'Avery's Bucket List': Five-Month Old Girl With Spinal Muscular Atrophy Dies
Source: ABC News
Canahuati, the five- month-old girl with spinal muscular atrophy whose inspirational "bucket list" went viral online, died Monday of pulmonary complications from the disease.
The little girl's lung collapsed and she went into cardiac arrest Monday afternoon, her father, Michael Canahauati wrote in an update on her blog, Avery's Bucket List. Babies with severe types of SMA have difficulty regulating their breath and are especially vulnerable to respiratory complications.
"Avery's passing this quickly came as a complete shock to all of us, as she had just been given a thumbs up at her last doctor's appointment only three days ago," Mike Canahauati wrote in a blog post today. "While we were aware of the severity of her diagnosis, we never lost hope for Avery."
Her father wrote that the disease never took away Avery's smile and he shared a photo of Avery smiling before she was rushed to the hospital Monday.
Read more: http://gma.yahoo.com/blogs/abc-blogs/averys-bucket-list-five-month-old-girl-spinal-161134104--abc-news-topstories.html
Something about having two young daughters of my own really brought this story home to me. I can't imagine being in the position that this girl's parents were, but they dealt with it in a beautiful manner.
I'm hugging my girls tight as soon as I get home tonight....So sad.
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RIP sweet little Avery.
