The DU Lounge
Related: Culture Forums, Support ForumsInsurance companies are surely agents of demons.
Mr. Banana has been shuttling between hospitals and rehab centers for nearly 7 months. He has not been home since June 20th when he was hospitalized for a bone infection in his left hip. The antibiotics (kick ass ones) were hard on his kidneys, but the hospital said his creatin numbers, though high, were leveling off and he was discharged after the first 2 months to a rehab center.
Well it turns out his kidneys got worse and he was sent back to the hospital, where he was started on dialysis.
Back to rehab. It was discovered he was too weak and short of breath for PT or OT, so it was back to the hospital to have 4 stents placed in his heart adjacent arteries.
Back to rehab. Still weak, and with dangerously low blood pressure so back to the hospital for observation. No soon back in the hospital than he suffered a "V-Tach".. a dangerously rapid fibrillation of the ventricles and was rushed down to the CCU, where he spent a month trying to stabilize the blood pressure and keeping up with the dialysis. Then he had a defibrillator implanted under the skin of his chest wall. (Like the kind Cheney had disconnected for fear of hacking)
Back to rehab. Ever so slowly getting to his feet with the help of two strong Physical Therapists (Mr. Banana is NOT a small guy) It's taken him since Nov 6th to walk 12 feet with a walker and a Therapist, but now he can do it every time. He still cannot stand without a lot of help. In the unit, the aides use a hoyer machine to lift him in and out of bed to the wheel chair.
I thought he had 10 to 14 days of rehab to go.
TODAY, FRIDAY at 3:30 in the afternoon, I was informed that the insurance company will no longer pay for what they say is "custodial care" and we have 48 hours to leave.
I have two weekend days to make sure that a hospital bead, an oxygen machine, and oxygen tanks and a wheel chair, a hoyer, a commode and a bi-pap machine are delivered to my tiny little house before he gets here. I also have to figure out how to pay for an ambulette to take him back and forth to dialysis 3 times a week at $90 per round-trip. (NO coverage for THAT, thak you very much)
The Social Worker at the rehab facility said "Well, you can appeal and if you win you don't have to pay for the extra days" Keep in mind that reserving an empty bed costs $400 per day.
I asked her when had anyone with our insurance company ever appealed and WON? "Well", she said "I think there was one case during Sandy.
I have thrown out our sofa to make room in the living room for a hospital bed
I am weary with worry and at the edge of tears always.
Could use a vibe or two here
raven mad
(4,940 posts)of Repuke fame.
You have so many great vibes and good karma coming atcha from Interior Alaska right now. We went through a non-dissimilar situation a few years ago. For a medevac flight - because our only hospital couldn't figure out a heart attack - the insurance co. paid $150. Actual cost? $13,000. Try explaining why taking an ambulance 400 miles through a mid-Alaskan winter (20 or so below) through the Alaska Range (anybody say Denali National Park?) to someone based in Irving, Texas isn't exactly realistic.
I even enlisted the kitties - they're all vibrating right along with me. And sending 5-rescue-kitty-karma your way.
We had my father-in-law with us for several years (end-stage Alzheimers) and needed lots of medical equipment at home. Our solution was stashing stuff UNDER the hospital bed, and on shelves, and always putting everything back in the same spot so it could be gotten to in the dark during power outages. We have lots of those. Also, making up meals ahead of time really helps, so when you have someone in to assist, put 'em to work.
Home care is one of the hardest things you'll ever do. It's also one of the things that's most worth it.
annabanana
(52,791 posts)I dread the next couple of weeks in particular, not knowing what to expect.
raven mad
(4,940 posts)would be happy to do some home health care research in your area for you (that's my forte - research). Many local hospitals have a visiting nurse or nurse assistant program. They'll come to you and, if nothing else, give YOU a break. I found, after having a bedridden wonderful old man with me for 3 years, that the best thing you can do for him is to give yourself as much care as possible.
This link is to the Mayo Clinic's home caregiver information. I found that support of friends, family and places like DU (wish I'd been here then) are absolutely vital: http://www.mayoclinic.org/caregiver-stress/art-20044784
This isn't just for hospice care - it's for helping folks temporarily/permanently disabled, as well. Funny thing - some of my best support came from a friend who's paraplegic and knew ALL the tricks!
And don't you just feel that this DU online community will always be here!
annabanana
(52,791 posts)of good stuff there.
nolabear
(41,960 posts)First, I'm very sorry Mr. B's health is so precarious, and I hope he improves steadily. And I hope you have some backup. "Custodial" doesn't sound like they acknowledge that he's improved. Doesn't seem correct. But I don't know their thinking.
Stay strong, Anna.
hunter
(38,311 posts)We've had scuffles with insurance companies, but not like that. It's horrible how they will kick someone when they are down.
Kali
(55,007 posts)Suich
(10,642 posts)Warm, healing vibes coming your way!
GrumpyGrampa
(7 posts)My ills were of a drastically different nature, but the insurance company fucked me over six ways from Sunday. I spent about six months on a pull-out sofa in the living room and had to pee over the side of the bed because I couldn't walk 10 feet to the bathroom. Since I couldn't eat, I rarely had to shit. I'm better now.
You are not alone. Insurance companies make their money by charging a shitload and giving back a penny or two. The executives sold their souls by taking the job. The hospital charges $147.oo for a shot of morphine!!! It probably costs them a dollar or so. An MRI runs around $2500 and that's just to pay off the cost of the machine. CT scan, $3000. I still owe about $20,000 that insurance wouldn't cover. I'm not paying it. Fuck that noise. That's almost as much as my wife earns in a year. To hell with my credit rating, I need the utilities to stay on and be able to buy the meager amount of food we need.
The ACA goes a long way, but it isn't sufficient. I don't expect it to improve with the GOP stifling every effort. There's not a Republican in the Senate or House that hasn't sold his or her soul to get there. Fuck regular people. They think they are the ONLY people. Burn in hell GOP. We'll be up here trying to survive.
Give Mr. Banana a hug for me. He'll get better over time. It just takes self-confidence. I went through a bunch of shit before I found mine again. It takes time to heal. Just give him hugs. They are stronger than any medicine.
Take care,
GrumpyGrampa
annabanana
(52,791 posts)Welcome to DU. It's going to take pitchforks for sure to clear out that nest of vipers.
Scuba
(53,475 posts)annabanana
(52,791 posts)antiquie
(4,299 posts)LiberalEsto
(22,845 posts)Do you need help managing
health or medical care
challenges, insurance or
medical billing problems
for yourself or a loved one?
http://advoconnection.com/locations/health-advocates-newyork.htm
I just did a quick search for health insurance advocate Long Island, NY, since I checked your DU profile.
Sending good vibes)))))))))))))))))))))))))))))))))))))))) to both of you
annabanana
(52,791 posts)I think I might need some help in insurance info. I'm most concerned about out of pocket expenses for ambulette rides to dialysis...