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Zorro

(15,740 posts)
Sat Aug 10, 2019, 10:45 AM Aug 2019

After my mother's disastrous hospice experience, we filed a state complaint. It came to nothing

My mother did not die well.

She was discharged in January from a Bay Area hospital and transported to a residential care home in distress, writhing in agony at times.

Her pain and sedation medication did not arrive with her, as the hospice agency had told us it would, nor did the hospice nurse assigned to her case. We were told the nurse was tied up at a different location with another patient. After our repeated pleas, a backup nurse arrived several hours later with medication.

My mother improved slightly but still suffered through the next two days. We fired the hospice agency, signed on with another, and finally my mother rested peacefully and mostly pain-free until her death several days later, in mid-January.

https://www.latimes.com/california/story/2019-08-09/hospice-mother-california-complaint

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After my mother's disastrous hospice experience, we filed a state complaint. It came to nothing (Original Post) Zorro Aug 2019 OP
This is a seriously sad story. Faux pas Aug 2019 #1
We brought my mother-in-law into our home last year - IndyOp Aug 2019 #2
I feel sorry for the Lopez family. I have to say our family was very grateful for the hospice lunasun Aug 2019 #3

Faux pas

(14,680 posts)
1. This is a seriously sad story.
Sat Aug 10, 2019, 12:05 PM
Aug 2019

No patient or family should ever have to go through this kind of agony. My mom had Alzheimer's and ended up with kidney failure. She went from intensive care back to the memory care unit she lived in. She went into hospice back at the memory care unit. Her last words were "I feel like shit." She was unconscious immediately and died peacefully 48 hours later. It wasn't easy to watch but, it was easier than what the people in the article went through!

IndyOp

(15,524 posts)
2. We brought my mother-in-law into our home last year -
Sat Aug 10, 2019, 07:55 PM
Aug 2019

her hospice case worker failed to provide effective, lasting pain medication and mentioned on the last day he didn’t think it was needed, after all she didn’t have cancer or something like that.

SHE HAD LUNG CANCER - ONE OF THE MOST PAINFUL CANCERS!!

Everything about her passing was made harder because of the case worker.

I am grateful my husband and I took her in so we we’re able to supervise closely. I shudder to think of what happens to people who don’t have family.

lunasun

(21,646 posts)
3. I feel sorry for the Lopez family. I have to say our family was very grateful for the hospice
Sat Aug 10, 2019, 09:47 PM
Aug 2019

which I think was non profit .
Sounds like the slacking and understaffing in the story may be part of the way of keeping up the profits

This part of the article is scary
In a separate report from the same federal agency, a dozen examples of harm to patients were presented in gruesome detail. In one case, the hospice didn’t treat ulcers on a patient’s heels, and an amputation was required after gangrene set in.

For another patient, “the hospice allowed maggots to develop around a beneficiary’s feeding tube.” In another case, which sounds all too familiar, “a hospice mismanaged a grievance a family filed over poor pain control

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