mind, but come by some time and say hi.
Cha
(297,190 posts)Tab
Ilsa
(61,695 posts)Outcome for you. I don't know else what to say. I haven't been in your shoes. All I know from my other experiences is that life seems to require a lot of courage, and that sucks.
Violet_Crumble
(35,961 posts)Hang in there. If healing vibes could help, I'd be sending them to you right now...
democrank
(11,094 posts)Just keep on keepin` on as best you can.
Enthusiast
(50,983 posts)Get the next round of chemo.
When you feel well enough, tell us how it went. We will be here to listen.
((((((((((((((((((((Forwarding healing vibes.))))))))))))))))
whistler162
(11,155 posts)and stop looking in the mirror. No longer get scared shitless.
http://ts1.mm.bing.net/th?&id=HN.608047728767208979&w=300&h=300&c=0&pid=1.9&rs=0&p=0
other than that I hope this round helps and that it doesn't run you down to much.
NaturalHigh
(12,778 posts)indivisibleman
(482 posts)in the fact that chemo treatments have greatly improved over what they were years ago. But having to go through it more than once does suck. It is what it is. I would make sure that your treatment is considering any new developments for the type of cancer you are fighting. I know of someone who had an excellent doctor that fought for a treatment that looked in some ways like it was not applicable to the cancer but it turned out that it was a perfect fit for treatment and they had full eradication of the cancer. The drug used was called Herceptin.
can win this.
LloydS of New London
(355 posts)sarge43
(28,941 posts)Fearlessness is a lack of imagination.
We're here for you, Tab.
myrna minx
(22,772 posts)Just know that even if we DUers can't agree on much, we all agree that healing vibes are coming your way. Hang in there - we're rooting for you!
ecstatic
(32,701 posts)if you can. Reduce or eliminate stressful activities and situations if possible. It may seem like "woo" but stress and toxic people can keep us sick. Best wishes.
marions ghost
(19,841 posts)it's important to eliminate stress as much as possible when recovering from anything. Cancer and chemo are no different. It's not woo. It's physiological.
Think positive Tab. People are sending it to you.
mopinko
(70,090 posts)find your center, and hang on tight, i guess. never worn your shoes, but swimming in a shit storm of my own. chain smoking and walking in circles a lot.
but that is what makes this place a community. we are all in this together.
we are here for you.
Nay
(12,051 posts)to trust your medical team in what they are doing? If you trust them, do it.
In any case, please accept my hugs and sympathy for the very hard road you are on. You will always be able to find friends and people to hold your hand here.
kentuck
(111,089 posts)We are with you.
geardaddy
(24,926 posts)((((((((((((Tab))))))))))))))
Maraya1969
(22,479 posts)We're all here.
Reach out if you need to.
Tab
(11,093 posts)started this morning; just spending the day in bed; we're into it now, just have to see how it goes.
This disease just saps you over time by its constant chipping away at you with no break. After 5 or 6 years of it I'm sapped, yet I know it could play out for another 5 or 10. Don't know if I have the strength for that or not.
Thanks to all who replied or sent their best wishes. I means a lot to me.
Back to bed.
MissDeeds
(7,499 posts)Hang in there and keep fighting. We're with you.
negoldie
(198 posts)Been going for treatments since March. I went today. I hit the lottery in reverse. A non hodskins lymphoma that affects less than 3-4% of patients. That's me.
My mother at the age of 72 decided after three years of dialysis to say the heck with it and came home one last time. She spent 6 wonderful days filling is in on so many family moments. I wish I had remembered to record some of it.
Hang in there old scout. There are those of us out here that really feel what you are going through, try and carry on.
Take care!
kaiden
(1,314 posts)My husband was diagnosed with that in March 2013. After three RCHOP chemos, three RDHAP chemos, a BEAM chemo and an autologous bone marrow transplant, he's fine. Scary year, but it is totally doable.
Tab
(11,093 posts)Also a lesser diagnosis of myelodysplastic sydrome, which complicates treatment.
Originally diagnosed end of 2008, this is now my fourth or fifth chemo.
Contrary1
(12,629 posts)My 72-year old mother had also been on dialysis for 3 years, when she passed away. Suffered every single day of those 3 years, plus a couple years that preceded it. Even though she had voiced to me her desire to go a few times, her strict religous upbringing kept her from opting out. She eventually passed on from a stroke.
Chemo is something I would never wish on my worst enemy, and I only went through 4 treatments.
You take care too. Carrying on can be so very hard sometimes.
riqster
(13,986 posts)I have health issues galore, but they are all a bit more...straightforward than cancer. Wouldn't wish it on my worst enemy, if I had one.
You are not alone.
benld74
(9,904 posts)lovemydog
(11,833 posts)Dont call me Shirley
(10,998 posts)Once is bad, but 5 times, I couldn't imagine. Make a safe cozy nest to rest.
blm
(113,052 posts)I've made my choice for this situation, and I hope to see it through in good humor.
cwydro
(51,308 posts)ok?
locks
(2,012 posts)but I do remember well the fear I couldn't even talk about when I was told I had cancer. A lot of people will remember and think of you and your courage and hoping this time it will work for you. Please let us know how you're doing.
Worried senior
(1,328 posts)that this is the last time you have to deal with this and everything goes the way it should.
blindersoff
(258 posts)It's 14 years since I did my 6 months of chemo, which was quite hellish. Just reading your post made my heart drop. So sorry to hear that you've had to go through it several times already. Hope this one does the trick. Best wishes. I agree with the MMJ part if you can find it.
TNNurse
(6,926 posts)I can assure you that soliciting support or strength or anything else you need is a TOTALLY APPROPRIATE. If anyone does not understand, they have not been through it or watched a loved one go through it. It is as nasty an experience as anyone can imagine.
We other survivors are here for you. Bitch, gripe, complain, endure.... whatever it takes.
MarianJack
(10,237 posts)I know that I'm luckier than any damn fool (recovering) drunk should EVER expect to be.
Please accept my best wishes for a speedy, full and PERMANENT recovery for you. Usually when people say "I know how you feel", they're full of shit. Having gone through the experience of having a doctor look at me, say " CANCER", and understand that she meant ME, I know just how scary and depressing that is.
PM me if you need a shoulder.
Again, my thoughts and wishes are with you. All the best to you.
PEACE!
Skittles
(153,160 posts)WE CARE
Triana
(22,666 posts)I hope this is the last time. Take care of yourself.
steve2470
(37,457 posts)Talk to us, please. We care.
Tab
(11,093 posts)trying just to keep little bites of food and liquid down. I'm on this chemo daily (with a break every third week). Not looking forward to the cumulative effect.
Thanks for being there.
Hang in there, I know it's very tough.
seabeyond
(110,159 posts)i hear the tired in your posts.
i hope you get moments breaks, thru out this. that will lessen the harshness of what you are going thru.
in stillness, and love.
Tab
(11,093 posts)A little more functional. But there's two weeks left in this cycle, and perhaps indefinitely I'm glad I started it on a holiday weekend, give me some time to acclimate. Haven't eaten anything since Wednesday, though, but bought some ensure and coconut water (high in potassium) to help me stabilize.
I'd put this in my "long-term" book, but I don't even have the energy for that.
- t
steve2470
(37,457 posts)slipslidingaway
(21,210 posts)thinking of you and sending you strength and positive thoughts.
MoonRiver
(36,926 posts)Wishing you all the best, and unload on us anytime. Many of us know EXACTLY what you're talking about.
Tab
(11,093 posts)Let nature take its course. I know that's too much of a topic for here, but if I don't enjoy life under meds, what are they preserving?
Not quite ready to make that decision yet. But thinking about it.
kentuck
(111,089 posts)And I have wondered about chemo? How do we know when it is enough? Does your body say I should endure the full treatment or should I stop when my body tells me to stop? Do you think of that?
Again, you are very brave. Sometimes, I think we have to accept that some things are out of our hands. I don't know if it is religion or God or whatever, but we need to put our faith somewhere else so we can continue to live life to the fullest extent possible. We accept by faith that someone else is guiding the ship.