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In reply to the discussion: Group hug needed [View all]

Liberty Belle

(9,535 posts)
52. Updates on Mom
Sat Feb 27, 2021, 09:01 PM
Feb 2021

Some good news: She was able to walk 10 steps today with a walker and a lot of coaxing. So she may be able to get strong enough to not be bedridden. That's after days of refusing to try and take a step. She is due to get her second COVID shot today, too.

The 24/7 caregiver sitter aka "spy" we hired has been worth the money though we can't afford it much longer. She can translate when we talk to Mom through the window, and alerted us to a possible bowel obstruction that's causing Mom pain every time she has to go, which apparently is about every 15 minutes during the daytime; enemas and laxatives haven't helped so the doctor finally ordered a scan.

Mom is relatively lucid though with zero short term memory.

They moved her to a room in front of the nursing station, with a pad by the bed to lessen the chance of injury if she tries to get up on her own.

I am hoping if she can start walking and get the bowel pain solved, which is the reason she keeps trying to get up and go to the bathroom, maybe she can sleep through the night and we can scale back the number of hours the sitter has to be there, until we can come up with a better long term scenario.

She is in quarantine for another 9 days; after that she can go into the main rehab facility where there's equipment like stationary bikes to help her get stronger. Right now she can only have physical therapy in the room, which is limited.

She is still eating very little, and would probably eat nothing if not for the sitter. I think even if Mom is doing better on other things I would still hire her 5 hours a day (the minimum) for a little longer to help coax her to eat and drink, and translate for our daily visits (ie talk loudly into Mom's ear so she knows what we say to her)

The money is still an an enormous concern. Maybe I should go buy a lottery ticket; there seems to be no other way to afford the care she really needs.

Damn to hell the bastard Republicans who have blocked universal healthcare for all, which is what we sorely need.

Group hug needed [View all] Liberty Belle Feb 2021 OP
. applegrove Feb 2021 #1
I'm so sorry you and your mom are having such a tough time. Ocelot II Feb 2021 #2
I am so sorry to hear about all your troubles. raging moderate Feb 2021 #3
Talk to her doctor about getting a referral for Phoenix61 Feb 2021 #4
Hospice would be good but today Mom was totally lucid when talking to the doctor Liberty Belle Feb 2021 #10
The 6month thing isn't a rule which surprised me. Phoenix61 Feb 2021 #40
I understand some of what you are going through. Delmette2.0 Feb 2021 #43
Hug thinkingagain Feb 2021 #5
Wow, I am so sorry that you have so much on your plate right now Rhiannon12866 Feb 2021 #6
My heart cries for you tonight. I said prayers. ❤ sprinkleeninow Feb 2021 #7
I'm so sorry. summer_in_TX Feb 2021 #8
Good thought, that might work through the window. Liberty Belle Feb 2021 #12
Sending a massive hug laced heavily with strength and courage. Damn. Guilded Lilly Feb 2021 #9
Hugs given Gore1FL Feb 2021 #11
I am so sorry for your loss. sheshe2 Feb 2021 #13
Tough situation and I am so sorry for all that you are going through. Marie Marie Feb 2021 #14
Deep breaths... Be strong... Blue Owl Feb 2021 #15
Hugs for you. Ka-Dinh Oy Feb 2021 #16
Big Hug! ancianita Feb 2021 #17
So sorry. pazzyanne Feb 2021 #18
..... chillfactor Feb 2021 #19
I'm sorry LB. I feel like any rehab or LTC is terrible under COVID. AllyCat Feb 2021 #20
It's not as bad now, since residents of LTC facilities should be vaccinated by now. LisaL Feb 2021 #44
Still no visits in Wisconsin. AllyCat Feb 2021 #49
Outrageous. Call your legislators every single day until that changes. Liberty Belle Feb 2021 #53
... AKwannabe Feb 2021 #21
Sending 🙏 for your family's well-being Ponietz Feb 2021 #22
I lost my mom to dementia.......10 years before she died. Coventina Feb 2021 #23
My mother-in-law who had Alzheimer's was also on ALTCS. StarryNite Feb 2021 #24
Thanks, I don't think California has anything like this. I'd like to hear more Liberty Belle Feb 2021 #32
I was trying to find a good webpage for you Coventina Feb 2021 #34
I'm so sorry for all you are going through. StarryNite Feb 2021 #25
There is a program for veterans and spouses MyMission Feb 2021 #26
Praying for your mom. FuzzyRabbit Feb 2021 #27
Holding you in my heart... may strength find you and sustain you. n/t TygrBright Feb 2021 #28
Oh, I'm so very, very sorry. DarthDem Feb 2021 #29
Damn. mahina Feb 2021 #30
That's sweet of you. However Liberty Belle Feb 2021 #33
Sounds like a good plan. mahina Feb 2021 #36
Liberty Belle stage left Feb 2021 #31
I'm so so sorry... CaptainTruth Feb 2021 #35
... handmade34 Feb 2021 #37
Liberty Belle Hekate Feb 2021 #38
This is saddening to read and to know such situations exist... TreasonousBastard Feb 2021 #39
How totally stressful and sad for both you and your Mom. Fla Dem Feb 2021 #41
... Aristus Feb 2021 #42
Why did she cancel her long term care insurance? LisaL Feb 2021 #45
Yes, dementia, we are fighting it but no likely to win Liberty Belle Feb 2021 #51
I'm so sorry. hamsterjill Feb 2021 #46
... Nevilledog Feb 2021 #47
K & R - nt Ohio Joe Feb 2021 #48
Maybe set up a GoFundMe to help with the expenses. tblue37 Feb 2021 #50
She would need $250,000 for a year of round-the-clock care at home, Liberty Belle Feb 2021 #54
Updates on Mom Liberty Belle Feb 2021 #52
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