Campaigner of rare premature aging condition dies at 17
Source: AP-Excite
LONDON (AP) A campaigner who raised awareness of the rare genetic condition progeria, which causes those affected to age about eight times faster than average, has died at age 17.
The U.S.-based Progeria Research Foundation said Hayley Okines, from East Sussex in England, died Thursday at her home. It didn't provide more details.
The group's executive director Audrey Gordon praised Okines for her participation in drug trials and research that helped make progress toward treatment for the condition. Hundreds of tributes also poured into the group's website celebrating Okines' life.
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In this photo provided by the Progeria Research Foundation on Friday, April 3, 2015, Hayley Okines, right, talks during an interview with her mother Kerry. A campaigner who raised awareness of the rare genetic condition progeria, which causes those affected to age some eight times faster than average, has died at age 17. The U.S.-based Progeria Research Foundation said Hayley Okines, from East Sussex in England, died Thursday, April 2, 2015, at her home. It did not provide more details. (AP Photo/Progeria Research Foundation)
Read more: http://apnews.excite.com/article/20150403/eu-britain-obit-progeria-campaigner-c568a214c3.html
brentspeak
(18,290 posts)Dealt a terrible, unfair hand, but made the most of her life. RIP.