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Related: Culture Forums, Support ForumsIf you are 60 or older a shingles shot is recommended.
Last edited Tue Mar 14, 2017, 01:54 PM - Edit history (1)
Nolabear posted here in the Lounge her current experience with shingles. Many responded to her, offering their best wishes. Many also recounted their terrible experiences with shingles. Anyone in the recommended age group should do what they feel is best for their own health and in consultation with their doctor. Here is some info on Shingles.
Shingles is a painful skin rash . It is caused by the varicella zoster virus. Shingles usually appears in a band, a strip, or a small area on one side of the face or body. It is also called herpes zoster.
Shingles is most common in older adults and people who have weak immune systems because of stress, injury, certain medicines, or other reasons. Most people who get shingles will get better and will not get it again. But it is possible to get shingles more than once.
What causes shingles?
Shingles occurs when the virus that causes chickenpox starts up again in your body. After you get better from chickenpox, the virus "sleeps" (is dormant) in your nerve roots. In some people, it stays dormant forever. In others, the virus "wakes up" when disease, stress, or aging weakens the immune system. Some medicines may trigger the virus to wake up and cause a shingles rash. It is not clear why this happens. But after the virus becomes active again, it can only cause shingles, not chickenpox.
You can't catch shingles from someone else who has shingles. But there is a small chance that a person with a shingles rash can spread the virus to another person who hasn't had chickenpox and who hasn't gotten the chickenpox vaccine.
What are the symptoms?
Shingles symptoms happen in stages. At first you may have a headache or be sensitive to light. You may also feel like you have the flu but not have a fever.
Later, you may feel itching, tingling, or pain in a certain area. That's where a band, strip, or small area of rash may occur a few days later. The rash turns into clusters of blisters. The blisters fill with fluid and then crust over. It takes 2 to 4 weeks for the blisters to heal, and they may leave scars. Some people only get a mild rash. And some do not get a rash at all.
It's possible that you could also feel dizzy or weak. Or you could have pain or a rash on your face, changes in your vision, changes in how well you can think, or a rash that spreads. A rash or blisters on your face, especially near an eye or on the tip of your nose, can be a warning of eye problems.
Call your doctor if you think you may have shingles. It's best to get early treatment. Medicine can help your symptoms get better sooner. And if you have shingles near your eye or nose, see your doctor right away. Shingles that gets into the eye can cause permanent eye damage.
http://www.webmd.com/skin-problems-and-treatments/shingles/shingles-topic-overview#1
>>>snip<<<
The vaccine isn't perfect, but for people aged 60 and older it reduces the risk of getting shingles by about 51 percent and the nasty nerve pain by close to 70 percent, according to the Centers for Disease Control and Prevention.
The problem is that unlike the flu and pneumonia vaccines, which are fully covered as a preventive services under Medicare Part B, the shingles shot and other recommended vaccinations are covered as prescription drugs under Medicare Part D and Medicare Advantage plans. Some of those plans provide better coverage than others, but nearly all of them divide their formularies, or list of covered drugs, into tiers according to cost. You'll pay less out of pocket for drugs in tier 1 and 2, which are mainly lower-priced generics and preferred brand-name drugs. And you'll pay more for expensive, nonpreferred brands in tier 3 or 4. The most expensive drugs are usually grouped into tier 5.
And, you guessed it, we found that many Part D plans categorize the shingles vaccine, Zostavax, as an expensive tier 3 or 4 drug. Only one company, Merck, makes the shingles shot and theres currently no generic version.
That means if you havent met your annual deductible, youll likely wind up paying full price for the shotaround $190. But even after the deductible, depending on your plan, we found that consumers may have to pay a significant part of the shingles vaccine cost, up to $100.
http://www.consumerreports.org/health/why-the-shingles-vaccine-cost-so-much/
CountAllVotes
(20,878 posts)I've been dealing w/the shingles on/off for 3 years now.
The vaccine is supposedly 70% effective. If you are over 60 and on Medicare, they will pay for it.
If not, it can cost upwards of $500.00.
It is not recommended for people with certain health conditions, like multiple sclerosis.
Make sure you GRILL YOUR DOCTOR (or whatever you've got as a care professional) before you get this vaccine as they are injecting you with a LIVE virus!
Buyer beware IMO.
It can save you a lot of pain and agony yes, but for some people it is a death sentence, esp. if you have a compromised immune system!!
tazkcmo
(7,302 posts)You may have just saved someone from needless suffering or even death and at a minimum made all that read your post a little smarter.
Good luck in your own situation and I hope for peaceful times for you. Thanks again.
DemForEvar
(25 posts)What are the side effects of the vaccine?
CountAllVotes
(20,878 posts)Heard different things from different people.
Might try googling "side effects shingles vaccine" and see what comes up!
Best of luck!
Neither Hubby nor I had any noted reaction. YMMV. Check with your health pro.
Welcome to DU. Enjoy the ride.
DemForEvar
(25 posts)I appreciate your input
Lars39
(26,116 posts)Everywhere else I called was approx $250
BC/BS of TN paid 100% because I've had it twice now.
Get a prescription for it.
CountAllVotes
(20,878 posts)Luckily, I did not get the vaccine. It is not recommended for people that have multiple sclerosis, esp. if you have the active virus going on in your system any time recent which is my case. It could have some very serious side-effects, including death for god's sake.
I'm not enjoying this ride in life admittedly but I really don't care to die with a massive outbreak of shingles raging.
Cost is not an issue for me as I have supplemental coverage in addition to Medicare that pays for it in full.
Lars39
(26,116 posts)My husband can't have it because he's allergic to msg. And he's already had shingles twice.
I'm sorry you're having a rough time, CountAllVotes.
I hope you have a smoother and uneventful time soon.
Response to Lars39 (Reply #21)
CountAllVotes This message was self-deleted by its author.
Submariner
(12,509 posts)and I'm 70.
still_one
(92,422 posts)Medicare prescription drug plans cover all commercially-available vaccines (like shingles), to prevent illness.
tazkcmo
(7,302 posts)Instead of buying that new flavor of Fancy Feast all their friends are going gaga over, maybe they should make an investment into their own health care.
Friggin' whiners.
sarcasm
CountAllVotes
(20,878 posts)Can't beat that flaked fish with shrimp! Yummy yummy stuff!! Costs a bit yes, but we get it by the case which costs less (only .57 cents for a 3 oz. tin of it!). Wowza!!!!
SoCalNative
(4,613 posts)so that the virus isn't in your system?
dixiegrrrrl
(60,010 posts)unless you are physically contacting someone who has it.
meow2u3
(24,774 posts)There is a vaccine for it AFAIK.
Laffy Kat
(16,386 posts)It put an adult friend of mine in the hospital for a week. You can get extremely sick. If you haven't had CP, get the varicella vaccine. Kids get a much milder illness.
sarge43
(28,945 posts)sometime during your schooling, you probably did contact someone(s) who has the virus.
Shingles is a nasty condition. Some people just get an itchy rash; others have been blinded or suffered nerve damage.
moonscape
(4,673 posts)up blind. If I recall, it took out her optic nerve. Then, a week or so later, she went to ER thinking she had a detached retina in her good eye because the odds of both eyes being affected was something crazy like 10mil:1 ... Had they given her acyclovir in the ER she would probably have kept her sight in the 2nd eye, but they dx'ed it as harmless w/out calling an opthamologist.
Serious stuff, shingles.
CountAllVotes
(20,878 posts)And woah did he ever get hit with a SEVERE case of the shingles! It has left him blind in one eye, hearing is about half gone and he never got the vaccine.
He was never exposed to the chicken pox or the measles as he grew up in a very rural area and did not attend school after the 4th grade, hence no known exposure at that time (c. 1940).
He comes from a family of 10 children and they are all in the same boat. None of them have caught the shingles other than him.
In hindsight, I am thinking maybe the vaccine could have helped him. However, he has yet to find a doctor that believes that he never had the chicken pox despite the FACT that none of the other kids in his family had them either to their best recollection(s).
It is a giant to us in this issue as we can never get beyond step #1 -- not having ever had chicken pox. I have heard they can test you to find out if you have been exposed to the chicken pox but I am not certain (?).
So, now we have our chicken pox deniers out there!
Ask your doctor and see what sort of an answer you get!
Best of luck!
TexasBushwhacker
(20,219 posts)Believe me, if he didn't get it as a kid, he does NOT want to get it as an adult. He would get the blisters EVERYWHERE; all over his body, inside his mouth and rectum.
CountAllVotes
(20,878 posts)He was drafted into one of our many wars. I'm sure the Army took good care of him (ha!).
TexasBushwhacker
(20,219 posts)I'm 60 and I never got it.
CountAllVotes
(20,878 posts)He was discharged in the early 1960s so too long ago to have been vaccinated it seems.
Runningdawg
(4,522 posts)Hubby got shingles for the first time when he was 19, he has had a dozen outbreaks over the years. I believe the reported side effects: pain at injection site and a headache are much preferable to writhing in pain wondering when I might go blind.
It was covered 100% by my insurance and injected by a pharmacist, thus no need to miss work and make a co-pay.
IF you meet the criteria I suggest you get it done ASAP, before you have your first outbreak and before its once again labeled a pre-existing condition.
CountAllVotes
(20,878 posts)They said I had to wait and allow it to "cool down" for awhile.
When I told them I have MS they told me to "forget it, it is not an option for you".
So it is "not an option" for me is what they say. If it was an option, I'm sure they would have given it to me as they'd like all of the money they get for it.
Best advice is to grill YOUR doctor/care provider. Every one is different.
Runningdawg
(4,522 posts)said "IF you meet the criteria" you clearly do not. If it had been an option, I bet you would have taken it and not complained about who profited.
CountAllVotes
(20,878 posts)I tend to not get vaccines, I will admit it. Never had a flu shot in my entire life btw. The shingles vaccine is not a guarantee that you will not get shingles. I was told this by the provider I go to and said provider said that he'd seen people get the shingles that had the vaccine so -- IMO.
Fla Dem
(23,765 posts)Of course even with that, there is no telling how many of the 51% that got the vaccine wouldn't have gotten shingles anyway. But what it does say is if you get the vaccine, your symptoms would be less than if you hadn't gotten it. So when I saw what members of my family went through when they got shingles, I decided a 51% rate was better than 0%, and if I did get shingles the effects would be lessened. In your case you really didn't have any chance to make that decision. I'm sorry to hear you are dealing with MS. I hope all is well with you.
CountAllVotes
(20,878 posts)Last edited Sun Mar 19, 2017, 05:16 PM - Edit history (1)
Believe me, I appreciate it.
It is not easy living in a world that hates the disabled! I went to the retired workers Union Xmas party and was questioned as to why I was retired at such a "young age" (I am 61) and was told that MS "can be a problem for some people" ... yeah right idiot is what I wanted to say but I put on my ignore glasses.
But, I look so damn good you'd never know that I have MS if you ignore the cane, the staggering and the darkened glasses required as I am losing my eyesight slowly due to repetitive attacks of optic neuritis! There are so many people that prejudge the disabled and are so very ignorant. They think MS is the Jerry Lewis disease that they have a telethon for which is muscular dystrophy not multiple sclerosis. It is a difficult life to live believe me and not one I'd wish on anyone.
Thank you again!
Skittles
(153,199 posts)Lars39
(26,116 posts)I got one so my ins co would pay for it.
applegrove
(118,807 posts)can you ever get it again?
truebluegreen
(9,033 posts)Living proof.
applegrove
(118,807 posts)No blisters, just the rash along the nerve pattern on my hip. The vaccine does not sound like fun either.
truebluegreen
(9,033 posts)Obviously I have no idea if it helped / moderated the effects. I had a 5-6" band around my right side from my sternum to my spine; lasted 6 months, nerve pain persisted for more than a year.
I thought that having had it once I wouldn't get it again but I did. Luckily much less severe. Didn't have the vaccine that time.
To be fair it is very rare to get it more than once, particularly so soon (3 years). I blame my depleted immune system...which I blame on my whacked out endocrine system and the health challenging environment where I live.
applegrove
(118,807 posts)truebluegreen
(9,033 posts)and if you've had it once....
I'd have given a lot not to have it the first time, I will say that! I have a high pain threshold but it got my attention bigly.
csziggy
(34,138 posts)I've had it resident in my left hand for about 45 years. It's a variant that dentists used to get from oral herpes in patients. I got it from a cuticle cut while putting rubber bands on my braces.
For years before there was a test for the virus, my doctor thought I had some kind of antibiotic resistant infection. Over the years it traveled up my finger and has now settled into the web of my thumb. About ten years ago my new doctor recognized what it was and had the place tested for the herpes virus - I came up positive.
Now when I feel that tingling in my nerves at the site, I start taking valcyclovir which shortcuts the flare-up. Without the anti-viral, it would be two weeks or of agony at that spot on my hand - felt like a lit cigarette was being held against it for as long as the flare-up lasted. I keep a bottle of the anti-viral in my freezer at all times - I've been in situations where I had to argue a practitioner at a walk-in clinic into prescribing it and had to wait to get it filled. The delay caused a much more intense flare up than starting the medicine as soon as I felt the first indication.
I've had the shingles vaccine - it did not stop further flare-ups. It may be that it is not the right herpes virus. Or that the virus is too well ensconced in the nerves and my immune system cannot deal with it. The flare-ups since the vaccination do seem to be shorter and less intense - or I could just be catching them earlier with the anti-virus.
I just know that if there is a chance a different vaccination for it could stop it I would. I worry about getting a full blown shingles event. As painful as the single point one is, a wider spread one would be horrendous.
Get the vaccination if you can. And see if you can get the valcyclovir (that's the generic name) to have on hand just in case. Talk over with your doctor what the best choice for you is.
applegrove
(118,807 posts)csziggy
(34,138 posts)If not, maybe that WAS the chicken pox?
I still say - talk to your doctor about the vaccination. Shingles is extremely painful and can last for a long time. ANYTHING you can do to reduce your chances of a recurrence is worth it, in my opnion!
applegrove
(118,807 posts)painful if touched. Rash looked like a river delta. I'm pretty sure I had chicken pox as a kid. My mom was a family doctor. Despite the fact she washed her hands so often every day her hands were terribly dry, she did bring home the odd illness. We got everything.
Mosby
(16,365 posts)Is to get treatment asap.
I got shingles on my forehead, because it looked just like HSV2 I started taking my acyclovir right away, about 1200mg per day.
By the time I got to the Dr the blisters were already healing up, I never experienced any nerve pain whatsoever, maybe a little itching.
Honestly if you think you have shingles I would ask around and get some pills from someone until you get to the Dr. The typical dose for shingles is 1600mg per day, two 800mg pills. For HSV2 the typical pill is 200mg, but some are 400mg. The drug is very benign, and the dosing is kind of a guessing game.
The Velveteen Ocelot
(115,869 posts)No side effects. I ended up paying a little over $100 at Walgreen's, which was less than half the full price of about $240 - my Medicare supplement covered the difference. Lately it's become even more expensive than the cited article reports; the Walgreen's pharmacist said that some doctors' offices charge as much as $400 now. She agreed that the vaccine should be treated like a preventative service and not a prescription drug, but Medicare hasn't "caught up."
Still, after reading nolabear's tale of woe, I probably would have paid the full price if I'd had to, considering how awful shingles sounds. Many thanks to Nolabear and everybody else who shared their experiences.
CountAllVotes
(20,878 posts)Walgreens was the company that told me they would NOT give me this vaccine and that I should NEVER consider getting it being I have it active in my system and have a compromised immune system, it is a definite NO.
The Velveteen Ocelot
(115,869 posts)Since Walgreen's is just a drugstore, they are probably very cautious about the whole thing because of possible liability if someone has a bad reaction. I had to fill out a questionnaire about previous relevant illnesses, conditions and allergies, of which I have none at all, so the pharmacist who administered it said I shouldn't have any problems. You might want to talk to an M.D. for more detailed information.
CountAllVotes
(20,878 posts)and was again clearly told NO.
LeftInTX
(25,563 posts)I had shingles when I was pregnant in 1990. It was just awful. My husband had it on his scalp.
I'm 60 now and see my doc in April.
doc03
(35,382 posts)about getting the vaccine and all I could get is it wouldn't hurt. He wouldn't say
if I should or shouldn't just it wouldn't hurt. If you only get it if you have had CP
why not say no it would be a waste. If you never had CP and it is only 50% effective anyway
I can't see the point in taking the risk and expense of the shot.
OldEurope
(1,273 posts)That is wrong.
I had cp when I was seven years old, left two scars in my face to date. When my children had it, I didn't mind. But three years later, when I was 40, I got cow pox a second time. My doctor told me that this is not completely unheard of but in most cases the patients get shingles instead. Which you also could get twice if you lived long enough.
We had a terrible year with my father-in-law dying and my husband beeing very ill with kidney problems and bowel cancer and other very stressful things with family and my new job. So when finally my husband returned home and everything was alright again, and I felt the burdens falling off my shoulders - I caught the first desease that crossed my way. Lasted only three weeks but was the worst nightmare I had to endure in my nearly 60 years. You don't die from cp, not even as an adult - but I swear at some point I felt like I'd prefer dying to standing that sickness any longer.
Stay safe and get that vaccine if you doctor is recommending it!
gopiscrap
(23,765 posts)I will need to hear it again when I turn 60 in a few years
Hokie
(4,288 posts)I paid over $200 for mine at Kroger. It shocked the crap out of me when they told me the cost. I had just gone on Medicare Part D and off my employer prescription plan.
My older brother suffered from shingles so I knew it's not something to mess around with.
still_one
(92,422 posts)HockeyMom
(14,337 posts)right after a repeat Hip Replacement at 64. He asked his doctor for a 2nd vaccination afterward, but his doctor would not give it to him. His doctor said it is only about 80% effective the first shot, and less than 10% once a person has had Shingles.
Young people. My 32 year old SIL had Shingles right after the birth of his First Child who had Colic. He said he had a itchy rash on his back. I looked at it and told him it looked like what my husband had. Shingles. His doctor confirmed it, and said just wear a shirt when holding his baby.
My daughter's 34 year old friend got Shingles a few weeks before her wedding. Shingles vaccination is not recommended for people under 50, and insurance will not pay for it. Medicare will not pay for the vaccine unless a person has Part D, and then it is not Free like Flu Shots under Part B.
While the common factor for all of these people was Chicken Pox, Old Age and Vaccination weren't. All were stressed out when they came down with Shingles. Stress cannot make you sick?
kairos12
(12,875 posts)Bucky
(54,074 posts)I can't believe they make you wait till age 60. Since I disclosed it, two of my friends, both in their mid-40s, told me they've had it too.
BTW, $190 is a huge price for a vaccine. Frankly, it was cheaper to just treat the symptoms.
JCMach1
(27,574 posts)My mom had this in her 60's. Luckily, she survived with only hearing loss in one ear as permanent damage.