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a kennedy

(30,554 posts)
Sat May 4, 2024, 04:22 PM May 4

We don't have a dementia or death group........I think we should have both, JMHO

as my husband of 44 years did die of late term dementia today. Had the damn disease for about 4 years, he died this morning at 9:15 or so……I missed his passing by 15 minutes. We all knew it was coming, he hadn’t eaten or really drank anything for 3 days or so. I felt so lucky to at least feel the cooling of his body. Was at least there for that. Funny how you can feel the warmth of his alive body pass into the cold of his death. I have been missing him for at least the last year or so. He forgot a ton of stuff and I couldn’t carry on a conversation with him for a long time. It’s just so sad what that damn disease does to a person. I’m alone now for real without him. He was mentally gone but his death is so permanent and total now.

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We don't have a dementia or death group........I think we should have both, JMHO (Original Post) a kennedy May 4 OP
There are bereavement, Elder caregivers, end of life issues and senior forums. NewHendoLib May 4 #1
I am so sorry. BoomaofBandM May 4 #2
I'm so very sorry for your loss. Biophilic May 4 #3
Im so sorry snowybirdie May 4 #4
So sorry for your loss WA-03 Democrat May 4 #5
I'm so very sorry for your loss. It's an awful disease. There is a bereavement group here onecaliberal May 4 #6
I am so sorry XanaDUer2 May 4 #7
So sorry for your loss, a kennedy.💙 sheshe2 May 4 #8
I am so very sorry for your loss. Dem2theMax May 4 #9
I am so sorry for your husband's passing, and for the sorrow you've lived with for 4 years. Fla Dem May 4 #10
Sending love, light and peace to you and your family. So sorry for the loss of your husband. japple May 4 #11
Hugs DU friend AKwannabe May 4 #12
My sincere condolences. yobrault1 May 4 #13
I think the bereavement group is probably the best one for you right now Warpy May 4 #14
Very sorry for your loss. Joinfortmill May 4 #15
So sorry. Lost my mother to the same disease. surfered May 4 #16
I am so so sorry for your great loss irisblue May 4 #17
I'm very sorry. May the memory of happier times relieve your grief. NNadir May 4 #18
Sending hugs Wild blueberry May 4 #19
I told the DU several years ago I have FTD Omaha Steve May 4 #20
I'm so sorry for your losses - both as you lost him to dementia and now. phylny May 4 #21
so sorry for your loss... markie May 4 #22

WA-03 Democrat

(3,198 posts)
5. So sorry for your loss
Sat May 4, 2024, 04:47 PM
May 4

Most folks know or have someone close in their life and are dealing with these issues. Dementia is bitch. It would be good to have both groups!

onecaliberal

(34,287 posts)
6. I'm so very sorry for your loss. It's an awful disease. There is a bereavement group here
Sat May 4, 2024, 04:58 PM
May 4

Peaceful vibes to you.

Fla Dem

(24,546 posts)
10. I am so sorry for your husband's passing, and for the sorrow you've lived with for 4 years.
Sat May 4, 2024, 06:37 PM
May 4

May peace now be with you.

japple

(10,088 posts)
11. Sending love, light and peace to you and your family. So sorry for the loss of your husband.
Sat May 4, 2024, 06:39 PM
May 4

I am living thru this now with my sister and it is, as you said, so sad what this disease does to a person. You are not alone, though. We are here for you and with you.

Warpy

(112,196 posts)
14. I think the bereavement group is probably the best one for you right now
Sat May 4, 2024, 07:01 PM
May 4

but I agree we need a dementia group for both caregivers and for people in the early stages who are coping the best they can.

Joinfortmill

(15,215 posts)
15. Very sorry for your loss.
Sat May 4, 2024, 07:09 PM
May 4

If it isn't impertinent to say, he is likely still with you. At least that has been my experience with some of my deceased loved ones.

Wild blueberry

(6,866 posts)
19. Sending hugs
Sat May 4, 2024, 07:24 PM
May 4

Hard to lose him twice. May his memory be a blessing and may you--after a while--begin to remember him as he was.
For now, please take good care of yourself and accept help and love from friends and loved ones.

Omaha Steve

(101,212 posts)
20. I told the DU several years ago I have FTD
Sat May 4, 2024, 07:26 PM
May 4

I'm on Trazodone. Research in Europe shows it slows the advance of FTD.

https://www.theaftd.org/

I am sorry for your loss.

OS

markie

(22,765 posts)
22. so sorry for your loss...
Sat May 4, 2024, 08:41 PM
May 4

Yes, caregiving and/or having a loved one with dementia is difficult... I was a caregiver for years... one being my father with dementia... it helps tremendously to have people to talk to

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