Best of luck to everyone, past or future of this forum, this is a special club that nobody wants to

[slipslidingaway]

join

But we cannot alter history, all we can do is take another step forward and hope to be here a year or longer from now.

After 14 years on DU the love that everyone has shown on this forum will be missed, step by step we move forward!

[Solly Mack]

1. Thank you and everyone in the group for their support and caring!

((slipslidingaway))

[slipslidingaway]

2. Thanks Solly Mack, always appreciated reading your posts!

Hope you are doing well, cancer sure does change our lives!

May not be around very much after next week so wanted to wish everyone here the very best!!! This is the only forum I will truly miss!

[alfredo]

3. i hate the thought of losing anyone from this group.

May the rest of your journey be enveloped in love.

[slipslidingaway]

5. Thanks alfredo ...

that means so much, especially since I was waiting on test results today for an ovarian cyst, but the tumor markers look OK so just a follow up in six months. Lucky day today

So good numbers last week for my husband and good numbers today, we are fortunate and taking each day as it comes.

[alfredo]

7. That's so good. You do your happy dance?

[slipslidingaway]

9. Definitely!!!! :) nt

[alfredo]

10. My happy dance is cut short with coughing, hacking, and light-headedness.

It's the joy that counts.

[PennyK]

4. This thread is going away?

What did I miss?

[slipslidingaway]

6. No and sorry to mislead, I will not be frequenting this site as often and wanted to wish everyone ..

the best outcome possible!!!

One step at a time

We had a six plus hour lunch in NYC yesterday with people we met at Hope Lodge in NYC last year, they live in Florida and spent 21 months in NYC, bouncing between Columbia, Sloan, ultimately Cornell who did her transplant.

She is doing wonderful and her check up today with the transplant doc went great. This might all be Greek to some (each cancer has unique characteristics that we cannot understand) but she had a haplo (basically a half match/sibling/parent) and one baby cord at Cornell.

Normally when you have a haplo and cord/or cords transplant they look for the cord to take over, but the cord failed in this instance and the haplo (her brother) took over.

Long story short, and not the normal outcome, but so far so good and not the worst outcome IMHO. If the transplant begins to fail her brother can still give additional cells. If the cord fails it is more difficult because you need to introduce another immune system into the mix, it becomes very complicated.

We keep in touch with three couples from my husband's two transplants, one person has not survived

This is all interesting, but wish we had no knowledge of leukemia and rare lymphomas.

Science is advancing, in the bone marrow transplant world, we are very much guinea pigs, as with other cancers, we are all on one trial or another.

But we march forward.

So best of luck to all!!!!

[PennyK]

8. Thanks, and Yay!

I wish you and your Hubber the very best.
Me, I'm countin' the days until my chemo ends. Then mastectomy and all that goes with that. I actually feel lucky that I avoided the lung cancer or other pulmonary issues my family of smokers are prone to...so glad I switched to an e-cig.

[alfredo]

11. Chemo is so much fun. I like what it to the veins in my arms. Even with the inconveniences,

it is so good to remain above room temperature.

Migrate away from those e-cigs when willing and able. They pose an unacceptable fire and explosion hazard. They give no warning before exploding.
http://www.nbcnews.com/business/consumer/what-s-causing-some-e-cigarette-batteries-explode-n533516

[PennyK]

12. I think I use a safe one

The ones that explode are the "mods," the kind with a big freaky battery that is unregulated. I use a very simple all-in-one. Some other explosion incidents were when people didn't charge them correctly.

[alfredo]

13. I have family that vapes. They are trying to quit vaping.

Last edited Thu Jun 16, 2016, 12:19 PM - Edit history (1)

A cancer death scared them into quitting

[PennyK]

14. Is this a Dracula joke?

But seriously, folks, I feel so much better since I switched. So I'm using nicotine. It may constrict blood vessels, but cancer, nope. Before surgery, I will switch to zero-nic juice.

[alfredo]

15. Yeah, you want to give yourself every advantage

[PennyK]

16. I never thought I'd be able to quit

I smoked, starting in my teens, and continued for over forty years. My mother, also a smoker, developed emphysema...her dad died of lung cancer at 57. In 2014, I wanted to have elective surgery, but the doctor told me I would have to stop smoking, at least for a while. Then a neighbor suggested I try the e-cig. Never thought it would work, but it did! It took me four or five days to make the switch, and I have never gone back. Brilliant device!
When necessary for a medical procedure, I switch to nicotine-free liquid.
I use liquid from several reputable companies, all made in USA, and all transparent as to ingredients. All fruity, minty flavors, never cigarette flavor. It's made of propylene glycol, vegetable glycerin, flavorings, and nicotine. Hoping that the USDA's strict regulations don't mean that all my flavors will be banned.
And I feel so much better! No more coughing and phlegm, my breathing is better...and my singing voice came back! All my recent tests, and I had many before chemo started, showed perfect lungs.

[alfredo]

17. That's good. I had to quit coffee because the caffeine dries my mouth.

I have not had coffee or tea since late February. I haven't had chocolate since then too.

I was drinking four cups of coffee, and a couple cups of green or black tea.

BTW, I used to smoke 3 packs of cigarettes a day. I got sick and decided to go cold turkey. I piggybacked the withdrawal misery on the bad cold misery. It worked. That was in 1973.