Health
Related: About this forumFollowing up: Returned home yesterday from Johns Hopkins Baltimore after test to confirm reason
for my unsteady gait, years ago diagnosed as hydrocephalus, in which fluid accumulates in the brain.
'Long' story short, had spinal tap Wednesday morning, NO PROBLEM, NOPAIN, with before and after physical therapy (and woke up yesterday and walking around home today.) Looks like it's CERTAIN, woke up ready to shoot hoops (tho I've never done that!!! LOL!) so I expect to hear 'official' confirmation from the neuro team in a few weeks, paving the way for resolution! (which, holds breath) means/suggests insertion of a shunt in brain after hole 'drilled' to enable continual drainage of fluid so little if any accumulation, so MORE hoops!
That's all folks! (except, daughter who lives in NJ drove down to be with me. She's an occupational therapist so useful experience. My other daughter, who lives near me, had her own Dr. Appt. yesterday, so couldn't accompany me (which was a good thing 'cause the 'girls,' adult parents of youngsters themselves, don't speak to each other. I may have to knock some heads together later (joke?) but sadly I think there are unresolvable problems in this respect.
Staff @ Hopkins is SUPER!
More LATER in February.
blm
(113,069 posts)question everything
(47,488 posts)Phoenix61
(17,006 posts)Great medical care is, well, GREAT!
gademocrat7
(10,661 posts)Walleye
(31,028 posts)fierywoman
(7,686 posts)Will be thinking of you, hoping, praying and sending light
yorkster
(1,497 posts)Dale in Laurel MD
(698 posts)almost 50 years ago now, I was employed in the nursing division at Hopkins.
Unless things have really slipped in the meantime, you're in the best hands in the world!
elleng
(130,980 posts)elleng
(130,980 posts)Freethinker65
(10,024 posts)elleng
(130,980 posts)I suspect I've had it for a LONG time, has gotten progressively worse, and as otherwise healthy, with 4 young grands and @ age 78, I've decided to make the most of my life.
CousinIT
(9,247 posts)....and the shunt works so you can get back to normal!
ancianita
(36,107 posts)judesedit
(4,439 posts)Hope it's resolved quickly, so we can continue to enjoy your photos. Keep us posted.
Duncanpup
(12,863 posts)Solly Mack
(90,775 posts)My sister had a shunt inserted to drain fluid from her brain years ago and it all worked out. Hoping the same for you.
multigraincracker
(32,690 posts)Doctors are doing a much better job for me now that I ask if my private nurse can come in with me. Also, my new wife.
MLAA
(17,300 posts)I was there in 2003 when I gave my mom a kidney. Oddly enough we werent a match but Hopkins pioneered a process to do transplants between non matches. She got an extra good 10 years 🙂. The Drs, Nurses and staff were all amazing.
You are in GREAT hands!
They're doing so many experiments. I agreed they may use my spinal fluid and blood for several different studies.
DeeDeeNY
(3,355 posts)alwaysinasnit
(5,066 posts)BittyJenkins
(411 posts)you and good luck.
My mom had to have tubes inserted to drain her spinal fluid and she did fine. You didnt know she had them unless you touched her scalp. She had mighty thick hair so it was hard to feel them if you tried.
So glad they can fix your problem.
♥️
CaptainTruth
(6,594 posts)I mean, better than literally "a hole in the head"? Drugs, maybe?
Best of luck!!!
elleng
(130,980 posts)I agree, hole in the head has kept me from rushing into this, but daily life becoming more burdensome, so wanna minimize it as much as possible.
CaptainTruth
(6,594 posts)I just hope it's not too bad for you.
You will be in our thoughts!
elleng
(130,980 posts)Come Onna My House, and let's PARTY, ALL! (tho draining of fluid will be gradual.)
Note the Hirschfield sketch, and know who is Rosemary Clooney's SON???!!!
blm
(113,069 posts)ShazzieB
(16,426 posts)Familiar enough to be able to state unequivocally that surgery is the best and only way to treat it. You have to get that excess fluid out of there, and the only way to do that is to install a shunt to drain it away from the brain to another part of the body where it can be safely absorbed.
Fortunately, this is a relatively short and uncomplicated surgery and one that doctors have had plenty of experience with. They've been doing it on babies born with hydrocephalus for decades with great success, and I'm pretty sure that doing it on a full grown adult would be a snap by comparison.
Having it done in a world class hospital like Johns Hopkins is just about the best case scenario anyone could ask for. I'm sure elleng is going to be just fine!
More info: https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/cerebral-fluid/procedures/shunts.html
elleng
(130,980 posts)ShazzieB
(16,426 posts)I see we were posting at the same time.
malthaussen
(17,205 posts)elleng
(130,980 posts)crickets
(25,981 posts)pandr32
(11,594 posts)I'm so glad that it has been sorted out for you. Best wishes for more shooting hoops for as long as you want to shoot them.
ShazzieB
(16,426 posts)I know contemplating and going through surgery can be scary, but from what I know, this is actually a pretty short, relatively simple procedure, and it should greatly improve your quality of life. Maybe trying to focus on the benefits you're going to get from this will help you get through it. Easier said than done, I know, but that's my suggestion, fwiw.
Keep us posted so we can hold you in our thoughts and prayers when the time comes.
TygrBright
(20,762 posts)babylonsister
(171,075 posts)Had no idea you were going through this. I've found, the older I get, it's ALWAYS something!
Glad you went to the experts; seems the shunt will solve all your woes, and I just bet those docs have a bit of practice inserting them.
Hang in there, my friend!
elleng
(130,980 posts)SheltieLover
(57,073 posts)elleng
(130,980 posts)with whom I first met and who last week did the Spinal Puncture, just CALLED me, to find out how I felt the day after the puncture, and how I'm feeling now.
We have a scheduled tele-appointment Tuesday, and will follow up thereafter.