Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

a kennedy

(31,779 posts)
Sat May 4, 2024, 04:22 PM May 2024

We don't have a dementia or death group........I think we should have both, JMHO

as my husband of 44 years did die of late term dementia today. Had the damn disease for about 4 years, he died this morning at 9:15 or so……I missed his passing by 15 minutes. We all knew it was coming, he hadn’t eaten or really drank anything for 3 days or so. I felt so lucky to at least feel the cooling of his body. Was at least there for that. Funny how you can feel the warmth of his alive body pass into the cold of his death. I have been missing him for at least the last year or so. He forgot a ton of stuff and I couldn’t carry on a conversation with him for a long time. It’s just so sad what that damn disease does to a person. I’m alone now for real without him. He was mentally gone but his death is so permanent and total now.

22 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
We don't have a dementia or death group........I think we should have both, JMHO (Original Post) a kennedy May 2024 OP
There are bereavement, Elder caregivers, end of life issues and senior forums. NewHendoLib May 2024 #1
I am so sorry. BoomaofBandM May 2024 #2
I'm so very sorry for your loss. Biophilic May 2024 #3
Im so sorry snowybirdie May 2024 #4
So sorry for your loss WA-03 Democrat May 2024 #5
I'm so very sorry for your loss. It's an awful disease. There is a bereavement group here onecaliberal May 2024 #6
I am so sorry XanaDUer2 May 2024 #7
So sorry for your loss, a kennedy.💙 sheshe2 May 2024 #8
I am so very sorry for your loss. Dem2theMax May 2024 #9
I am so sorry for your husband's passing, and for the sorrow you've lived with for 4 years. Fla Dem May 2024 #10
Sending love, light and peace to you and your family. So sorry for the loss of your husband. japple May 2024 #11
Hugs DU friend AKwannabe May 2024 #12
My sincere condolences. yobrault1 May 2024 #13
I think the bereavement group is probably the best one for you right now Warpy May 2024 #14
Very sorry for your loss. Joinfortmill May 2024 #15
So sorry. Lost my mother to the same disease. surfered May 2024 #16
I am so so sorry for your great loss irisblue May 2024 #17
I'm very sorry. May the memory of happier times relieve your grief. NNadir May 2024 #18
Sending hugs Wild blueberry May 2024 #19
I told the DU several years ago I have FTD Omaha Steve May 2024 #20
I'm so sorry for your losses - both as you lost him to dementia and now. phylny May 2024 #21
so sorry for your loss... markie May 2024 #22

snowybirdie

(5,551 posts)
4. Im so sorry
Sat May 4, 2024, 04:45 PM
May 2024

May you be at peace soon. We're at the beginning of this journey. Your fortitude gives me hope.

WA-03 Democrat

(3,257 posts)
5. So sorry for your loss
Sat May 4, 2024, 04:47 PM
May 2024

Most folks know or have someone close in their life and are dealing with these issues. Dementia is bitch. It would be good to have both groups!

onecaliberal

(35,396 posts)
6. I'm so very sorry for your loss. It's an awful disease. There is a bereavement group here
Sat May 4, 2024, 04:58 PM
May 2024

Peaceful vibes to you.

Fla Dem

(25,511 posts)
10. I am so sorry for your husband's passing, and for the sorrow you've lived with for 4 years.
Sat May 4, 2024, 06:37 PM
May 2024

May peace now be with you.

japple

(10,267 posts)
11. Sending love, light and peace to you and your family. So sorry for the loss of your husband.
Sat May 4, 2024, 06:39 PM
May 2024

I am living thru this now with my sister and it is, as you said, so sad what this disease does to a person. You are not alone, though. We are here for you and with you.

Warpy

(113,021 posts)
14. I think the bereavement group is probably the best one for you right now
Sat May 4, 2024, 07:01 PM
May 2024

but I agree we need a dementia group for both caregivers and for people in the early stages who are coping the best they can.

Joinfortmill

(16,136 posts)
15. Very sorry for your loss.
Sat May 4, 2024, 07:09 PM
May 2024

If it isn't impertinent to say, he is likely still with you. At least that has been my experience with some of my deceased loved ones.

Wild blueberry

(7,110 posts)
19. Sending hugs
Sat May 4, 2024, 07:24 PM
May 2024

Hard to lose him twice. May his memory be a blessing and may you--after a while--begin to remember him as he was.
For now, please take good care of yourself and accept help and love from friends and loved ones.

Omaha Steve

(102,995 posts)
20. I told the DU several years ago I have FTD
Sat May 4, 2024, 07:26 PM
May 2024

I'm on Trazodone. Research in Europe shows it slows the advance of FTD.

https://www.theaftd.org/

I am sorry for your loss.

OS

markie

(22,848 posts)
22. so sorry for your loss...
Sat May 4, 2024, 08:41 PM
May 2024

Yes, caregiving and/or having a loved one with dementia is difficult... I was a caregiver for years... one being my father with dementia... it helps tremendously to have people to talk to

Latest Discussions»Issue Forums»Health»We don't have a dementia ...