After my mother's disastrous hospice experience, we filed a state complaint. It came to nothing
My mother did not die well.
She was discharged in January from a Bay Area hospital and transported to a residential care home in distress, writhing in agony at times.
Her pain and sedation medication did not arrive with her, as the hospice agency had told us it would, nor did the hospice nurse assigned to her case. We were told the nurse was tied up at a different location with another patient. After our repeated pleas, a backup nurse arrived several hours later with medication.
My mother improved slightly but still suffered through the next two days. We fired the hospice agency, signed on with another, and finally my mother rested peacefully and mostly pain-free until her death several days later, in mid-January.
https://www.latimes.com/california/story/2019-08-09/hospice-mother-california-complaint
Faux pas
(14,680 posts)No patient or family should ever have to go through this kind of agony. My mom had Alzheimer's and ended up with kidney failure. She went from intensive care back to the memory care unit she lived in. She went into hospice back at the memory care unit. Her last words were "I feel like shit." She was unconscious immediately and died peacefully 48 hours later. It wasn't easy to watch but, it was easier than what the people in the article went through!
IndyOp
(15,524 posts)her hospice case worker failed to provide effective, lasting pain medication and mentioned on the last day he didnt think it was needed, after all she didnt have cancer or something like that.
SHE HAD LUNG CANCER - ONE OF THE MOST PAINFUL CANCERS!!
Everything about her passing was made harder because of the case worker.
I am grateful my husband and I took her in so we were able to supervise closely. I shudder to think of what happens to people who dont have family.
lunasun
(21,646 posts)which I think was non profit .
Sounds like the slacking and understaffing in the story may be part of the way of keeping up the profits
This part of the article is scary
In a separate report from the same federal agency, a dozen examples of harm to patients were presented in gruesome detail. In one case, the hospice didnt treat ulcers on a patients heels, and an amputation was required after gangrene set in.
For another patient, the hospice allowed maggots to develop around a beneficiarys feeding tube. In another case, which sounds all too familiar, a hospice mismanaged a grievance a family filed over poor pain control